Tell me what you know about 504 plans

jstbcuz

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I posted this on the community board, and they directed me to you guys. Hoping you can help.
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My DD has been tested twice for ADHD,ADD, etc at school so she can get help with an IEP. Both times she has failed to qualify. Her grades are good. Thanks to mom and dad sitting with her for hours upon hours helping her with homework. She does all the extra credit we can get a hold of, but when it comes to test, she bombs them. So it is her daily work that is keeping her afloat.

Everybody we have talked to says there is def something there, but noone can pinpoint it. I was told by the they have to be able to put her on a 504. But then I also heard that isnt true and if the principal wanted too, he could do it (since he is the one that has to monitor it) I should also say that we have been going to Sylvan for 2 years now.

We have been dealing with this since kdg and she is now in the 8th grade. I am so confused and I dont know what to do next or who to believe. I looked on the states education website and cant find any info. Did email them asking for info tho.

Thought you all might know something, since there is a vast amount of knowledge on here. Thanks in advance
 
http://fcsn.org/aboutus/contact_us.php

Call the Federation for Children with Special Needs. They're based out of Boston, but they keep a special list with parental advocacy resources in all 50 states, plus the US territories. They'll be able to direct you to a resource in your state.

Can't speak for your area, but around here, the schools try hard to keep kids out of special services because it costs the school $$$. You most likely have the right to an independant assessment of your child, not done by the school. Find the resource in your state and go from there.

The Federation is a great start though. They have information on IDEA, which is federal legislation and therefore is applicable to all American school districts.
 
we moved my DD off of an IEP and onto a 504 for 5th and 6th grade. It is an accomadation plan, and you can be as creative as you need to be including things like the need for oral testing.
Who did her ADD testing ? You certainly could pursue her being tested by a nuetral party if it has been the school.
 
Well, a 504 isn't something the principle can "choose" to put a student on. My DS was tested by the school and didn't qualify for an IEP but had enough issues to warrent a 504 plan.

The accomodations can be as varied as the issues the testing uncovers. My DS has comprehension issues, short term memory issues and problems transfering thought to paper. This was the result of testing done in 5th grade. He is now in 9th grade and we are trying this year with no accomodations. It seems to be going well, but he is also in a different school this year, so that may be part of it. His other school was a nightmare for kids with learning problems :mad:

I would get outside testing done if you are still concerned and the schools testing didn't turn something up. I don't believe a school would fudge something like this to save money. I work in a school and while budgets are bad, the teachers (for the most part) sincerely want to help kids.

Good luck and keep fighting for your child....you are the only one in their corner at this stage of the game so you can't quit :thumbsup2
 

My 6th grader has had a 504 since 2nd grade, and its been interesting, to say the least!

My daughter has a neuro tremor in her R hand, so I can't speak to the ADD/ADHD issues, but for us, the 504 plan has been a godsend as far as getting reasonable accomodations for her hand.

We began with an evaluation at our local children's hospital (ours was the occupational therapy/physical therapy department). I took many copies of that report to her school, and the guidance counselor set up a meeting with me, her teacher, the school therapist, the gifted teacher, and the technology teacher. The school personnel filled out a very detailed plan for dealing with her hand, and I was asked specifically for my opinion on each element. It was as detailed as "does she need help with opening any of her lunch?" and "should I prompt her to limber up her fingers before a test?" and other things. The technology teacher set her up with a laptop for her writing assignments (well, now she has one, she started with an Alpha Smart in 2nd grade). It covered how she would do the standardized testing, and specified that if she did have to write by hand, that neatness would not be a factor - and that grading would have to include the consideration that handwriting for her makes it very hard to express herself correctly.

She is at a magnet school, so the PE, music and dance teachers also received a copy of the evaluation. Those teachers actually tailored some of their lesson plans to include things Emelie was doing in her OT/PT sessions.

Some things for you to consider when beginning to craft the 504:

1 - Standardized testing. Make sure the accomodations are specific to your child, and then when testing comes, make sure it is followed. The first year of this, the school pulled out all the special accomodation students, and put them in the same room, and tested them together. Emelie wound up having to hear the questions read aloud while she was trying to read them, and it really got her WAY mixed up - her accomodations were that she can just make a mark instead of bubbling. Worst score she's ever made, so now I'm sure to have a conversation with the guidance counselor or AP right before test time.

