Ty-bugs MAW pre-trip to ride Jaws and go to Disney! July 10-16 2010

[cantwaittoseemickey]

I had to post this Ty funny. He was a big helper to dh this weekend working on the cars. They went to the store for a few things. When they came home I was sitting in Sierra's room talking to her as she had just came in from a Girlscout overnight. Ty walks in and says mommy we had a "messy situation" at the store Apparently dh dropped some bottles and they busted all over the floor. Poor dh but oh Ty lol. I just had to laugh. He was as serious as could be

 

[cantwaittoseemickey]

This week has been a full week. Both kids had state testing and after today they will be all over with for the year Then we can countdown till summer vacation

We also had to get a furnace and central air. Our furnace kept coming on and shutting off coming on and shutting off. And our air wouldnt keep our house below 78 degrees and Ty gets pretty heated so we went ahead and got it before it got too hot. Our furnace was the orginal one put in. So we got that done this week.

Ive also been working on washing and sorting our summer clothes. Trying things on and getting ready for a yard sale this year for the old clothes. And going through some of my stuff around the house trying to downsize. Too bad I can't downsize all of this paperwork

 

[wishin' on a star]

I hate cleaning out drawers and sorting through that stuff! Good for you for getting it out of the way now.

Sorry you had to buy a new AC and furnace...that's an expensive venture!

 

[cantwaittoseemickey]

I hate cleaning out drawers and sorting through that stuff! Good for you for getting it out of the way now.

Sorry you had to buy a new AC and furnace...that's an expensive venture!

It sure was. I am so glad that is out of the way. Now we have to get our electric converted from fuses next week before we can't get a fuse to go back in. Our fuse sockets are stripped. Ahh one less thing to have done. But wow this stuff is a hefty price!

 

[cantwaittoseemickey]

We have a dinner reservation!

We will be going to Garden Grille on Thursday at 4pm to dine with Chip and Dale.

We have ressies at 4pm which I think will work out great since we will be in Epcot that day and it will be toward the end of the day for us before we head back to GKTW for the Winter Wonderland.

 

[The Lurker]

I tried to respond to your message, but I am not very good at figuring out these boards. I post stuff and am never sure where it will end up. If you didn't get my response, I will try again.

Katie

 

[cantwaittoseemickey]

I tried to respond to your message, but I am not very good at figuring out these boards. I post stuff and am never sure where it will end up. If you didn't get my response, I will try again.

Katie

humm I dont see anything I can understand. It took me forever to figure the board out!

 

[cantwaittoseemickey]

We have been invited by the wonderful people of these boards (I call them angels) to be apart of the Big Give!

I can't tell you all how excited we are. We can't wait to see what great things come! And I am so greatful that the family is included. Sierra has had a hard time sometimes and feeling "left out" as when we have gone to apts and admitted she has always had to go to grandma's as my husband could not take off work to watch her. So for her to be included it just really melts my heart. I want her to enjoy this trip as much as Ty. We are so happy that Harry Potter opened when it did because she is absolutely one of the biggest fans and is looking so forward to going there.(and it opens on her birthday)

Another happy note too! I havent spoken to my sil since my fil's passing(not by my choice) and we have been texting back and forth all day. It has broken my heart so bad. And with not seeing my niece and nephew since (even on thier birthdays I have had a really hard time. Many tears have been shed but I cannot change things they have to work out. Well she texted me last weekend and we have just "gabbed" away all day today. And I am so happy and thankful! I just hope hearts can heal.And this is a start!!

 

[wishin' on a star]

Hooray for the BIG GIVE!!! We all know how amazingly generous they are. I am right there with you on making this trip about all of the kids. Certainly Catherine has been through more, but really, the other kids in these families have their own struggles and deserve this wish as well.

Good news about getting back in touch with your SIL. Family can never be replaced.

 

[cantwaittoseemickey]

We are sleep study bound Ty is having problems with paleness and fatigue so the pulmo has ordered a sleep study to rule out hypopsomething?? where he would be shallow breathing at night.He really feels it is more like a vasovagal response with his reflux though. Ty is dx'd with dyautonomia by symptoms rather then tests and he wants us to persue testing which will mean another trip to Cleveland Clinic or somewhere that sees kids for it which there arent too many that I am aware of. He mentioned Familial dysautonomia. He also asked why he hasnt had the nissen for his reflux. From what I understand the Nissen is not for kids with motility issues as it can cause some big problems. As bad as I dont want him to have hypopwhatever it is it seems like it would be the easiest to treat and it would give him the better chance of getting more energy during the day.

 

[cantwaittoseemickey]

Hooray for the BIG GIVE!!! We all know how amazingly generous they are. I am right there with you on making this trip about all of the kids. Certainly Catherine has been through more, but really, the other kids in these families have their own struggles and deserve this wish as well.

Good news about getting back in touch with your SIL. Family can never be replaced.

They have done some wonderful things haven't they? And they are the most talented group of people I have ever seen.

 

[jenb1023]

Hi Tonya! Sorry to have been MIA lately. I was crazy busy and not on the boards for awhile and it is taking me forever to catch up on all of my threads!

I hope the sleep study helps you figure out the fatigue issues. We need Ty to be full of energy for his trip!

