Rolling thru the WORLD in a wheelchair on a WISH trip! 8/12 NEW UPDATE*CR CAPTIVES!!

:lmao: :lmao: :lmao:

I was just rolling on through reading posts, and when I got to this one I did NOT even have to look at your name to know it was you, Tat! :rotfl:

:rotfl: Wonder what gave it away.:laughing:

Just wanted to check in with you, Lee Lee to make sure everything is okay. Haven't heard from you in awhile.:hug:
 
I found your TR a couple of days ago. It is wonderful. I stayed up very late to read it all. I hope the boys and you DH are doing well. I can't wait to ready more. Good Luck with the move if you haven't moved already.
 
Hello LeeLee2U!

I've been lurking again. I wanted to post to let you know I'm still with you!

I hope your husband is doing better. I can't imagine what you do if dialysis doesn't do the job. My heart aches for you! :hug:

Minnie's House is something special. Next time you visit, maybe all "those" people, the rude, ruder, and rudest, won't be there. :rotfl:

Your house looks wonderful! I love the kitchen cabinets. Moving is so stressful but I know you are thrilled to get into your own home! :yay:

I'll check with you later! Have a great week! :cool1:
 
Hey LeeLee I hope all is well .....

Just disneydad cking in!!!!

I think the house is done now...you guys moved in?

see ya

disneydad


:hug:
 

Just checking on LeeLee...It has been awhile

:hug:
 
Hi LeeLee. Coming out of lurkdom to check in and say how fantastic your house is coming along. I hope the weather held out for the rest of the build.

Hoping your guys are all okay and hugs to you for being so strong all the time.
take care.
 
I have spent the last 2 hours reading all 42 pages of your TR! I am so happy Braeton's wishes came true and he got to meet Pooh and Mickey. Tyler sounds like a wonderful big brother.
 
/
Hiiii LeeLee!! :)

Haven't been on here in some time so finally caught up. The house looks amazing! Can't wait until you guys move in!
 
I found your report last night and stayed up way too late reading it! Now here I am again reading instead of baking a birthday cake, cleaning the kitchen, doing the laundry, etc!

I'm only to page 27 and you have me in tears. What a special trip you had! I'm so happy that BOTH of your sons were given so much love by all the characters!!! Disney is Magic!!!!

Looking forward to the rest!
Katy
 
Hey LeeLee, just stopping by to send you and yours some pixie dust and good wishes :hug:

:tinker: :tinker: :tinker: :tinker: :tinker:

pixiedust: ---- pixiedust: ---- pixiedust: ---- pixiedust: ---- pixiedust:

:goodvibes Have a DisneyTastic Day! :goodvibes

pixiedust: ---- pixiedust: ---- pixiedust: ---- pixiedust: ---- pixiedust:

:tinker: :tinker: :tinker: :tinker: :tinker:
 
:grouphug: Hi everyone!! Thanks for all the great post and sweet remarks. I will post a reply VERY soon along withan update. We are in our house and loving it although the boxes piled up in my living room well lets just say I will be very glad to have them gone!!!:laughing: I can't remember what I 've posted lately but here's a brief update.
Shannon is slowly recovering from the 2 surgeries he had week before last. Braeton had been doing awesom until a migraine attack last week and then something we don't know what has started end of last week and then about 3 hours ago WHAM!! I was attacked by the doozy of al Doozies of a staomach something or other. I was thinking maybeit was the shrimp I fried, cause I sampled a few too many as I was frying them, but nobody else feels bad. Maybe its lack of sleep I don't know but I am laying in bed now typing this and I don't want to get out although I'm going to have too cause I know the kids left a mess in the kitchen. Braeton successfully made his OWN Peanut butter and Honey sandwich tonight. YAY him and Poor Mommies stomach tied up in even more knots imaging what he could have done with the butter knife and the mess he could have made. Actually he did scatter bread crumbs on the floor but he actually did a pretty good job. My little baby is growing up.

