Oh and danced and jumped up and down when they said it wasn't leukemia!He's already on three immuno-suppression meds for his kidney - didn't want to add chemo to the mix.
One day, we'll get to that point - as his meds he takes (cellcept and prograf especially) are highly carcinogenic with lymphomas and skin cancers being the real threat. We do cancer screening labs every 3 months at kidney clinic. When we get to that point, we'll deal with it like we've dealt with all the other not so pleasant stuff. But I'd much rather NOT deal with it while he is still young and still traumatized by the medical world that he only sees as a cruel form of torture instead of a place to make he feel better. SO- off my soapbox!
Thank you - I think they look quite cute too! I'll be popping over to your PTR this evening. You are SOOOOO close to your date!! Has your brain turned into anticipation mush yet???
So it sounds like we have two little guys who have a lot in common. My wish child turned 4 in June and we just celebrated the 2 year anniversary of his kidney transplant! I'm so glad to hear Matthew is doing ok. Shawn-Brooklyn is also on cellcept and prograf and we too had a similar scare regarding enlarged lymph nodes that his doctors feared were cancerous. It just seems like it is always something. I can't wait to hear more about your upcoming trip! You all deserve it!
I still remember the doctors rolling me into the OR for the c-section and I asked for one of the shunts they had placed in Matthew. (they had placed four of them between weeks 18 - 23). I still have it in his baby book. Oh the things I have saved - I'm sure people think I'm NUTS!
(shhhh - I'm am - just don't tell anyone)
I'm starting to plan! I've written down the parties for each night at GKTW and the extra magic hours at the parks. This will be the first time since the 1980's I have not stayed on property, so it's kind of weird to plan to NOT be there for the extra hours rather than staying late or going early. 
But I don't want any more crowds than necessary. Matthew's PTSD is up and roaring again. 
I just wish I could figure out all of his triggers. It's so hard when they don't even know what is going on in their little brains. Regardless, this will be a magical experience, even if we spend the majority of the time at the resort due to episodes!
I have finally decided that we will go to Sea World our first full day. Since that Monday will be President's day and a lot of families will have a three day weekend, I just figured more would be hitting up Disney instead. And my little ones loved the Chattanooga Aquarium when we went this summer - imagine their little faces at Sea World! They were giddy touching sturgeons for crying out loud! Imagine dolphins!!
I do hope your son keeps his kidneys as long as possible! Your family will be in my prayers. 
But those are minor and can't complain. 47 days!!!!!
So doc in the morning, labs on Friday. His body is BAD with prograf - when he runs a fever or has a tummy bug of any type, his levels just sky rocket!
