
Tricia. I know your pain with the seizures. DD1 (9) was diagnosed with epilepsy when she was 4. We have been through 5 very trying years of getting the right balance on meds, improvements, set backs, more improvements, finally getting the right balance of meds, going seizure free in Oct 05, 24-hr stomach bug that sends us to the ER because she can't keep anything (inlcuding meds) down, weaning off of 1 med, still doing OK, waiting on results of EEG to see if we can wean off 2nd med and be done with this (wow 5 years packed into 1 run-on sentence!).
From experience, I would bug the h$#* out of your Ped Neuro practice until you get an appt. Stress that seizures are the reason for the referral. By making a nuisance of myself, I got DD into the neuro about 6 weeks before the "original" appt.

on finding a new church family soon.
I'll just reiterate my previous comments. I agree that it is extremely specialized. In our town, there is only one practice with 3 Drs. They actually quit taking new patients under my insurance plan 9 months after we moved here, but grandfathered all of us that were already patients. Please feel free to PM me if you want a shoulder to cry on! Also, the epilepsy foundation has a great ecommunity called Parents helping Parents. There are parents just like me who deal with epilepsy day to day and share experiences both good and bad. Here is the main website:
http://www.epilepsyfoundation.org/. Just go to ecommunities to find the forum.
Hi Steve!
Not RSVPing...one of my major pet peeves. Our school has an all or none policy if invitations are handed out in class (I'm so anal about RSVPs that a friend knew she messed up on the invitations when I did not respond to her regrets only invite!). But they will not put out an address book for the school. I understand privacy issues, but when my DD is in a class of 14 boys and 8 girls, and the genders rarely cross, why do I have to invite 14 boys who will not show or RSVP (this happenend for her b-day in Oct; the 7 other girls RSVPed and showed; none of the boys RSVPed)? And to top it off, my girls have friends at dance that they would like to invite that they cannot until I get an idea of who will be showing from school!
But I may have just put my foot in my mouth today. DD2's BFF is the daughter of one of the PTF officers, and I mentioned it to her. And I also said it would be easy to put together. So I may have just suckered myself into putting together the address book.
Life in the parent lane!