Princess Alyssa's Christmas Wish/ GKTW/ Dec 10-16

[chrissid7]

I have thrilling news!!!! Ok first off, Alyssa was chosen for the BIG GIVE OMG WOOOOOHOOOO!!! We are so excited! I have been a fan of their work since my 1st visit to the Dis. Second today I found out that are wish granted GOT US TICKETS TO MVMCP!!!! I am loving life already right, I on a whim I decided to try my dining ressies again (I have none) I really wanted to get 1 at Ohana because of the wonderful things ive heard especially about the Gluten free options. I GOT IN!!!! I could not believe my eyes when the lil dot appeard. We will be there during wishes which I hear is a great view and they pipe in the music ahhhhhhh! What a great DAY!!!

Now I want to ask for prayers for my dear friend who will be giving birth any minute and she is only 28 weeks pregnant. She has been on bed rest in the hospital for 3 weeks with placental abruption trying to hold it off as long as possible. They both need prayers (shes having a lil girl) she will deliver today.

Also my oldest has been having some things come up and she is being seen in the morning but Im kinda scared. She has been having Ketones show up in her urine and this morning had very unusual stuff happening.

And then theres my sister and my best friend. She found a lump and Im scared but I know it will be nothing, she is also being seen tomorrw and I need prayers for it to be nothing.

These are 3 very very special girls to me and I hate that any of them have anything to deal with. Please keep them all in your prayers tonight. I will update tomorrow.

Keeping the positive light is a task but I have had all of this great Disney news to help add some balance.

 

[maroo]

I have thrilling news!!!! Ok first off, Alyssa was chosen for the BIG GIVE OMG WOOOOOHOOOO!!! We are so excited! I have been a fan of their work since my 1st visit to the Dis. Second today I found out that are wish granted GOT US TICKETS TO MVMCP!!!! I am loving life already right, I on a whim I decided to try my dining ressies again (I have none) I really wanted to get 1 at Ohana because of the wonderful things ive heard especially about the Gluten free options. I GOT IN!!!! I could not believe my eyes when the lil dot appeard. We will be there during wishes which I hear is a great view and they pipe in the music ahhhhhhh! What a great DAY!!!

Now I want to ask for prayers for my dear friend who will be giving birth any minute and she is only 28 weeks pregnant. She has been on bed rest in the hospital for 3 weeks with placental abruption trying to hold it off as long as possible. They both need prayers (shes having a lil girl) she will deliver today.

Also my oldest has been having some things come up and she is being seen in the morning but Im kinda scared. She has been having Ketones show up in her urine and this morning had very unusual stuff happening.

And then theres my sister and my best friend. She found a lump and Im scared but I know it will be nothing, she is also being seen tomorrw and I need prayers for it to be nothing.

These are 3 very very special girls to me and I hate that any of them have anything to deal with. Please keep them all in your prayers tonight. I will update tomorrow.

Keeping the positive light is a task but I have had all of this great Disney news to help add some balance.

Those Big Give ladies (and men!) do some fantastic sewing!

I will pray for all of the things you listed here! Keep us posted!

What date are you guys going to MVMCP?

 

[pipersmom]

I have thrilling news!!!! Ok first off, Alyssa was chosen for the BIG GIVE OMG WOOOOOHOOOO!!! We are so excited! I have been a fan of their work since my 1st visit to the Dis. Second today I found out that are wish granted GOT US TICKETS TO MVMCP!!!! I am loving life already right, I on a whim I decided to try my dining ressies again (I have none) I really wanted to get 1 at Ohana because of the wonderful things ive heard especially about the Gluten free options. I GOT IN!!!! I could not believe my eyes when the lil dot appeard. We will be there during wishes which I hear is a great view and they pipe in the music ahhhhhhh! What a great DAY!!!

Now I want to ask for prayers for my dear friend who will be giving birth any minute and she is only 28 weeks pregnant. She has been on bed rest in the hospital for 3 weeks with placental abruption trying to hold it off as long as possible. They both need prayers (shes having a lil girl) she will deliver today.

