The ABC's of Trip Planning, Pt 1- K is for Keeping Things Kooky- Drinks V-Z; pg. 197 + New Link

Check your pants; they seem to have smoke rolling off the backside.

Is that what that is?

Huh.

Thought it was gas.


I KNEW IT!! (I mean I knew you'd have something to say. I already knew about the carrots. The stuff they shave off to make them pretty gets juiced.)

:rolleyes2

Awwww, that's a very sweet story. I don't know about you, but as time goes on, and I get older, the memories I've made with my parents become all the sweeter to me. And hearing their memories made with me and my sisters, and their grandkids is even better. The circle of life....

::yes::

Great line of reasoning. Maybe I shouldn't go into it at all.

I dunno. I've known a few and they love it.

I did. Didn't see you waiting.

You didn't look! I even waved and you just posted right on by.

They also taste amazing.

I wouldn't know. I've only ever eaten their legs.

frog_legs.jpg
 
I will simply reiterate that while on the one hand, I admire nurses greatly, there is no doubt in my mind that it's a good thing for all of us that I did not choose that path. But a huge thank you to everyone who is!
 
Is that what that is?

Huh.

Thought it was gas.

Be careful, gas and fire can be a rather explosive combo.

I dunno. I've known a few and they love it.

If you know any now, you should ask if they would recommend a new grad taking a position in Peds.

You didn't look! I even waved and you just posted right on by.

I did too. I mean, you were online, but I saw you making the rounds. Something I wished I could have done too. This morning, I hope to visit a few threads and get an actual update typed up. It's a great study break pastime.

I wouldn't know. I've only ever eaten their legs.

:rotfl2::rotfl::lmao: Last summer I had them in "Stew Packs" around a campfire. Not your conventional meat to throw in, but pretty tasty!

I will simply reiterate that while on the one hand, I admire nurses greatly, there is no doubt in my mind that it's a good thing for all of us that I did not choose that path. But a huge thank you to everyone who is!

You are gifted in many ways, and I'm sure there are many things you can do that a lot of other folks can! I love that we are all created in unique and wonderful ways!

Oh, yeah, I forgot to guess the bucket list experience. Hot air balloon???

A first guess for that one.... Hopefull I can get my update typed up soon...
 

I think there's multiple kinds. The one I have is completely internal, it's attached under the skin to my collarbone. There's a round metal piece with with soft center, and the nurse just has to feel for that and pops the needle through my skin right into it. That piece is connected directly into one of the central veins in my chest. So once the incision healed up, it was back to life as usual!

Yes there are. The one they wanted to use on me was called a Hickman...here is a pic of what it would have been like. I could just see someone thinking it would be funny and pulling this sucker out. Kids are cruel... Also, I was going through Chemo in 1987-1988. I believe the Hickman was the only thing developed at that time. They have made some great advancements on how these are done now. Having those tubes hanging out and not being able to submerse in water for 1 1/2 years or longer. Nope. Not happening.
p1020480.jpg



All that had already happened before (or by the time) you were diagnosed??? How could they miss that so late in the game?

These were all things leading up to my diagnosis. It is a bit of a crazy story...but I will tell it since you asked... It is a bit lengthy too, so sorry to hijack your PTR pirate:

