Becca's Wish Trip........Update:September 2011.....Photo's....Sorta :)

[eyor44]

Wonderful news! I'm glad she is responding, even if it is negative responses. I have tagged the website so I can read David's updates each day. Thank you for including us in the updates. Will continue to pray.

 

[Tnkrbelle565]

More prayers...glad today was "productive" shall we say

 

[fairygoodmother]

She kept slouching really badly in the chair and everytime they scootched her up she would reslouch......it wasnt because she couldn't hold herself up in the chair, it was because she wanted to sit in a lazy way, even the seatbelt and the chest harness didnt work, she was so determined Twas funny that she was so obstinate, I think she was paying them back for having the audacity to put her upright, not only upright but out of bed!! Ye'Gads!! The nerve if them
She is back in bed now and wanting to sleep, she has decided to punish me for her chair treatment also by ignoring my questions I dont care, at least she is fighting back in her own way, being obstinate and stubborn is better than apathy.

Shame on me for laughing at this. I know what you're saying, though. I have a young friend with some medical issues...she doesn't speak much and lately she hasn't been liking her speech therapist.

So she whispers. At every speech therapy appointment. Therapist will say something for her to repeat, and she does, but in a very slight whisper. I think it's great that she's expressing herself. There is absolutely no doubt what she's thinking...how DARE they switch speech therapists on her!

And to hear that Becca is expressing herself is so great. Like they say about my little Madison "the lights are definitely on in her house!"

 

[maroo]

Becca is AWESOME!!!

Lauren got put in her wheelchair the day after they put rods in her back...she was not happy with any of us either! But with those rods, she couldn't slouch!

I was glad to meet Eyeore, too!!!

I wrote down the list from the Big Give site of Becca's favorite characters...many of them I did not see...but I caught the Pooh, Tigger, Eyeore line just as it was opening at AK today and went down there to grab their siggies.

I was glad to meet them, too!! I identify very much with both Pooh and Eyeore!

I have had a good time....but am almost done with my little impromptu vacation!

The very first thing that Jason's family (tinytreasures) and Mya (mcntosh) asked me when I saw them this morning was for a "Becca update" since they had been traveling! We are all praying for your precious baby!!!!

I hope, one day soon, she will be able to go back and read about how famous she is!!!!

And...I think we should start a list of the states and countries represented on this thread praying for Becca too...that would be cool!!!!! Anyone agree with that? Starting a list...I could maintain it...I would love to see if we can get someone in all 50 of them!!! And, of course, our friends from other nations!

 

[rodeo65]

Ok, this will pull me out of lurkdom. I've been reading Becca's PTR since I arrived on this board a few weeks ago. This is the first thread I check each day and I do think about and pray for Becca every day.

So, thoughts and prayers from Ontario, Canada

 

[MAGICFOR2]

Oh that's great, Maroo! By DDIL is working on getting written prayers from all 50 states for a quilt for a caring bridge foundation - she has had some great responses!

So to Represent Oregon - The Manfull family from Klamath Falls is praying!

 

[Tnkrbelle565]

Prayers and thoughts from Boston, Massachusetts.

 

[jenb1023]

Great idea Maroo!

Prayers and thoughts from Harrisburg (Camp Hill) Pennsylvania.

 

[Grammyof2]

1st time posting but have been lurking since the beginning.

Good thoughts and prayers from Salem, New Jersey

 

[iu97alum]

Prayers from us here in N. Texas (Dallas area!!)

 

[jmskinner]

Sending prayers for Becca and the whole family from Tampa, FL.

 

[jham]

Prayers from Utah!

 

[Dani C]

More prayers coming your way.

 

[fairygoodmother]

Prayers DAILY from Modesto, California!

 

[llurgy]

You are all so sweet We are going international maybe??

Becca is having the same day as yesterday though she is much clearer eyed and bushy tailed today
Still very productive though,using tonnes and tonnes of pampers and henceforth very, very, very sore down there

This morning as I was taping her cards to the wall she garbled something at me. I thought that I was hearing things so I asked her to repeat it.
She said "I Want........" I couldn't believe it, she said it in a semi normal tone and loudness, It even sounded like Bic and she just said it, just like that!
She couldn't formulate WHAT she wanted, but she wanted something
She has not repeated the talking, not even when the speech therapist came, we were back to the whisper talking then. The speech therapist said that this is normal as she would find things harder to say when she is trying in therapy than just coming out with it like she did earlier.