I don't know if I posted anything about his ARD meeting last week. Well he is down to only 2 therapies at school. OT and PT. He had vision and O&M which is vision related but His vision which had him legally blind periphally on the left side and significant periphael vision loss on the right has now improved to just a small amount of loss on the left side. Another miracle is what I say!!!:goodvibes

His social behaviour leval is still falling in the immature range of a 2 1/2 to a 3 year old. Part of that is do to his physicall maturity which he learned to walk 18 months ago so part of that is falling in the time rangeof how he has learned to do things. Walk, sit up, talk etc... But as they were testing his educational level WEL....lets just say that i have never seen their principal act anything other than calm and dignified. When they announced his score levels her mouth dropped open. her chin hit her knees which made her legs kick the table, knock 5 therapist 3 counselors a teacher, a nurse and diagnoticians papers fly off the table and..... O.k maybe not that extreme ;) but her mouth did drop.:laughing:

On a cognitive vocabulary, putting words in meaningfull sentences, telling what they mean, making stories out of certainwords and pictures he placed on a 9 year old evel, then he realized he was testing and started trying to avoid work and placed as a 5 1/2 year old on the rest of his test. Well he is 5 1/2 so that was good, but they feel the testing was inaccurate as he wa not paying attention SOOOO the goal is to try to get his social behaviour leval up so we can let the little genius inside of him come out. They are going to get him an Alpha Smart keyboard to use in 1st grade which should ease some of his frustration level. Due to his handwriting which is due to the CP the keyboard will hopefully allow him to stay on level schoolwork wise in 1st grade which he starts next year. It will allow him to do all his assignments on the Alpha Smart then he will hook it up to his teachers computer and it will print it all out. Hee Hee I wonder what his teacher will do when it starts printing out all his dreams of Disney World?:rotfl2:

O.k. Stomach is starting to turn again. i've got to go but I will be back with an update since I have some pics downloaded finally!! Hope everyone is doing great and I'll be back soon!!!!:goodvibes
 
Hey girl!!

Thanks for giving us your update on your family

I am so happy everyone is doing well, minus the migraine attack and your poor stomach bug attack,:hug:


What a big Boy Braeton is,making his own sandwhich. Wow, he is doing great in school

Tell him Congrats to him!!!!!

How is Tyler?


Glad you are enjoying your new house, minus all the boxes:laughing:


How awesome Braeton vision has improved....:wizard:
 
LeeLee, it's great to hear from you. Thank you for thinking of us amidst your busy, busy life! I hope EVERYONE feels better soon. How's Tyler? You didn't mention him. B seems like he's doing very well in school. I hope he can stay focused like you said.

You should take some pics of all the boxes piled up in your house.

jk :rotfl:

Hope you get some sleep and things calm down around there. Looking forward to hearing from you again!
 
Hey girl!!

Thanks for giving us your update on your family

I am so happy everyone is doing well, minus the migraine attack and your poor stomach bug attack,:hug:


What a big Boy Braeton is,making his own sandwhich. Wow, he is doing great in school

Tell him Congrats to him!!!!!

How is Tyler?


Glad you are enjoying your new house, minus all the boxes:laughing:


How awesome Braeton vision has improved....:wizard:

and here I thought I was first. :rotfl: Oh well. Guess I type too slow, rather I THINK of what I want to type too slowly.
 
Oh dear, Lee Lee. I hope your tummy feels better real soon. And I hope that dumb ol' migraine was just a one-time thing.

I better go now, cause my DH just finished making himself a PB&Honey sandwich and I will have to clean up after him. HONEST!!;)
 
Oh pumpkins!!!:guilty: Sharky and Cher you got me!!! I can't BELIEVE i didn't mention Tyler!! And I pride myself for making sure I don't leave him out since his Dad and Braeton get so much attention due to their medical needs. Right now he is being a little toot. Tormenting his bro with Figgy. Making him fly and "say" stuff like "I am flying away from Braeton. I don't want to be squished in bed anymore. Bye Braeton bye I am going to fly." Which of course is getting Braeton hyped up. But on the whole he has been doing pretty good. He is all into Star Wars books right now and constantly has his nose in one. That or he listens to Old time radio stories. He loves westerns so Gunsmoke and The Lone Ranger are frequently heard blaring through the house!!:rolleyes: He got a special Daddy and me time today and got a new Basketball so he was pretty happy.
By the way while he and Dad went shopping me and Braeton went to.........................
the Pharmacy to pick up his .......................

antibiotics for his 20something case of strep throat!!!:sick:

But as far as Tyler goes he is a typical boy who right now is doing everything he can to delay bed time!!!!:rolleyes1 But he is a big help also. He helps a lot with Braeton teaching him things he should and shouldn't do!!!:laughing: Andwho do you think got the stuff out for Braeton to make his own sandwich???? He was supposed to fix it for him!!!! He's my sweetie and he has had to be such a little man for so long that I am glad he's having time to be a typical little boy!
Since i can't work tomorrow since B has strep I am going to try my best to get that update out in the a.m.
I did unload and unpack some of the boxes that were still in the van today!!!!:banana: Along with the Drs trip etc.... I have got to get the van unloaded so I can put the back seats back in!!! And as far as the boxes in the livng room Cher I think they are coming alive!!1:scared1: And by the way THank you for coming over!!! :hug: I was so excited you had posted!! I really enjoyed your TR and to think you posted multiple times on mine!!!!!:goodvibes I feel like an old friend has come back!!

