I just had a scary experience that I think other people need to be aware of for their safety.
My son is on Pulmicort Respules (ampules) for a Nebulizer to treat his Asthma. I prefer to get their medicines from a brick and mortar pharmacy but Medco has been penalizing us for doing this so lately I've been tolerating their in-the-mail system. That is until last week when they sent me my son's Pulmicort without ice packs, even though I asked them to do so. The medicines are not sent 'signature necessary' so they just get delivered whenever and stay outside until picked up. Well, the day Pulmicort was delivered was a very hot day and they sat out in the direct sun for hours. The medicine actually felt hot to the touch, but there are no temperature reading tabs in the box to tell me how hot it actually got so I had to guess. Good thing I read the insert. So I called and complained and they gave me a song and a dance about how the temps on the insert are just 'guidelines' that the medicine doesn't REALLY need to stay at those temperatures (66-77 degrees F). They didn't say it was a mistake, they told me I was misunderstanding the instructions. I kept complaining and they got me a Pharmacist who I had to back into a corner to get a top threshold temp of 104F. I had to demand this medicine be replaced, this time packed in ice, and they did... but they acted like they were doing me a huge favor.
So just now I pulled it out of the sun and the ice is all melted and the stuff feels warm to me. So this time I called Astera-Zeneca because I wanted firm answers on what is and isn't ok for this medicine. I get a nurse reading from the same insert i have who tells me no other info is available to consumers about the upper limits of temperature tolerance, that 77 was the max and it should never ever be frozen. I asked what the temp is that this stuff freezes and she couldn't say. That I need to rely on the Pharmacy to comply with the shipping requirements they had to sign in the contract. However, the guidelines in this contract are not available to me. I could ask my Dr to call for me, as if my Dr is going to waste 1/2 hour on this. I am really upset as a consumer and parent that I am not able to make a knowledgeable decision on my child's treatment because the full info isn't available to me, it's all behind the scenes.
My head is totally swimming. I just spent $78 co-pay on a very expensive box of medicine where I have zero confidence in whether or not it's spoiled, and have the older 4 boxes waiting to be picked up by the garbage man. My kid needs this stuff to keep him breathing. How am I supposed to trust this medication, more importantly, I can't help but wonder how many other people out there are getting spoiled medications this way? I can't be the only one, this is unreal. What good does it do for the FDA to have all these specifications if they all go out the window in the final step before the medicine reaches me? What a mess.
I just thought I'd post to recommend anyone else out there getting mail order medications check the temperature limits on your meds and make sure the mail order company is keeping within the drugs requirements on the inserts. I know mine isn't, I guess I'll be paying the penalties and go back to my regular Pharmacy, this is just way too important.