ANOTHER Adventure in Autism (4/15) A Taste of What's to Come...

Hi! :wave: OK - I've been lurking all the way from the UK - but other posters always say what I want to before me!!! (I blame the time difference...)

I think you need a new username - KathyCliffhanger!!
 
Hi!
I mostly lurk, but I do post once in a while! I LOVE your TRs, and PTRs. I'll be starting my own PTR soon, just booked OKW on rented DVC points for 12/5-12/12. Can't wait to bring my Little Princess to the World!
 
haha I'm a lurker!! And I have been for like a year :) I love your reports! You do such a great job! I missed you during your hiatus...haha
 
I've been lurking :blush:

But, I will say, I do love your reports! The cliffhangers keep me guessing every time :)
 

Well, I've dropped in before, but I just love your trip reports. Your writing is among the best on the DIS, and it's really interesting to read about your experiences with an autistic child in the parks. I'm very close to a kid who is 1 in 150, so a lot of Billy's behaviors are very familiar.
 
Hey Kathy! How did I miss your report? Or did I post at some point and just haven't gotten an e-mail that your thread is up and running? Looking forward to coming back and reading later (it's bedtime right now!). My DD11, Sarah, who is an Aspie (along with a long list of "co-morbid" stuff), and I have been having some rough times lately (we homeschool now...the school system wasn't doing much for her). It'll be nice to read about the fun "adventures" you have with Billy and learn from your experience! Plus, your trip reports are always SO much fun to read!
Missy
 
I've been lurking for a few days and am probbaly responsible for a score or so of those 100,000 views. I am loving your TR but was waiting til I got caught up to respond. I hope things were ok with Billy in the Cub Den and that Ed got a satisfactory response from the security manager. I can't wait to read more!!
 
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Hi Kathy...

getting caught up w/ yet another saga...oh my friend you have endured so much on this trip! It's amzing you don't have temporary amnesia of this one...

Now I know you wouldn't leave us hanging if there was something really bad with Billy.

Hope he's fine!

Glad the food was yummy at your dinner too.

Scrappie
 
Hello from another mostly lurker. I enjoy your reports because I am the mom of two kids with disabilities but also because you are such a wonderful writer! Thanks so much for sharing your trip adventures.
 
Ok let this service as "Official Notice" I am here and going back to catch up :woohoo:
 
Thanks for coming out, Lurkers and Long-Lost Friends!! I will post responses tomorrow, cross my heart!!


Ch. 45: My Little One-Hit-Wonder


Ed and I hurried across the lobby toward the Cub’s Den. I was concerned that a CM had called about Billy. “What kind of problem?” I asked, hoping it was just something minor (like he spilled something all over his clothes and needed a change.)

Hope for the best; prepare for the worst.

“They said he hit Tricia,” Ed growled. My first reaction was, well, at least he didn’t hit another child. But this was bad enough!


“She probably screeched at him again,” he said, shaking his head. “When will she learn that she just can’t do that?” Tricia, of late, had been having increasing difficulty dealing with her brother’s behavior quirks…most of all, with his loud and constant stimming. :headache: He would get annoying, she would yell at him to stop, he wouldn’t be able to verbalize his feelings and so, he would try to push or hit her to get her to stop scolding him. It hadn’t happened that often, but it had happened.


We had been working on getting her to use other approaches, but she was having a hard time not responding with the instinctive “you’re-such-an-annoying-little-brother” tirade.


It can be difficult enough for adults to work with an autistic child’s behavior and communication problems; it must feel like an impossible task sometimes for their siblings. After all, she’s only a child, herself.


We soon arrived and the children were waiting. They were in trouble and they knew it. Oh the shame! The disgrace! Expelled from a Disney kid’s club! :rolleyes2 Billy ran to me and hugged me around the waist.

“I be good boy!” he announced. “I be good boy!”

There were no other children in the club at the time, but there had been two other kids there with them for a short while. Tricia had been doing some coloring with the two little girls and Billy (as expected) was busy watching a video and sorting through the club’s video collection.


Do you remember way, way back in the infant stages of this report when I told you about Billy and his video/DVD obsession? You don’t? I wonder why! ;)

Billy doesn’t just like to watch them. He sorts them, he stacks them, and he reads the covers, out loud, over and over. At home, he collects them like baseball cards and plays with them all the time. He opens the boxes and makes sure the videos are rewound (the library loves him!) and the DVDs are positioned in their covers so that they are perfectly straight.