Also my oldest has been having some things come up and she is being seen in the morning but Im kinda scared. She has been having Ketones show up in her urine and this morning had very unusual stuff happening.

And then theres my sister and my best friend. She found a lump and Im scared but I know it will be nothing, she is also being seen tomorrw and I need prayers for it to be nothing.

These are 3 very very special girls to me and I hate that any of them have anything to deal with. Please keep them all in your prayers tonight. I will update tomorrow.

Keeping the positive light is a task but I have had all of this great Disney news to help add some balance.

Ohh..so excited you guys got chosen for the Big Give..and MVMCP!! Totally jealous..part of me is tempted to change our hopeful dates to Oct or Dec of 2010..but I could never wait that long!! You'll have to let us know how Ohana is with Wishes

So sorry that so many people close to you are going through things, will keep you guys in our thoughts....

 

[chrissid7]

Those Big Give ladies (and men!) do some fantastic sewing!

I will pray for all of the things you listed here! Keep us posted!

What date are you guys going to MVMCP?

Thank you!!! Oh My Gosh Alyssa flipped out. I was going to try to keep it a surprise but I was so excited I spilled the beans in less than 30 minutes lol!

We will be at MVMCP on Dec 11th!! Its a Friday so I know its going to be busy but It best fit the schedule I had already made.

Those ladies and men are so creative I swear. I really want to dust off the sewing machine. Alyssa got a sewing machine (nicer than mine, which is actually my sisters lol) during a hospital admission. Her grandmother (1 of the many) gave it to her and we didnt get a lot done with it but we are both excited to get going on it.

Hope you are well take care and thank you for the prayers!

 

[chrissid7]

My friend had her baby at 2:16 pm today and she weighs 2 lbs 6 ounces. They were just told that the baby has an infection and that the next 24 to 48 hours are critical. Please keep them in your prayers it does mean so much and she cannot have to many.

 

[yinyanggirls]

I can imagine your excitement! We are about 6months out and I'm going crazy. How exciting to be a month away!!! Be sure to post lots and lots of pics!

Positive thoughts and prayers going out to your family and friends. I hate that feeling that there is nothing you can do but wait.

 

[maroo]

My friend had her baby at 2:16 pm today and she weighs 2 lbs 6 ounces. They were just told that the baby has an infection and that the next 24 to 48 hours are critical. Please keep them in your prayers it does mean so much and she cannot have to many.

I will definitely be praying for her!

Feel free to post something on the Wish Trippers thread...Lots of people lurk on that thread (hence the 76,000 views ) and they would pray. We have some prayer warriors over there praying for all of the kids.

 

[chrissid7]

I can imagine your excitement! We are about 6months out and I'm going crazy. How exciting to be a month away!!! Be sure to post lots and lots of pics!

Positive thoughts and prayers going out to your family and friends. I hate that feeling that there is nothing you can do but wait.

Thank you so much and it is sooo exciting. I am glad that our dates were pretty quick because my patience are pretty rocky right now lol.

 

[chrissid7]

I will definitely be praying for her!

Feel free to post something on the Wish Trippers thread...Lots of people lurk on that thread (hence the 76,000 views ) and they would pray. We have some prayer warriors over there praying for all of the kids.

OMG Dont ask me how I forgot about posting on the wish trippers unite!!! OMG really?? what is wrong with me, that is the page that I saved to my favorites so I open it all the time sheeeesh im so glad you reminded me to SCROLL DOWN LMAO!

BTW My sisters lump was just that! THANK GOD! Nothing to be concerned about.

My daughter is still having isssues and today still had Ketones and now Protien in her urine . Its freaking me out. They did more labs so hopefully we will find some answers soon.

My friends baby actually showed improvement last night and we are now over 36 hours and I have been begging God for her to be a miracle for this family. She is still critical but there is so much love for her I just hope she fights through this.

