PurpleKomodo
Mouseketeer
- Joined
- Mar 19, 2015
- Messages
- 477
Background - we have a little guy who has a rare neuromuscular disease and is wheelchair bound. He has a trach, is sometimes on a ventilator (and at least needs to have the travel vent with him), is tube fed, is always on a pulse-ox, needs frequent suctioning, and uses another machine to help keep lungs clear called a cough assist. He currently uses a medical stroller where all of his equipment fits on a large metal tray under him. However, we are getting him a small, lightweight manual wheelchair that we think he will really enjoy using to gain some independence. If he is proficient with this chair, it would certainly be easier to navigate around the parks than his big bulky stroller (it has a push handle for when he gets tired). However, his equipment will not fit on this wheelchair. Is there any chance we could get an exception to the wagon rule (gasp!) to carry is machines while we are in the parks. Having the suction and cough assist in first aid or the car would not be safe because when he needs them he needs them quickly. Or do we just need to plan on having his big stroller so we can house the equipment on it (it meets the size requirement and would not require an exception).
Also, what about rides. Because he is small, he is easy to transfer on rides that require transferring out of a wheelchair, but he does not currently have the ability to sit unassisted so he would only be riding rides where he could sit on a lap or sandwhiched between 2 adults to help support him. Knowing that we won't be riding much more than dark rides and maybe dumbo/carpet type rides, would they allow us to bring our portable suction machine onto the ride? It is about the size of a small cooler. Thanks!
Also, what about rides. Because he is small, he is easy to transfer on rides that require transferring out of a wheelchair, but he does not currently have the ability to sit unassisted so he would only be riding rides where he could sit on a lap or sandwhiched between 2 adults to help support him. Knowing that we won't be riding much more than dark rides and maybe dumbo/carpet type rides, would they allow us to bring our portable suction machine onto the ride? It is about the size of a small cooler. Thanks!