Elisa I was so glad to see your post! I have been worried about ya'll.

Everyone I will try to read through and answer tomorrow. Thank ya'll for putting up with me and waiting this long!!!
 
:grouphug: Hi everyone!! Thanks for all the great post and sweet remarks. I will post a reply VERY soon along withan update. We are in our house and loving it although the boxes piled up in my living room well lets just say I will be very glad to have them gone!!!:laughing: I can't remember what I 've posted lately but here's a brief update.
Shannon is slowly recovering from the 2 surgeries he had week before last. Braeton had been doing awesom until a migraine attack last week and then something we don't know what has started end of last week and then about 3 hours ago WHAM!! I was attacked by the doozy of al Doozies of a staomach something or other. I was thinking maybeit was the shrimp I fried, cause I sampled a few too many as I was frying them, but nobody else feels bad. Maybe its lack of sleep I don't know but I am laying in bed now typing this and I don't want to get out although I'm going to have too cause I know the kids left a mess in the kitchen. Braeton successfully made his OWN Peanut butter and Honey sandwich tonight. YAY him and Poor Mommies stomach tied up in even more knots imaging what he could have done with the butter knife and the mess he could have made. Actually he did scatter bread crumbs on the floor but he actually did a pretty good job. My little baby is growing up.

I don't know if I posted anything about his ARD meeting last week. Well he is down to only 2 therapies at school. OT and PT. He had vision and O&M which is vision related but His vision which had him legally blind periphally on the left side and significant periphael vision loss on the right has now improved to just a small amount of loss on the left side. Another miracle is what I say!!!:goodvibes

His social behaviour leval is still falling in the immature range of a 2 1/2 to a 3 year old. Part of that is do to his physicall maturity which he learned to walk 18 months ago so part of that is falling in the time rangeof how he has learned to do things. Walk, sit up, talk etc... But as they were testing his educational level WEL....lets just say that i have never seen their principal act anything other than calm and dignified. When they announced his score levels her mouth dropped open. her chin hit her knees which made her legs kick the table, knock 5 therapist 3 counselors a teacher, a nurse and diagnoticians papers fly off the table and..... O.k maybe not that extreme ;) but her mouth did drop.:laughing:

On a cognitive vocabulary, putting words in meaningfull sentences, telling what they mean, making stories out of certainwords and pictures he placed on a 9 year old evel, then he realized he was testing and started trying to avoid work and placed as a 5 1/2 year old on the rest of his test. Well he is 5 1/2 so that was good, but they feel the testing was inaccurate as he wa not paying attention SOOOO the goal is to try to get his social behaviour leval up so we can let the little genius inside of him come out. They are going to get him an Alpha Smart keyboard to use in 1st grade which should ease some of his frustration level. Due to his handwriting which is due to the CP the keyboard will hopefully allow him to stay on level schoolwork wise in 1st grade which he starts next year. It will allow him to do all his assignments on the Alpha Smart then he will hook it up to his teachers computer and it will print it all out. Hee Hee I wonder what his teacher will do when it starts printing out all his dreams of Disney World?:rotfl2:

O.k. Stomach is starting to turn again. i've got to go but I will be back with an update since I have some pics downloaded finally!! Hope everyone is doing great and I'll be back soon!!!!:goodvibes

Hey Lee Lee!!! What an awesome family update. Glad that Shannon is recovering from his surgeries and so glad that Braeton is doing so well in his vision improvement. That is spectacular, I am so happy for him. Not even just a little improvement, a major improvement. Go Braeton!!!

I am sure the Alpha Smart will be excellent for him and allow him to really keep up and for frustration level to be done!!!!

I know you are enjoying that house as well you should be. I'm so happy for you all....Sorry about the stomach ache, there is a bug going around and sounds like it bit you. I hope you feel better real soon!
 
