Dis Breast Cancer Survivors Part III - GAGWTA!

[wdw4us2]

Laurie - Great that you were able to get the reservations you wanted. Makes the trip much nicer.

Sha - Congrats on the weight loss! Nothing feels better than that. I'm just curious as to how we're going to recognize each other when we finally meet up at WDW. I look much different than the last time you saw me, and now you do too!

MaryAnn - You are much more forgiving with your DS than I would be. When my DS doesn't clean up after himself, I leave it until he returns and make him do it then when he's usually wanting to do something else. Usually works for a while and he's better about cleaning up after himself.

Candy - I'm sure you will miss your DD, but you'd better get used to it. Once my DD was in high school, she was going away constantly without us. I thought it would be good preparation for me for when she left for college, but I still miss her and she's been away at school for two years now.

I have been swimming since last Thursday - every day. So, I guess I need to wait five days after chemo before swimming. It's hard now that I have chemo every two weeks instead of every three like I've been doing all along. I also had to go see a Nephrologist last week because my oncologist was concerned about my hematicrit numbers. Just what I didn't want - another doctor to visit. Fortunately, he said it didn't appear that anything is wrong. It's just the residual effects from the Cisplatin. I also have to go to the oncologist the Monday after all of my chemos to get IV hydration. Not happy about that either, but it is what it is. Just tired of spending so much time at various medical appointments. At least I have a nice ride when I go to them!

Been busy making plans for our WDW trip next month for the Pin Celebration. We were able to get most of the ADRs we wanted at the times we want. I'm really looking forward to staying at Beach Club. This is the first time I'll be staying there that I'll feel comfortable in a bathing suit so I can finally experience Stormalong Bay! DS has promised to show me everything. He absolutely loves it there.

Lunch out with my best friend tomorrow, open house at DS's high school Thursday evening and then chemo on Friday. Busy week!

 

[Pea-n-Me]

Hi All,

Have been following along.

Love the car!! (DH had a Corvette and DS wants one! )

My car was hit on the way to work, currently in the shop. An elderly man with alcohol on his breath hit me.

Holding on to the last bit of summer here even though it's been rainy and chilly, I'm on vacation so we're just taking it easy. No trips. (Packing and unpacking for several trips this year did me in.)

Laurie, bite your tongue! it's not fall yet!

My DD and DS have grown up a lot this summer, I can hardly recognize either of them. It's been nice to just spend time with them in the pool and going out for ice cream, etc. I know that before I know it - well, we won't go there right now.

Have to head out soon, have a good day everyone!

GAGTWTA

 

[Sha]

I will look the same... just smaller. I look the same except not smaller compared to the pics that I posted on FB LOL

 

[snappy]

Awesome weight loss Sha. You inspire me!!!

Going on DH's diet plan effective tomorrow. He ordered enough for me for a week. The ladies at his clinic probably wondering about his increased appetite, lol.

Linda it is fall here. Leaves are falling off trees. Not pretty colors though, dead, lol

 

[Sha]

would love to see FALL!! My favorite time of year along with Christmas. May have to take a run up to the mountains to see some colors this fall.

 

[smiley_face2]

Hi ladies! safely home but have been swamped with grand kids, and I am seriously exhausted. Babysat 4 of them today, ages 1 through 7 and even though hubby was here, it wiped me right out. when I was talking to daughter on phone about how exhausted I was, and it was too much, hubby interupted to say how it was not that bad. I got upset and said he just doesn't get it, it's not like I've had a cold or flu, and it is unfair for him to second guess how I am feeling. He was even telling the 7 year old she could have a sleep over. I think my stoic attitude, and trying so hard to not give in to the tiredness or pain are not doing me any favors, and perhaps tomorrow is a day to be spent in bed, without any makeup on, just as a reminder. this was one of the main reasons I wanted to get away, because I knew if we stayed here for the 2 weeks, I would be getting requests to babysit everyday, and I am just not good at saying no. I think they think, because the chemo is over, I am all better and good to go. I start my radiation next wednesday and I am worried because if I'm this exhausted now, how will I be feeling then?
Once again I have to put off talking about my trip because it is way late and I need to get to sleep. but tomorrow, I will be in bed with the laptop, and will post about our adventures. One thing I will mention now, is I was always the one to harrass everyone else into being at the park at rope drop, and they always had to drag me out after closing...this time, we never hit the park before 8:30 and we only saw the fireworkd at 9:30 once, and World of Color at 9 once because the other nights I was in bed by that time! and a 2 hour rest in our room in the afternoon!! Oh....and I was very annoyed because hubby would not let me ride California screaming...he was too worried because I still have my porta cath in, and because I'd been haveing the irregular ECG's before we left. I did it for him, if it was me there by myself I would have ridden anyway!!

