Sebastian's Make A Wish Trip to Disney

[mommyof2princesses]

Thank you! We just try and take it one day at a time being thankful for every day, every moment we have together.

We live in SW Charlotte, close to the airport actually. I think we are about a 30-40 minute drive from Harrisburg. Depends on when they finish 485. I think it will be quicker then.

Thanks for reading!

about finishing 485! I just saw in the paper that the last part will not be done till 2018! When I first met dh, we thought once 485 was done it would be easier to get to each other's place! Well, we have been married 7 years now and it is still not done!

 

[twinmum]

Wow! I am in awe of your uber-planning!!! I just wish our kids were closer to age so I could "borrow" more of your plans, but our twins are turning 10. I'm lucky if I can get my 3 boys (twins and my husband) to venture into Fantasyland. And to actually sit down and watch one of the musical shows...ah, just a dream for me!

I made what I thought were detailed plans for our first family trip to WDW in 2006. While we certainly didn't follow them esactly, it gave me a rgeat benchmark and made it easier when the magic took us in another direction for a while.

I too will be interested in hearing about what happens when you hit rides that the wish child will not be riding. Our son Mark has cerebral palsy and uses a wheelchair, and also has other medical issues. We had a GAC, but we only ever used it if he was riding (OK, and the one time he bailed out at the last minute, and we really felt guilty). My husband and Mark's twin, Douglas, tried to hit the parks early to get to some of the attractions Mark didn't want to/couldn't ride. Still, we didn't like having to split up.

I hope you are feeling well as you approach Baby Day!


Alison

 

[princesskayla]

First, I want to say that I in awe of how well your family seems to cope with Sebastian's issues. I found a mass on my 5yo son's arm and about lost it the five days it took to get a diagnosis. It turned out to be benign but it was a scary situation. I know that your situation is not as carefree as it sounds when you write, and your family is my thoughts and prayers.
Second, I am just like you about the Disney planning craziness. I do not think there is a minute in the day I am not thinking about what were are going to do at Disneyworld and have much my children will love it. (Maybe I should write a pre-trip report too.) At the moment - I am designing "checking into the resort" customs for my family. I think I have gone off the deep end - but it is so much fun!!!
Third, your husband must be one of the kindest men in America. I love that he does the matching clothes with you and the kids. It takes a special sort of man to do that. I am also 100% sure that he is sick of talking about Disneyworld. My husband has vowed if I say one more thing - he will cancel the trip!!

 

[AmberGreenawalt]

First, I want to say that I in awe of how well your family seems to cope with Sebastian's issues. I found a mass on my 5yo son's arm and about lost it the five days it took to get a diagnosis. It turned out to be benign but it was a scary situation. I know that your situation is not as carefree as it sounds when you write, and your family is my thoughts and prayers.
Second, I am just like you about the Disney planning craziness. I do not think there is a minute in the day I am not thinking about what were are going to do at Disneyworld and have much my children will love it. (Maybe I should write a pre-trip report too.) At the moment - I am designing "checking into the resort" customs for my family. I think I have gone off the deep end - but it is so much fun!!!
Third, your husband must be one of the kindest men in America. I love that he does the matching clothes with you and the kids. It takes a special sort of man to do that. I am also 100% sure that he is sick of talking about Disneyworld. My husband has vowed if I say one more thing - he will cancel the trip!!

Princesskayla:

Thanks for what you said about how we cope. I've had my share of really dark days--especially in the beggining and with each new diagnosis. I've been going much longer stretched these days without totally breaking down into a puddle of tears. We are all recently buoyed by the great news that Sebastian's bone scan last week didn't show any new tumors at this time. YAY!!! People with his disease can go on to make new tumors anywhere from 4 months to 30 years after the first ones are treated and the ones that have been treated have a really high recurrence rate. But for now, today he is doing GREAT...and therefore we are doing great.

I'm finding that working on Sebastian's Wish trip is giving me something really positive to focus on. I'm used to spending my spare time on-line reading about bone tumors and treatments, statistics and surgical techniques. After awhile it's wearing and for us especially frustrating given that there is no "cure." Disney planning has also been keeping me occupied as I wait to go into labor! Many a Mom out there must know the feeling of waiting those last few weeks.

