Sjögren's Syndrome

[mamamary]

My mother in law has it. As far as she talks about it what affects her the most is the dry eyes and she has a dry cough. Spicy foods do bother her now. I know she uses special toothpaste. She was going to a local support group but I'm not sure she does that anymore. I believe she's had this for about 8 years or so. In that time I don't believe it's gotten any worse. Sorry but that's about all the info I have.

 

[Dakota_Lynn]

Thanks. I tried your link and it is not working? Could you try again when you have a chance please. Thanks a lot.

Sorry about that! Here ya go. http://www.sjogrensworld.org/

 

[Dakota_Lynn]

I also have RA so the Methotrexate helps both. I was scared to death to start the Methotrexate because of the side effects but for me it's been great. I've been on it for 6 years now. At first it made me very tired and nauseous so I took it on a Saturday night.I don't experience that anymore, I guess my body got used to it. I slept through most of the nausea and I napped on Sunday's if need be. I get my blood work done every 6 weeks like clockwork and have not had any problems. Liver functions have always been good. My dry mouth is my most frustrating problem now. I can deal with that but I couldn't deal with the fatigue and the meth. has been a great help for that. Hope you feel better.

Thanks for the info! I really appreciate that. It's good to hear a bit about what to expect. My doctor is going to wait until summer to start me on the methotrexate. She wants me to be thoroughly adjusted to the Plaquenil first. But I feel better about it after hearing your experience. Nausea is no fun, but I get that from the Plaquenil. Ugh! I guess we do what we gotta do, huh?

 

[grinningghost]

So, nobody has it eh.

I was diagnosed a few weeks back. I have never heard of the blood thickening, but I am new to this.

I don't have it, but I was tested for it many years ago when I was complaining about dry, gritty eyes and severe fatigue. Test came back negative, but what's funny is I was diagnosed with "thick blood" recently and now I have to take a baby aspirin everyday so it doesn't clot too much and give me a stroke or a heart attack. Weird.