My DH and his 2 siblings are great but unfortunately they were very sheltered by the 2 people who need them so desperately. They will do anything but sometimes wait to be asked! DH has been told by me right from the beginning the truth of this disease what it can do, how it can progress or not progress. His siblings I think have not been fortunate to have any prep and they are not ones to do alot of research of what is to come more on how to we fix NOW!
I don't know what the "right" move is, I am just trying to stay one step ahead in the thought process of all involved.
I personally come from a large family (6) despite this being my inlaws, my family will be with us every step of the way. They know I need them, and they also know my inlaws are awesome people. I have 3 sisters and 1 sister in law (my side) I can call anytime and they are there. My sister inlaw on DH side is very attentive to her parents. We both have young kids - it is difficult - my kids are 8 & 6 her kids are 4 & 2! My BIL is single. We are just lost at this point we need that concrete plan!
My DH and his siblings (2) are very naive. Their mother was (is)the matriac, everything is fine - never shares the whole truth! Well now she is exhausted and my DH is beside himself. My poor DH is the focus of his fathers hallucinations. My FIL sees my DH everywhere in the house. He converses with him all the time my MIL says. They have a great relationship unfortunately with our kids being so young my DH hasn't been around a whole lot but he is trying! It makes so much sense for us to do this together with them, we have the financial means to help and my inlaws are not broke in any way combining resources for his care is the best way. FIL will know that no matter what MIL will be fine, and FIL will get care and MIL will get some life back. (if not life a little sleep on a regular basis)
The worst days are the clarity days. When my FIL is doing great, my MIL gets her hopes so high and then boom it is back with a vengance.
I love hospice, they are an awesome organization, we could slip in under many loop holes but my MIL is not ready, we are trying to just keep some quality in everyones life!
MIL will go down fighting every step of the way. In some ways I think a terminal diagnosis would be easier, right now it is a life sentence with no end in sight.
FIL is awesome. He is so aware at times he and I talk about the raw deal he got and I feel so sad for what his family is missing. He is the best dad - little league coach for 32 years, hockey parent all the way! He was always there for his kids (especially his boys) I am not sure how this will all end but I know that I will be advocating on his behalf all the way. I will protect my DH from whatever pain I can, but life is so cruel as may healthcare workers can attest. The inequity in quality to life is crazy!
I lost my Dad 4 years ago, it was horrible. Not a long death just very painful. I can't protect from death I can only support and love everyone involved while we travel this journey of life and ensure we endure together!
Thanks,
Carolyn