With regards to my husband I do have to agree that he indeed IS one of the kindest men in America. He would do anything for us. He knows especially how much Sebastian likes to wear the same thing as Daddy, his hero. Just this weekend they wore matching polo shirts to church and Sebastian beamed with pride. Of course Brian draws the line at some point. He wouldn't agree to my "Incredibles" family costume scheme last Halloween. And yesterday, after listening to me go on about people's pre trip reports for a good twenty minutes he gave me the look that said, "time to talk about something else."

I hope you do start a trip report! Wishing you a magic-filled trip!

 

[AmberGreenawalt]

Wow! I am in awe of your uber-planning!!! I just wish our kids were closer to age so I could "borrow" more of your plans, but our twins are turning 10. I'm lucky if I can get my 3 boys (twins and my husband) to venture into Fantasyland. And to actually sit down and watch one of the musical shows...ah, just a dream for me!

I made what I thought were detailed plans for our first family trip to WDW in 2006. While we certainly didn't follow them esactly, it gave me a rgeat benchmark and made it easier when the magic took us in another direction for a while.

I too will be interested in hearing about what happens when you hit rides that the wish child will not be riding. Our son Mark has cerebral palsy and uses a wheelchair, and also has other medical issues. We had a GAC, but we only ever used it if he was riding (OK, and the one time he bailed out at the last minute, and we really felt guilty). My husband and Mark's twin, Douglas, tried to hit the parks early to get to some of the attractions Mark didn't want to/couldn't ride. Still, we didn't like having to split up.

I hope you are feeling well as you approach Baby Day!


Alison

Thanks for reading Alison! I've been following along with your incredible story for Mark's wish trip in your trip report. I'm looking forward to hearing all about it when you get back. Especially since you go right before we do and you can give me the scoop

 

[jham]

My trip is not until February, but you've got me dying to do some planning!!! At least I'm planning outfits though. That is a huge part of the fun!

 

[AmberGreenawalt]

My trip is not until February, but you've got me dying to do some planning!!! At least I'm planning outfits though. That is a huge part of the fun!

Oh that will soon follow! On our last trip I had it written out what each person would be wearing for each day (somethimes half day) of the trip. I never knew about this "disbouique" stuff back then. I only just disovered the uber cute outfits through other wish tripper threads. This time I'll have to try and sew the kids some custom outfits....you know in all my spare time HA HA HA Do you know of any think to specific threads where DISBOUTIQUE people sell their creations?

 

[Robin+5]

Amber,
for no new tumors!!! I read your TR. Boy what an ordeal you have been through. I have 5 children and went through natural labor all 5 times and I know about the waiting game. I am also a L & D nurse. (I am on a leave of absense right now because of Nathan, I hope to go back in October when he is back in school full time). Good luck with the delivery .
Boy are you a planner. You have everything down to the minute . We know what rides we are going on and what days we are going to each park and that is it. After that we are going to take it as it goes. Some of the days we still are unsure as to what we are going to do. I a subbing and will enjoy reading more about your trip and your adorable children. I love the picture of you daughter in the green outfit looking at tinker bell. How cute
Robin

 

[ibdamamma]

All I have to say us wow! You are one detailed person! It's an amazing thing your son has been through and I can say we too are there with you. Though we are not going through MAW we get to spend the day at GKTW, we actually got an email today from the Mayor. I too have started a wish pre-trip report. Nothing as close to remarkable as yours. Your son seems like a ball of fire and thats awesome to see in children. I look forward to reading more of your report!

XOXO

 

[bigdisgrandma]

Amber,
for no new tumors!!! I read your TR. Boy what an ordeal you have been through. I have 5 children and went through natural labor all 5 times and I know about the waiting game. I am also a L & D nurse. (I am on a leave of absense right now because of Nathan, I hope to go back in October when he is back in school full time). Good luck with the delivery .
Boy are you a planner. You have everything down to the minute . We know what rides we are going on and what days we are going to each park and that is it. After that we are going to take it as it goes. Some of the days we still are unsure as to what we are going to do. I a subbing and will enjoy reading more about your trip and your adorable children. I love the picture of you daughter in the green outfit looking at tinker bell. How cute
Robin

How interesting that you are a L & D nurse, I am a pediatric nurse. I thought about labor and delivery but absolutely love peds. My SIL is the director of the L & D unit at her local hospital. I guess it has to do with all my own kids and then all the grandkids. I am just a kid person. They are all so loving and cute and forgive you so quickly when they know you care about them.

