OT does this sound like Celiac to you

[Reese'smom]

My son is 15 months old and only weighs 19.5 lbs. He's weighed that since he was 9 months old. He has eczema and has had bronchiolitis 9 times in the past 6 months old. He is only 28.5 inches tall, doesn't walk or stand alone but does cruise. He used to eat EVERYTHING but has cut out a lot of foods over the past few months. He also is a terrible sleeper. I was wondering if all these small issues could add up to one larger issue. I was hoping to get this figured out before our trip in a few months. Thanks

 

[dis-happy]

When my ds went through several months of not growing (weight and height) at the same age, I was sent to several specialists to rule things out. We had tests for celiacs, cystic fibrosis, had several different blood panels done, urinalysis with sedimentation, saw a pediatric gastro-enterologist and went to a top facility to meet with a pediatric endocriniologist. Is your ped following up for you? In the end we were able to supplement my ds with Pediasure which helped make gains in his growth. He still gets regular blood panels done though since some counts continue to remain "off".

Also, another friend with baby and growth issues turned out to have undiagnosed heart issues. He just went through surgery and is doing so much better.

Please check with your ped and get a second opinion if you have concerns. You shouldn't have to try to dx something like celiacs from the internet. Wishing you the best with your LO!!!

 

[mjkacmom]

My dd has celiac, walked at 11 months, was a great eater, and about 75th% for height, 50th% for weight (probably still is). Her only symptoms were constant explosive loose stools, which I started to notice around the age of 4. Unfortunately, I didn't realize how often this occured, since she was responsible for her own "toileting." When the GI asked her how often, she told her every day - I guess it was her normal.

She also has eczema (as do most of my kids), had all the normal childhood illnesses, plus a bunch of colds and stomach bugs, and had (but I think outgrew) viral induced asthma.

If you are thinking about testing for celiac, do not put her on a gluten free diet.

 

[disney*mom*82]

When my ds went through several months of not growing (weight and height) at the same age, I was sent to several specialists to rule things out. We had tests for celiacs, cystic fibrosis, had several different blood panels done, urinalysis with sedimentation, saw a pediatric gastro-enterologist and went to a top facility to meet with a pediatric endocriniologist. Is your ped following up for you? In the end we were able to supplement my ds with Pediasure which helped make gains in his growth. He still gets regular blood panels done though since some counts continue to remain "off".

Wow! Your child sounds just like mine. My dd is 3.5 and from the time she was 1 month old she has had some problems. She was diagnosed with Apnea at 1 mo. At 4mo she was labeled with failure to thrive. At just under a year she was diagnosed with BOTH bradycardia and tachycardia. All along the way we have been told she will out grow it...she never has. She had her adnoids and tonsils removed at just over 2.5yrs, her apnea is better, but still there. Her weight...8lb1oz at birth, 1 year she was 12lbs, 2 yrs she was 14lbs, good news today she weighs a big 31lbs! . She has been through sooooo much testing, everything from bloodwork to ekgs, eegs, etc. She has been tested for Cystic Fibrosis, Celiacs, Dwarfism, heart disease, seizures, etc. We were pretty sure as parents it was celiacs...but tested showed negative. Found out, it is likely it wont show positive for celiacs until they are older, usually 3-5 yrs old, and only if you havent changed their diet by then. To help our daughter with her weight we tried all the nutritional supplements and she liked Kid Essential the best, she would drink 2-3 a day plus Ide put as much food into her as I could. She no longer needs the drinks, although she likes them and we buy them every once in awhile.

Sorry to keep rambling. My advice....ask about nutritonal supplements, they are expensive, some Ins will cover, ours didnt. Talk to Dr about what steps to take next and do not count on knowing exactly what the answer is anytime soon. Keep input and output logs (what and when he eats and drinks and what and when it comes out). Keep pictures or videos of anything you think may help. Keep on the drs and go with your gut. If you are uncomfortable with what they want to do or say, find another dr. You have to be your own childs advocate.

Good luck

 

[dis-happy]

Wow! Your child sounds just like mine. My dd is 3.5 and from the time she was 1 month old she has had some problems. She was diagnosed with Apnea at 1 mo. At 4mo she was labeled with failure to thrive. At just under a year she was diagnosed with BOTH bradycardia and tachycardia. All along the way we have been told she will out grow it...she never has. She had her adnoids and tonsils removed at just over 2.5yrs, her apnea is better, but still there. Her weight...8lb1oz at birth, 1 year she was 12lbs, 2 yrs she was 14lbs, good news today she weighs a big 31lbs! . She has been through sooooo much testing, everything from bloodwork to ekgs, eegs, etc. She has been tested for Cystic Fibrosis, Celiacs, Dwarfism, heart disease, seizures, etc. We were pretty sure as parents it was celiacs...but tested showed negative. Found out, it is likely it wont show positive for celiacs until they are older, usually 3-5 yrs old, and only if you havent changed their diet by then. To help our daughter with her weight we tried all the nutritional supplements and she liked Kid Essential the best, she would drink 2-3 a day plus Ide put as much food into her as I could. She no longer needs the drinks, although she likes them and we buy them every once in awhile.

Sorry to keep rambling. My advice....ask about nutritonal supplements, they are expensive, some Ins will cover, ours didnt. Talk to Dr about what steps to take next and do not count on knowing exactly what the answer is anytime soon. Keep input and output logs (what and when he eats and drinks and what and when it comes out). Keep pictures or videos of anything you think may help. Keep on the drs and go with your gut. If you are uncomfortable with what they want to do or say, find another dr. You have to be your own childs advocate.

Good luck

Yes, it's all so interesting (although as a parent you wish you didn't have go through it). My ds' stats lined up more with the OP's child--just under 20# at 15 months. We also tested for thyroid issues and para-thyroid cancer, plus more things (incluidng liver issues, kidneys--even had a kidney u/s done); I keep a notebook with all the test results and doctor information and notes.

It's not a matter of just being "small" but the flatlining on growth for several months that had my pediatrician concerned. My ds also had eczema (much better now but still flares on occaision) and was a later walker; seemed to have less muscle control in his head/neck as well (and recently I noticed his left leg is weaker than his right leg). I hope the OP's pediatrician is looking at things and if not, I sincerely hope she'll get a second opinion.

The boy with the heart issue had his things COMPLETELY overlooked/missed by a supposedly good pediatrician. It has been like night and day since the child's surgery; and interestingly enough, the heart issue had also caused great stomach symptons for him...now he is pain free when he eats.

We finally are able to stop buying the extra $40. a week in Pediasure---my ds' weight gain has him back on the growth chart for both height and weight (like you thought 30# would never come!). But in the meantime, I'm glad my pediatrician took it seriously and took the time to rule out other possibilities.

 

[GoofyFairie]

OP if not celiac disease it could be a food allergy to one or multiple things. Try keeping a food journal and monitoring the skin reaction. Eliminate foods one at a time and probably no more than one a week to see how the skin responds. My children were covered in excema until I could pin point the food they were allergic to. Good luck!

 

[erinmomof2]

My daughter was diagnosed with celiac at about 18 months. I also have the disease. The symptoms you described, in my opinion, do not sound like typical celiac symptoms. In kids one of the more common symptoms is weight loss accompanied by the distended stomach that looks like a pregnant belly. Also diarria is a very common symptom. I would talk to your doctor and have him run some tests. It could be so many things. And I suppose it could be celiac, I am by no means an expert, but from my experience it doesn't sound like the symptoms match up.