I was not one to go to the doctor much and my parents were not the type that run you to the doctor every time you sneezed. We didn't have yearly physicals like the kids (mine included) have nowadays. I think it had been almost 4 years since the last time I had been to the doctor. I was mowing the lawn 4 days before I became a critical patient. I had signs of it, but other than the weight loss, nothing that was noticeable by others, and since I didn't really speak up and say I was having issues, how were my parents to know? I was always a large teen...180+ lbs give or take, but still very active. The 6 months prior to being diagnosed I had dropped to 92 lbs but my mom thought it was just a teenage thing, as I was always made fun of for my weight. I was also having trouble swimming. I had actually flunked phys ed because I refused to swim. I couldn't breath very well and adding the water and needing to take quick breaths, it just wasn't happening. I never told my parents the real reason why or that I was having problems swallowing and would have to chew my food literally to almost liquid before I could swallow it or the food would get stuck and it would hurt for hours. I also did not tell her that I wasn't monthly monster visits (I had 2 other sisters at home, so she wouldn't have noticed anything from supplies not being used) The day I was finally taken to the doctor, I had actually went to the dentist and when we came out my side was hurting really bad and my mom finally took me to the doctor because she thought I was having an issue with my appendix. As soon as the doctor listened to my lungs, he sent me over to the ER to have an x-ray done because he thought I had pneumonia. Our family doctor showed up about 2 hours later at the ER which was just weird back then...but he came over himself to tell us that it wasn't pneumonia, they had found a tumor in my chest. At that time they said there was so much liquid in my chest that they couldn't see well, but they thought the tumor was the size of a large strawberry. I was admitted and they immediately put a chest tube in to drain the liquid and the total liquid was 2 1/2 quarts that was drained. They repeated the chest x-ray after draining all the liquid and the large strawberry tumor was upgraded to a small watermelon size tumor. The tumor was pressing my esophagus closed and that was why I was having trouble eating and of coarse the pressure on my lungs was causing trouble breathing. The mass had my left lung completely squished. there was no air going into it at all and fluid was preventing full use of the right lung,1/2 squished from the fluid. It had my heart pushed all the way up against my rib cage and all that lower stuff (kidneys, liver, ovaries, etc) was pushed down into my pelvis. I was immediately transferred by ambulance to our large hospital about 1 1/2 hours away to be treated by an oncologist. Once I got there, they admitted me and the next day they had a needle biopsy scheduled so they could find out what kind of tumor it was, but during the procedure, you had to lay flat on your back and keep really still. Because of the weight of the tumor, if I tried to lay on my back, I could not breath, so I could not stay still enough for them to do the needle biopsy. So that was nixed and the next day, they did a surgical biopsy. I woke up in ICU on life support because when they took the little sample of the tumor, it irritated the tumor and it swelled and completely cut of my airway. According to my momma, they lost me and brought me back, but I was unable to breath on my own due to the cut off of the airway from the swelling. They expected me to be on life support for at least 7 days until the swelling went away, but they told her if they did not start chemo within 72 hours, I would be gone and they gave her the option to remove me from life support because the odds of me making it were about 3%. When I woke up later that same day on life support, my mom told me what was happening and I realized then that I was fighting the machine. I was having to time my breathing with the machine or it would burst air into my lungs and hurt. I wrote to my mom that I wanted off the machine and she said no because of the swelling. I wouldn't listen to her and I wrote to her that if she didn't have them take me off of it, I would wait until no one was in the room and pull the tubes out. Of coarse she told the doctor and they tried to explain to me that the tube was there to get the air around the swelling, but I wouldn't listen, so the doctors agreed to decrease the rate of breaths to 1/2 and see how I tolerated that. I did ok with it, so after 48 hours on life support, they decided to try taking it out and see if the swelling had gone down enough to breath on my own. When they took the tubes out, I did have a bit of trouble breathing if I laid down... but I found that if I sat up with my legs crossed indian style, put a pillow in my lap, and laid forward over the pillows, It took enough of the weight off that I could take my own breaths, so that is what I did, for days. 12 hours later I was started on Chemo. I was taken out of ICU 4 days after that and moved to the Oncology wing where I would make my home for the next 6 weeks. I went through 2 different chemo regimens. ABVD ( Adriamycin, Blyomycin,Vinblastine, and Dacarbazine.) and MOPP (Mustargen, Oncovin, Procarbazine, and Prednisone). They started with MOPP and I did fine with it, didn't even get sick. they did 2 treatments while I was in the hospital, and then they sent me home. I had to go back in 2 weeks later so they could administer my first dose of ABVD, I would have to stay in the hospital for another 2 weeks. It did make me very sick, but they let me go back home after 1 week and 5 days. I called the ABVD my hard chemo and the MOPP my easy chemo (the mind of a teenager...easy chemo.. is there such a thing?).The Adriamycin was the worst. It made me sooo sick. They would give me meds to help with the nausea, but it NEVER worked. It also made all my hair fall out. (on a side note, when it started to grow back in, It was stick straight which I thought was amazing as I have naturally kinky curly hair and always dreamed of having straight hair). The MOPP was easy because it didn't burn going in and it didn't make me sick until toward the end of the cycles. They alternated my treatments...starting with ABVD, waiting 3 weeks, then MOPP, waiting 2 weeks and then ABVD again and so on for 14 cycles of the chemo. After the chemo, they said I was in remission and when I went back for my 3 month check up, they said there was new growth again, so had to do radiation treatments. 30 days. After that they said I was in remission again and have stayed in remission since. I think the thing that really helps me keep everything in perspective is my kids. I was told I would never have any due to the damage done to the eggs from the chemo/radiation. I have 3. Having that constant reminder of the miracle that was given to me makes it impossible to not be thankful for each and every day!
 