Neuro came around today, no changes, holding pattern now with the brain drain. No cultures grew on the blood they took the other day so there is still no explanation for the temp spikes,talks are going on with infectious diseases.

Physical therapy are coming around today at 3pm. Time to do battle with the chair again. I dont know how they are going to do with her as she wont even put her bottom down on the bed properly as it is so sore, so sitting in a chair
I will have to talk to them before they do something that may hurt her too much.

Love Mandy

 

[maroo]

Becca is AWESOME!!!

Lauren got put in her wheelchair the day after they put rods in her back...she was not happy with any of us either! But with those rods, she couldn't slouch!

I was glad to meet Eyeore, too!!!

I wrote down the list from the Big Give site of Becca's favorite characters...many of them I did not see...but I caught the Pooh, Tigger, Eyeore line just as it was opening at AK today and went down there to grab their siggies.

I was glad to meet them, too!! I identify very much with both Pooh and Eyeore!

I have had a good time....but am almost done with my little impromptu vacation!

The very first thing that Jason's family (tinytreasures) and Mya (mcntosh) asked me when I saw them this morning was for a "Becca update" since they had been traveling! We are all praying for your precious baby!!!!

I hope, one day soon, she will be able to go back and read about how famous she is!!!!

And...I think we should start a list of the states and countries represented on this thread praying for Becca too...that would be cool!!!!! Anyone agree with that? Starting a list...I could maintain it...I would love to see if we can get someone in all 50 of them!!! And, of course, our friends from other nations!

I promised a list...

Here it is so far... (from the time of this last post...)



California
Florida
Massachusetts
Michigan
Mississippi
New Jersey
Oregon
Pennsylvania
Texas
Utah

Canada-
Ontario


Keep those states and countries coming...and I will post them here as I see them!!

 

[maroo]

Bless her heart!! I hope her bum gets better soon!!

Negative cultures!!! That is GREAT news! And holding strong on the drain, is good, too, I guess.

And talking!

You go, Becca!!

 

[jenb1023]

Becca is having the same day as yesterday though she is much clearer eyed and bushy tailed today

She said "I Want........" I couldn't believe it, she said it in a semi normal tone and loudness, It even sounded like Bic and she just said it, just like that!

Physical therapy are coming around today at 3pm. Time to do battle with the chair again.

Hi Mandy -

Glad to hear Becca is having a pretty good day and am thrilled to hear she spoke! I will be looking forward to hearing about her battle with PT today.

 

[llurgy]

PT.... She is going to be the bane of their lives

In physical therapy today they decided not to put her in the chair because of her sore bottom, but they did have her sat up at the edge of the bed. When they were talking about doing the edge of the bed, Becca started to moan and again with the talking...."I dont want to get up", over and over.
They still got her up
She was only up for about 3 minutes and we noticed that the arm with the PICC had turned purple!
She was promptly laid back down again and her arm returned to normal. No-one here knows what that was about....it has them puzzled.
The Resident Practitioner has since said that maybe a blood vessel was trapped as they were holding her up, but to watch it carefully to see if it happens again.
Told you, Becca doesnt like PT and will even turn her own arm purple to get out of it

Anyways, Becca has been vocalising quite a bit today but since we cant really understand what she is saying most of the time it was decided that we should try and let her write it down. She had a pencil in her hand all ready to do the writing but we couldnt get the paper in the right position. After several tries she promptly laid the pencil down on the table as if to say, "well thats enough of that then....."
Maybe a whiteboard would work.

The PT did arm and leg exercises with her. Yesterday she was asked to move her foot around in circles, she could only do this with her left foot, today her right foot also made near perfect circles!
With her left foot they told her to make 10 circles and then she would be done with that leg, with her right foot they didnt say anything but she counted in her head and withdrew her leg after the count of ten circles As least as possible, thats our Becca

Love Mandy

Hi Mandy -

Glad to hear Becca is having a pretty good day and am thrilled to hear she spoke! I will be looking forward to hearing about her battle with PT today.

 

[autumnpalm]

Lots of prayers for Becca from Toronto. I say one every night!

I love how spunky she is. It's so great that even though she's in the hospital, she's hanging on to her great personality.