Dis Breast Cancer Survivors - GAGWTA!

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Mom2Ashli, sending s hug and a boatload of pixie dust to you for your test results. :grouphug: Please let us know how you did when you are able.

Laurajean1014, I can share a little info about calcifications.

I went for my annual screening mammo in earl april 2004. After about a week, the GYN called and said I needed to go for a diagnostic mammo, which are the magnified views for the left breast. I went in for that and afterwards the radiologist called me in to show me the films and talk. I asked for a copy of the report, it showed a bi Rads number of 4, suspicion of cancer, biopsy recommended. She described different procedures but recommended a steroetactic core biopsy since it is the least invasive. To proceed further I called my GYN and he told me I needed to see a surgeon to proceed with this. He recommended one and after a delay I was able to see him. He examined me (the most thorough breast exam in my life) and looked at the view and concurred about a stereotactic core biopsy. He said there was a 80% chance of it being benign but the only way to tell for sure was the biopsy.

At the breast center here the radiologist does the procedure in the hospital's radiology department. I had it on April 27, 2004. I took my mom for moral support (she would not take no for answer anyway). It was helpful to have someone as I was understandably anxious.

The doc and the nurses were very caring and gentle. One of the nurses remained with me at the head of the bed the entire time talking to me and rubbing my back. There was also a small CD player close to my head with soft, soothing music playing. I was also offered warmed blankets since the room was freezing.

I had two areas of concern,one was the upper outer quadrant, apparently a common place for BC to start and retroareolar region. One of the areas was very close to the skin surface, I think it was the upper outer area. I think this made it more challenging for the doc, I could hear some discussion of this. I was not too uncomfortable except for having to lie down flat on my stomach in the machine for awhile. I think they took more mammos first to locate the exact area and place a marker in the two places. In the machine more mammos were taken to make sure they had the right spots. The doc and the nurses were really very good about letting me know each step and what they were doing. Mine took longer I think because of the one area close to the skin and the fact that they two areas. I had local anesthesia, did not feel pain, but you can hear the sound as the samples are taken, and maybe a light pressure. I was surprised at the lack of pain.

I have talked to women who had this procedure using different equipment (my hospital apprarently has the latest technology). They had the test sitting up and it was much more uncomfortable. I think another plus, at least for me, of lying down for it is that the patient does not observe the procedure.

They are not attempting to remove the area, just take samples.The samples are taken to the pathology department, I think my surgeon had results the next day, very quick. He called me and told me the results over the phone.

The nurses gave me a small ice pack to use after the biopsy was over. There were two small incisions since I had the two areas. There was a little brusing but not much. I was told to take tylenol for any discomfort and not to lift anything heavy for a day or two with that arm. I actually had more bruising after a needle biopsy on my other breast a few weeks later during my second opinion visit after the dos thought she felt something in that breast (luckily that was benign).

I would ask for a copy of your pathology report when you see the doctor afterwards. I now carry copies of all the reports from my tests, biopsies, etc. when I go to the doctor.

I had cancer in both areas, just DCIS (non-invasive) in the retroareolar area and a very small (.1 cm) invasive cancer in the upper outer quadrant.
Both surgeons I saw recommended mastectomy since more than one area was involved. There would have been too much area taken out to remove both and to make sure they got all the DCIS out. The pathology report after my surgery showed more DCIS in the breast, but no more invasive cancer and 16 of 16 lymph nodes were clear. What a relief and I also never second guessed the decision to have the mastectomy.

Good luck with your biopsy tomorrow. You are welcome to either ask here or pm me with any questions you might have. I will be forever grateful for the support and guidance I received during my diagnosis. If there is any way I can help someone else, it is so gratifying. This thread has also been a great source, of both info and support. I think you get the best support from other survivors, since they can certainly relate. Hopefully, you will not end up being in our number but even having to do the biospsy qualifies you as a sister here.

Here is a big hug!! :grouphug:

Sorry it took me awhile to get this posted. I was about done with my post and my computer hiccuped. Had to start over.
 
I'm glad I found this thread at a time when breast cancer has been on my mind 24/7 for the past two weeks.

My aunt (my mom's identical twin) was diagnosed with breast cancer 2 weeks ago today. She had a LARGE lump on her breast that she had just been ignoring since our family has no history of cancer. (She also never went for yearly physicals or mammograms). It got painful enough that she finally went to the doctor. It turns out she's got Stage 3 invasive breast cancer and, after a week of testing,they discovered it's in her lungs, too. :( Her prognosis at this point is not very good. It sounds to me like they are expecting to buy her time with chemo rather than save her life. My aunt won't get a second opinion-- it's like she's resigned herself to this fate.

