Hi Wish Trippers! I've been off and on reading your thread for ideas. I have questions for the pros, but 139 pages is ALOT to read
I'm a home health special-needs nurse caring for an almost 9 year old Down's Syndrome boy. He is part of one of the most amazing families, I know, big surprise! All special kids are in special families

Well, this family chose this little man. You see, the parents could not conceive and wanted to help other kids in need by offering them support and a home. They fostered many children soon after they were married and within a few years they finalized thier first adoption, a daughter that is now 13 years old and has severe ADHD and PTSD due to her first 6 years of life. When big sis was 9yo a special little guy came to live with them. His name is Rodney, and at the time he had been in the hospital for nearly 3 years of his 4 year life. He had a trach and a g-tube, and was clinging to life. The docs asked the family to take him home and make him comfortable because he wouldn't make it longer than a few months. So, they designed a safe room for him, gave him room to wander around safely, put him in a cute toddler bed (he'd been in a cage crib at the hospital), and showered him with love! After those first few months passed they went back to see the docs

He was alive, and walking, and trying to eat

! He was strong enough to undergo surgery to reduce the thickness of his tongue to allow for easier breathing at night. He quickly recoverd from that and decided he didn't need his trache anymore! He took it out, untied the shoestrings that were tied behind his neck, and took it out! This was mom's look the next morning

But he was breathing, and laughing, so it stayed out

He then concentrated on eating by mouth, all the time!

He got healthier, some of his specialists began to discharge him, they finalized his adoption, and mom and dad had a miracle baby! This is where I come in...January 2007.

And right away I begin talking about WDW! I found out that Rodney had taken a MAW trip to Sesame Place shortly after joining the family, when they still thought he wasn't going to get healthy

They just didn't know better!!! So, last year we got Rad-Rod eating enough calories to have his G-tube removed

We had him tested for therapies, he doesn't need PT, he's receiving OT and ST when they can fit him into the schedules

The ST and I are working to get him started with a communication board very soon. He can speak, but he just doesn't feel it's necessary, he knows how to get what he wants when he wants it...grabs a hand and yanks you to the TV for a movie, or to the fridge when he's hungry
So, why am I here

Because my DH and I have decided to invite this family to Disney with us

in January. But, we don't have the luxury of having all the extras that MAW and GKTW provides. We're trying to make them a "Wanna-be Wish trip", and that's where you all come in.
HELP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I'm pretty experienced with traveling to WDW with just DH and I, with DH and friends, but they've all been boring people, not special people like this trip! I've read bits and pieces here, i've read the sticky's at the top of DISabilites, but I need help putting all the pieces together!
-We are going down on 1/10 and they are returning 1/17. DH and I are staying another week.
-We are staying in our timeshare, Westgate Town Center on 192.
-DH and I are getting AP's so that will cover our parking, and
-we'll be taking their Expedition back and forth with their handicapped parking tag.
-Rodney uses a stroller as a w/c, so I know we'll need to have them add that to the GAC, and
-he's REALLY not good in lines-he kicks and grabs.
-We also will have the 2year old with us, so we'll be needing to do some kid-swaps.
-We plan to go to the parks from open to 1, then have lunch, nap, small dinner before going back to the parks around 5 to close.
Since this will probably be their only trip to Disney, how do I make it the most magical time for all of them?
TIA I know that this group will be able to give me the best answers for our situation!
I've got a slow moving PTR in my siggie