2 - If you think that she might be gifted in any shape or form, make sure you have the gifted testing done FIRST, and have her staffed into that program, prior to initiating the 504. The hurdles get much higher after the 504 is in place. TRUST ME on that one!

3 - Before you have your 504 meeting, write a list of the specific things you want to see happen. Stuff like "extra time on tests" or "test questions read aloud." If you know exactly what your child needs, then the educators can more easily come up with a plan to adapt their system to your child's needs. This is not the time to be vague and say "she needs help with her school work" rather say something like "staying on task is an issue, can the lessons either be chunked or have a quiet place for her with no distractions?" The more specific you can be, the better plan you will come up with.

4 - This is completely my opinion only, but I highly recommend using evaluations and testing that comes from outside the school system. Independent physicians, counselors and therapists are worth their weight in gold, and are much more efficient. Here, my daughter was put on the list for in-school OT services when she was in 2nd grade. When she was in 5th grade, they initiated an evaluation. At that time, she had been in private OT treatments for 3 years, and was doing extremely well (still is!).

5 - This may sound crazy, but try having a speech pathologist/audiologist do an evaluation. They are really good with the neural pathways, and spotted an issue that I would otherwise still be scratching my head in frustration over.

I hope this helps. Good luck to you both!
 
I would also be curious who did the testing. When ds12 was first tested in 3rd grade we went through the school psychologist. That is when he was diagnosed with Asperger's. Just recently we had him tested again by a Neuropsychologist and it was discovered that he also has non verbal learning disorders, which explains A LOT of the problems he is having in school.

I know that more information came out because he was older, but we felt better getting away from the *school* psychologist. I am not saying that they wouldn't report the same things, but we wanted to do the testing independent of the school.

Jill
 
My 13 yr. old DD has ADHD and Tourettes's Syndrome. She did not qualify for a IEP when she was diagnosed in 3rd grade, so she was given a 504 plan. In elementary school the 504 worked fairly well, but I had to be vigilant to be sure that it was followed. It was far easier when there was only one teacher. And even in middle school with two teachers it was difficult but she managed. This year she is in block scheduling with multiple teachers. Out of 5 or 6 teachers, one actually follows her plan. The others pretty much ignore it. I have raised *#@* twice already this year and am about due once the next report card comes out. I have dealt with the guidance counselor and the school psychologist without any results. My next target is the principal. We got the results for her state mandated ELA and Math test for last year and she scored below acceptable on both of these tests. They claim they are going to have the IEP Team check her again. I know they gave her some sort of math test before Christmas but I haven't heard anything about the results. According to her 5 week report she is still failing math. My advice to you is to stay on top of the school. They have so many kids with these plans that if you don't watch them your child will fall through the cracks. The squeaky wheel gets the grease when it comes to 504 plans. Especially at the Junior and Senior High level. Good Luck!
 
I would also be curious who did the testing. When ds12 was first tested in 3rd grade we went through the school psychologist. That is when he was diagnosed with Asperger's. Just recently we had him tested again by a Neuropsychologist and it was discovered that he also has non verbal learning disorders, which explains A LOT of the problems he is having in school.

I know that more information came out because he was older, but we felt better getting away from the *school* psychologist. I am not saying that they wouldn't report the same things, but we wanted to do the testing independent of the school.

Jill

Hey, Jill! I don't want to hijack this thread, but we don't run across people who have kids with NLD diagnoses very often. If you get the chance, join us sometime on the nld board (www.nldontheweb.org). There's a great forum there. I post under the same name there. Twinsmom also posts over there.


OP: Keep on keeping on. Technically, a school cannot diagnose ADHD. It is a medical diagnosis. It would be helpful if you had an outside evaluation. Also, principals cannot give 504 plans or IEPs. An IEP committee (composed of you, a special education representative, the person who evaluated your child, and a representative of the school district) must look at the information gathered about your child and then decide what type of intervention might be appropriate. Technically, the child must have a disability and the disability must be affecting his or her ability to perform in school. As part of the IEP meeting, it would be VERY important for you to let the committee know how much accommodation YOU are already doing. It's a long process, and it can be very frustrating. There are people out there who can help you if you meet too much resistance (advocates and attorneys). Good luck.

