The THYROID Thread

[squeegee]

Popping out of lurkdom. It's type AB, not A, mentioned in the article.

https://www.yahoo.com/health/type-ab-blood-you-may-be-more-prone-to-memory-loss-97230693847.html

 

[angwill]

Popping out of lurkdom. It's type AB, not A, mentioned in the article.

https://www.yahoo.com/health/type-ab-blood-you-may-be-more-prone-to-memory-loss-97230693847.html

Type A blood were shown to be at significantly higher risk of heart disease. Another recent study, published in the Journal of Clinical & Diagnostics Research, identified Type A blood as a possible risk factor for oral, esophageal, and salivary gland, cancers, while Type B was flagged as a potential risk factor for laryngeal cancers.

It does say type A for the oral, esophageal, and salivary gland cancer.


I think it is like any other study it is most likely limited in how many people they actually studied and really not a proven thing when looked at in the actual population.

 

[squeegee]

Type A blood were shown to be at significantly higher risk of heart disease. Another recent study, published in the Journal of Clinical & Diagnostics Research, identified Type A blood as a possible risk factor for oral, esophageal, and salivary gland, cancers, while Type B was flagged as a potential risk factor for laryngeal cancers. It does say type A for the oral, esophageal, and salivary gland cancer for Type A. I think it is like any other study it is most likely limited in how many people they actually studied and really not a proven thing when looked at in the actual population.

I think I found the one you're referring to.
Yep, is likely limited in real-world populations.
Am O+, myself. LOL.
Back to lurkdom.

 

[angwill]

I think I found the one you're referring to.
Yep, is likely limited in real-world populations.
Am O+, myself. LOL.
Back to lurkdom.

Thanks coming out of lurkdom for us. You have the most common blood type.

 

[luvmarypoppins]

I am doing a runner up post here. I couldnt decide where to post my 10,000th post (Christine I know, I have nothing on you).

But I did it on the breast cancer thread, so sorry this is the 10,001 post.

Christine - what are you reading? I am doing another amish book again. I did a cowboy one and a murder mystery lately too.

My dh is coming home tomm, yeah.

I need to schedule my bone scan. sigh.

Looking at a nice dec. trip. That will only be dh and myself. I think we will do a split day between the Swan and the Yacht and Beach. Its too expensive to stay at the Yacht and Beach all week, even with a 30% room discount.

Hope everyone has a great week end.

Check in when you can.

 

[Christine]

I am doing a runner up post here. I couldnt decide where to post my 10,000th post (Christine I know, I have nothing on you).

But I did it on the breast cancer thread, so sorry this is the 10,001 post.

Christine - what are you reading? I am doing another amish book again. I did a cowboy one and a murder mystery lately too.

My dh is coming home tomm, yeah.

I need to schedule my bone scan. sigh.

Looking at a nice dec. trip. That will only be dh and myself. I think we will do a split day between the Swan and the Yacht and Beach. Its too expensive to stay at the Yacht and Beach all week, even with a 30% room discount.

Hope everyone has a great week end.

Check in when you can.

I am reading "The Book of Life" which is the third in a trilogy by Deborah Harkness. It's a sort of "adult" Harry Potter type of story. I have a few other books in my queue on my Kindle.

We have a wedding to go today. It's about 2 hours away, way down in southern MD. We don't have a lot of weddings in my family (last one was about 2 years ago). But it's a chance to see all my relatives. Just wish the drive wasn't so far.

 

[macraven]

I am doing a runner up post here. I couldnt decide where to post my 10,000th post (Christine I know, I have nothing on you).

But I did it on the breast cancer thread, so sorry this is the 10,001 post.

Christine - what are you reading? I am doing another amish book again. I did a cowboy one and a murder mystery lately too.

My dh is coming home tomm, yeah.

I need to schedule my bone scan. sigh.

Looking at a nice dec. trip. That will only be dh and myself. I think we will do a split day between the Swan and the Yacht and Beach. Its too expensive to stay at the Yacht and Beach all week, even with a 30% room discount.

Hope everyone has a great week end.