Recently he discovered Amazon.com. He likes to scroll around and look at all the kids DVDs and read about them! Last summer we received an unexpected package via UPS. I must’ve left my credit card number on the site after ordering something, because Billy figured out how to place an order for a DVD and have it sent to him! :laughing: Thank goodness it was only one!

Anyway, with that in mind, I’ll tell you what happened. (According to Tricia.)


Billy had all the videos off the shelves and strewn around the floor in little piles, just like he does at home. Apparently, one of the CMs asked that the kids clean up a little, but when Tricia tried to put the videos away, Billy got very upset and did not want her to touch them. He can be quite rigid that way; it’s a symptom of his autism. Well, the CMs kind of missed that because they kept encouraging the kids to clean up.


So Tricia was trying to do as she was told, but Billy was frustrating her. And Billy was trying to enjoy all the videos the way he likes, and she was frustrating him by trying to clean them up.

She yelled at him; he cried and hit her on the arm. :guilty:

Then, Tricia says, both CMs got very excited and immediately called us to come pick them up. “It was only a little hit on the arm,” she said, “it wasn’t a big deal or anything.”


But, the rules of the kid’s club clearly state that there will be no hitting or aggressive behavior tolerated, so the kids had to be ejected. Well, we really couldn’t argue. After all, rules are rules and hitting is wrong. We were done with our dinner, anyway, but….there went our visit to Pleasure Island! :sad1:

We walked across to the villas with Billy chanting, “Good boy!” so he wouldn’t get punished and Ed chastising Tricia for not handling the situation better. Well, in my mind it really wasn’t her fault completely.


First, I really shouldn’t criticize because I was not there to observe…but looks like I’m going to, just the same! :rolleyes1 It seemed as though the CMs could have been a bit more flexible when it came to the “lets all clean up” routine. Yes, they are totally unfamiliar with Billy and his quirks, but two very basic hallmarks of autism are rigidity and a lack of awareness of how one’s actions affect others. If, as I had been told, the staff really did have “lots” of experience with caring for autistic children, they should have been a little more cognizant of this. :confused3


Second, it seems to me that after Billy had vehemently objected and Tricia was having difficulty getting him to let her pick up the videos, one of them could have come over to intervene instead of allowing the situation to escalate. Yes, Tricia is his sister and knows him better than the staff. And yes, she was a resource to help them communicate with him. But, she herself is a child, and as a child, she should not have been expected to figure out a way to “make him” clean up after himself.


I would have tried to persuade Billy to pick up the videos by making a game out of it and by offering some small reward. “If you pick up all the videos, you can choose one to borrow and take back to your room for the night! Or, I would have just waited for Mom and Dad to come back and let them handle it! Honestly, I could have had him picking them up in a minute flat! ::yes:: But, that’s a different thing altogether; I’m his mother.


In his defense, Billy does a lot better taking directives from Ed and me than he does from Tricia. (But hey, isn’t that the way it is in most families?)

Anyway, I wasn’t overly impressed with the way the childcare CMs handled the situation. It wasn’t like they had a room full of kids and just couldn’t give Billy the increased supervision he’s used to. Two CMs for four children is a pretty darn good ratio. And it was the staff’s insistence on the clean-up that precipitated the incident in the first place!

In any case, I’m rambling. Sorry. :flower3: I just remember it being kind of a letdown.


I had been told that the staff had experience caring for autistic children. Now, I would conclude that, just because autistic children have used the childcare clubs, that doesn’t necessarily mean that the staff has any additional training or possess the skills needed to handle them. Perhaps this was an isolated incident. Unfortunately, I would not feel comfortable putting my autistic child in one of the Disney clubs again.


Well, you can imagine that all four of us were a bit out of sorts as we returned to our villa. Ed…..oh, Ed had been out of sorts since Roaring Forks. Billy was nervous because he knew we were not pleased that he had hit his sister, so he kept looking for reassurance by saying, “Good boy! I be a good boy!” over and over and over. Tricia was annoyed because her father indicated that she had not taken care of her little brother the way she was supposed to, and I….well, I couldn’t help thinking about all we had been through together on that up & down roller coaster of a day:

Up: Beautiful day; we got to AK just after rope-drop.

