Pre-Trip MAW Sept 26-Oct 2 2010 :)

kayrason333

Mouseketeer
Joined
Jul 26, 2010
Messages
94
Hello! We just got approved for our MAW trip and we are so excited!!
let me start by introducing our family....
I am Kayla, mommy to 2 wonderful boys. I am currently a stay at home mom.
My husband is Joe, we have been married for 6 years and were high school sweethearts :).
Our wish child is Jackson, he is almost 3 now and he is currently in remission from cancer (neuroblastoma).
Our other son is Austin, he is almost 5 years old and he is a Type 1 diabetic.

My mother, father and Aunt will also be joining us for a few days so they can play with us. They were all 3 with us during our toughest times, I am so glad that they will be there to see the smiles on the boys faces.

A quick story....I am not the best story teller, so try to stick with me :)...oh, and it will probably not be quick ...............;)
Jackson was diagnosed at 9 months old (in 2008) and underwent treatment in Dallas (where we live), after 2 rounds of chemotherapy his tumor shrunk and we had a consult with a local surgeon about removing the tumor. The surgeon in Dallas said he would not feel comfortable removing the tumor and that we could "wait and watch" what the tumor did....no thanks.
After some research, we found a doctor in NY that does tumor resections for neuroblastoma patients and we heard he was amazing. We sent Jacksons' medical file to him and got the call that we were waiting for....they wanted us to go to NY and they would do the surgery!!!
Me, my husband and Jackson left for NY to meet our doctor and we would have 1 week to explore NY and have some fun before our little man had his surgery.
My mom, Aunt and our older son Austin met us in NY a few days later and Austin was starting to get sick. In an effort to not get Jackson sick before surgery, my husband took Austin to a pediatrician in NY to get some antibiotics (at this point, Austin had not been diagnosed with diabetes). Austin had been having some problems with potty training and he was always thirsty, so my husband asked the doctor to check for sugar in his urine while they were there.
While my husband and Austin are at the pediatrician, I am at the oncologist with Jackson, my mom and my aunt...we were visiting with the doctors, doing bloodwork, etc. Next thing I know, my husband is on the phone saying that him and Austin are headed to the hospital in a cab and that Austin has diabetes! What??!!!
The next couple of weeks will always be a blur. We spent 3 days in the hospital with Austin learning how to take care of his diabetes and after he got out of the hospital, we went right back in with Jackson for his tumor removal and a week long recovery.
I am still not sure what me and my husband would have done without my mom and aunt there, they helped tremendously and made our situation a little easier to handle.
To make a long story longer, we are definitely needing this time as a family to have fun and unwind and we are so excited that my mom and aunt will be there for a few days to have fun with us.


I look forward to talking to everyone on here and getting tips and ideas on what to do for our trip!!
 
Also, we don't have all of the details of our wish trip. We know the flights are booked but thats all I know so far. Not sure what to expect.....but we know it will be fun!!:cheer2:

Here are my boys......

BOYS.jpg
 
Wow....maybe I did something incorrectly. I am new to this, so I am not sure, but everyone one else who seems to be new has lots of welcome to the board messages.
:confused3
 

Welcome! I will actually be at Disney the same time as you and your family. I am taking a moms only trip with 2 other moms. My son had his Wish trip last November. I can't wait to hear about your plans. I would love to try and help with any questions you might have! :cheer2::yay::woohoo::woohoo:
 
Welcome! I am so glad your family is getting this much deserved trip!!! We went on our daughter's MAW trip in May, and I'm still working on my trip report. I will follow along with you as you plan!:goodvibes

Make a post on the Make a Wish thread in the DISabilities section here and introduce yourself there. Others will find your story that way!
 
Oh no! I almost missed your thread!

Someone posted on our Wish Trippers thread and I came right over.

Welcome to the DISboards! :)

Feel free (more than free - we want you to come!) to come over to the Wish Trippers thread and meet some more Wish Families over there. :)

The link is the blue one in my signature below. :) Just jump right in - it is a super long thread - don't feel like you have to read it all. :surfweb:

You may want to check out Post #1 and Post #2, though. :)
 
Hi Kayla,

I'm a newbie too. Not getting a lot of post either. I guess it just takes time. Welcome aboard. The boys are so handsome. Can't wait to hear more about your trip.
 
Welcome!! Your trip is right before ours!! Good luck with all the planning!!
 
Hi there! It sounds like your trip to NY was fate, kismet, grace, something!!! I have way too much experience in doctors not knowing what is going on. I'm sorry that both your boys had to go through the poking and prodding and medical hell, but they look so happy and healthy now. Oh, we used to live in DFW also. Moved here (AZ) 4 yrs ago) but we miss it!
 
Hi! Welcome to the boards! Your boys are so handsome:) I am so sorry they both had to go through so much and being away from home I bet it was very scary. How wonderful that your family could meet you there and help out. My family has been there with Ty and it was so helpful. I look forward to reading your ptr:)
 
Hi Everyone! I am starting to make plans for our trip. Our third day there is my DS's birthday and he wants to go to AK in the morning. I was assuming that we would eat at Rainforest Cafe.
Anyone have any other suggestions for lunch at AK?
That night for his B-day we are going to be at Epcot. Dinner suggestions for Epcot?
 
well i have no suggestions cause i have never been but i had to post to say AWww how fun your ds will have his b-day at disney !!
 
Hi Everyone! I am starting to make plans for our trip. Our third day there is my DS's birthday and he wants to go to AK in the morning. I was assuming that we would eat at Rainforest Cafe.
Anyone have any other suggestions for lunch at AK?
That night for his B-day we are going to be at Epcot. Dinner suggestions for Epcot?

Are you wanting to eat breakfast at Rainforest and then catch a quick bite for lunch or do you want a sit down lunch. For a quick bite outside, I would eat at Flame Tree Barbecue and take your food to a picnic table by the water. For a quick bite inside, I would try Pizzasafari and the decorations are fun to look at!

As for dinner at Epcot you could pick any of the countries around the world or if you want a character experience try the Garden Grill. It has Farmer Mickey, Chip, Dale and Pluto. Your restaurant revolves very slowly and even goes through part of the Living with the Land ride as you eat. The produce served is grown in the Land's Gardens.
 
Hi, I'm new here too. I do a lot of reading. I think you will find a lot of good tips here. I also have a DS(6) named Austin.:) My DD3 is Megan and our wish child. She has Leukemia. Just thought I would say hello.
 
well i have no suggestions cause i have never been but i had to post to say AWww how fun your ds will have his b-day at disney !!

;) Thank you....they are both so excited


Are you wanting to eat breakfast at Rainforest and then catch a quick bite for lunch or do you want a sit down lunch. For a quick bite outside, I would eat at Flame Tree Barbecue and take your food to a picnic table by the water. For a quick bite inside, I would try Pizzasafari and the decorations are fun to look at!

As for dinner at Epcot you could pick any of the countries around the world or if you want a character experience try the Garden Grill. It has Farmer Mickey, Chip, Dale and Pluto. Your restaurant revolves very slowly and even goes through part of the Living with the Land ride as you eat. The produce served is grown in the Land's Gardens.

For AK, I was thinking about somewhere where we could sit down, but Pizzasafari sounds like it would be right up their alley.
Garden Grill sounds cool, do we need to make reservations for it ahead of time?


Hi, I'm new here too. I do a lot of reading. I think you will find a lot of good tips here. I also have a DS(6) named Austin.:) My DD3 is Megan and our wish child. She has Leukemia. Just thought I would say hello.

Hi Deb! There is so much information on here, it is a little overwhelming but everyone is very helpful. Do you have a PTR started?
 












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