Antibiotic treatment for R.arthritis, lupus, etc. unbelievable the difference!!

[bumcat]

Please pass the website to anyone that might be interested.
www.rheumatic.org
I was diagnosed with inflammitory arthritis about 15yrs ago and rheumatoid arthritis about 9 months ago. I basically was told no cure but can take nsaids, pain killers ,etc for the pain. I accepted this at first but the pain gradually got worse. I thought surely something else might work. I got on the net and started researching.
Lots of drs. are very skeptical of this including my own dr.
Some believe that lupus, ra and other diseases are caused by a bacterial infection in the body. Makes sense when you read everything. I asked my dr. if I could try minocin. He has a couple of other patients trying it and said sure but told me he was skeptical. (This evidently isn't taught in medical school).
I have been taking minocin for a week now and already I can not believe the difference. I feel like I'm dreaming! It's just too good to be true. I can put my arms up over my head again, I can sleep on either side with minimum pain. I can take the clothes out of the wash, I can pick up a gallon of milk without feeling like I am tearing up my shoulders. I can get up in the morning with minor pain right now etc. etc.
My dr. still says that's crazy, LOL. I don't care just keep giving me the minocin. The weird thing is my IBS is also under control right now which is also unbelievable. Not sure if that has anything to do with this either.
There is still pain, dont get me wrong, I'm not cured but the pain is tolerable right now.
I take 200 mg. per day. My dr. will do the bloodwork again in a few weeks.
There are other websites but this one was one of the best that I found. If you click on medical history and then each persons name they give their stories.
My understanding is that this helps about 50% of the patients.
Some people do get worse for a few months, some don't see results until later and some see results sooner.
The minocin makes me a little dizzy but then again I'm a dizzy type person anyways.
There is also a list of drs. in different areas that will try the antibiotic protocol.
Sorry this is so long. Probably will be the longest one I ever post here.

 

[BedKnobbery2]

Thanks, bumcat. My father died from complications brought on by RA, and I worry about being stricken with it as well. Most people don't realize that RA is an auto-immune disease, and can affect every part of your body, not just your joints. My father, unfortunately, didn't respond to any treatments intended to halt progress of the disease--and believe me, he tried them all, standard medical treatments, gold injections, bee venom, you name it. I'll have to dig out his med records and see if he tried antibiotic treatment. It is definitely something I'll keep in mind if I end up having it in the future.

 

[bumcat]

I'm so sorry about your father. I didn't know how horrible RA was until I started reading about it. It's almost like cancer in so many ways.
I just hope the antibiotic continues to work. Most of the stories that I have read most rheumatologist or possibly all of them refused to give patients the antibiotics. They had to find a dr. that would prescribe it.

 

[DisMN]

Each of us has a body that reacts differently to the same meds......and while I've been taking antibiotics for my rosacea, it has also helped my mild IBS symptoms as well.
My doctor looked at me funny when I mentioned this to him too but the next time I went in to see him, he told me that he'd since heard similar things from other patients.

This is where it helps to have a doctor that really HEARS you....because maybe, just maybe you will have helped someone else who's struggling. I mean maybe your doctor will prescribe the minocin for other patients based on your discovery! That would be cool!!

 

[Divamomto3]

I will pray that this continues to work for you! Great news!

 

[bumcat]

Well so I'm not crazy after all about the IBS.
Heck it's worth staying on the minocin for that reason.
My dr. is really good about listening.
Thanks Divamom!

 

[Boston Tea Party]

Glad you're feeling better, Cheri!

 

[chell]

Thanks for this info! Glad you are feeling better and hope you continue to improve.