Check in when you can.

congrats on running with the big doggies now!
you hit 10,000 + and that is marvelous...


i haven't been around in weeks here, just tied up with many things.
my mother passed away in my arms in august and it is not easy to get passed it sometimes.
my mind wanders to it frequently.
same thing happened with my dad last year, passed while i was holding him.

i had a horrid score on my Vit D in december, a 7.
started the ergo and in july, the endo said i was at a safe limit of 46.
she took me off the script 8 weeks ago.

had a blood clot in my leg and the vein burst, last week so doctors and labs i was tied up with.
i complained about getting the charley horses again in the calf and asked if there was any connection to the vit d levels.
the clot was at the same place in the calf where i would have pain.

doctor did the alpha 25 test and found my vit d levels had dropped to the teens this time.

i'm now back on the ergo and they want me to increase the dose to twice a week. 100,000 i.e.

have any of you with the vit d defiency ever yo-yoed like this with ergo before?

hope you all are doing fine.

i'm cleared to fly this month for my trip to the motherland.
that was the best news i have had this month.

 

[luvmarypoppins]

macraven - I am so sorry for your loss I am sure it is so hard on you. At least you got to be with them and say goodbye so I am sure that is a comfort. I never got to say goodbye to either of my parents. They both had heart attacks and died very young.

Also sorry you have to deal with the vit d issues. I have been on the 50,000 iu prescription since even before I got dx with the thyroid cancer because my bone marrow shut down and stopped making red blood cells so hence I had almost no vit d in my body the dr. said if I remember correctly.

Your blood clot issues must be scary. I would want them addressed asap too. I hope you recover quickly.

I hope you have a wonderful trip and enjoy every minute of it. I hope it will be relaxing and refreshing for you. I am sure you need that after all you have been through.

Wow, you sure have a lot of posts. I dont usually post something unless I have something to say.

Wishing you all the best.

 

[SingingMom]

congrats on running with the big doggies now! you hit 10,000 + and that is marvelous... i haven't been around in weeks here, just tied up with many things. my mother passed away in my arms in august and it is not easy to get passed it sometimes. my mind wanders to it frequently. same thing happened with my dad last year, passed while i was holding him. i had a horrid score on my Vit D in december, a 7. started the ergo and in july, the endo said i was at a safe limit of 46. she took me off the script 8 weeks ago. had a blood clot in my leg and the vein burst, last week so doctors and labs i was tied up with. i complained about getting the charley horses again in the calf and asked if there was any connection to the vit d levels. the clot was at the same place in the calf where i would have pain. doctor did the alpha 25 test and found my vit d levels had dropped to the teens this time. i'm now back on the ergo and they want me to increase the dose to twice a week. 100,000 i.e. have any of you with the vit d defiency ever yo-yoed like this with ergo before? hope you all are doing fine. i'm cleared to fly this month for my trip to the motherland. that was the best news i have had this month.

So sorry for your loss! Hope you are feeling better with the blood clot issues.

 

[angwill]

LMP, congrats on the high posts. I don't pay close attention but will look at my post number when I post this.

McRaven, So sorry to hear about your parents. I didn't get to be with mine either but we were not really close so I am sure they didn't miss me. I can only imagine if I was close how hard it would be. I did lose a brother, I was very close to, my childhood love in my 20's and a 4 year old niece and those hurt like hell

I got really awful cramping right after my thyroid cancer surgery when my vitamin D levels and my thyroid hormones were way low. I would get the charlie horses in my calves, abdomin and my joints especially my shoulders. I do hope you get that blood clot issue fixed, that would be very scary. Good luck with the vitamin D as well. I hope it stays up for you.

I did want to say I finished reading The fault in our stars months ago and really liked it. I then saw the movie last night and she described her cancer differently than the book in that she had thyroid cancer they took out and was under control but then she got tumors in her lungs after that. To me the movie was more about her falling in love but also about coping with cancer. I will not watch the movie again because of one part in it that I could not emotionally handle though. It wasn't about her or the thyroid cancer that got me it was something else that brought back memories for me. I am glad I read the book and saw the movie though it was so well done.

