21 years ago today a baby boy died

[luv2nascar]

God bless all of you. What a heart warming story.

 

[Liz]

To the OP - Thank you for that post. In July of 1982 my 3 1/2 week old son had a brain hemorrage that left him brain dead. The hardest thing I had to do was sign permission for organ donation. I knew it was the right thing to do, and the logical thing to do, but that didn't make it any easier. Call me selfish if you want, but at the time I didn't care about the other children who were being saved, I just wanted my son to be saved. Over time, I think it's helped with the healing process that we were able to do the organ donation. When ever I meet or read about someone who had an organ transplant as a child I think of it as my son blowing me a kiss from heaven. With your post, I thank you and your daughter for a mother's day kiss from my Michael.

Your post touched my heart! I've heard from others that donating organs helps with the healing process. I can't imagine how hard that time was for you. Just as we remember our donor family and cherish their gift, I'm sure others feel the same way about you.

 

[FormrCastMbr]

Thank you OP and others for sharing your stories. I am sure your stories have touched so many and helped make the decision for others to be donors.

I am an organ donor and also contribute to the It's My Heart foundation since my cousin's son was born with HLHS and may someday need a heart transplant.

Thank you again! Hug your daughter for me!

 

[Liz]

I am an organ donor and also contribute to the It's My Heart foundation since my cousin's son was born with HLHS and may someday need a heart transplant.

Yep, know HLHS well. That's what my daughter had. I'll check out that website!

 

[FormrCastMbr]

Yep, know HLHS well. That's what my daughter had. I'll check out that website!

My cousin just started the NJ chapter. It seems like a great foundation. Her son is doing very well...he has had the 3 phase surgery at CHOP in PA.

Thank you again for sharing your story.

 

[Liz]

My cousin just started the NJ chapter. It seems like a great foundation. Her son is doing very well...he has had the 3 phase surgery at CHOP in PA.

Thank you again for sharing your story.

I'm glad your cousin's son is doing so well. Since my daughter's surgery was so long ago the 3 phase surgery wasn't really perfected. We met with a surgeon who told us he'd done the surgery on 5 patients, four of which had died and the other one was on oxygen. I'm sure they are MUCH better at it 19 years later. If the surgery works out well then that's wonderful because then they won't have to deal with all the immunosuppression issues that comes with a transplant.

 

[Kitty 34]

What a touching story.

 

[Robinrs]

Liz, Acklander...

22 years ago this July my son, Devin, lost his life 3 days after he was born. With him he took my dreams, my aspirations... and the name "Mom" from me.

My mother signed the papers for him to be a donor. I was too distraught.

Years later I heard that he donated at least six different organs, saving so many lives...

He was more than a blessing, to me and so many others.

I smile today for several reasons....

I "met" TiggWDW on the American Idol thread. She is a sweet and lovable child, with an UNENDING love for Davey Archuleta. Your post makes me understand her so much more now. She's an amazing young lady, and you are VERY blessed.

Thanks for this post, Liz. For those of us who have lost a child, just knowing that our children's lives were not in vain... is a blessing indeed.

 

[DISUNC]

 

[Pop Daddy]

hey

 

[Liz]

Liz, Acklander...

22 years ago this July my son, Devin, lost his life 3 days after he was born. With him he took my dreams, my aspirations... and the name "Mom" from me.

My mother signed the papers for him to be a donor. I was too distraught.

Years later I heard that he donated at least six different organs, saving so many lives...

He was more than a blessing, to me and so many others.

I smile today for several reasons....

I "met" TiggWDW on the American Idol thread. She is a sweet and lovable child, with an UNENDING love for Davey Archuleta. Your post makes me understand her so much more now. She's an amazing young lady, and you are VERY blessed.

Thanks for this post, Liz. For those of us who have lost a child, just knowing that our children's lives were not in vain... is a blessing indeed.

Thank you, Robin, for your kind words about Laura. And I'm so sorry you lost your baby Devin. We have come so close to being where you and Acklander are I can just feel your pain.

 

[PaulaSue]

 

[Liz]

Giving this a bump - update in OP

 

[tiggersmom2]

I just read your update. I'll be keeping you guys in my prayers.

 

[HelenePA]

I also have a heart baby. She was "fixed" at 6 months (double outlet right ventricle, ASD, VSD, AV Canal, Pul. Stenosis ect ect). I will keep your daughter in my prayers.

 

[Kathi OD]

Update on Laura's condition (5/15/08):
Every year (sometimes more often) Laura has to have a heart cath and biopsy on to monitor how she's doing. Yesterday she had that procedure and we didn't get good news. She has something called "antibody mediated rejection". We've been through hard times before and pray that we will be blessed again with a full recovery. We ask for your prayers in her behalf if you are so inclined. Thank you.

You need 'em, you got 'em! Here's hoping that Laura makes a full and speedy recovery.

 

[chisnpeke]

From one Laura to another (same age too!), I'll keep her in my prayers.

I met TiggWDW on the American Idol thread like Robin did. Although we disagreed on who we thought was the best in the competition , I enjoyed her posts and her willingness to stand up for her favorite.

 

[Hedy]

 

[janette]

Many prayers for Laura that this doesn't become serious.

I can't imagine losing a child and bless his parents that they were able to see past their pain.

 

[CrazyBoutDisney]

Your story goes a long way to restore some of my faith in humanity, Liz. What a lovely young lady Laura is becoming!! God bless and know that you'll all be in my prayers as long as need be.

I bring love and prayers from Pam, as well. It breaks her heart that she can't tell you herself.