Updates on AVERY. (good news update pg 33 post 489!)

[TruBlu]

Avery has been moved out of ICU and onto the regular pediatric floor!!!

When I told my boys they both let out really loud whoops of joy, jumped up, started dancing, and did a big high five! You would have thought we won the lottery!

 

[Mackey Mouse]

Heading to church in a bit, Avery will be on my prayer list there too.. Hope yesterday worked out great and the sun is shining this morning for our little buddy..

 

[Jake & Crew]

Three cheers for the champ!!! Who cares if the Colts are going to the Super Bowl......Avery going to the floor is SO MUCH BETTTER!!!!!!

Continued prayers and

 

[Mackey Mouse]

How is Avery doing today.. hope he is enjoying his new digs and meeting other children when he is well enough..

I watched this special on Danny Thomas' St. Jude Hospital the other night and all I could think of was Avery.. and I was weeping and praying...

 

[NHAnn]

My little guy is doing pretty well, they straightened out a snafu with weaning him off his narcotics and he's better today than over the weekend. He has gone for wheelchair and wagon rides and even short walks. His sisters visited him today, they were able to share hugs and kisses for the first time in 6 weeks... and 3 yr old Delaney told him he looked cute with no hair
Another spinal tap will be Thursday and they are alreadydiscussing type/dose for chemo, his numbers look good after last weeks, so

Again, thanks from my heart for your prayers and support.

PS....we are about 80% moved and sleeping at our new house. Also having computer/internet connection issues with my laptop/router so am on an old W98 desktop with no current virucide (long story)....if I disappear for awhile it's lack of time or computer issues!! WIll keep you updated as I can!!

 

[Mackey Mouse]

Ann.. that was such a great post to read......he got to see his sisters. Wow, that is special and he was walking a bit.. now if he just can keep those numbers up so that they continue the chemo and make him all better... Enough for this sweetie..

 

[TruBlu]

What a wonderful report! Just thinking of him with his sisters has me all weepy this morning! BUT in a GOOD way!!!

 

[Deesknee]

I'm new to this board. I have read most of this post. Avery is now added to my prayer list. I'm glad to hear things are now heading in a positive manner.

 

[Mickeyfaniam]

great news Ann
and continued prayers....

 

[MerryPoppins]

Glad to hear things keep getting better for Avery. I'm still praying for our little guy.

 

[goldcupmom]

Glad to see Avery is making some strides in the right direction. I'm continuing to pray for him and all your family, Ann. Thanks for keeping us posted.

Hopefully you will be settled in your new home soon!

 

[Belle1997]

Hi just to let you know I am checking to see how Avery is doing. Hope that he is still doing well. What a brave little boy.

 

[Deesknee]

Just checking to see how Avery is doing before I go to bed. He and his loved ones will be in my bedtime prayers.

 

[NHAnn]

Well, they had been starting to talk about a release date for Avery, but that is on hold now He needs a surgical procedure they have scheduled for tomorrow to remove/drain some infected "gunk" (the doctors said "think peanut butter/boogers consistency" ) down the left side of his back under the skin. It sounds like they will have to make a long incision and clean it out and put in antibacterial sponges which will need to be changed /decreased (surgically) every few days over at least a couple of weeks.
On the plus side, his immune system counts are still looking good and his spirits are good. Thank you for your continued prayers!

I have not been on line as much lately...I am busy/stressed with just moving , some extensive dental work (3 crowns and a root canal)...but thinking of you all and grateful for your support!!

 

[MerryPoppins]

The peanut butter gunk sounds horrible. Poor little guy.

But I'm glad he's in good spirits and continues to make progress. It's wonderful that they're even talking about release dates, isn't it? He's fought so hard. I'm very proud of him. What a little trooper he is.

How are his parents holding up? I know this has been very stressful for them.

I'm continuing to pray.

 

[j's m]

Ann, thanks for the update, I was praying everything was ok. I'm glad you were "just" busy. I hate root canal.

That surgical procedure sounds awful, I hope it goes well. He must be such a brave little boy. to all of you.

 

[Mackey Mouse]

Hugs Ann.....I cannot believe they are talking about releasing him from the hospital......I mean it seems like yesterday we were beside ourselves with worry.. I know it probably did not go by fast for you all though..

Anyway, take care of you, get that move done and all that dental work out of the way so that you can enjoy his sweet face up close and personal when he gets home..

 

[Deesknee]

What a tough little guy. Glad to hear his spirits are good and that they are talking about releasing him. I'm sorry to hear he has to go thru this surgery. I hope you are able to relax with him in your arms in your new home very soon. Good luck with all your dental work.

God bless. You and your tough guy are in my prayers continually.

 

[Belle1997]

Oh I am so glad they are talking release date. And so sorry he still has more surgery ahead. But every little step forward is a gift I was so worried this little guy would not even make it to Christmas. He has come so far. What a little fighter and I am sure all the prayers of all the people all over the world sure makes a difference.

Thanks for the update. Was getting a little worried.

Hugs to you and sorry about the root canals nasty stuff.

 

[TruBlu]

Just sending some love Avery's way...

How are you all doing Ann?