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I'm dying to read this!! I just got called in to clean up some charting that I forgot to do; it's a half hour there, half hour back, and the time to chart. So I'll hurry and get done what I need to so I can be back and read your story!!
 
No, the club that we went to was mostly older teens/young 20s (I was the old fart mom who just loves to dance.). Every 4 months they'd have a themed ball, one of them is a super fancy ball with live music and our fanciest gowns. But all are danced with the same regency style music and dance.

Cool stuff. Back in my early 20's, I used to do some square dancing, and also Israeli folk dancing (completely different groups, of course!). The square dancers all dressed up - I still have my petticoat, but don't have my dress anymore. No one dressed up for Israeli folk dancing, however. They were both fun, however.
 
Budgeting $150/ day for food, that's 2 days of Eats taken care of in a matter of 2 days!
Having just been there, $150/day seems pretty optimistic... although if you don't need to dine with princesses, you might not blow your entire day's budget in one meal. :faint:

Had a WONDERFUL first day of Clinical!! Such a fun variety of patients on a Neuro unit from Withdrawing Alcoholics having seizures, strokes, sepsis, trauma from MVAs, post-spinal surgeries and more. I really like it a lot. Too tired to type much more; hopefully replies tomorrow!!
Nothing says fun like withdrawing alcoholics having seizures!!! :thumbsup2 :rotfl:

Freaking knocked this one out of the park!!!

Waaaaahooooty!!!!

.8888888% Which is better than an 88% ;)
Congratulations! I'm glad this term seems to be off to a good start! :thumbsup2

Success varies from YOUR veins to experience of the nurse. :) But, all in all, it was a good day. Not just because this is one of the last skills I have to learn in Skills Lab (blood administration is next), but today marked 20% of our Term being done! Can you believe how fast it's gone by??!!
Wow. You practice on each other??? You've either really got to trust each other or hate each other to do that!

She's got that face on cuz she's messing with me.
That might be what she told you... but if I had a student poking needles in my arm I'm pretty sure I'd be making that face too. :rotfl2::rotfl::lmao:
 
Be careful, gas and fire can be a rather explosive combo.

I know.
We have a gas stove.

I do not want my butt too close to it when it's on.

If you know any now, you should ask if they would recommend a new grad taking a position in Peds.

Sorry. That was a while back and I've lost touch.

I did too. I mean, you were online, but I saw you making the rounds. Something I wished I could have done too. This morning, I hope to visit a few threads and get an actual update typed up. It's a great study break pastime.

::yes::

Last summer I had them in "Stew Packs" around a campfire. Not your conventional meat to throw in, but pretty tasty!

The whole frog? Just the legs? What??
 
These were all things leading up to my diagnosis. It is a bit of a crazy story...but I will tell it since you asked... It is a bit lengthy too, so sorry to hijack your PTR pirate:

Wow! That is so frightening but it is amazing that you defied the odds. Thank you for sharing your story!
 
I think the thing that really helps me keep everything in perspective is my kids. I was told I would never have any due to the damage done to the eggs from the chemo/radiation. I have 3. Having that constant reminder of the miracle that was given to me makes it impossible to not be thankful for each and every day!

I am so happy to hear that you made such an amazing recovery! Thank you for sharing your story, as scary as it was, in the end the outcome is wonderful. Even if you are still dealing with so many health problems from the after effects of chemo. Sending lots of good wishes for the continuous fight for good health!
 
