disneycruising
DIS Veteran
- Joined
- Jan 24, 2003
- Messages
- 1,099
My 2 boys are in Middle School in Northern California. We do not have full time nurses in our schools. They only come one day a week at each school. Instead they have trained ALL the teachers that deal with my boys: how to spot a reaction and how to use the epi pen. We keep one set of epi pens in the office. Plus, they each boy carry a set in their backpacks. My boys have been trained how to use them if needed. They also carry a cell phone if they need to call 911 or Mom at any time.
When they were in elementary school. The situation with nurses was the same. ALL teachers that directly worked with my sons had to be trained to use the epi pen. They were kept in the office. With the understanding that in an emergency someone would bring the epi to my son... Not send my son to the office. All classes had a walkie talkie to communitcate with the office even on the play ground. In 5th grade he was allowed to carry it in his back pack.
I think you need to a lot of research on what your state laws are in reguards to the schools dealing with LTFA. You might find that what the school is saying is not true. They are only thinking of there point of view and what is easiest for them!! Sometimes it can take a little more pressure to get them to do more!
I do not have a 504 for my boys. The schools have done, almost everything I have asked of them. If they didn't I would be the first one in line to get a 504started. If you are going to go the 504 route make sure you have done all of your research. The school will never willing do anything for your child with out being pushed! I have found that the schools, do not have to tell you what they 'can do'...you have to know what to ask for
Have you joined any support groups in your area? It is a great to way to meet other parents, that are going through the same thing as you.
There is a great website:
http://allergy.hyperboards.com
Where you can get a lot of information from other parents dealing with the same thing. There may be someone on there from your area or state that can help you navigate your way with the school.
Good luck.
When they were in elementary school. The situation with nurses was the same. ALL teachers that directly worked with my sons had to be trained to use the epi pen. They were kept in the office. With the understanding that in an emergency someone would bring the epi to my son... Not send my son to the office. All classes had a walkie talkie to communitcate with the office even on the play ground. In 5th grade he was allowed to carry it in his back pack.
I think you need to a lot of research on what your state laws are in reguards to the schools dealing with LTFA. You might find that what the school is saying is not true. They are only thinking of there point of view and what is easiest for them!! Sometimes it can take a little more pressure to get them to do more!
I do not have a 504 for my boys. The schools have done, almost everything I have asked of them. If they didn't I would be the first one in line to get a 504started. If you are going to go the 504 route make sure you have done all of your research. The school will never willing do anything for your child with out being pushed! I have found that the schools, do not have to tell you what they 'can do'...you have to know what to ask for
Have you joined any support groups in your area? It is a great to way to meet other parents, that are going through the same thing as you.
There is a great website:
http://allergy.hyperboards.com
Where you can get a lot of information from other parents dealing with the same thing. There may be someone on there from your area or state that can help you navigate your way with the school.
Good luck.



That would drive me insane having something like that attached to my body constantly, not to mention the less than desirable fashion aspect of it.