Princess Mya's Magical Wish Trip!!!!!!! - Trip Report Complete!!!

[jenb1023]

Great start to your TR! Sorry to hear about the bumpy ride and villa issue but sounds like you just took the bumps in stride and had a magical time! Can't wait to hear more about your trip and to see more pictures of that smiling face! BTW - I live in the Harrisburg area so not too far from you.

 

[Corrine 1973]

So I am gone for 3 days in Missouri and come back to find that you have started your TR.

I was so excited to read it that even though it is now after 11pm and even though I was in a car with 3 young children for 10 hours I could not go to bed with out reading the beginning of you TR. And I am glad I did.

I am glad that your trip was so magical and can't wait to read more.

 

[jmkford4]

I am so glad to have stumbled upon this TR. Your daughter is beautiful and brave, and you are one strong momma.

Can't wait to hear more.

 

[StefaniLyn]

What a wonderful start to your trip report! I always hold my babies extra tight on landings as well, they can be especially bumpy sometimes! I especially love the details about GKTW and your villa. It will help me prepare for our own Wish Trip in December. Anxiously awaiting more updates!

 

[my*2*angels]

What a great start! (except for the landing) Can't wait for more! Mya is sooo adorable!

 

[jenb1023]

Just wanted to pop in and say hi and that I hope you guys are well and that we are looking forward to more photos and TR whenever you have time to post.

 

[myasma]

Okay, Ive been gone a while due to the fact that after living a week full of fairy tales. Reality has hit hard. Mya's AFP went up to 115 so she is in her third relapse now. We are starting another chemo protocol but there is no evidence of it actually working for her cancer. If it doesn't work she will go to transplant. If her chemo shows a good effect then she will go to radiation. If she relapses again after radiation there is nothing else that can be done. We are a lomg way away from that but please continue to pray for Mya and me.

 

[Piper]

Prayers sent

 

[Dani C]

More prayers coming your way. Kiss the little princess for us!

 

[jenb1023]

Shardai - I am so sorry to hear that things have not been good this past week. I hope knowing that you two have a bunch of friends on the DIS praying for you and sending good thoughts provides a tiny bit of comfort to you. Give Mya hugs from all of us!

 

[maroo]

We are definitely praying for you guys!!!!


Hang in there.

 

[my*2*angels]

I will continue praying!

 

[revrob]

Praying for you!

 

[MomTo4+more]

Okay, Ive been gone a while due to the fact that after living a week full of fairy tales. Reality has hit hard. Mya's AFP went up to 115 so she is in her third relapse now. We are starting another chemo protocol but there is no evidence of it actually working for her cancer. If it doesn't work she will go to transplant. If her chemo shows a good effect then she will go to radiation. If she relapses again after radiation there is nothing else that can be done. We are a lomg way away from that but please continue to pray for Mya and me.

I wish I could give you a big hug and make it better. I am continuing to pray and think of Mya. I wish there were more I could do.

 

[myasma]

After touring our wonderful villa, we left for Walmart to get a couple of things we forgot. My mom of course wanted to buy everything that caught her eye and after explaining that she was not going to single handedly blow through Mya's wish money, was more than a little upset with me. So she said she would be back and I honestly searched the whole 2,000 square foot store looking for her. So do I find her frantically looking for me? Nope, I find her souvenier shopping with another cart filled with stuff. Now this is when I start to get upset. "Mom, no way are we getting all this stuff." "Why not?" "Because we are here for a week, not a month." So the conversation continues untill she storms off. After checking out, I am ofcourse stopped at the door when the alarm goes off and interrogated by someone who took thier job a little too seriously. By this time, I was more than ready to escape from the Walmart and was willing to let the interrogation go, but good old Mom just had to demand to speak yto the manager. I told her it wasn't nessecary but she proceeded anyway. I'm guessing the manager didn't do much because she comes out and starts screaming at the guy for the way he handled the situation. I try to tell her to calm down and leave the guy alone but then she starts screaming at me so I took Mya and went to the car. She was mad at me but I wouldn't talk to her. By the way when I emptied the cart, I found a pack of batteries that were wedged in the carts bars, so the guy wasn't wrong at all. When we got back to the village, I unpacked and dressed Myas for the pirate's and princess' party. The train picked us up and drove us to the Gingerbread House where we stopped for dinner.