Wow - that 2008 trip was something - - and not in a good way. You are a much nicer and more patient person than I am. I would have heads rolling several times over things you went through.

I know your Wish trip will be amazing! That is a lot of stuff to do in not a lot of time so make sure you use your WISH buttons wherever possible and plan for your top rides/shows at each park since it will be impossible to do it all.

Looking forward to hearing more about your plans and congrats on the Big Give!!!!

 

[Momofwishkid]

We are sleep study bound Ty is having problems with paleness and fatigue so the pulmo has ordered a sleep study to rule out hypopsomething?? where he would be shallow breathing at night.He really feels it is more like a vasovagal response with his reflux though. Ty is dx'd with dyautonomia by symptoms rather then tests and he wants us to persue testing which will mean another trip to Cleveland Clinic or somewhere that sees kids for it which there arent too many that I am aware of. He mentioned Familial dysautonomia. He also asked why he hasnt had the nissen for his reflux. From what I understand the Nissen is not for kids with motility issues as it can cause some big problems. As bad as I dont want him to have hypopwhatever it is it seems like it would be the easiest to treat and it would give him the better chance of getting more energy during the day.

Keeping Ty in my thoughts for the sleep study and Congrats on the Big Give!! These women and men are absolutley amazing!

 

[cantwaittoseemickey]

Hi Tonya! Sorry to have been MIA lately. I was crazy busy and not on the boards for awhile and it is taking me forever to catch up on all of my threads!

It is sooo hard to catch up isn't it? I try to check daily and still have a hard time keeping up

I hope the sleep study helps you figure out the fatigue issues. We need Ty to be full of energy for his trip!

Definately! I think he will be ok as long as we allow him to rest and pack his cooling vest. Although Im still wondering how to get the icepacks on the plane

Wow - that 2008 trip was something - - and not in a good way. You are a much nicer and more patient person than I am. I would have heads rolling several times over things you went through.

lol I did let things be known but found if I lost my cool then the family lost their cool so I held it together (sort of) till we got home


I know your Wish trip will be amazing! That is a lot of stuff to do in not a lot of time so make sure you use your WISH buttons wherever possible and plan for your top rides/shows at each park since it will be impossible to do it all.

Thank you for the tip. I am getting ready to sit and make out some maps of things we want to do. I read it (in my 3 hours of reading the Dis) on a tr today that it works. Now if I just don't leave it all behind at the villa

Looking forward to hearing more about your plans and congrats on the Big
Give!!!!

Thank you! We are SO excited about the Big Give! I think my mom is as excited as I am lol. I keep calling her and telling her about it

 

[cantwaittoseemickey]

Keeping Ty in my thoughts for the sleep study and Congrats on the Big Give!! These women and men are absolutley amazing!

Thank you! I think it will be a while before he will have it as they asked me if I wanted a cancellation if it happens and that was before we even scheduled it We don't have a date as they are waiting for the dr to get back to them on a question they have.

 

[cantwaittoseemickey]

I so keep forgetting to hit the multiquote button

So today I called Cleveland Clinic and the clinic doesn't see kids. So they directed me to Rainbow Babies and I spoke with a nurse who told me they have openings in July the week we leave for Disney umm no we can't do that. So I think its going to be quite a while. I also looked up Familial Dysautonomia and well nope that's not it either for sure. But there are different types so we will see.

I also sat here for 3 hours reading ONE tr today lol. I just love reading about the past Wish Trippers and looking at all the wonderful pictures that have been posted. Believe me I shed my share of tears today Since dh worked all day and the kids were in school I had a little "me" time. And what better way to spend it then being on the Dis

Also this evening I finally tackled my fireplaceIt was so dusty so I got it all cleaned up for the summer. I have wanted to do that for a while now so I'm glad to have gotten that all done. One thing off my list!

Tonight Ty put on a little "show" for us. He can wiggle his ears and put one eyebrow up while the other one is down and vice versaCraziest thing I've ever seen I told him his favorite character should be Dopey! I think he is adorable.We all do like our ears as they slightly stick out. And Ty has the extra bonus to be able to move them

 

[wishin' on a star]

You go girl, cleaning up the fireplace...my house is so neglected these days! My DH is out playing baseball tonight, so here I am on the DIS...yes I should be doing laundry since I promised Carmella she would have a clean shirt to wear tomorrow! (My girls wear uniforms, and her other option is her jumper, and I guess in 2nd grade that is now very uncool. Who knew? )

Anyway, wow...that's a long time to wait for the sleep study!

 

[cantwaittoseemickey]

Yes it is. I think I will give them a reminder call tomarrow I love jumpsuits!! We have not had to wear uniform clothes but sometimes it would be easier with the rules they have here.

 

[cantwaittoseemickey]

Today was a very special day for me. I spent two hours with my sil and my niece We talked and shed tears and talked some more and shed some more tears. It was so good to talk to her and see my niece who missed her auntie!!

 

[wishin' on a star]

Today was a very special day for me. I spent two hours with my sil and my niece We talked and shed tears and talked some more and shed some more tears. It was so good to talk to her and see my niece who missed her auntie!!

That's awesome!