 

[snappy]

Good to see you post, Smilie.

I understand where you are coming from with your comment about being. You have been shielding your family from how hard the treatment has hit you. Part of it is a mechanism to protect your loved ones so they don't worry so much about you.

I think what you are experiencing happens more than we know. No sage advice. If you can, communicate clearly how you are feeling. my sister lives with long term chronic pain. She and her husband try to anticipate what different actitivies take out of her. But they do not have children or grandchildren. Your situation is much more difficult to navigate.

I like your idea of a day in bed to recuperate.

Hope we hear more about your trip when you are up to it.

I hope I don't come off too preachy. Believe me, I have much to learn. I had a horrible experience yesterday involving trying to get my windshield replaced. I feel like a moron for not recognizing an incompetent vendor when the red flags were there. Not dishonest, just incompetent. Once I talked the owners, I did not follow my instincts and run the other way.

Now I have to start at page one again.

At almost 58 I should be more savvy, and usually give myself credit for being that way.

I guess it is good to get that reality check every once in a while.

GAGWTA everyone.

 

[Pea-n-Me]

Smiley, please take care of yourself. You will be getting more exhausted with the radiation as well. This needs to be your time.

 

[snappy]

Smiley, please take care of yourself. You will be getting more exhausted with the radiation as well. This needs to be your time.

Never had radiation personally, but I think you should heed this advice.

 

[Candy30]

I 3rd that notion Be careful Smiley and take you rest when you need it. Whenever it is!!!

Lisa- We all sympathize with the doctor visits. But I Love your outlook on having a great ride there You have a busy week coming and I hope chemo doesn't goes well. I know I am trying to loosen those apron strings with my DD. Tryin'

LMP- My daughter is going to Virgin Gorda with my sister. She is going to Virginia with a long time friend of mine. She is best friends with her neice. Florida is a childhood friend of mine that moved to Florida. They were babies together and had play dates up until they moved when my DD was 4 and Her Daughter was 3. We have been trying to get them together and she came to visit her Grandmother who still lives here and they were able to Reconnect. They want to go back and forth. On the Friends break she will visit us for a few days in December.

SHA- Yo Momma!!! You go girl for losing the weight. I think the Sasha fierce is coming out girl. Hopefully thing will work out and you will get together with R for Reunion. That would be so cool.

PNM- Scary thought about your accident. I am thankful you weren't hurt.

I took off yesterday to take my daughter downtown for a dry run to her school. So I am swamped today.

GAGWTA to all and anyone I missed

 

[wdw4us2]

Sha - I loved the FB pics! I will have to get around to putting some of my own "back in the day" pics on there.

smiley - Happy to hear you enjoyed your trip. Not happy that you have been overdoing since you got home. The radiation will make you tired, but not right away. It's a cumulative thing. Watch out for burns near the end and make sure you have aloe and Aquaphor to take care of them.

Pea - Sorry to hear about your wreck. DD was in one two months ago. Not her fault, either. I hope they made your guy take a breathalyzer test.

Candy - Things will get even crazier after school starts!

Off to my friends house for lunch and an afternoon of watching movies.

 

[luvmarypoppins]

Good afternoon ladies

Linda - so sorry to hear about the accident, but so glad you are ok. Cars can be fixed, sometimes people cant. I too hope they did a breathalyzer on the guy. Hope you can try to enjoy your week off.

Sha - congrats on the weight loss. Sorry to hear about your Uncle. Sending my sympathies. Hoping your moms testing goes well, I should join FB to see your pics.

Candy - will your dd have a long commute into school each day?

Lisa - have a wonderful lunch with your friend today. Sorry you have to go for the extra drs. visit. But your definetely will win the award for the patient with the best ride!! Where did you make adrs for? I love the Beach Club too.