Before we entered the GH we spotted Mayor Clayton. Mya wanted absolutely nothing to do with him and screamed bloody murder as soon as he came near. But the clever rabbit that he is snuck behind her so we could take a pic. After Dinner Mya started her love affair with the carousel. I lie to you not when I say she rode the carousel many nights untill they closed.

I was finally able to drag her off the carousel and we were off to the party. Walking and talking carelessly, out of nowhere a man dropped to the ground in a bow and said your majesty. Bewildered, I looked around and realized he was talking to Mya. Well she just ate it up and took his hand to be led to the makeup counter.

We soon had another surprise. Talking mirrors and snowcones. She wasn't really fooled by the mirror. She kept looking around for the person talking. I had to leave the party for orientation but my mom took great photos while I was gone.

When I returned, the party was over but not yet for Mya.

As we were walking back to our villa, we found this,

Next up; Magic Kingdom, Princesses, and so many characters.

 

[myasma]

Thanks you for sharing Mya's caring bridge page with us. I just finished reading it with my oldest daughter. I am so glad you had a great week at Disney after all you have been through this past year or so. Wow! You and Mya are so strong! I don't know if I posted this on Deyki's TR, but Michelle, the baby I have guardianship of, has profound hearing loss. She lost her hearing due to meningitis at 7 months old, and had cochlear implants activated in April. I have found lots of great resources for deaf and hard of hearing children that I would be happy to share with you. Michelle goes to an oral school for the deaf twice a week and is learning to listen and speak. I am sharing some of her journey on Deyki's Care Page - THELITTLEENGINETHATCOULD.

I am so glad that you feel refreshed after your trip! I can't wait to read even more about it and enjoy Mya's cheerful pics!

I would be happy to get any resources you have. Mya's hearing loss is complex. It could get worse as she gets older and not only changes what she hears but how she understands what she hears. Mya will never qualify for coclear implants no matter how bad her hearing gets because her loss only affects the higher frequencies. Mya goes to Pennsylvania School for the Deaf and for the reasons stated above is why I picked this school. They advocate the bi/bi approach.

 

[MomTo4+more]

I will post or PM you with more complete info as soon as it calms down around here. I have a 13 month old staying with us through the weekend. That brings us to 5 kids - 13 months, 17 months, 5, 7, and 10. It's very high energy!

One song we sing with Michelle is simple. It uses all the Ling sounds which covers all the frequencies. I found it online at auditory options.org. Hopefully it is okay to post it here.

The horn on the car goes beep beep beep
Beep beep beep, beep beep beep
The horn on the car goes beep beep beep all through the town.


The people in the car eat mmm, mmm, mmm
Mmm, mmm, mmm, mmm, mmm, mmm
The people in the car eat mmm, mmm, mmm all through the town.


The snake on the road says sss,sss,sss
Sss, sss, sss, sss, sss, sss
The snake on the road says sss, sss, sss all through the town.


The ghost/monkey in the car goes ooo, ooo, ooo
Ooo, ooo, ooo, ooo, ooo, ooo,
The ghost/monkey in the car goes ooo, ooo, ooo, all through the town.


The babies in the car sing laah laah laah,
Laah laah laah, laah laah laah
The babies in the car sing laah laah laah all through the town.


The mommies in the car go shh, shh, shh
Shh, shh, shh, shh, shh, shh
The mommies in the car go shh, shh, shh all through the town.


Toy props: car, food item, snake, ghost or monkey, baby doll, finger to mouth to say “shhhh”


I found a great toy at KMart today for learning to listen. It's the Little Tikes Farm 3-D Memory Match Up. I am using it for the animal names and sounds and cueing her to listen.

I bet you get lots of resources from her school. I don't know how much mine will be relevant, but it may be. I will make it a goal to send to you if I can get the babies to nap at the same tiime one of these days!

 

[cajunfan]

We will keep you all in our prayers too!

Thanks for posting the beautiful pictures of Mya at the princess party...she makes me smile everytime I see her!

Lynn

 

[Matt1026]

We are praying for you and sending hugs your way.

 

[LimoFam5]

Sheis so pretty, light just shines through her eyes. You and your darling are in my nightly prayers, may the Lord be with you and your family.