This is a detailed account of a woman who's family came down with swine flu-it's long but good to read.
The following longish account has been abbreviated by the author based on her notes...
"We live in MA.
13 YO has moderate asthma, others no pre-existing conditions
1 week ago - 13 YO, 10 YO and Dh had strep. Just finished Zithromax.
7 YO and mom do not get strep
Saturday:
13 YO gets sore throat and runny nose. Everyone else fine.
Sunday:
13 YO develops 99 fever. Throat very sore, says it feels like strep again, hurts to swallow.
10 YO gets mildly sore throat and runny nose.
Everyone else fine.
Monday:
13 YO has 99 fever (with tylenol), chest wheezing, extremely sore throat. Does nebulizer treatment with albuterol. Insists on going to school for attendance reasons - trying to get into different school next year. I expected call from school to send him home. None. He calls from bus stop to say too sick to walk home, feels like he's going to pass out. At home - 101 fever, chest wheezing, chills, body aches. Begin neb treatments every 4 hours.
Fever peaks 101.8. Coughing but no mucous. Complains of dull headache with occasional sharp stabbing pains, usually after movement. Body aches, sweating out fever.
10 YO feels ok in morning and goes to school. Comes home with incredibly sore throat - hurts to swallow. Headaches begin around 6 pm. Fever 99. Also complains of stabbing head pains.
7YO, mom, dad all healthy
Tuesday:
(morning)
5:30 am DH leaves for trip across country. I tell him I think kids have swine flu. He rolls eyes and laughs and says kids will be fine.
13 YO wakes with lots of difficulty breathing. Has asthma. Albuterol neb treatments not effective. Difficulty taking deep breath. 102 fever while on tylenol. Very pale in color, obviously not well. Coughing, but no mucous.
10 YO wakes with worse headache, 101 fever while on tylenol. Coughing, but from throat tickle, no chest wheezing that I can hear (he is not asthmatic). Body aches.
7 YO stuffy nose and headache
I call pediatrician (ped) office for appointment for 13 YO and 10 YO. I tell symptoms, receptionist says she's not sure of procedure for this. Will talk to doc and call me back.
I call children's schools to report them off. I tell symptoms. I leave my phone number. I don't hear from them again.
I don't hear from the ped office in 45 mins and call back - they say they were just getting ready to call me. Can I bring kids in now? Yes.
Ped office - sit in normal waiting room. Not offered masks. Other kids in waiting room including twin boys in infant carrier carseats. I set up camp in the far corner of office. My kids are coughing like crazy. 7 YO seems healthy, along for the ride (and bribed with trip to Burger King if good behavior
Ped examines 13 YO. Attach monitor to finger to measure Oxygen saturation levels (O2 sat). Levels read low 80's. (100% is normal, under 92-93 is warning, under 89-90 is bad). Nurse does neb treatment with albuterol - same as at home.
Ped examines 10 YO while 13 YO does neb. Ears are clear, throat red and swollen, chest not wheezing or congested.
7 YO rats me out and tells doc if he's good we're going to Burger King. (!)
Ped says it looks like a virus. I ask about swine. Doc says not testing. Says at this point its so prevalent in the community that there is no need to test and will just assume people with flu symptoms have it. I ask about numbers reported on MA Dept Public Health website - they ARE testing some people!
Doc says VERY strict criteria implemented by DPH. Must meet ALL three conditions:
1. pre-existing condition (he gave asthma and pregnancy as examples)
2. Fever greater than 102 for 2+ days
3. Hospitalization that requires oxygen or ventilator (ER trip doesn't count)
He said even if he wanted to, he couldn't test.
13YO finishes neb treatment. They tell us to wait and will come back and check on him. O2 sat levels go up to high 80s. Doc listens to chest, still sounds bad. Orders another neb treatment with albuterol and inhaled steroids. During treatment 13 YO starts to pass out. Keeps saying he needs to go to sleep. Trying to lay his head down, very pale. 02 sat levels back down in low 80s. Doc calls for nurse assistance, takes other kids out of room. 13 YO pulse goes "too low" (not sure on numbers, wasn't thinking clearly then). Nurse brings in oxygen tank and puts him on. O2 sat levels rise because on O2. Doc tries a few times to take off oxygen mask, but after off for a period of time, O2 sat levels go to low 80s again.
Doc calls ped ER unit and tells them we're coming in with 13 YO. 10 YO and 7 YO to stay at ped office until friend can pick up. 10 YO cries because worried about brother. 7 YO cries because no Burger King.
13 YO and I transport to ped ER via ambulance. Oxygen mask while in ambulance, start IV fluids.
Ped ER - Put 13 YO in room. They ask symptoms. I say ped was supposed to call in info. They say they don't have it. I tell symptoms, tell them moderate asthma. They ask about fever. I lie and say he's had 102 + fever more than 2 days. Resident, attending doc and nurse exchange glances. Nurse leaves and comes back. They take O2 mask off and swab him. They begin prednisone through IV. Stays on oxygen, set up neb treatments with albuterol + inhaled steroid.
Rest of afternoon similar. Try to take off oxygen occassionaly and O2 sat levels go way down. Chest x=ray is clear. Docs say that makes them think its a virus. DUH!
I get ahold of dh as he is getting off the plane. He's in shock. He goes to stand in line to get a flight home. I don't hear from him for 3 hours.