Yes there are. The one they wanted to use on me was called a Hickman...here is a pic of what it would have been like. I could just see someone thinking it would be funny and pulling this sucker out. Kids are cruel... Also, I was going through Chemo in 1987-1988. I believe the Hickman was the only thing developed at that time. They have made some great advancements on how these are done now. Having those tubes hanging out and not being able to submerse in water for 1 1/2 years or longer. Nope. Not happening.
p1020480.jpg
Yep, that looks exactly like the one that my friend currently has (and hates) for her chemo treatments. Made me realize that I'm very lucky that mine is much smaller, simpler, and all under my skin:
PORT_1.gif
 
After that they said I was in remission again and have stayed in remission since. I think the thing that really helps me keep everything in perspective is my kids. I was told I would never have any due to the damage done to the eggs from the chemo/radiation. I have 3. Having that constant reminder of the miracle that was given to me makes it impossible to not be thankful for each and every day!

WOW You really have been through so much and probably amazed every doctor along the way. Thank you for sharing your story and I hope you continue to amaze doctors with being healthy and minimal side effects.




Liesa- All caught up and way to go on the Math test - I think I told you on FB and nice job on test #1.

Study on - and I will try to keep up. :goodvibes
 
Today I have to work- and am dedicating this shift to a special surprise "something" on my bucket list for the trip.

Guesses????????

GO!!

My guess is a Wishes cruise. Of course I have loads of bucket list items, but that is something ultra special!
 
Success varies from YOUR veins to experience of the nurse.

OK well since we are sharing...my story is just a little bit funny about this....so you know when you are pregnant and you have to get blood taken like, every day, or so it seems. I went to get mine taken and by this time, it was so routine. They take your blood, slap on a bandaid and say "hold that a bit" So I do. And then I go on my way, walk to the subway and get on the train to go back to work after....Standing there holding on to a pole for balance...and all of a sudden this guy looks at me and says "OMG are you ok? And he looks down at my arm" And there is blood...GUSHING down my arm onto the floor in the middle of a crowded subway train...gah!! I almost passed out myself and all these people are asking me if I'm ok. Guy goes to press the emergency alarm between stations and I scream "NOOOOO, don't make me be the cause of a subway delay...I will be ok until the next stop!!!" So I put pressure on my arm until the next stop where I get off and THEN they call the paramedics...who come clean me up and send me home lol
 
U is for: Unveiling Day 9




Settled down with a nice little nightcap (7-Up, Amaretto and Coconut Rum for those of you who must know) and a little planning time. (Yes, that's iteration #4,754 of the Master Planning Sheet.) Indulge me now, if you will.

Today is actually a cause for great celebration in regards to this trip. I know there are many of you who get to go every year, sometimes multiple times, so gigantic numbers aren't something you celebrate regularly for trips, but for us, reaching the...


party:38 WEEK MARKparty:


is a pretty big deal!!!!

That's exactly how long it takes to gestate a human baby, by the way. (Yes, I realize 40 weeks is more average, but 38 weeks is considered "Term".) I've done that a few times, so I know just how tedious it's going to feel to wait that long. But expectant we are! Our travel day will be like having a baby, just a lot less painful. At least I hope so. Last time I flew I ended up on my keister and all red-faced and it hurt! And my kid laughed at me. So did the guy standing in the Starbucks line. I hope he spilled his coffee where it counts just after take-off. Hopefully, I won't be changing any diapers during our trip either. However, lately I am feeling my age. I never know what's going to happen anymore when I sneeze.

We last left off our little Planning Party with a Mostly-AK-Day and a Side of Pool thrown in for good measure. Sanaa is the sit-down dining of choice while, Yakking up a Yeti is the tentative plan for dinner. Capping the night off with a viewing of Rivers of Light sounds like a nice plan, which brings us to Day 9- the Day Before the End.

October 17-

Today would seem like a great day to revisit the glory days of Old Hollywood. Or the deepest reaches of galaxies far, far away. Or a recording Studio with has-been stars who will lend you a limo for the price of a Disney ticket. Too bad you can buy one for about the same price. Eh hmmm.... Since DHS is schizophrenic in every way possible now, it would make sense that this will only be our 2nd, and last, planned 1/2 day. Sorry for you DHS diehard fans, but the park just lacks any semblance of cohesiveness now and they've stripped most of what I loved there. And some I hadn't ever seen yet. I may never forgive them. But, one of my top 5 faves is there, so we have to go, but there's nothing there that will keep us there very long. Except long lines, but given that we'll be there at rope drop, that will hopefully be avoided.