Edited to say no where near 10,000 for me. I guess I don't have enough to say. lol

 

[macraven]

thank you all for your kind words.
i have taken care of both my parents full time since 2009 and it was part time for 2007 and 8.

in 2010, my dad had colon surgery so for 3.5 years, i did all the care for the colostomy bag, cleaning, etc.

it was hard work and time consuming but if i had to do it all over again, i would.
neither of my brothers cared or was concerned on helping them, even for a few days to give me a break.

so this coming vacation i have planned will be my first one since 2007 that i don't have to worry about cutting short and returning home for emergency care for them.
(i hired people to care for them when i was on vacation)

the blood clot did not travel up but out when the vein burst.
i was lucky.

they found out after the fact that the entire medical problem came to be extremely low levels of vit D.


i think my endo did not realize by taking me off of the ergo that my levels would drop very low in a matter of less than 2 months.
i'm back on it again and will have to up it to 100,00 iu a week once i have been on the 50,000 iu for the next 4 weeks.

if any of you start getting severe charlie horses or shoulder pain that wakes you up in your sleep, have your endo check your Vit D levels.
it took 2 weeks of that before the blood clot happened.

LMP, well, it is a tad embarrasing to have so many posts on the dis.
i have had issues for years of being unable to sleep well for years.
so, i have spent many hours on the dis and post all over the place.

i have been reading this thread for a couple of years but never posted.
i paid attention to others and their thyroid problems.

since i have the most common thyroid problem, hasimoto (for the past 27 years), and never cancer like many of you have discussed, i didn't post here.
just thought my medicals were nothing compared to all here.

but when someone talked about their Vit D issue, i wanted to share my experience in case it helped someone else as it is related to the hypothyroidism.

thanks for letting me be here.

 

[Christine]

Hi macraven! I've seen you around the DIS on other boards.
I feel bad that you felt like you couldn't post here with your "regular" thyroid problems. This thread was started long ago for general thyroid issues such as getting thyroid meds adjusted, feeling bad when hypo or hyper, and of course thyroid cancer.

We thyroid cancer folks have sort of taken over! But there have been posts by others with hashimotos but they never stayed around too long. I think we just haven't had a "regular" DISer stick around on this thread to be there for those people.

Anyway, the Vitamin D issues are interesting. Do you know what your levels were at their lowest point? Any idea why it would cause a blood clot? That's not one of the symptoms I've ever heard of but I guess when your muscles are spasming all the time, that might do it.

I was given the 50,000 IU pill a few weeks ago and took it but woke up the next day will also sorts of muscle and joint aches that lasted about 48 hours. I haven't taken another since because I've just had things going on, but I plan to try it again maybe next weekend. In the meantime, I've been supplementing with 2000 IUs per day and that does not bother me (probably doesn't help either!!).

 

[macraven]

thanks Christine.

when i looked thru the thread some years ago, it seemed to go from basic thryroid issues, treatments, education of it to more serious issues with cancer of the thyroid.

i didn't feel qualified to add on to the conversations but if is no problem, i would like to stick around here for while.
nice group of people here.

my first level after the alpha 25 test was 7.
after 7.5/8 months of 50,000 iu weekly, my vit d level rose to 46.

endo was satisfied and i was taken off of it.
less than 8 weeks off of ergo, vit d level is 15.
now back on ergo same dose once weekly.
plan is to double the dose and take it twice a week in the near future.

my thyroid doseage was cut back in July by the endo.
said my levels were too high again.

the hospital doc told me and my doctor that the blood clot came from the above problems.
some correlation there.
i haven't figured it all out yet.

i go back again in late november to the endo.
after i get back from my trip, which i leave 8 days from now, i will deal with my medical issue in more depth.

i was in the motherland last october and again in this past January.
i got a lot of sunshine both visits.
i would have thought that amount of sun i was getting would help my vit d levels rise.
i won't be re tested until weeks after my next trip.

i'm open to any suggestions or thoughts any of you may have.

came back to add that both of my endos told me muscle cramping in the shoulder, calf is a sign of low vit d.

 

[angwill]

Macraven,

I had hypothyroidism and then Hashimoto's for a lot longer than I have had cancer. They found my thyroid issues almost 20 years ago and my thyroid cancer last year. Don't feel like you don't belong here. I am so glad you brought your information here. I was only guessing my cramping was due to my low vitamin D after my cancer surgery. Now you informed me that my theory was true. They only found one parathyroid missing after my surgery so both my calcium and vitamin D plumeted and I was only told to take OTC calcium and Vitamin D and was lucky that brought my levels up to normal. I think my body had to compensate to working on 3 parathyroids when the one was taken out with the thyroid surgery. I will have to keep in mind the clotting issues too. It is good to be informed.

