OT:Prayers and Pixie Dust please

disfan07

DIS Veteran
Joined
Mar 25, 2006
Messages
3,522
If you have some extra prayers and pixie dust available some of it over here would be great.

On Thursday I have a Neurologist appointment that I am very concerned about.
I had a previous neurologist appointment that detected what looks like a cyst in my brain but they said it has some characteristics of a cyst but some of a solid mass (so...possibly tumor, possibly cyst:confused3)
We are going on thursday to see a second neurologist for another opinion and an MRI to see exactly what is going on. They are split 50/50 on whether or not a biopsy is going to be necessary to determine what is wrong.

Also, they are concerned by muscle weakness I am having in my legs and hands that shoul dnot be caused by the location of the mass so they are now also concerned about possible myopathys in addition to the mass.

So we are looking at 2 possible life changin diagnosis and I am scared to death. I am only 20. I've spent the last 5 years in and out of hospitals and doctors offices. I'm supposed to be finally going away to school in the fall and things were supposed to turn around. Worse case scenario means I have another hurdle to overcome whether its temporary or for the rest o fmy life. This is why people tell me I'm resilient. I can deal with this....I hope. I'm just more scared about any possibilities than anyone knows.

I know people on here are wonderful about prayers adn pixie dust and I could relaly use some if you have some to spare:wizard:
 
My thoughts and prayers are with you.
 

Prayers sent, and just to help you fell a little better (if I can) I am also youg like you and I have been in and out of doctors offices and testing due to a constant headache...so I know how it is to be scared to not know what is going on...please keep us posted...:hug:
 
Oh my, it must be so scary to be going through serious health issues at a such young age sweetie. :hug:

Know that you Dis friends send prayers ^j^, hugs :hug:, pixie dust :wizard:, postive vibes :goodvibes, good luck :shamrock: and will keep you in their hearts and prayers.

May you be granted an abundance of faith, patience, courage, and your :littleangel: be by your side as you face these trials. :grouphug:

Praying you'll have good news to celebrate at your upcoming summer trip for your 21st Birthday!! :hug:
 
OP here:

So I had my appointment today and I have to have an MRI done and an EEG done.

He's about 75% sure that it is a pineal cyst but it is getting bigger so he is also about 75% sure that no matter what it is, it will have to be removed within teh next few months (We are hoping to wait until july...after school adn after disney)

He is doing an EEG because he is concerend that I have been having absence seizures which could or could not be related to the cyst

He is also concerend that I might have myasthenia gravis becasue I dont have the sensation in my feet that I should and I am less sensitive to pain on one side than teh other so he thinks there might be some nerve damage.

And than he is just doing a normal workup for muscle weakness (looking for any signs of myopathy or MS)

SO right now, it is a wait and see game...now I just have to focus on the fact that disney is less than 3 months away:wizard:

Thanks for the prayers adn pixie dust
 
Prayers said. :hug: I hope you have a magical trip this summer! :wizard:
 
Sending lots of prayers, good vibes and pixie dust for a speedy recovery from all of your symptoms!!
 







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