To Kidney - and BEYOND! MAW PTP

[angel's momma]

Sorry you've been dealing with so much sickness, glad that it hasn't been anything major. Praying his labs will be good. Yay for the upcoming kidney-versary.

 

[jon03015]

Howdy kidney momma!
Matthew takes .75mls of cellcept twice daily (200mg/ml) and 1.8 ml of prograf twice daily (1mg/ml). Generally his Tac levels are around 5, they are trying to keep him between 4-6. We will be celebrating his 3 year kidney-versary on the 14th of this month!! YAY!!! Of course, he went to be tonight with a fever and sore throat. So doc in the morning, labs on Friday. His body is BAD with prograf - when he runs a fever or has a tummy bug of any type, his levels just sky rocket! He's been as high as 42 before! And boy did that do some damage to the new kidney.
How far out from transplant is Austin? I hope things are going well!

Austin will be 2 years on August 2nd. Austin is on 180mg of Myfortic 2x per day and 2 mg of prograf 2x a day, and 225 of Valcyte 1x per day. We just had our first 2 month stint of no labs/transplant clinic (yeah!). I hope your little guy is feeling better! That is crazy about his prograf. We haven't had that issue yet. Again it is so nice to connect with another kidney family. Sometimes it is quite lonely.

 

[angel's momma]

Hope all is well, and that you're about to go on your trip.