I hope your doctors are doing periodic ultrasounds on your thyroid as well? Hopefully you can get that vitamin D level under control and that you have had your calcium levels checked as well?

PS. I have seen your posts in the all star sports thread and the Chicago thread over the years. Always found you a very welcoming person with some good ideas and information to share.

Angela

 

[Christine]

macraven--

So when you stopped the 50,000 IUs of Vitamin D, did you go on a daily maintenance dosage or just stop completely?

I believe that once you are found to be deficient, it is a lifelong thing. My doctor told me that the 50,000 IUs are to "fill up the bucket" because the lower doses won't do that but once it's full and you get an acceptable Vitamin D level, that you should be able to keep it up with 2,000-5,000 units daily after that. I wonder...

As far as being in the sunshine--it works, especially if you are under 50, and it gets stored but not for long. Maybe a week in the sun will keep you levels up for 3 weeks or so.

 

[SingingMom]

macraven-- So when you stopped the 50,000 IUs of Vitamin D, did you go on a daily maintenance dosage or just stop completely? I believe that once you are found to be deficient, it is a lifelong thing. My doctor told me that the 50,000 IUs are to "fill up the bucket" because the lower doses won't do that but once it's full and you get an acceptable Vitamin D level, that you should be able to keep it up with 2,000-5,000 units daily after that. I wonder... As far as being in the sunshine--it works, especially if you are under 50, and it gets stored but not for long. Maybe a week in the sun will keep you levels up for 3 weeks or so.

Christine - my internist told me the same. She found me very deficient and put me on mega dosage,but once it came up to normal levels, I have continued on 3000-5000. I could only find 1000, 2000, or 5000 dosage, so I went with the 5000 because I'm lazy and already take synthroid, Bp medication and lexapro daily. Lol. Too many pills to take 3 1000 or a 1000 & 2000. I know, I'm silly. Lol

"SingingMom" ....Sent from my iPad using DISBoards

 

[macraven]

no, when the endo took me off the ergo, she said to take 5,000 iu total a month of otc, Vit d 3.

a total of 5,000 a month did not keep me at normal levels.

back on the ergo and go back late november for check up.

my T3/4 and TSH were good reads from last week.
i have been cut back from a high of 1.75 daily synthroid to now 1. per day 6 days then and i do half pills on day 6 and 7.

it is difficult to find a good endo that is taking new patients.
i'll be staying with this endo for the next year.
i try to work with the doc and if all fails after the second year, i look for another one.

 

[macraven]

Christine - my internist told me the same. She found me very deficient and put me on mega dosage,but once it came up to normal levels, I have continued on 3000-5000. I could only find 1000, 2000, or 5000 dosage, so I went with the 5000 because I'm lazy and already take synthroid, Bp medication and lexapro daily. Lol. Too many pills to take 3 1000 or a 1000 & 2000. I know, I'm silly. Lol

"SingingMom" ....Sent from my iPad using DISBoards

that's a lot of pills to take each day.......!

i checked out walmart mail order for OTC vit d 3.
prices were much better than what i could find in the stores.

singing mom, how long were you on the mega dose before you went non script?
did your levels hold well then?

 

[SingingMom]

that's a lot of pills to take each day.......! i checked out walmart mail order for OTC vit d 3. prices were much better than what i could find in the stores. singing mom, how long were you on the mega dose before you went non script? did your levels hold well then?

You know, I don't remember how long - maybe a month? It was a while ago. So far I'm holding well. I go for my thyroid blood work this week, but will need to see my internist to check everything else. Last year my cholesterol was creeping up. Lol

Tomorrow mammo and breast ultrasounds. Fun fun fun..l

"SingingMom" ....Sent from my iPad using DISBoards

 

[angwill]

I just realized I am on 4000 iu vitamin D3 daily. Thought I was only on 2000 for some reason. McRaven 5000 vitamin D per month is not going to keep those D levels up. I would think you should be on that daily? If I miss my vitamin D for a couple days I start cramping up right away.

I have a question for anyone with low D levels, do you get super itchy skin when your levels are low?

Singing mom, Good luck with the bloodwork and mammo. I am glad I got mine done earlier in the year.