Laurie -so glad your got the place you wanted. Yes, you got us hooked on the Brown Derby too! We are going there one night and then seeing the Osborne Lights. Hope the festival plans work out. Good luck with the weight loss plan.

smiley - so glad you had a great trip. I agree with the resting too. I was so tired when we got back on Sunday. I am still recuperating and I am not even going through what you are right now. I agree that you should think of yourself and tell your family how youre feeling physically. YOU have to come FIRST right now. Everyone should try and understand that.

Well the dinner was nice. sat with my friend who has uterine cancer. She will have another ct scan next month. Her neuropathy is very bad she said.

My meeting yesterday was so stressfull. We never discussed the stuff we were suppose to. Oh well I will be prepared for next meeting. Laurie, I am feeling your budget pain right now. We have had to cut down to the bare bones for this upcoming school year and right now we have no bones left. Sadly we have to tell 3 teachers they will be let go, 1 class will be team taught and then we have to eliminate the 7th and 8th grade. Sadly around here, private school seems more like a luxury these days. I know that only by a miracle from God will we be able to have school after this academic year is over.

Dh trip got approved so he is leaving for China on Friday and will be back next sat. Just hope the ds dont drive me crazy. Ds21 is doing his finals today and tomm. He is stressed. Ds19 will start applying to nursing schools. I honestly dont know how he will get in. His worst grade is a C+ in Ant. 1 and he wanted to retake it but the class is full. All other required classs are As and Bs so far. His Plan B is to just get a bs in health science then apoly to nursing school. He heard at the state univ. its much easier that way. We shall see. Hmm, seems like all I do is pack and unpack the suitcase and laundry. Its like a groundhog movie day.

GTAGWTA.

 

[CherylDan]

Hi ladies.....I've been following along with you all, just not posting for some reason - my apologies, especially for all the times someone would let me know they were thinking of me. I've been doing much better the past few weeks, been off chemo for two months now. I'm afraid my little escape may soon be coming to an end though....I went yesterday for another CT scan, and see the oncologist next week to discuss the results and what to do about it. On one hand, I won't even let myself begin to hope that there won't be any negative changes, and on the other hand I just can't even think of returning to treatment already. Needless to say I am dreading the appt.

All of the Disney talk makes me wish I had an upcoming trip to plan! I'll just have to live vicariously through everyone. Got a bunch of Disney mail yesterday, the stuff about the food and wine festival looks like so much fun....never have been there during that time.

My DH returned to work this week. He teaches at the community college, and was home all summer. It was great! Every day was the weekend....so nice that he was able to be home, especially for when I was so sick. I was really glad to be feelin better the last few weeks he was off....LOL, we declared that we were acting like old people because we would go out for late lunch/early dinner every day, and the restaurants were always full of seniors.

I hope you all have a great evening....good thoughts to everyone dealing with treatment.

GAGWTA!!!!

 

[Sha]

headed to bed for a LONG day tomorrow! Will let you know anything if there is anything to know, but its all neurological stuff.

Hugs to Cheryl!!!!

And Maryann... YES you should

 

[luvmarypoppins]

Good afternoon ladies

Cheryl - so good to see you posting sista and so nice to hear you got to spend some good quality time with your dh. Must be fun for him to have summers off. Both my ds went to summer college classes. That was about eating with the seniors, Wishing you all the best at your appt. next week.

Sha - I hope your testing went well and that you can get the answers you need. Didnt understand your other comment to me.

Lisa - hope your chemo goes well today. That was good that you went to your ds open house. When dh and I went I think in one of the classes we were the only parents. But its good to know whats going on and to be informed.

Laurie - how is your new diet coming along?

Linda - Hmm, I didnt answer your question on the other thread. I know last week I saw ALOT of cornfields and some butterflies. I dont seek out nature but I can see where it does help with healing. Is this a nursing project you are doing for adjunct therapies? Hmm, does it count to say that dh and my least favorite disney resort is the Wlderness Lodge. I guess sometimes I would sit on the porch and look at the birds,squirrels etc. But it didnt make me actually feel any better. It was peaceful until the neighborhood kids start screaming. etc. But it did remind me to just take the time to slow down and enjoy the small things in life etc. I think the thing that calmed/comforted me most was christian music.

