The THYROID Thread

[Princesca]

Hey guys - just wanted to pop in with a comment since I think I posted at some point about my thyroid. TLDR: I had hyperthyroidism due to multinodular goiter, and repeated "atypical" and inconclusive biopsies. I went back and forth, tried taking alternative treatments, but in the end, I decided that the constant stress of the biopsies was worse than anything, and I had a total thyroidectomy back in January. I am so, so, so glad I had it done. I feel a million times better than I did before. The surgery was relatively painless, the recovery was super fast, getting adjusted to Synthroid was much easier than I imagined, and I now have a cool new scar.

Anyway, I just wanted to say that none of you are alone and if anyone has any questions for me about my experience or concerns about your own, I'm happy to talk about it. Just PM me, because I can't keep up with all the threads!

 

[macraven]

Great to read it went well with you !

 

[luvmarypoppins]

Princesca - glad to hear your surgery went well and you are feeling better post op.

Singing Mom - how was the cruise? I hope you had a wonderful time with your dh and dd. Has she heard anything from Disney yet? Wishing her all the best.

Well I survived the Vacation Bible School. Ds3 adjusted his schedule so that he could help me. We also had 2 teen helpers. The one girl is my regular girl and she is great. She is a hs junior and wants to be a teacher. We had 7 girls and 1 boy in the class. They switched the ages of the classes this year so instead of 3rd and 4th combined, I just had 4th. But I was still exhausted and took a nap every day I came home.

Ds3 is going to Las Vegas with 2 friends the end of the month. Boy will he be hot!!

Hoping to get a mammogram and neck sonogram scheduled soon but they will be at different places.

I spent the last 2 days catching up with everything that I put aside during the week, lots of laundry etc.

Dh is still asking me to go to Disney in August with his friends. It will be so hot. My ap expires before the end of the month and I looked at flights and they are so expensive. Southwest has a captive audience here in NY. I told him I already saw mostly everything (except the new soarin) and I dont feel like sweating like I did the other August with ds3 and I dont even know these people. They are our age and have never had kids and she is a disneyholic dh said. She has a dedicated room in her home and collects alot of high end disney stuff.

Hope everyone is doing well

 

[SingingMom]

Our cruise was fabulous! The Fantasy was a gorgeous ship and the adult only areas were terrific. We had a lovely time together. DD just got a job, starting next Monday, but it's not with Disney. She is going to be front desk/concierge with Reunion Resorts - a five star, AAA 4 Diamond rated resort. She hopes to work for Disney in the future, but this will be wonderful experience and a resume builder.

I don't blame you about not wanting to do Disney in August. It's just "Too Darn Hot"! We didn't even go to the parks our last day before we flew home from the cruise - we just stayed by the pool. TOO muggy. Very thick air. I'd wait until October if I were you!

 

[luvmarypoppins]

singing mom - so glad you had a wonderful trip and your dd's job sounds great. Agree that it is good resume building for sure.

Well I told dh I am not going to Disney in August. The guy he is suppose to meet told him he just hurt his back really bad and also that his wife and him are staying somewhere offsite, so that would factor in about meeting, planning times etc, going back for breaks. And if the flight prices werent bad enough the final deal breaker was that the Swan was unavailable for the dates the other guy is going. So I am talking dh into food and wine

macraven - when are you going to food and wine?

Christine - Doing any fun summer reading. I just won another 4 books and I am stuck in the book I am reading for over 2 weeks. I couldnt even read due to the teaching I was doing.

Oh and now in the we just cant win this summer. First it was sweating and no a/c for the week and now ds2 informs me this morning there is no hot water. The water heater is also old and I will talk to dh. So now we have 2 choices. Call our usual plumber who messed up something the last time he was here while fixing the first problem or call the a/c guy because they do water heaters too and I really love this companys work. I wont be home unless dh is here when they come. But since they took a week to get here with the a/c then I have visions of a week of cold showers might be in our future, sigh!!

 

[Christine]

Hello, luvmarypoppins! Sorry to hear about your trip falling through but you didn't seem to be 100% on board with going anyway. No, no fun reading here. I had a LOT of books that I had on reserve come in at the same time so I had to not read some of them and go back on a waiting list. It's so frustrating because I wait a long time for them and then they seem to come all at the same time, even though I'm on various different positions on the hold list.