Down: Conflict with AR; had to make her get the wheelchair again.

Up: Awesome FOTLK; the kids were chosen for the parade!

Up: Tricia dancing with Tam Tam’s in Africa.

Down: Back row on safari again…lots of bad pix!

Up: Kids really enjoyed the exhibits and taking the time on the PF Trail.

Down: “DIRTY BIRD!” :eek:

Up: Another great ride on EE with the kids!

Down: Billy got soaked on KRR b/c I forgot ponchos.

Down: Snotty security guard incident #1

Up: Heart-to-heart with AR results in her staying in to rest.

Down: Snotty security guard incident #2. Ed upset through dinner.

Up: Really excellent food and service at Artist Point.

Down: Billy got evicted from the Cub’s Den for hitting Tricia.



Perhaps this should have been called the Rock & Roller Coaster Trip! Up and down, up and down all week long! Uggh. And tomorrow would be our last full day in WDW. :sad1:


I put the kids to bed and finished off the romantic evening by doing laundry. Ed got a little head start on his packing and watched some TV. He never did get a call back that night and was feeling a bit disgusted. I’m glad we hadn’t accepted that wine; I might have drunk the whole bottle! :faint:

I hoped that the next day.…his highly anticipated “day off”….would put him in a better mood.

Ahhh! West and wewaxation! ~ Elmer Fudd


Little did I know that the tables would soon be turned….


Kathy
 
Bummer Kathy about date night ending early. That stinks the staff handled it so poorly. We visited the den for crafts in the afternoons, the workers were nice, but I doubt receive that much training in all. They should have been more honest.... and perhaps should at least offer one of the centers where they have more accomodating staff!
 
What's the harm in having the little stacks of videos all over the floor? Why the urgent need to clean up? With only four kids, I would think there would be plenty of room for them... :confused3

Those CMs sound pretty clueless...
 
Sorry, Kathy, that the night ended early, and that the CMs didn't seem better trained :(. I hope your last day at WDW is a little bit better! :goodvibes
 
Wow! This really is a Rockin' Rollercoaster TR!
'm sorry your date night didn't turn out as you had hoped. :sad2:

I've been on the fence about those kids clubs... well I guess not really on the fence, but wondering about them. I'm glad we decided not to send the kids - Alex appears very "typical" in many ways, but has some behaviors that can be annoying to others - especially his brother!! I'm sure the two of them would end up expelled as well!! One expulsion is enough for me... Alex was expelled from day care shortly after he was diagnosed with PDD-NOS at age 2. When I was 8 months pregnant with Zach! :scared1:

I hope you guys get to enjoy your last day.
 
I can't believe we're coming to your last day! Although you were probably somewhat happy for this 'rock and roller coaster' trip to come to an end, it will end some great reading for us (just sorry you had to go through it :hug: ).

It's too bad the way things went at the Cub's den, they should have given Billy a little leeway with the videos. It's not as if they wouldn't have been put away when you came to pick them up.:confused3

I can only imagine what this last day is going to bring (and why do I have this nagging feeling that AR will play a prominent role?????).
 
Man, that totally stinks that the staff dropped the ball like that. If they've have "lots of experience with kids who have autism" you'd really expect some sort of training. And, with two kids in the room, I would have hoped the interaction between counselors and children would have been a little better.

I am hoping to read that the last day of the trip is a smooth one, but it's not sounding promising as of yet.
 
I hate that that happened to you :sad2: I'm thinking my DD11 wouldn't last long in the Kid's Club (she has quite the temper :mad: )--she'd probably get kicked out for hissing at someone or yelling in their face :sad2: Glad Billy's infraction wasn't worse than it was. Looking forward to more! Hope the last day is better!
 
I'm like you, I couldn't expect Tricia to have thought of some of the things you, as the mother, would have probably thought of. It must have been difficult for her too! Just a difficult night all around. I'm sure Ed's mood from the security incident didn't do much to help him understand the situation from Tricia's point of view either. I hope Aunt Rae didn't feel guilty when she heard of the trouble...or did you just not tell her....:guilty: ?

Sara
 

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