The THYROID Thread

[turkeymama]

Many years ago, when I was in the hospital for RAI treatment, my blood sugar crashed. But my TSH was 145, I had just been dosed with a high dose of RAI and it happened after that.

I don't think it is out of the realm of possibility that being hypo could affect your blood sugar. Being hypo affects the functioning of every organ in your body.

I would definitely have a retest once you are normal.

I plan on doing this within a few months. In the meantime, maybe I'll just get a monitor to keep an eye on my blood sugar. I really have been feeling better the last few days, but I have no idea if its because I've cut way back on sugar or because the higher synthroid dosage is working. Maybe it's both.

 

[luvmarypoppins]

Well I just got back from Disney

1. Way too cold and I couldnt tolerate the cold well at all, even with 3 layers on. Got to meet Dan Murphy and buckelew11 and her mom so that was good

2. I feel so tired again, even with taking the b12 pills daily. So I missed the shot last week and will try to get it this week.

3. And last but not least, dischick, in honor of our voices. A disney story...
Checked into the Yacht Club. O.K. my voice was bad, generally bad. With the cold and also I didnt feel like hydrating myself alot in the freezing cold. The cast member says to me, at the check in desk.."Oh do you have a cold?" I said, "No, I have cancer!!". She promptly gave dh and I celebration buttons and wrote celebrating LIFE on them

4. I am going to the stomach surgeon tuesday. We will see what he says. He is just watching and waiting right now. I would be happy with a ct scan.

5. Blood test next month to see if the cancer is playing nice.

Hope you are all doing well. Blessings always.

 

[dischick4778]

luvmarypoppins - I am sorry to hear the weather wasn't great, but hope you had a good time anyway. Thanks for sharing your check in story. I guess you get used to having to explain it after a while and it probably gets easier. Also glad to hear how Disney handled it. Hope you had a magical time!

 

[luvmarypoppins]

Cassie - just wondering how you are doing?

 

[casndan]

I'm doing pretty amazing actually! I did well with the RAI beyond some salivary irritation. I have a full body scan tomorrow and I'm feeling pretty optimistic!

 

[luvmarypoppins]

Cassie - glad to hear you are doing well. Just curious as to your dose too. Did you get any "intestinal" side effects? Christine says its called "radiation gastritis".

I hope the scan will go well for you tomm. Nothing like laying on the table for an hour. I had to have some of my pictures done over since at the time I also had an infection in my stomach and that was picked up by the scan so they had to rescan the whole abdominal stuff.

Sure you will be glad when this is all over and you can get back to as normal as possible.

Hang in there, you can see the light at the end of the tunnel!
Have a great holiday!

 

[dischick4778]

Before things get too hectic I wanted to wish you all a very happy holiday season. Whatever you celebrate - enjoy it! I am feeling especially thankful and lucky this year and wish you all the very best.

 

[lizbaby007]

Hi all!

Quick question. I had been on armour for quite awhile when Doc switched me back to Levo. Can't stand the stuff...don't really tolerate it well so asked to be switched back to armour. He said that was cool with him but asked if I would be interested in trying something new called Terasent (sp??).

He said it is a different type of thyroid with no fillers whatsoever and thinks it would work well for me. I figured I would do a bit of research on my own before deciding. Well I can't find anything on the stuff (granted I could be spelling it wrong). I know what my Dr told me but would love to hear other peoples results with it.

Anybody??

Thanks in advance

 

[luvmarypoppins]

lizbaby - no advice, but maybe you could ask your dr. if he/she has a sample of the med and just read the enclosed brochure that comes with it etc. Wishing you all the best.

dischick - thanks for the sweet holiday wishes. I hope you enjoy your christmas too. I am sure it will be very special to you. I am thankful for each and every day, no matter how it turns out. We go to our churchs candelight service and then christmas day we might have a big, breakfast, watch the parade and no presents till the ds read the christmas story from the bible. I am mostly giving them money, easy. Our day is usally quiet. My ds have no grandparents, aunts, uncles or lst cousins etc. But we might go to Nj in Jan. to see my moms best friend who I call aunt.

Oh, and today I got the B12 shot so we will see how that goes. I am seeing the stomach surgeon on the 28th. It got changed as he had to go and do some emergency surgery.

Enjoy your holidays everyone. Blessings to you all.

 

[casndan]

My dosage ended up being 125mci. Body scan showed some possible lymph node involvement, so I'm going to meet with the endo to see what he thinks we should do.

 

[Christine]

http://www.tirosintgelcaps.com/index.php?page=whytirosint


I think I may have to give this stuff a try since it is almost pure T4 (very little in the way of inactive ingredients). I am allergic to one of the fillers in Synthroid, hence I take Levoxyl.