I'm guessing we'll head out of the park by 11:00 or so, and head for MK. The Sirens of BOG beckon, and I'm counting on the nearby Tikis to grant us good luck in scoring a 2:00 ADR. I haven't decided on the FP+ strats here, but I'm thinking if we hit RD at DHS, we'll save our FiPs for MK, since we'll be arriving to a packed out park. Of course, we'll also have been there several times already, so we'll be in the phase of taking it easy. Tasties on a bench, kicking back by the Piano Guy, yuckin' it up with Sonny, slow spins on the WEDWay, and other fun stuff like that. 6:30 will be Mommy and Daddy's hard-stop since we have a couples only date planned for the evening.

Remember way back when I mentioned my neighbor who does the F&W as a Wine Rep for Willamette Valley Vineyards? Yeah, she said she's doing it again, and can probably still get us into the Artist's Point as guests of the Gen Mngr. It's far from a done deal, but I'm still hoping she can pull it off for us. If so, I'm hoping for a Res at 7:00. If not, I'll find a plan B. Possibly still there, maybe not. I'm open to suggestions..... Cali Grill maybe; although I've done that, and I think Mike may be more impressed with WL. The kids will have to fend for themselves, of which I have zero doubt they'll do well. They'll have charging privies (short for privileges, not electric outhouses) on the Bands, so they can find a meal, and keep riding stuff, while we wine and dine. For free we hope. If it happens to be a Party Night, and the kids get kicked out at 7:00, they can go back to the AKL for dinner and swim. Or watch the Boob Tube.

Yes, I have snacks for the day already picked out. Yes, I have more micro-planning done; yes, there is still enough material to string this PTR out for 38 more weeks. I hope you are not growing weary. I'm just getting going! Which reminds me of Vizzini.


Still yet to come: Meal picks, adult drinking picks, Scents of the Trip, Snacking Around the World, Souvies, Hidden Mickey Hunts, Top 5's, Hidden Gems, Packing Lists.... Lots more fun and games!!! But the best part is YOU! Thank you to each one of you who makes it GREAT to be here!
 
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Cool stuff. Back in my early 20's, I used to do some square dancing, and also Israeli folk dancing (completely different groups, of course!). The square dancers all dressed up - I still have my petticoat, but don't have my dress anymore. No one dressed up for Israeli folk dancing, however. They were both fun, however.

Those are the 2 types of dancing that got me jazzed about dancing in the first place! When I was growing up I'd go to Summer Camp for 2 weeks every year which was a working ranch in the Sierra Nevadas outside of Bakersfield, CA. We watched a slaughter every Tuesday so we could SEE where meat came from (it doesn't grow in the cases all packaged up in the grocery store, I learned), worked in the garden weeding, I hauled cement for a little dam they built, we rock climbed, learned to sail, rode horses (broke my ankle twice at camp), and danced at barn dances every Friday night. BEST part of my growing up! A lot of the kids were rich Jewish kids from the Valley so we learned to do Jewish folk dancing. Of course there were square dances too, and it's where I learned to polka. Oh such wonderful memories!!! Dancing is GREAT fun!

Having just been there, $150/day seems pretty optimistic... although if you don't need to dine with princesses, you might not blow your entire day's budget in one meal. :faint:

I think we can pull it off. We are all pretty light eaters, and will almost always be splitting. Even 3 ways I'd imagine. $20 for breakfast, $30 for lunch, and $100 or less for dinner. I'm not including drinks, since my alcohol budget is separate, and we always order water. We won't do any character meals, my kids have outgrown that, and I just can't justify the cost.

Nothing says fun like withdrawing alcoholics having seizures!!! :thumbsup2 :rotfl:

It's the only withdrawal that can and does kill. With vitamins, sedatives and nutrition, they usually pull through, but it's hard to watch. And we see a lot of them far too often.

Congratulations! I'm glad this term seems to be off to a good start! :thumbsup2

Me too!!!! I have 4 days to study all the stuff for this next test, so I'd better be very careful with that time!!!!

Wow. You practice on each other??? You've either really got to trust each other or hate each other to do that!

LOL!! Yeah we do!! There are a couple of gals in my class I'd love to practice all day long on. I CAN work with anybody, but there are a few I'd choose not to if I could.

That might be what she told you... but if I had a student poking needles in my arm I'm pretty sure I'd be making that face too. :rotfl2::rotfl::lmao:

Shhhh.... don't tell her, but I had the exact same look. And mine kinda was for reals.
 