Oh pumpkins!!!:guilty: Sharky and Cher you got me!!! I can't BELIEVE i didn't mention Tyler!! And I pride myself for making sure I don't leave him out since his Dad and Braeton get so much attention due to their medical needs. Right now he is being a little toot. Tormenting his bro with Figgy. Making him fly and "say" stuff like "I am flying away from Braeton. I don't want to be squished in bed anymore. Bye Braeton bye I am going to fly." Which of course is getting Braeton hyped up. But on the whole he has been doing pretty good. He is all into Star Wars books right now and constantly has his nose in one. That or he listens to Old time radio stories. He loves westerns so Gunsmoke and The Lone Ranger are frequently heard blaring through the house!!:rolleyes: He got a special Daddy and me time today and got a new Basketball so he was pretty happy.
By the way while he and Dad went shopping me and Braeton went to.........................
the Pharmacy to pick up his .......................

antibiotics for his 20something case of strep throat!!!:sick:

But as far as Tyler goes he is a typical boy who right now is doing everything he can to delay bed time!!!!:rolleyes1 But he is a big help also. He helps a lot with Braeton teaching him things he should and shouldn't do!!!:laughing: Andwho do you think got the stuff out for Braeton to make his own sandwich???? He was supposed to fix it for him!!!! He's my sweetie and he has had to be such a little man for so long that I am glad he's having time to be a typical little boy!
Since i can't work tomorrow since B has strep I am going to try my best to get that update out in the a.m.
I did unload and unpack some of the boxes that were still in the van today!!!!:banana: Along with the Drs trip etc.... I have got to get the van unloaded so I can put the back seats back in!!! And as far as the boxes in the livng room Cher I think they are coming alive!!1:scared1: And by the way THank you for coming over!!! :hug: I was so excited you had posted!! I really enjoyed your TR and to think you posted multiple times on mine!!!!!:goodvibes I feel like an old friend has come back!!

Elisa I was so glad to see your post! I have been worried about ya'll.

Everyone I will try to read through and answer tomorrow. Thank ya'll for putting up with me and waiting this long!!!

Glad to hear Tyler is doing well and is a typical boy tormenting his brother, lol, yes that sure is typical.

Glad you are posting again LeeLee, have missed you!
 
Oh pumpkins!!!:guilty: Sharky and Cher you got me!!! I can't BELIEVE i didn't mention Tyler!! And I pride myself for making sure I don't leave him out since his Dad and Braeton get so much attention due to their medical needs. Right now he is being a little toot. Tormenting his bro with Figgy. Making him fly and "say" stuff like "I am flying away from Braeton. I don't want to be squished in bed anymore. Bye Braeton bye I am going to fly." Which of course is getting Braeton hyped up. But on the whole he has been doing pretty good. He is all into Star Wars books right now and constantly has his nose in one. That or he listens to Old time radio stories. He loves westerns so Gunsmoke and The Lone Ranger are frequently heard blaring through the house!!:rolleyes: He got a special Daddy and me time today and got a new Basketball so he was pretty happy.
By the way while he and Dad went shopping me and Braeton went to.........................
the Pharmacy to pick up his .......................

antibiotics for his 20something case of strep throat!!!:sick:

But as far as Tyler goes he is a typical boy who right now is doing everything he can to delay bed time!!!!:rolleyes1 But he is a big help also. He helps a lot with Braeton teaching him things he should and shouldn't do!!!:laughing: Andwho do you think got the stuff out for Braeton to make his own sandwich???? He was supposed to fix it for him!!!! He's my sweetie and he has had to be such a little man for so long that I am glad he's having time to be a typical little boy!
Since i can't work tomorrow since B has strep I am going to try my best to get that update out in the a.m.
I did unload and unpack some of the boxes that were still in the van today!!!!:banana: Along with the Drs trip etc.... I have got to get the van unloaded so I can put the back seats back in!!! And as far as the boxes in the livng room Cher I think they are coming alive!!1:scared1: And by the way THank you for coming over!!! :hug: I was so excited you had posted!! I really enjoyed your TR and to think you posted multiple times on mine!!!!!:goodvibes I feel like an old friend has come back!!

Elisa I was so glad to see your post! I have been worried about ya'll.

Everyone I will try to read through and answer tomorrow. Thank ya'll for putting up with me and waiting this long!!!

glad to hear he's being a typical little boy :laughing: Poor Braeton! Strep is no fun...I had it a few times as a kid and always got sore throats and they'd never take out my tonsils even as much as my mom begged.

you are too sweet! :hug: I'm sorry I was away so long. It took me a while to really get caught back up on all the TR's I was on, and there are still a couple I need to read through that started during my absence.

I'm trying to finish up that TR...been working hard on it, and posted an update today in fact. I might get another one up tonight! I have to get it finished so I can focus on my pre-trip stuff for this September! :thumbsup2
oh by the way you can call me Cheri ;) (Cher makes me think of...well, Cher! :rotfl: )

Will be waiting patiently (for real this time ;) ) for your update
 

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