To the poster that brought up this new med:

You probably won't feel any better on this than Synthroid. Armour Thyroid contains T3 which kind of revs you up. Most endos do not like using Armour because it is dessicated bovine thyroid and can't be as well regulated. For those patients that have a requirement for T3 along with their T4, they usually give you a prescription of Cytomel along with your T4 preparation.

 

[portocall]

Christine, thank you very much for the advice.

I am trying to get into an endo because my throat has been sore for a few weeks and I just cant shake it. I also want to push for a biopsy. I have already had cancer so I wont be shocked to hear I have it again but I am praying that not to be the case.

I am already feeling much better on the levo though. I am not sleeping the days away anymore. Waking up at 6:30 has become much easier. That was my worst side effect, sleeping so much.

 

[lizbaby007]

http://www.tirosintgelcaps.com/index.php?page=whytirosint


I think I may have to give this stuff a try since it is almost pure T4 (very little in the way of inactive ingredients). I am allergic to one of the fillers in Synthroid, hence I take Levoxyl.

To the poster that brought up this new med:

You probably won't feel any better on this than Synthroid. Armour Thyroid contains T3 which kind of revs you up. Most endos do not like using Armour because it is dessicated bovine thyroid and can't be as well regulated. For those patients that have a requirement for T3 along with their T4, they usually give you a prescription of Cytomel along with your T4 preparation.

THANKS!! This is exactly what I was looking for.

 

[luvmarypoppins]

Well Happy Almost New Year everyone

And in honor of the not being on the LID diet, you can all go read my dining reviews on the other board from our dec. trip

Well I went to the surgeon today. He is giving me three weeks of anitbiotics then will decide if he is doing more surgery on me. It will be a 20 minute surgery. He did this once before and it didnt work, so I might think twice about this. He was writing out my script and said to dh, whats your wifes name again, I forgot. Hmm, I think I should be scared. I told him, its ok because you are not cutting me up yet. I think these surgeons just see you as a body they cut up etc. Yes, you cant remember me and operated on me 4 times last year.Thanks to him my belly button is killing me right now.

And dis chick (are your streets plowed yet? I am hearing horror storeis on channel 2!)..the nurse today was asking what was up with my voice, scar etc. and of course I had to say thyroid cancer. I hate this nurse. She is new and has no compassion for people. I cringe when I get her. So there we go again. Maybe I should make up a badge/pin...YES I have thyroid cancer and a bad voice too!!:rotfl

Micayla - hope your testing goes well, Keep us informed.

Cassie - when are you seeing the endo?

 

[dischick4778]

luvmarypoppins thanks for checking in!

I give you a lot of credit for dealing with that surgeon and nurse, they sound awful and would make me so nervous. This is your life they are taking into their hands and should be more respectful to you.

As for the weather around here, we just had the plow come through our streets yesterday! We were snowed in for 3 days! The mayor is getting so much slack for the poor job he did handling this storm and clean up. If there was an emergency I don't know how we would have gotten out.

And I like your idea about the button/pin. We should create one "No I don't have a cold - Just Thyroid Cancer". At least we can laugh about it together.

Happy New Year to all! Let's make it a healthy one!!

 

[dis2cruise]

Hi I just had some blood work done my dr said my cholesterol was 296 and he said my thyroid was an 5.8...he told me I need to take meds for both. Is 5.8 not a good reading. How bad is it ?

 

[mrsklamc]

Sounds like your Thyroid Stimulating Hormone is high. It's made by your pituitary gland in your brain. Probably just means your brain is saying 'hey thyroid, we need more work from you,' and isn't getting that work done. The good news is, you can take synthroid to compensate for what your thyroid isn't getting done on its own.

 

[dis2cruise]

Sounds like your Thyroid Stimulating Hormone is high. It's made by your pituitary gland in your brain. Probably just means your brain is saying 'hey thyroid, we need more work from you,' and isn't getting that work done. The good news is, you can take synthroid to compensate for what your thyroid isn't getting done on its own.

Thanks...my dr. Put me on Levothyroxine 50 mcg I need to see him in one month for more blood work.

 

[mrsklamc]

Thanks...my dr. Put me on Levothyroxine 50 mcg I need to see him in one month for more blood work.

Yup. That's the generic for synthroid. If you are feeling fine, don't worry about it but there are a couple of things that concern me here; 1)most thyroid docs would want you on brand name synthroid and 2) It takes six weeks for the drug to fully take effect rather than 4. So if by chance you aren't feeling 'right' and your doctor can't get you to that point, might look into seeing a specialist.

 

[dis2cruise]

Sounds like your Thyroid Stimulating Hormone is high. It's made by your pituitary gland in your brain. Probably just means your brain is saying 'hey thyroid, we need more work from you,' and isn't getting that work done. The good news is, you can take synthroid to compensate for what your thyroid isn't getting done on its own.

Thanks...my dr. Put me on Levothyroxine 50 mcg I need to see him in one month for more blood work.