That stinks about the hot water heater. I think we might be on our second or third one. We usually just go up to Home Depot or Lowe's and pick one out and then they deal with the contractor. Having done that, I usually wait no more than 48 hours for the new install. I've never had an issue with anyone's work so that might be an option for you. I think most companies consider no hot water somewhat of an emergency so they will often get out there fast. I did have to wait almost 2 weeks for my new AC to come, though. Fortunately I have an upper floor unit so my sleep was comfortable.

Everyone have a nice weekend. It's supposed to be 100 degrees here in Virginia.

 

[SingingMom]

Hello, luvmarypoppins! Sorry to hear about your trip falling through but you didn't seem to be 100% on board with going anyway. No, no fun reading here. I had a LOT of books that I had on reserve come in at the same time so I had to not read some of them and go back on a waiting list. It's so frustrating because I wait a long time for them and then they seem to come all at the same time, even though I'm on various different positions on the hold list.

That stinks about the hot water heater. I think we might be on our second or third one. We usually just go up to Home Depot or Lowe's and pick one out and then they deal with the contractor. Having done that, I usually wait no more than 48 hours for the new install. I've never had an issue with anyone's work so that might be an option for you. I think most companies consider no hot water somewhat of an emergency so they will often get out there fast. I did have to wait almost 2 weeks for my new AC to come, though. Fortunately I have an upper floor unit so my sleep was comfortable.

Everyone have a nice weekend. It's supposed to be 100 degrees here in Virginia.

When we renovated two of our bathrooms we had a tankless hot water heater installed. Love it. No worries about a leak again!

Very hot in NJ this weekend too. Just made plans for another trip to see DD - staying at PO Riverside for a few nights as her roommate moves out of the apartment five months earlier than she was supposed to. @@ Added stress as she starts her new job next week, so I figured I'd go give her some "mommy support". Was able to reserve her a nicer apartment complex for September, so I'll return then to help with the move. Getting a two bedroom so I can stay when I visit and will be a home base while I start scoping out areas for when DH retires. Never a dull moment!

 

[Christine]

When we renovated two of our bathrooms we had a tankless hot water heater installed. Love it. No worries about a leak again!

Very hot in NJ this weekend too. Just made plans for another trip to see DD - staying at PO Riverside for a few nights as her roommate moves out of the apartment five months earlier than she was supposed to. @@ Added stress as she starts her new job next week, so I figured I'd go give her some "mommy support". Was able to reserve her a nicer apartment complex for September, so I'll return then to help with the move. Getting a two bedroom so I can stay when I visit and will be a home base while I start scoping out areas for when DH retires. Never a dull moment!

Never a dull moment, but fun!!!

 

[baler31]

LMP hope your neck pain eases up and the tooth situation also
It takes a lot out of a person when they have constant annoying pains

Feel like burying my head in the sand when it comes to finding a new endo

I google who is in Atlanta but no idea if they are the one for me

I have some months left in my synthesis script so no worries with that


Hope all are doing fine this summer!

Sorry, it has taken me so long to post. My SIL said Sumathi Srivatsa is very well liked by patients. She also rec'd a Phillip Berry but does not believe he sees any new patients. At least this gives you somewhere to start in your search, sorry for the delay.

 

[macraven]

Sorry, it has taken me so long to post. My SIL said Sumathi Srivatsa is very well liked by patients. She also rec'd a Phillip Berry but does not believe he sees any new patients. At least this gives you somewhere to start in your search, sorry for the delay.

Thank you for the names!

I'll get on this today

 

[luvmarypoppins]

Macraven - good luck with the endo quest

Well I got a refund check in the mail today from my ins. company. They said their drug billing program was not working correctly one time and gave me a refund for $21.

Starting to look at the Food and Wine trip. And thanks to my swan and dolphin post I found out the one time frame is the Gartner conference at the S and D. This is the same time frame as the Chew will be there and I thought maybe ds3 would like that, I dont even know if he wants to go but we shall see.

Dh is gong on another big trip sometime in Aug. He is going to Michigan and then the west coast at least for a week. More miles for another disney trip hotel.

