Anyone with chronic Lyme disease?

[czmom]

After several years of unexplained symptoms and worsening health, I was recently diagnosed with Lyme disease. It's nice to finally have a diagnosis, but the recovery is tough. I am in so much pain.

We frequent wdw/dcl/dlr each year. I have always done okay on vacation. However this time may be different. Our trip is 6 weeks away and I feel like it may be my first trip in a scooter.

Just looking for any DIS friends who may be suffering from chronic Lyme.

 

[TLSnell1981]

I never completely recovered from the effects of Lyme disease. It took quite a while to get a diagnosis. I also have fibro and chronic fatigue syndrome (diagnosed years before LD) The pain, fatigue and brain fog increased significantly after LD. I used to go into "remission". Sadly, the good days are now rare and far between.

I must use an ECV in WDW. I get up and stretch often because sitting in one position hurts too. Sometimes, my pride pushes me to do more, than I should, and I pay for it dearly.