JulieWent
 


I posted this on the community board, and they directed me to you guys. Hoping you can help.
--------------------------------------------------------------------------------

My DD has been tested twice for ADHD,ADD, etc at school so she can get help with an IEP. Both times she has failed to qualify. Her grades are good. Thanks to mom and dad sitting with her for hours upon hours helping her with homework. She does all the extra credit we can get a hold of, but when it comes to test, she bombs them. So it is her daily work that is keeping her afloat.

Everybody we have talked to says there is def something there, but noone can pinpoint it. I was told by the they have to be able to put her on a 504. But then I also heard that isnt true and if the principal wanted too, he could do it (since he is the one that has to monitor it) I should also say that we have been going to Sylvan for 2 years now.

We have been dealing with this since kdg and she is now in the 8th grade. I am so confused and I dont know what to do next or who to believe. I looked on the states education website and cant find any info. Did email them asking for info tho.

Thought you all might know something, since there is a vast amount of knowledge on here. Thanks in advance


JST.

Hi, 504's are not quite Special Services but they are a protection of law for your child, my daughter is in a 504 for her heart conditon, 504 basically helps ensure the school will accomodate her needs as far as making sure she can participate in a Gym program, etc... it protects her from the school saying she can't have Gym. Also in fine motor skills and gross motor skills she needed a little help early on because of her 3 surgeries. There are yearly meetings and it has been excellent for our daughter. Everyone on the school staff is more in tune and able to provide help as warranted.

I would look into it more.
Hope this helps
RayJay
 


My DD has been tested twice for ADHD,ADD, etc at school so she can get help with an IEP. Both times she has failed to qualify. Her grades are good. Thanks to mom and dad sitting with her for hours upon hours helping her with homework. She does all the extra credit we can get a hold of, but when it comes to test, she bombs them. So it is her daily work that is keeping her afloat.

OP, i had to re-read because honestly everything you say is pretty much the same for my DD (also in 8th grade and ADDbut went to Huntingdon last year)

We knew something was up for about K on.....It been a nightmare with the system....

MS won't give us 504 because of her grades either. At one point i had a vice principle tell me that D's were passing and unless she was failing multiple subjects that they wouldn't do anything... UGGGG that was pretty much my breaking point where i enrolled her at Huntingdon..($5,000 later not sure it helped much)

They do have a letter in my dd's school record from the school districts special ed coordinator that states she can have preferential seating and
extra set of books for at home.

Good luck...

I am dreading HS next year....
 
Hi there - I'm a 4th grade teacher in New York - I'm not sure where you live and I know laws differ by state.
As another poster said, a school can not give a diagnosis of ADD/ADHD, that must be done by a doctor. Usually when a parent or teacher suspects that this may be the case, both the parent and the teacher fill out a form that rates the child in many areas. These papers are then brought to a doctor who would then make the diagnosis. Not sure if this is the type of process you went through.
For us a 504 plan is created to accommodate a medical diagnosis - could be for ADD/ADHD, I've had 504s for students in my class also for asthma, sickle cell anemia, ADHD to list a few. Usually created by a committee, but our principal does have sole power if she chose to do it that way - with the parent of course. We always recommend parents discuss at length with their doctor things that may need to be included. This could be almost anything. Unrestricted water/restroom, staying in from recess if too hot/cold, extra time for tests to reduce stress etc....
IEP's are for students who have been classifies with a disability that negatively impacts their education. That is the key with IEPs, not only do they have to be classified learning disabled (or other disability) but it has to be proven that it negatively affects their education.
I know so much of this sounds like talking in circles - does for me to and I work with these often.
Best of luck, your daughter is fortunate to have parents on her side working hard for her. That counts for a lot!
Tammy
 
I would definitely have a 504 drawn up for your dd. I'm in a similar situation of having to spend lots of time in the afternoons going over work/ redoing failed classwork or tests, to help our DD9 make it through school. Right now, we're glad that she's pulling passing grades, as she struggled to do that last year. The 504 is going to allow her to receive accomodations in the classroom, such as extra time to complete work/tests; only requiring her to do half of the math problems on a paper, if having to do all of them is too overwhelming; preferential seating; directions given in smaller steps; etc. If she did really poorly on her standardized testing, and you feel that she needs extra help, she may qualify for special ed. help in some areas under "other health impaired" (covers ADD/ADHD). Good luck!
 
