Autistic Nightmare!!!

[mom2boys]

I was so touched by the fact that dispite a few meltdowns, you were able to focus on the good parts of your trip.

My boy both have "hidden" disabilities. It can be difficult when people are judgemental. Sometimes the best response to my youngest's behavior is no response. Strangers sometimes don't get that - you have to pick your battles - especially with a special needs child.

 

[6_Time_Momma]

My DS(12) has Down Syndrome, so his condition is pretty obvious. However, when he throws a tantrum in public (not very often and usually not bad), I get the impression that people think he must be that difficult all the time (since he is MR), but that, obviously, is not the case.

And in your case, I suspect that if you explained "He is autistic," people would think to themselves "Oh, people with autism must be so difficult to care for."

Unfortunatley, I think some people have preconcieved notions about disabilities and how people with them act.

You must have been pretty darn excited about seeing the mouse to forget something as important as limiting his dyes!! Glad you had a good time, though.

 

[tjmw2727]

edited

 

[missypie]

I don't have much too add, but I'm so happy to find so many parents of Aspies out there on the DIS! We are trying to get our Apsie thorugh Algebra. It's gong to be a long school year!

 

[JESW]

Just another add....Have you read the book - The Curious Incident of the Dog in the Night-Time - Mark Haddon. ? Its a novel based on a boy on the spectrum. Interesting. My MIL said it helped her understand more about her son, my DH, who we all suspect has Aspergers but has done well for himself.

Jill

P.S. Its monday morning here and all went well. DS got on the bus without any meltdowns (last week was impossible and the bus driver almost reported DH when he was restraining DS since he thought they were fighting...) I made a deal with him that if he got up and out in the morning I would pick him up after school on mondays. DD goes to another school and we would go and pick her up afterwards. That is DSs old school and he likes to go visit his former teachers. We kept talking about our deal last night and this morning he got up in a good mood, ate, took a shower, got dressed, sneakers on and backpack packed and on the bus without incident - oridinary things for a lot of families but a BIG breakthrough for us. We take these good days as we get them...

 

[s&k'smom]

Oh sweetie I didn't even read the other threads when i wanted to send you a cyber hug. Oh yeah I totally know what your feeling. Same story different kid. We've been prepping DS for this trip since last winter and are giving him a "cocktail" for the plane so we can get through it. Just know you are not alone, you have friends here on the Dis. Take care.

 

[BringBackTapestries]

JESW, your son sounds like a carbon copy of mine. He too likes to throw himself on the ground; butt in the air, and scream. Many Aspies kids have one thing they focus in on. That becomes their world. My sons thing is games. Everything is an imaginary game. If we walk to the creek to fish he's "walking to the castle to fight a dragon". We have 6 game systems and hundreds of games. I get them at yard sales for a few bucks each and in huge bulk lots. I keep what I want and sell the rest on Ebay for a profit.
He pitched his biggest fit this year because he didnt get to play the goofy tag in innovations west till 1:00PM instead of at 8:00 am when they opened.

To the poster who wanted symptoms:
Crying for any tiny reason
Carrys around sticks all the time
Remembers things that happened 3 years ago like it was yesterday
Craves sugar packs (he always eats sugar packs at restaurants)
His skin does this really odd thing where it shows any small amount of pressure. I had to hold him down one day when he was hitting a wall sized mirror with his fist, and it left the stitch marks from his shirt seams in bright red. The therapist demanded a doctors note to eliminate abuse. The doctor saw it and called a particular condition (which I forgot) and said it was perfectly normal.
Screams, hits, kicks, headbutts, but NEVER bites.
Hits himself
wants to keep EVERYTHING and goes ballistic if we throw away things he wants to keep (candy wrappers, sticks, empty bottles, etc)
Extremely high IQ (tested at a 7 year iq at age 3) at age 3 was saying sentences like "May I please have the butter, or perhaps I should say margarine"
extremely amazing memory. Forgets NOTHING except for his fits he cant seem to remember.
Makes loud noises and shakes his hands a lot.
jumps around like a monkey several times daily
cant handle dyes..ironically... chocolate seems to help immensely
low muscletone, very hyper, but cant do the whole park. we rented a wheel chair one day and that was the best day of the whole week.
Lags and drags behind but still has energy for his weird shaking and jumping and noises.
NEVER EVER takes daytime naps, and never has EVER.
will not go to sleep without his mom in the bed
his skin is often cold and clammy
sweats a lot
Thats pretty much it.


CarolA Get over it. Why are you buggin??? This post isnt about cooking!!! Have you read the other posts??? So you think my kid is a spoiled rotten brat. Your entitled to your opinion. I think you are. There are many people here on this thread who have real needs and we need to talk without one single particular person throwing negativity around. If you can smell stirfry through a 4" thick wall you should be "IN" a circus, NOT at Disney. Sheesh. Talk about dredging up the past! I'd sure hate to live at your house. Now maybe Ive said enough that you can get this thread shut down (probably your goal since none of us really have "REAL" problems... were all just spoiling our kids and since YOUR right and everyone ELSE here is wrong this thread shouldn't even exist!)

to everyone ELSE here thanks for the great responses.

 

[BrerMom]