Evening - they decide to admit 13 YO. I wait till he is comfortable and then run home to get clothes and cell phone charger. I take home Burger King food

I check on 10 YO and 7 YO and my friend who is a godsend and willing to stay with sick children. 7 YO just runny nose and sore throat. 10 YO still feverish, chest wheeze worse - non asthmatic child.
I go back to the hospital. Dh calls. He was waiting for a flight and fell asleep in airport. I can hear his voice on the phone. I can tell he is sick. He won't admit it. I tell him to get a hotel near the airport and keep in contact with me.
Night - 13 YO stays on O2 and IV fluids. Rests comfortably. I stay all night.
Wednesday:
I go home for awhile in morning and another friend goes to hospital to stay with 13 YO. I shower, get books and supplies. 10 YO still feverish and wheezing. 7 YO feeling better.
Hospital - I ask about swine test results. Many hours later they finally say yes, type A, but not official.
Ped ER has a sign telling people to protect others and wear a mask if they are coughing or sneezing. Blue masks are in a big bin. No one is wearing them. No one is enforcing. No personell is wearing.
Ped unit is the same. No one wearing masks. Day nurse is obviously pregnant. No mask. Respiratory therapy is understaffed. 45 minutes and repeated calls to get neb meds to the room. We do this at home. I know the drill. GIVE ME THE DARN MEDS AND I'LL DO THE NEB TREATMENT MYSELF!! Ridiculous! Many STAT calls in ped unit for respiratory therapy. I start counting them and realize there are a LOT of breathing issues. I walk around the floor and see all beds filled. No quarantine signs. No flu or other signs. Again, no staff wearing masks.
Dh calls. His sister has arrived (they were meeting to go to a family funeral). They were supposed to stay with relatives. I tell SIL what is happening with kids. She is a RN. SIL insists they WILL NOT stay with relatives. She books a hotel room next to dh. Deja Vu. SIL and dh were in the same place last week visiting grandma before she passed. While there dh got strep. Came home. Grandma passed. Went back. Now he's sick again.
10 YO gets worse (at home). I tell friend to start doing home neb treatments every 4 hours. She does. I call ped. He calls in prednisone (oral) prescsription for 10 YO. 7 YO not sick.
I corner a resident who is always willing to offer information. I start askign him questions. Are H1N1 results in? No. I ask more questions. He says "off the record". Again says H1N1 widespread in community, doesn't understand why they won't close all schools for the year when its so close to the end. He says state doesn't have manpower to test mild cases. Guage flu level by school attendance and reports to ped offices. Says testing is more for cases that have potential to be fatal. 700+ confirmed in MA. I ask if all potential to be fatal, he says yes expect for those reported during 1st week of flu in MA when they were testing everyone. As of today, still no confirmed H1N1 deaths in MA.
I call 7 YO school to see if we can get schoolwork. He's not very sick but I've kept him out just because its more convenient. School tells me they received call from 13 YO school saying 13 YO was confirmed + for H1N1 and since 7YO was exposed, he can't return to school for 7 days, even if he's not sick. WHAT??? I've been asking docs for results and they keep stalling!! I find out from 7 YO school that 13 YO is + for H1N1!!!!
I'm beligerant and rude. Doc says H1N1 test is positive and he "just got the results" (but someone had time to call school!!). I ask if we can test 10YO who is at home with same symptoms. He says DPH won't allow it. Confirmed case in family already so no other testing for family members. Again stresses the fact that this is widespread in the community.
Night - 13 YO getting better. Able to go off oxygen and keep O2 levels up.
Thursday: (today)
13 YO discharged. Prescription for oral prednisone. Asked doc for school note. He wrote "can return to school on 6/5." Tomorrow?? The day after being discharged from the hospital? Less than 7 days before symptoms started? Idiot!!! I didn't notice the date until we got home.
13 YO has follow up appt with ped tomorrow morning. I'll get another doc note then.
10 YO breathing still bad, even while taking prednisone. Still doing neb treatments every 4 hours. Amazes me since he's my healthiest child, in good shape, never sick. Will see ped tomorrow also.
7 YO not at all sick. Wants Burger King for dinner tonight
SIL called to say Dh condition worsened last night. Took him to walk-in clinic in Texas. Clinic was full of people, standing room only, lots of coughing, cheap paper maks that do nothing. Left and went to ER. Dh had neb treatments and felt better. Still had 101 fever and other flu symptoms. Funeral today. SIL went to med supply store and bought N95 masks (said stock seemed typical) she's using while tending to Dh so she doesn't get sick and take flu back to her family and elderly patients. Dh insistent on attending grandma's burial, so is wearing mask and staying away from others at outdoor burial. SIL says he needed another neb treatment this mornign, but he was resistent. He is supposed to fly home tonight, but that can't happen.
I called children's schools again. No one there has called to check on condition of children, ask about symptoms. 7 YO school said not to worry about it, end of the year and not a lot of work. 10 YO school said the same. 13 YO school said there is no need for me to come in and they prefer I don't because of virus. Ok, I understand. But he has finals next week, starting Monday. Can someone get his books out of his locker and set them out in the parking lot and I'll wait till they leave and then get out of the car and get the books? Can they send them home with another student who can set them on our doorstep and not come in? They'll call me back. UGH!"