Just saw that our area is in a severe drought warning. Every time it storms it just seems to mostly pass over us and we get little rain. We really need it because if we dont then in Sept. they usually have the wildfires but not in our area though. Tomm. is suppose to be a stormy day.

 

[macraven]

Thanks LMP


We are in a drought also
Now 10 inches below normal

I need to do a rain dance

 

[luvmarypoppins]

Christine - sorry to hear about your nosebleeds (saw your other thread). I am sure it must be scary. I know my sister used to always have them as a child and she had to have her nose cauterized and after that she never had them again.

Also the teenage girl who helped me at the VBS this summer also had a really bad one and she had to be out of the class for over and hour one day. She came back with gauze taped to her nose. She said she gets them a lot too and they were considering the cauterizing thing for her too.

Also I am sure the hot flashes are enough to deal with for you and now this right? I hope you can get some answers and some relief soon.

Ds3 had a great time in Las Vegas he said. He saw 2 Cirque du Soleil shows. I guess he got hooked after we saw the one at Disney.

Dh is leaving for the west coast tomm. He said Food and Wine was good, so now we just have to work out the dates.

We usually eat lunch at the food booths, but gosh it gets expensive. not for me because I really dont eat alot but dh. I even try to put a limit on him, not with the card but I just say heah, just get like 3 or 4 entrees or 3 desserts and if there is something I try and don't like I usually give that to him too. It really adds up. But he does what he wants, sigh.

Anyone see the article today.....it was in my yahoo news feed from Fox Entertainment News......

Jax the 20 year old 3rd place winner from American Idol was diagnosed first with Hashimotos since she said she went to urgent care and said she had trouble swallowing. She said she had 18 nodules on her thyroid and after the biopsies 12 were cancerous, wowsa that is alot!!!!! She says....I am radioactive now.

She is from the town my aunt lived in and I know my aunt tells me about the urgent care there. I think there are two of them and the one is really good so I am glad they caught that with her. She says....I am realizing my thyroid is more important than my brain, lol!!!

Check in when you can. Happy Summer, or what is left of it.

 

[SingingMom]

DD is settling into her new job. Misses working for Disney, but she's still hopeful. She actually had an interview this week. My visit with her was very nice - she and her roommate parted on good terms and I helped her get the apartment ready to move. We visited her new complex to see where the actual unit is located and I'm very pleased. If she returns to work in MK in the future, she can even WALK to work! I'm returning next month to orchestrate her bedroom & dining furniture moved & set up, and order living room and 2nd bedroom furniture and be there for the delivery. I told DH I may stay the winter. LOL

I'm getting ready to make my annual appointments. I have a stress test & echo scheduled for November. My internist doesn't like my BP, so added a second medication and the cardiologist didn't disagree. The Lipitor is working very well - my numbers dropped considerably. Since my diet is NOT high in cholesterol, dr truly feels it is hereditary. My brother and sister are in the same boat.

I had two little blips in my trip this past time - I forgot one of my medications! One of the BP meds, which is super important. I didn't have a car and DD was at work when I arrived, but a friend was in town and took me to CVS. They were wonderful - it was my stupid insurance company that I wanted to smack. Had to use "mail order" so they wouldn't let CVS fill it. I said - fine - I'll pay out of pocket - it was just enough pills for the week. They wouldn't release the prescription! Even CVS tried to convince them. So I had to contact the doctor's office, who called CVS, and it was finally worked out. But, I had no car and was depending on my friend, so she had to take me back and forth. Thank goodness for good friends! Word to the wise - triple check that you have ALL your meds and not ALL CVS locations are full pharmacies! lol

The other blip was my 6:30 pm return flight didn't leave until 10:30pm @@ We landed at 12:30 pm, but the gates were all busy, so we sat on the plane until 1am! Poor DH picked me up but had to go to work the next day. Silver lining - $75 credit from JetBlue. I'll take it!

 

[Christine]

LMP--thanks for your encouraging words on my nosebleed. Trying not to be a hypochondriac. I've just *never* had them. Hoping that I just have an incredibly dry nose...

