Noah's Wish Trip (Wings ~ July 29, 2009)

Hi,
I just 'stumbled' across you TR(pretrip too). I'm sitting here in my living room crying. My wife called me on the way home from work and was asking me what's wrong. I told her about your son and we both can't believe what you all have been through. Noah is a strong kid. Sometimes I think that kids are stronger than adults! We will be thinking and praying for all of you. I can't wait to hear more about your trip!

Tim
 
nichole i am so thrilled that you have started your trip report. i think i check your blog to check on noah more than i check my email. lol . anyways i cant wait to show my son ryan tomorrow, he prays for noah every night and he will be so excited to see him on his trip. the kids look adorable in that pic where they are all together laughing on the bed, and i think this might be the first pic i have seen of you and your husband too. i 'm not sure maybe i should go back to the intro. anyway i cant wait to hear all about your trip .
 
Hi,
I just 'stumbled' across you TR(pretrip too). I'm sitting here in my living room crying. My wife called me on the way home from work and was asking me what's wrong. I told her about your son and we both can't believe what you all have been through. Noah is a strong kid. Sometimes I think that kids are stronger than adults! We will be thinking and praying for all of you. I can't wait to hear more about your trip!

Tim

Thanks Tim...yes Noah is strong. He continues to amaze us over and over again. The staff at the hospital refer to him as "the kid with 25 lives" (they used to call him "the kids with 9 lives" but he has far surpassed that!!). Thankfully kids are much more resiliant than we are.
 
nichole i am so thrilled that you have started your trip report. i think i check your blog to check on noah more than i check my email. lol . anyways i cant wait to show my son ryan tomorrow, he prays for noah every night and he will be so excited to see him on his trip. the kids look adorable in that pic where they are all together laughing on the bed, and i think this might be the first pic i have seen of you and your husband too. i 'm not sure maybe i should go back to the intro. anyway i cant wait to hear all about your trip .

Awww...thank Ryan for the prayers! I think there is more pictures of the whole family at the beginning of my pre-trip report. We ordered the Disney photo pass cd (still waiting for it), so we got lots of pics with the whole family.
 

After we had our fill of the train, it was time to check out Matthew's Boundless Playground.

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This is an amazing, fully wheelchair accessible, play structure. It is set up like a giant Candyland game board. It was so neat to be able to bring Noah right up to the top in his stroller.

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We had tons of fun getting to know Mary better and checking the place out with her.

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After a while, we figured we'd better go find Brad, who should be done with orientation by now. So after dragging the kids away, we headed back. But, hey, the carousel is running! We had to stop for a ride or two...

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Fully wheelchair accessible of course...

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The carousel turned out to be Noah's absolute favorite thing to do at GKTW. We have been working on teaching him a bit of sign language, and he began signing "more" on the carousel. By the end of the week, he would sign "more" throughout the entire ride.


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Wow! That playground is pretty amazing! And, I have to say, that last picture is priceless...the joy on his face!
 
WOW...that is some playground! Looks like Noah had a wonderful time on the carousel! Love his big smiles! :love:
 
It was so fun to be able to share some of this time with Nichole and her precious family!! Future DIS meets with Wish Kids should definitely occur on the playground! :cloud9: Thank you so much for letting me share this time with your family. I really can't thank you enough! :)

After we had our fill of the train, it was time to check out Matthew's Boundless Playground.

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This is an amazing, fully wheelchair accessible, play structure. It is set up like a giant Candyland game board. It was so neat to be able to bring Noah right up to the top in his stroller.

This playground is completely amazing! It really feels like a dream. :cloud9:

Nichole, your pictures are awesome!!!! :goodvibes But it is so hard to describe the feeling of being on that playground, surrounded by these castle-type villas...I really felt like I was in some sort of dream land. :cloud9: The fact that it was accessible and I could see Noah (and imagine others, including Lauren) possibly doing things on a playground that he has never been able to do...it was awesome!

Nichole and Brad get to enjoy this every day... But I have to share this with you guys...Joshua and Kailyn had lots of fun too! It is hard to describe, too, how cool it was to see them interact with each other. How sweet they were to each other. I don't think I saw them fight one time over the tire swing! They shared it, let each other take turns, pushed each other, even! Precious children. So well behaved!! And then they included Noah in everything they could. We could not take a picture, because both Nichole and I were standing there with our hands out to catch any mishap...but one of the sweetest moments for me (and something Nichole probably sees every day!) was when Joshua and Kailyn invited Noah to get on the swing with them. I wish you could just hear Noah giggle. It makes me cry happy tears now just thinking about it. Just laughing, and laughing. He had so much fun with his big brother and sister on that swing!