Our family is devastated, no one more so than my mom. She went in for a mammogram after my aunt was diagnosed and she got the results yesterday: abnormal-- they found two small "nodules" and she has to go in for an ultrasound next week to see what it is. Now I'm worried sick. (She has had an abnormal mammogram in the past that turned out to be nothing, but now that her twin has cancer, it makes it extra scary).

I have been crying for a solid two weeks over this. I feel so bad for my aunt and my cousins and my mom and myself, too. It's such a shock, and really the worst, most tragic part of this is the fact that my aunt's cancer wouldn't have spread so far if she had just gone to the doctor when she first noticed the lump. We were all supposed to go to Disney World together this December... funny how much life can change so quickly.

Anyway, it's inspiring to hear the courageous stories on this thread. I haven't given up hope on my aunt. Maybe I'll have some good news to share one day, too.
 
How do you all keep up with names so well? I'm terrible at that - but I want you all to know that I can keep up with situations and have you in my prayers.

I'm another former stomach sleeper! And my second choice is my left side - which I can't do anymore because of lymphedema! So I'm trying my best to sleep slightly on the right side (too far over and I get indigestion!) and I also use a TON of pillows! I have 2 king size pillows on each side propped up against my sham pillows, one squishy pillow for my head, one under my knees and two rectangular small pillows under each arm!! But it does help me - and will protect me from attackers :rotfl: My family has to climb over the pillow hill to kiss me good night!

I have my echo on Friday and will start the Herceptin on Tuesday(assuming all is well with the echo!) I'm having a better attitude about it. I'm going to wait and see Tuesday how it goes before I decide about getting another port.

In the REST of my life - My baby (19!!) DD is flying to Germany for a month today!!! I miss her already. Yesterday was just one wrong thing after another getting her to Atlanta - but we got her there to my SIL and SIL got her to the airport this a.m. She's called twice from the airport already! She's really excited about going and I'm happy for her - but she said yesterday the bad thing about being so close to your parents is how much you miss them when you're away! So ya'll say some travel safe prayers for her! She's flying to Charlotte first (supposed to leave in 10 minutes but it's been delayed) and then to Frankfort where she'll arrive at 1:00 a.m. our time.
 
NO CANCER!!!!!
:cheer2:
Thank you guys so much for all the Prayer and Pixie Dust.

Now I have surgery scheduled for the 6th of July to see what is going on inside.
 

:sad1: Val, I am in tears reading your post. Nothing makes me sadder than to hear that someone waited too long to go to see the doctor at a time when cure could have been possible. My cousin died of lymphoma when I was pregnant - she had also waited too long, leaving a husband and 5 young boys. I'm so sorry about your aunt and understand the concerns about your Mom as well.

Let's hope that if your Mom has something it is early stage and "curable". For clarification (re: your aunt), once the cancer has spread to another distant place it is usually considered Stage IV, though perhaps when they just found the lump it was large enough to put it into a Stage III, before they found the lung issue?? It is very interesting that they are identical twins and both having issues at the same time. I imagine their case may be studied if your Mom's nodules are cancerous (let's hope not, though).

You know, we've all heard of cases that you think are hopeless but somehow people manage to survive sometimes despite the odds. Lets hope your aunt may be one of these people. She's going to need a lot of support - people here will have plenty of ideas of how you can help once the dust settles and you see what's going on with your Mom. Good luck to you and your family, I'll add you to my prayer list. :grouphug:
 
Linda, Laurabelle and Snappy -

Thank you for so much encouragement and knowledge about my circumstances. I knew coming here was going to be more gratifying than research on the net and/or talking to the DR. Meaning, my doc is nice, but now I have educated questions to ask instead of my ususual.

I will post my exam tomorrow.

Thank you again for your support and for listening.
 
Pea-n-Me said:
Let's hope that if your Mom has something it is early stage and "curable". For clarification (re: your aunt), once the cancer has spread to another distant place it is usually considered Stage IV, though perhaps when they just found the lump it was large enough to put it into a Stage III, before they found the lung issue??


Thank you for your kind words and prayers. :goodvibes

You're right-- the Stage 3 was the original diagnosis of just the breast lump, but the lung cancer was just found late last week, so I am sure it's at Stage 4 now.
 
Safe travel prayers said for your daughter, Debbie. She'll love Germany, I bet. What a wonderful experience. I went to Europe for several weeks when I was her age and I'll never forget it! Thinking good thoughts for Friday and beyond.

Val, I hope your aunt can keep a positive attitude. My surgeon said that a positive attitude has a lot to do with recovery and fighting the fight. I refuse to listen to gloom and doom. I am realistic in expectations, but always hopeful. I'll also keep your mother in my prayers. Hopefully they will give her the all clear.