Amber, hoping for your new baby to come soon.

Denise

 

[Whipperwhirl]

I was really moved by your story - I wish you and your family nothing but the best. Whip

 

[AmberGreenawalt]

Sebastian received a package in the mail from Oklamomof4boys. Enclosed were two Buzz Lightyear pins and some fun Mickey Mouse stickers. Sebastian was thrilled by such a neat surprise. I was so glad there were two pins because Siennah was equally excited!

The package also included a lovely note from Carol and an awesome picture of Mickey Mouse drawn by fellow wish boy, Nathan.

This wonderful gesture on the part of another wish family inspired us to come up with our own little "pixie dust" project. For more information on that please seen the “Wish Trippers Unite” thread http://www.disboards.com/showthread.php?t=1606643&page=97


THANK YOU so much Carol and Nathan for your thoughtfulness and generosity!

 

[oklamomof4boys]

I am so glad he enjoyed them- we had so much fun sending them off. It feels so great to do nice things for others!

Sebastian's smile is just so incredible- so beautiful!

Still no baby?

 

[AmberGreenawalt]

I am so glad he enjoyed them- we had so much fun sending them off. It feels so great to do nice things for others!

Sebastian's smile is just so incredible- so beautiful!

Still no baby?

No baby yet I'm 2 cms and 75% effaced...time to get the show on the road kid. I'm scheduled for an induction on the 15th of August...that seems like forever

 

[oklamomof4boys]

Oh, the 15th of August does seem very far away! I bet it's not anywhere that long. Plus the time will go fast with all the Disney dreaming to be done.

All my boys were early ( 3 wks, 5 wks, 3 wks and 7 wks) so I guess I don't really know what it is like to wait.

Carol

 

[HeatherSue]

Your kids are absolutely adorable!! You are the ultimate planner!! I can't wait to hear more about your planning and your trip!

 

[LeeLee2U]

Wow! I thought I was planned for my trip!! Of course then I LEFT my super plan! Yep I did. But I had a backup for my ADRS and which park I would be when. I had them written in a small notebook I was keeping for jotting down details then I would transfer it onto my "plan" I also had them written in the calender I kept in my purse for Drs app. etc before I would transfer them in my daytimer so....that helped and then we had some situations that had us change the general scheme of things, BUT it all worked out great. I think just being there was so magical. No Drs app. No Bills No cooking (which I do like to do but it was a nice break!) no cleaning etc.... Plus this was our First WDW experience. Having a general plan by reading these boards and a few other sites really helped. We only had to wait in just a few lines and none of those were for very long.
One thing is we had Bs w/chair. Which you can get a ticket for your stroller to use as a w/chair. 'this will help youwith lines etc... For the most part the CMs seeing our WISH button and or shirts is what helped. They treated us like royalty!
Best wishes on the new baby!!! I'm hoping for Aug 5th for ya!! That is the BEST Birthday evah!!!

 

[mommyof2princesses]

hey Amber! Remember me! It was so neat to meet you! Sebastion is too cute! I get to meet so many people at the Disney Store, but everyone once in a while I get to meet a disser in real life! You are so sweet and you have 2 beauiful little ones...hopefully the 3rd one comes and makes an appearance soon! I look forward to reading more about your trip!

 

[kimmylaj]

i love your reort. your plans are fabulous. my hubby is laughing because i like to take a map before we go and label the attractions in the order we will go on them. i also told him i am going to make little pocket size cards telling us where we should be when and he thinks im crazy well maybe i am just a little.
your kids are adorable and please post pics of your new little one when she arrives.

 

[AmberGreenawalt]

It's a good thing I got that next set of Pixie Dust packages out in the mail on Friday afternoon because my water broke on Friday night at 9:00 p.m. 18 hours and 36 minutes later at 3:36 p.m. on Friday our little Savannah entered the world weighing 6 pounds 7 ounces and measuring 19 inches long. She made her debut three weeks early but is very healthy. Brother Sebastian and big sister Siennah are totally smitten with her.

My cup runneth over.....