Well dh has left. Lets just say there was a whole lot of screaming going on before he left and him getting a cell phone at the last minute, since his supposedly was broken. He couldnt understand why I was so upset. Then when he went home he talked to ds21 and he started screaming at dh too. Lets just say it was not a pretty sight. It had to do with upgrades, not getting a good phone, not going to the right store etc. He promised to straighten all this out when he gets home. At this point I know it will not get straightened out and its just a mess. Suffice to say because of dh stupidity ds23 will not be getting a new phone which we promised him. Dh said he wants ds to buy it himself etc. So now dh has a useless as far as I am concerned phone. Dh refuses to text, wanted a blackberry (gets a clamshell like phone, no frills). All he wanted to do was take care of something without thinking. He does this alot. I have a headache.

And my #2 headache is ds19. He did manage to get into a class to retake the ap1, but its at the far away campus. The commute and gas alone would kill him and its at night in a dangerous area. I guess I am thinking I do have something to say about it because the classes are being paid with from money my sis left for them that I have to manage etc. So I want to use it wisely. etc. So his other option is to wait till spring to take it at the closer campus with a better professor. By then he will blow all the application stuff since most are due in Jan. I know he will have to make his own decisions, dh doesnt care and I think he will unfortunately have to blow another year. This will be ok as if he gets into the wait list for the univ. program which will take a C he will have to wait a year anyway.

Oh and ds23 told me he is going to Atlantic City sometime next week with some friends, So no rent, but he can do that? Well I guess he can buy his own phone then too, Hmm, kids dont ya just love em

OK. Thank you for letting me rant. Its going to be a long week.

GTAGWTA.

 

[snappy]

MaryAnn, hope you get a chance to chill this upcoming week. Today sounds like it was way too stressful. Not conducive to staying healthy.

My diet I think is going ok, thanks for asking. I know I won't drop the weight like DH has done. I cannot burn the calories he does.

It is an adjustment getting used to eating the pre packaged meals.

Have a nice weekend, everyone.

 

[luvmarypoppins]

Laurie - chilling out is a good idea, but in the it just keeps getting worse dept. dh has just called and said they cancelled his one flight, put him on another flight after giving his seat away. Worst is he does not have his suitcase. No one knows where it is. They told him to go and fill out a form when he gets to China.

He told them only army people are there then etc. So he then informs me God is punishing him from the phone incident before and the cell phone charger is in the suitcase and he usually puts a spare t shirt and underwear in his computer carry on and he didnt do that either. Oh well, I will pray as he asked, but this is his stress I guess.

I dont think them calling him Happy Buddha in Beijing and finding some very large sized underwear is going to go well.

 

[Sha]

Hope this helps Maryann:

Sha - Didnt understand your other comment to me.

Sha - I should join FB to see your pics.
GTAGWTA.

And Maryann... YES you should

Had a some skype time with R. even slept with it connected. Looks like I lost his video this morning of him. Couldn't see anyways but can still hear the house noises. Counting down the days until I see him. Also have a wedding to look forward to the weekend after our weekend at Disney. Think I am getting them a gift card to Disney since that is where they are going for their honeymoon. Be back.

 

[Candy30]

Hi Everyone,

Cheryl- Great to see you post anytime you do. Hang in there. I hope chemo doesn't have to start real soon.

Lisa- How are you feeling? How was chemo? I love your watching movies with your friend. I would do that with my Mom and we would watch old movies. Good bonding and good movies! How's Meg doing?

Sha- I remember talking to my hubby on the phone until we both fell asleep. So Cool. I love your gift idea for the soon to be newlyweds. How'd testing go? I am not on FB either. I have thought about it but it is too much for me. My DS is on there.

LMP-WOW what a day for you! I hope all goes well with your hubby's flight and suitcase! Yeah kids. They want to be grown but at YOUR expense! My DH always buys, buys for my son and I am the one wanting him to pay. The straw that broke my DH Camels back was when he discovered my DS bought tons of different bars for his piercings instead of buying a bus pass to go back and forth to school! Sometimes we have to be MEANIES.

Jacks Where are you girlfriend?!?!

Smiley- How are you feeling? Getting some energy back?

Patsmom- Hope you are doing well?

Snappy- Hope the weight melts off? Guys always lose faster than us

PNM- How goes the poo?

 

[wdw4us2]

Just a quick check in. Chemo went well on Friday except I found out that my hemoglobin is low and I have to have a transfusion this week. First time I have to experience that. So, hydration on Monday and transfusion on Wednesday. Chemo starting to hit me today - feeling blah and don't want to eat anything. Good thing I like Gatorade G2!

Hope everyone is having a good weekend.