Snappy, our situations sound very similar except mine was in 2001. I had DCIS in two areas of my left breast. A core biopsy on my stomach with the doctor under the table. Not incredibly painful, but uncomfortable. I'd say the deadening shots and the being still for a long period of time were the worst parts. I had a mastectomy soon after the biopsy. Laurajean, PM me if you have any questions or concerns. You'll be in my thoughts and prayers. Please let us know what you find out.

Mom2Ashli, yea for no cancer! What good news! :cheer2:
 
Mom2Ashli - WHOOOOO HOOOOO!!! :cheer2: Wonderful news!!! I'm so happy for you! I hope you've planned a celebration for tonight!!! :Pinkbounc

Val- I'm so sorry about your mom & aunt. What a blow! I have to say attitude counts for alot in this battle...I've had friends who had very advance cancers hang on to the point their docs called them miracles, because they had so much to live for. Look at one of my heros, Lance Armstrong, he shouldn't be here, yet here he is, not only surviving but doing the "impossible"! I'm praying your aunt finds something to fight for...and that your mom gets good news.

Debbie- I'm horrible at names, expecially with chemobrain! I hope it goes well on Tuesday...I know you don't want to have an extra surgery for another port. Prayers for you and for safe travels for your dd. I have a hard time being away from my babies too!

Laurajean1014- I'm glad you got to hear it from Snappy. I had 2 biopsies which were very different from the stereotatic one (1. surgical where they removed the entire lump, exactly like a lumpctomy and 2. core needle biopsy) It really does help to hear it from those who have been there before you. I'm praying you are comforted tonight and tomorrow and that you don't have a long wait to hear the good news!
:grouphug:
 
Mom2Ashli said:
NO CANCER!!!!!
:cheer2:
Thank you guys so much for all the Prayer and Pixie Dust.

Now I have surgery scheduled for the 6th of July to see what is going on inside.

YIPPEE!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
You guys are the greatest group. I am always telling people about the amazing group of women that I have found on the DIS. They really care about each and everyone that has any kind of issue. I think about each and everyone of you every time I train for my 3-day.

Thanks for caring.
 
Mom2Ashli... oh my goodness what a relief! The waiting is so hard! Congratulations!

Laurajean.... sending prayers your way. I hope thing turn out well.

Val, so very sorry about your aunt/mom's twin. How sad. My case is different, BUT I did have a very large tumor (5cm) and am totally cancer free now. If it had been 5.1cm I would have been a stage 3. BUT I did not have any mets anywhere. It's amazing what they can do these days. I hope she gets and keeps a positive attitude and has a doctor willing to do whatever it takes (aggressive treatment) to make sure she beats the beast!!

ON my own note: slept in the nasty hospital bed we had brought in for right after I got home from the hospital. I hate it, but it keeps me in a good position so I'm not stressing my incision.

Had to go back to the doc yesterday because my incision opened up in two places. He took a culture of hte yuck and put me on Augentin for a week. La de da. Will see him again in one week.
 
Did I mention that for a while after my surgery I slept in the recliner in the living room? Can't say it was the best sleep ever, but I wasn't tempted to turn over and I could get comfortable. And when I woke up and couldn't get back to sleep I could watch tv without waking my DH.

Also since I had a mastectomy and a reduction of the other breast, both sides were sore. It was hard to sit up without hurting one side or the other, so the recliner was perfect. Having said that, the night that I moved back to our comfy bed was one of the best nights ever. We got rid of that leather recliner a few weeks ago and I was a little sad. It was a dear, old friend. ;)
 
Yikes....lots to catch up on here today! Forgive me if I don't comment on every post (or every name ;) ) I don't have the chemo-brain excuse but I still can't always keep track LOL

Mom2 Ashli...I am SO pleased and happy for you! :)

and MerryPoppins glad you had good news too :)

Laurajean....my cancer was detected as a result of microcalcifications as well. Suspicious ones showed up on my April 21 routine annual mammogram (it IS mind-boggling how life and priorities change in a heartbeat), I had a needle wire localization and surgical biopsy 5/4 (the cluster of calicfications was located in such a spot, and too large, for them to use the stereotactic method). It was positive for Stage 0 DCIS...non-invasive...soemtimes referred to as "pre-cancer". I opted for re-excision (like a lumpectomy) which was on 5/27, the surgical margins were negative and I start a 5 week course of radiation tomorrow. As these ladies here told me, and I can tell you...this is the hardest part...waiting to have procedures, waiting for results, making decisions if necessary in between the different steps, keeping your wits about you while it feels like the world is turning upside down.
Remember to BREATHE, think positive, you WILL get through this no matter what. Keep us posted, I will keep you in my prayers.