 

[pipersmom]

Keeping you in our thoughts and hoping they figure out what's going on with Hayley(sp?)..I know how frustrating that can be, and you surely don't need to go through all that again :hugs:

 

[maroo]

Don't worry about forgetting the Wish Trippers Unite thread...

It is sorta my baby - and on more than one occasion I have "unsubscribed" from it. It is easy to "hit" the wrong button on my iPhone and I have been known to unsubscribe from important threads (like pre-trip reports, the wish trippers thread...even my own trip reports!) Then I go days without even looking at it.

So no worries!

Thank God your sister is ok!! That is fantastic news. I work at an oncology clinic and we see the other side of those results all the time - so I think I worry more than most. Most of those do come back benign - thankfully!

I will continue to pray for your DD and your friends DD. Keep us posted on those two things, too.

 

[chrissid7]

I posted this on the WTU page but wanted to post here too for those that were praying for and with me.

Natalie Marie got her wings this evening . I am heart broken for my friends. I adore them am just prayed that they would get to keep their miracle here on earth and it was not to be Please pray for their strenght and faith during this time. Thank you

 

[HeatherSue]

I posted this on the WTU page but wanted to post here too for those that were praying for and with me.

Natalie Marie got her wings this evening . I am heart broken for my friends. I adore them am just prayed that they would get to keep their miracle here on earth and it was not to be Please pray for their strenght and faith during this time. Thank you

Oh no...I'm so sorry. I'm in tears thinking about what your friend must be going through tonight. I'll keep praying for her and her family, and for you.

 

[yinyanggirls]

I posted this on the WTU page but wanted to post here too for those that were praying for and with me.

Natalie Marie got her wings this evening . I am heart broken for my friends. I adore them am just prayed that they would get to keep their miracle here on earth and it was not to be Please pray for their strenght and faith during this time. Thank you

That's the hardest thing to find words for. Nothing seems right. I hope they heal quickly and feel her near them always.

 

[kdzbear]

I posted this on the WTU page but wanted to post here too for those that were praying for and with me.

Natalie Marie got her wings this evening . I am heart broken for my friends. I adore them am just prayed that they would get to keep their miracle here on earth and it was not to be Please pray for their strength and faith during this time. Thank you

I am so sorry to hear about the new little angel. I will say some prayers for everyone involved. Please let them know we are praying for them.

 

[chrissid7]

Thanks everyone! I had planned on sharing this link with them when we go on our trip and I know that Amy and her family will appreciate your kind words. Prayer for healing can make a huge difference. I appreciate all of you so much.

 

[pipersmom]

Piper got her pixie dust today from Alyssa and her friends and was absolutely thrilled ! The pictures the girl sent are gracing our refrigerator, and the bracelet immediately went onto her wrist. When we stopped at my mom's tonight, Piper was all about showing her the bracelet and explaining how Alyssa is "just like me"..I tell you I almost cried. She's very excited to write her back and said tonight "we can talk all about CF and I know she'll understand"...okay, and repeating that again just did make me misty. Anyway, thank you and Alyssa again, Chrissi, it means so much more than you might have expected.

 

[chrissid7]

ok well maybe its not just you, your post just made me misty and when alyssa told the others what she was doing she spoke to them like she had known Piper her whole life, like i cant explain it was so casual and comfortable but with a sense of caring that made her want to make piper smile. She actually had the original piece or artwork on my desk and by God I forgot to put it in there and I got in huge trouble for that so another pic is on the way. Alyssa did ask me alot of questions. When I told her Piper was getting oxygen at home she was a lil jealous. She loves the oxygen blowing on her face and said she wishes they would let her sleep with it.