You've received a lot of good advice so far from everyone. My DS(8) has ADHD/Asperger's Syndrome and we've been running the gammit of special needs services with him since he was 2, through special ed classes, IEP' and now 504s.

DS also doesn't quailfy for an IEP because, even though he is Autistic, he is well above grade level (average 10th grade) in most everything academic, even though his social skills are 2+ years behind. Although I still feel he needs to be on an IEP, the school has worked with us and the 504 has helped him tremendously.

My only piece of advice, which could also be used as a last-ditch effort after you've followed through with the advice listed above, is to hire an advocate. Although they may be very costly, they will make sure that your daughter's needs are met.

Just a thought... And good luck!
 
Grades don't matter or at least they shouldn't. My oldest DS has a gifted IQ and makes mostly A's, a couple of times straight A's, but has also received a C. He does have a disablity. He is diagnosed with ADHD and ED for mood disorder, OCD, anxiety. He has Aspergers characteristics, but does not meet criteria for AS dx. Anyway, even with good to great grades he has an IEP. His disablility as the NY teacher wrote negatively impacts his education. School should be very easy for him given his IQ and other test scores, but it isn't. (The school's formal testing also showed a major scatter.) He has very poor organization, has trouble focusing in class, trouble with handwriting, etc. His IEP has few goals, primarily related to organization and MANY accomodations.
When I asked for a child study, I expected a 504 plan, but after all of the evaluations were complete the team decided that an IEP was most appropriate. I was shocked, actually.
Since your daughter has been tested by the school, it seems that you have jumped through these hoops already... write a letter to the principal or classroom teacher referring your child for special education services. (There isn't a limit on how often you can do this; although I would be reasonable.) They must accept your referral. As you have probably already been through this a team comprised of a school administrator, the reg. ed. teacher, a special ed. teacher (perhaps others we had the county tester and psychologist attend) and you, your husband and anyone else you want to bring that has direct knowledge of your child will decide if an evaluation is necessary. Bring your outside evals. for this part and it will be hard for them to justify a denial. You have a voice in this decision. There will be a meeting then (often the first concludes and the next begins) to determine what type of testing should be performed. Then you wait for the evals. I can't remember off the top of my head, but the school has a certain number of school days to conduct the evals. (something like 30 or 45). Then you all meet again and discuss if the evaluations show a need for sp. ed. services. If denied, explain you want to consider a 504 because she has a documented disabilty (keep those outside evals and dx.). List the accomodations you think are needed and be prepared to explain why.
Don't let the school out of the formalities. When my son was in 1st grade, I didn't know how to properly go through the channels and was blown off. That written letter is key. Keep on them and if it is really needed and seems that it is, it will be easier for them to agree with you on the 504 (at least) than put up with asking about it all the time. ALWAYS be nice, though.
Our state sp.ed. department NEVER answers email. Frustrating.
Be sure to throw out there that you don't believe your child is getting a FREE appropriate public education because you believe she NEEDS to attend Sylvan to succeed in school. Always use the word need and not want. Never say you want the best for your child only what is appropriate and needed.
You can get good information from www.wrightslaw.com and/or www.reedmartin.com.
 
I have read completely some of the posts and just skimmed others. I thought I'd just add my 2 cents.

My DS is ADD. We were very fortunate to have started out on the right foot with an amazing kindergarten teacher before he was diagnosed. However, the BEST thing we did for our son was to seek out a great child psychologist that specialized in ADD/ADHD. He wasn't part of our insurance plan so we did had to pay OOP but it was worth every penny. He had absolute no interest or consideration anywhere else other than the proper diagnosis and treatment of our son. We are very fortunate that with early diagnosis and effective treatment, DS requires neither an IEP or a 504 plan. However, if the time should come as he gets older that one or the other could prove helpful, I'll feel like I have an excellent starting point.

Good luck. You are your childs greatest advocate.
 














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