I do not want my butt too close to it when it's on.

WHERE is the Tag Fairy when you need her???!!!

Sorry. That was a while back and I've lost touch.

Ah well.... I"m sure I'll land right where I'm supposed to in just the right time.

The whole frog? Just the legs? What??

Just the legs. Is there really any other parts you CAN eat?

Liesa- All caught up and way to go on the Math test - I think I told you on FB and nice job on test #1.

Study on - and I will try to keep up. :goodvibes

Great to "see" you, Pat!! I know you're as busy as I am, so come when you can. I'll leave the lights on.

My guess is a Wishes cruise. Of course I have loads of bucket list items, but that is something ultra special!

Another very unique guess... I'll let a few more come in before I let y'all know. :)
 
These were all things leading up to my diagnosis. It is a bit of a crazy story...but I will tell it since you asked... It is a bit lengthy too, so sorry to hijack your PTR pirate:

You are always welcome to hijack anytime! That's what makes being a DISser fun!!

I was not one to go to the doctor much and my parents were not the type that run you to the doctor every time you sneezed. We didn't have yearly physicals like the kids (mine included) have nowadays. I think it had been almost 4 years since the last time I had been to the doctor. I was mowing the lawn 4 days before I became a critical patient. I had signs of it, but other than the weight loss, nothing that was noticeable by others, and since I didn't really speak up and say I was having issues, how were my parents to know? I was always a large teen...180+ lbs give or take, but still very active. The 6 months prior to being diagnosed I had dropped to 92 lbs but my mom thought it was just a teenage thing, as I was always made fun of for my weight. I was also having trouble swimming. I had actually flunked phys ed because I refused to swim. I couldn't breath very well and adding the water and needing to take quick breaths, it just wasn't happening. I never told my parents the real reason why or that I was having problems swallowing and would have to chew my food literally to almost liquid before I could swallow it or the food would get stuck and it would hurt for hours. I also did not tell her that I wasn't monthly monster visits (I had 2 other sisters at home, so she wouldn't have noticed anything from supplies not being used) The day I was finally taken to the doctor, I had actually went to the dentist and when we came out my side was hurting really bad and my mom finally took me to the doctor because she thought I was having an issue with my appendix. As soon as the doctor listened to my lungs, he sent me over to the ER to have an x-ray done because he thought I had pneumonia. Our family doctor showed up about 2 hours later at the ER which was just weird back then...but he came over himself to tell us that it wasn't pneumonia, they had found a tumor in my chest. At that time they said there was so much liquid in my chest that they couldn't see well, but they thought the tumor was the size of a large strawberry. I was admitted and they immediately put a chest tube in to drain the liquid and the total liquid was 2 1/2 quarts that was drained. They repeated the chest x-ray after draining all the liquid and the large strawberry tumor was upgraded to a small watermelon size tumor. The tumor was pressing my esophagus closed and that was why I was having trouble eating and of coarse the pressure on my lungs was causing trouble breathing. The mass had my left lung completely squished. there was no air going into it at all and fluid was preventing full use of the right lung,1/2 squished from the fluid. It had my heart pushed all the way up against my rib cage and all that lower stuff (kidneys, liver, ovaries, etc) was pushed down into my pelvis. I was immediately transferred by ambulance to our large hospital about 1 1/2 hours away to be treated by an oncologist. Once I got there, they admitted me and the next day they had a needle biopsy scheduled so they could find out what kind of tumor it was, but during the procedure, you had to lay flat on your back and keep really still. Because of the weight of the tumor, if I tried to lay on my back, I could not breath, so I could not stay still enough for them to do the needle biopsy. So that was nixed and the next day, they did a surgical biopsy. I woke up in ICU on life support because when they took the little sample of the tumor, it irritated the tumor and it swelled and completely cut of my airway. According to my momma, they lost me and brought me back, but I was unable to breath on my own due to the cut off of the airway from the swelling. They expected me to be on life support for at least 7 days until the swelling went away, but they told her if they did not start chemo within 72 hours, I would be gone and they gave her the option to remove me from life support because the odds of me making it were about 3%. When I woke up later that same day on life support, my mom told me what was happening and I realized then that I was fighting the machine. I was having to time my breathing with the machine or it would burst air into my lungs and hurt. I wrote to my mom that I wanted off the machine and she said no because of the swelling. I wouldn't listen to her and I wrote to her that if she didn't have them take me off of it, I would wait until no one was in the room and pull the tubes out. Of coarse she told the doctor and they tried to explain to me that the tube was there to get the air around the swelling, but I wouldn't listen, so the doctors agreed to decrease the rate of breaths to 1/2 and see how I tolerated that. I did ok with it, so after 48 hours on life support, they decided to try taking it out and see if the swelling had gone down enough to breath on my own. When they took the tubes out, I did have a bit of trouble breathing if I laid down... but I found that if I sat up with my legs crossed indian style, put a pillow in my lap, and laid forward over the pillows, It took enough of the weight off that I could take my own breaths, so that is what I did, for days. 12 hours later I was started on Chemo. I was taken out of ICU 4 days after that and moved to the Oncology wing where I would make my home for the next 6 weeks. I went through 2 different chemo regimens. ABVD ( Adriamycin, Blyomycin,Vinblastine, and Dacarbazine.) and MOPP (Mustargen, Oncovin, Procarbazine, and Prednisone). They started with MOPP and I did fine with it, didn't even get sick. they did 2 treatments while I was in the hospital, and then they sent me home. I had to go back in 2 weeks later so they could administer my first dose of ABVD, I would have to stay in the hospital for another 2 weeks. It did make me very sick, but they let me go back home after 1 week and 5 days. I called the ABVD my hard chemo and the MOPP my easy chemo (the mind of a teenager...easy chemo.. is there such a thing?).The Adriamycin was the worst. It made me sooo sick. They would give me meds to help with the nausea, but it NEVER worked. It also made all my hair fall out. (on a side note, when it started to grow back in, It was stick straight which I thought was amazing as I have naturally kinky curly hair and always dreamed of having straight hair). The MOPP was easy because it didn't burn going in and it didn't make me sick until toward the end of the cycles. They alternated my treatments...starting with ABVD, waiting 3 weeks, then MOPP, waiting 2 weeks and then ABVD again and so on for 14 cycles of the chemo. After the chemo, they said I was in remission and when I went back for my 3 month check up, they said there was new growth again, so had to do radiation treatments. 30 days. After that they said I was in remission again and have stayed in remission since. I think the thing that really helps me keep everything in perspective is my kids. I was told I would never have any due to the damage done to the eggs from the chemo/radiation. I have 3. Having that constant reminder of the miracle that was given to me makes it impossible to not be thankful for each and every day!