Today was a hard day for Alyssa because I waited untill this morning to tell her about our friends baby passing away yesterday. I just wanted her to sleep with out it clouding her mind. She was so excited about this baby girl and has been so worried. One of her good buddies was the big brother. She cries for him and then when she thinks of Amy (babies mom) she gets all teary. Alyssa has a doll (bitty baby) that she got when she was 2 and this doll does everything we do. She is as much a part of this family as we are lol.
She gets upset when the doll isnt treated right and sometimes I wonder if she realizes its a doll. Today she was looking at her doll across the room and she had a look on her face and a tear. She has so much love for people, and its showing more and more everyday. Im so proud yet hurt for her too.

OMG Ive written a book! Ill talk to ya soon! lol!

btw my point was I think our girls have something that even with out words they just know. It makes me cry happy tears

 

[pipersmom]

ok well maybe its not just you, your post just made me misty and when alyssa told the others what she was doing she spoke to them like she had known Piper her whole life, like i cant explain it was so casual and comfortable but with a sense of caring that made her want to make piper smile. She actually had the original piece or artwork on my desk and by God I forgot to put it in there and I got in huge trouble for that so another pic is on the way. Alyssa did ask me alot of questions. When I told her Piper was getting oxygen at home she was a lil jealous. She loves the oxygen blowing on her face and said she wishes they would let her sleep with it.

I have to tell you, the first thing Piper looked for in the envelope was the the picture from Alyssa..she barely glanced at the others until after she had found hers! LOL @ the oxygen..only kids like ours could possibly have that reaction to medical-ish things. Piper asked quite a few about Alyssa as well..what her PFTs are, if she has lots of trouble with her lungs, etc. Piper was very excited when I told her Alyssa is DDF508! Like I said, only our kids..lol.

Today was a hard day for Alyssa because I waited untill this morning to tell her about our friends baby passing away yesterday. I just wanted her to sleep with out it clouding her mind. She was so excited about this baby girl and has been so worried. One of her good buddies was the big brother. She cries for him and then when she thinks of Amy (babies mom) she gets all teary. Alyssa has a doll (bitty baby) that she got when she was 2 and this doll does everything we do. She is as much a part of this family as we are lol.
She gets upset when the doll isnt treated right and sometimes I wonder if she realizes its a doll. Today she was looking at her doll across the room and she had a look on her face and a tear. She has so much love for people, and its showing more and more everyday. Im so proud yet hurt for her too.

I'm sorry you had to do that, I know it can't be an easy thing. Piper has yet to have anyone close to us pass away, but she is also very empathetic. Always wants to know what's wrong if she sees someone upset or crying, even if she doesn't know them. I feel the same way you do about it.

OMG Ive written a book! Ill talk to ya soon! lol!

btw my point was I think our girls have something that even with out words they just know. It makes me cry happy tears

 

[chrissid7]

It was a rough week and I hope that this week will get better, but I do have some good news too. I dont remember if I posted already i think I did some but anyways I was happy to snag Dinner at 50's Prime Time and dinner at Ohana earlier this week and I mean I am sooooo excited! I had hope to get just 1 more that Alyssa was interested in and I snatched a lunch up at

T_REX that makes me a happy lady! It worked out soo perfectly because it is for the day we leave and we had plenty of time to kill before our flight home so what a great way to leave.

Tonight we had our movie night. We watched The Fox and the Hound. Can you believe that I nor my sister in law have ever seen it??? I loved it so so so much! OMG I laughed and cried a lil when the lady left Tod in the woods ughhhh broke my heart. We ate all southern food, chicken mashed potatoes corn on the cob and we had Hound chow for snack. Hound chow is our version of puppy chow. Rice chex coated with chocolate and peanut butter then coated in powdered sugar.... its amazing and a favorite gluten free snack for us. Also if you use a pricey chocolate it has no artificial colors or flavors. Its very Alyssa friendly.

One of these days im going to get the pics of our dinners on here. Not nearly as fancy as some of the ones I ve seen on her but we love it!

Oh yeah and the girls made dog collars with tags on them. I had a bone shaped cookie cutter that they traced cut out and decorated then we ran a string through. So cute!

Only 4 movie nights left !

We have decided that we enjoy this so much we will do it for the rest of our lives!!