I saw the thyroid cancer article today on my Facebook feed. I don't watch American Idol so I don't know who Jax is but, yeah, 18 nodules. Benign or cancerous, that thing needed to COME out!!!

I have no trips planned as everyone's schedule is just so mixed up. My son is off next week, but I really couldn't get anything together so he will be going to Myrtle Beach with a friend. My son, who is really a good boy (don't I sound like one of *those* mothers?) got a speeding ticket a few weeks ago coming home from school. Speed limit is 70 mph but he was going over 80 when he passed someone. Anything over 80 mph in Virginia is considered a reckless ticket. So he had to get a lawyer. They are confident it will be reduced due to his clean driving record.

SingingMom--that's so frustrating about the pharmacy. It just should be that hard. I also have to use CVS, which is really fine, but it should not be that hard when you forget something (realizing this is the insurance company and not a CVS problem). I mean, it's not like you were trying to get Xanax or Oxycontin. Don't you feel like CVS, in general, kind of drives you crazy? Between my prescriptions and my son's asthma medications I feel like they are always texting me, reminding me, etc. I've been calling them the CVS-Mafia.

 

[SingingMom]

LMP--thanks for your encouraging words on my nosebleed. Trying not to be a hypochondriac. I've just *never* had them. Hoping that I just have an incredibly dry nose...

I saw the thyroid cancer article today on my Facebook feed. I don't watch American Idol so I don't know who Jax is but, yeah, 18 nodules. Benign or cancerous, that thing needed to COME out!!!

I have no trips planned as everyone's schedule is just so mixed up. My son is off next week, but I really couldn't get anything together so he will be going to Myrtle Beach with a friend. My son, who is really a good boy (don't I sound like one of *those* mothers?) got a speeding ticket a few weeks ago coming home from school. Speed limit is 70 mph but he was going over 80 when he passed someone. Anything over 80 mph in Virginia is considered a reckless ticket. So he had to get a lawyer. They are confident it will be reduced due to his clean driving record.

SingingMom--that's so frustrating about the pharmacy. It just should be that hard. I also have to use CVS, which is really fine, but it should not be that hard when you forget something (realizing this is the insurance company and not a CVS problem). I mean, it's not like you were trying to get Xanax or Oxycontin. Don't you feel like CVS, in general, kind of drives you crazy? Between my prescriptions and my son's asthma medications I feel like they are always texting me, reminding me, etc. I've been calling them the CVS-Mafia.

Actually, it wasn't CVS at all - it was Express Scripts, that we have to use for mail order refills of long term Rx. CVS was trying to get Express Scripts to release the latest Rx to let them fill a week's worth of pills. I had used CVS when I filled the Rx the first time - but after two fills it has to go to Express Scripts. I just hate insurance companies in general. LOL

 

[macraven]

I hear you on hating insurance companies

I have a med that is not covered and the substitute for it is not one I will take due to its side effects

I got my script from Goodrx. Com and it was greatly discounted

 

[baler31]

Many studies following rise in thyroid cancer:

http://www.nbcnews.com/health/healt...r-diagnoses-rise-treatment-may-not-be-n633061


http://www.healthimaging.com/topics...ust-say-no-hypervigilance-over-thyroid-cancer
What’s more, studies from Japan have shown that immediate surgery and watchful waiting are equally effective in averting deaths from thyroid cancer, the authors note, adding that only a small minority (3.5 percent) of 1,235 Japanese patients with papillary microcarcinomas who were followed for an average of 75 months had clinical disease progression—and none died.

More things to discuss with your Dr.

 

[macraven]

Thank you for sharing that with us

 

[Christine]

Many studies following rise in thyroid cancer:

http://www.nbcnews.com/health/healt...r-diagnoses-rise-treatment-may-not-be-n633061


http://www.healthimaging.com/topics...ust-say-no-hypervigilance-over-thyroid-cancer
What’s more, studies from Japan have shown that immediate surgery and watchful waiting are equally effective in averting deaths from thyroid cancer, the authors note, adding that only a small minority (3.5 percent) of 1,235 Japanese patients with papillary microcarcinomas who were followed for an average of 75 months had clinical disease progression—and none died.

More things to discuss with your Dr.

Any info on regular carcinomas versus micro? I think that makes a big difference.