That IS quite an amazing tale of heroism, defying the odds and someone who overcame despite some very awful stuff. And even still you face a lot of challenges with such a great attitude. I loved your story of courage and with your permission I'd like to pass it on to the instructor who will be teaching the Oncology Content for the next (maybe the test after next??) Exam. It's a perfectly typed up Case Study that may help others study and learn the content better. I absolutely will not use any names, only your age and exactly as you typed it. And only if you say so. :) Thank you SO much for sharing- it really is nice to see a success story with relation to cancer!!!

OK well since we are sharing...my story is just a little bit funny about this....so you know when you are pregnant and you have to get blood taken like, every day, or so it seems. I went to get mine taken and by this time, it was so routine. They take your blood, slap on a bandaid and say "hold that a bit" So I do. And then I go on my way, walk to the subway and get on the train to go back to work after....Standing there holding on to a pole for balance...and all of a sudden this guy looks at me and says "OMG are you ok? And he looks down at my arm" And there is blood...GUSHING down my arm onto the floor in the middle of a crowded subway train...gah!! I almost passed out myself and all these people are asking me if I'm ok. Guy goes to press the emergency alarm between stations and I scream "NOOOOO, don't make me be the cause of a subway delay...I will be ok until the next stop!!!" So I put pressure on my arm until the next stop where I get off and THEN they call the paramedics...who come clean me up and send me home lol

Buahahahahaha! That is hilarious! I'll bet your trainmates were freaking out; lololol, maybe they thought you had Ebola! Were you taking coumadin or another blood thinner med?? Did you get your platelets checked?? I passed out once in public too and came to with a bunch of hottie paramedics standing over me. That was in college. But it was super embarrassing!
 














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