You too Val, I am so sorry your family is going through this. :grouphug:

Everybody else...hello.... :wave2: wishing you all a good nights sleep.....(I think I forgot to mention too that I saw my PCP Friday and got a dozen Ambien precribed in case my sleep difficulties get the better of me...I haven't used it every night but boy even a half one makes a difference in getting an uninterupted stretch of sleep...aaahhhh)
Send me good vibes tomorrow - 10:30 am is my first radiation treatment! thanks and hugs and best wishes to all...
 
(((((Ann)))))
Sending up prayers that tomorrow is a great day for you! Just remember that the rads aren't your enemy...the cancer is!
You are gonna kick some cancer butt, I just know it!!! :cheer2:
:grouphug:
 
NHAnn said:
Send me good vibes tomorrow - 10:30 am is my first radiation treatment! thanks and hugs and best wishes to all...

Sending prayers and pixie dust to you for tomorrow, Ann.
Ambien helped me to sleep but the wierd thing the sleep only lasted for 6 hours. So if I took it at 9 pm, I woke up at 3 am. At least I did not wake up in between though.

Glad for your good report, MerryPoppins. You were right I did seem to track your BC experience. I consider myself lucky to have dodged the chemo bullet, at least so far.

I just got back from Walmart. I went to find something I read about on the theme park strategy thread about keeping cool in the Florida summertime heat. It is a thinish scarf thing called aqua cool. From reading the instructions, it had some gel crystals in it, you soak in cool water or refrigerate. I am going to try it for my night sweats. I found it in the sporting goods department, actually against the back wall with the tennis balls. I thought I would share this tidbit with you guys. I'll let you know if aqua cool is a hit.
 
Did I ever mention I really loved the place where I got my radiation? There were angels and other cool things on the ceiling to look at (many homemade from patients) and they would put on whatever music you wanted to hear. The techs were a fun bunch. When they heard I had a puppy they made me bring her in everyday. I'd be laying in the machine, hearing the commotion outside from the dog barking, my kids laughing and goofing around with the techs (while I was hoping someone was manning the machine correctly, LOL). :crazy: I actually missed them when I was done. :goodvibes

Good luck tomorrow, Ann. We'll be there with you in spirit!! :angel:

Re: the sleep issue. Just wanted to chime in here. I had a lumpectomy but I developed a huge hematoma inside the surgical area after the surgery that took a full 9 months to dissolve. As a result I had a lot of swelling and soreness for a very long time compounded by the radiation. It is still very sore to lay on that side - figures, the same side I like to sleep on too. But overall it's a lot better than it was so I can't complain.
 
Linda - I felt the same way about my radiation and oncology crew! Luckily they are in the same building so I can stick my head in and say hello to whichever group I don't have an appt. with! I guess that's one of the good things about having to go back on the Herceptin - I'll get to see them more often!

Mom2Ashi - :banana: :cheer2: :Pinkbounc So happy to hear your good news!!

Val - Tell your Aunt - and your mom - that her attitude can make a HUGE difference! Lance Armstrong's cancer had mets to his brain and he survived it. I was a Stage IIIb when I was diagnosed - which isn't too far from Stage IV! And I'm cancer free. I hadn't mets anywhere but it WAS in my lymph system.

And thanks everyone for the happy thoughts for my Becca! She's only an hour and half away from Frankfurt now! I will NOT be able to sleep until I get her call when she lands!!


p.s. - My primary doctor wrote me (in his words) a "life time supply of Ambien" scrip. It was for 20 pills and he told me to half them! I took them with me to KC over Memorial weekend and must have left them somewhere there because now I can't find them. I'd only used 4!!! Now I'm afraid to ask him for another scrip!!!
 
:grouphug: Thanks again everyone for your kind words.

My aunt had a PET scan done on Monday-- the results are mixed good/bad news. The spots on her lungs that showed up on her original CT scan are "cold," so they can't say for sure whether it's cancer or not (cancer usually shows up as a hot spot, apparently). They don't want to do a biopsy because they're afraid it will collapse her lung, which would delay her chemo.

They *did* find that the cancer has spread to her spine, but that apparently is a better scenario than the lungs. Though, she asked her doctor if he thought she had at least a year left and he said he didn't know. :( I can't imagine what it feels like to hear that news, but I guess that doctors can't make any guarantees on anything, no matter what the illness, so I'm hoping she doesn't get too discouraged.

Side question: I'm 30 and have never had a mammogram. Would you guys recommend my getting one since all of this is going on? The doctor told my 33 year old cousin to go right away for a baseline.
 
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