We had tons of fun getting to know Mary better and checking the place out with her.

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Aw...you are so sweet!!

This was a fun picture! Check Joshua out...just smiling at his little brother! Kailyn is so cool! :cool2: Noah just kept giggling, looking up at me, and giggling some more! He is so sweet! :goodvibes




The carousel turned out to be Noah's absolute favorite thing to do at GKTW. We have been working on teaching him a bit of sign language, and he began signing "more" on the carousel. By the end of the week, he would sign "more" throughout the entire ride.

That carousel...I can almost hear it, even sitting her at my office. I have listened to the DISUnplugged broadcast about GKTW several times and my favorite part is at the very end...just listening to the carousel...

This was a magical afternoon for me. Thanks for letting me share in part of your wonderful trip!

And thank you SO much for sharing it!!!! I know that your days are probably long and you have taken time out to share your wonderful trip and provide the future Wish Families with a wealth of information already! Thank you. :hug:



And with THIS...I just can't say anymore....



Priceless.
 
I love your updates and photos. They made me cry to see your family so happy. We have been praying for you every night. My three year old (4 in June) has been learning sign language since he was six months old and it definetely cuts down on the temper tantrums since he still does not talk. Signingtime.com has great ALS videos to learn sign. Our local library also carries them. I can't wait to hear more about your trip. I am so glad that the whole family is back together at home again! :wizard:
 
Maroo, thank you so much for your beautiful comments. We loved meeting you and had such a wonderful first day there. So glad you got to see Noah looking so well.
 
We finally find Brad again, who's been missing out on all the fun. He got all our tickets and Noah's special magic button (more about that later), so we are set! Now we haven't eaten enough yet today, :laughing:so it is off to the Gingerbread house for some dinner.

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If you look up, the shelves are lined with hundreds of dolls, all donated by previous wish families.

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Perkins restaurant supplies a different food feature each night (buffet style, with a separate special kids buffet, and if that's not enough, a yummy dessert buffet as well). Tonight is Mexican night. Of course, you are not allowed to serve yourself here. Everything is done for you...someone even carries our trays to the table. There were even volunteers to sit with the kids if Brad & I wanted to go get more food...we LOVED that!!

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Everything in the gingerbread house is made for the kids. The chairs and tables are all kid size. And if you look closely at the tabletop you can see that they are all made up of candies!

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And who did we run into on our way out of the Gingerbread House?? The mascots of GKTW...Mayor Clayton and Miss Merry!:yay:

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By this point, we were all beginning to feel the lack of sleep. But there is a party going on at the theatre. It is Family Fun Night and a magician is getting ready to perform. So we can't leave without checking it out...

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Inside the theatre is a fully stocked concession stand...yes, more food!! By this time, Brad & I cannot even think about eating. But of course, we get the kids some popcorn and slushies, the kids make some Pucker Powder (tubes of flavoured sugar), and we go find a seat.

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We are only there a few minutes, but the kids are all starting to droop in their seats, even with all the sugar in their systems!! So we decide to skip the magician tonight, say goodbye to Mary, and head back to the villa for some zzzzzzzz's.

One more surprise was in store for us...as we are getting ready for bed, Macntosh showed up at the door. (He is another friend I had met on the wish boards who was there with his family that same week). He had 20 trading pins for our family, donated by Mousepinsonline. For those of you who have not heard of Disney Pin Trading, it is this whole other world inside Disney, and it can be quite addicting and expensive! Kailyn & Joshua had gotten a taste of it during our Disneyland trip and were hooked. So we were all SO excited to have more pins for trading. Thank you Mousepinsonline for the pixie dust!! And thank you Macntosh for delivering them to us!

Finally, we get Noah's TPN hooked up and then it's off to bed. It has been an incredibly long, amazing day.:)

Tomorrow...Magic Kingdom!!
 
I wanted to send you a :hug: and thank you for letting us share your beautiful son's trip to disney! What a gorgeous family! I can't wait to read more. Thanks again for posting a trip review.
 
I am amazed by your family and your story

I just wanted to say thank you for sharing your trip with us disers

Your story has really touched me and I am amazed by how strong you, noah and the rest of your family is

Thank you so much
 
REALLY enjoying your report. We have been praying for you all!
I am such a sap, but I cannot look at pictures of GKTW without choking up, and I have never been there. LOL

My kids were eyeing that playground big time! When my son (recovering from TBI) was in a stroller wheelchair years ago, that playground would have come in handy! [He runs now! whoo hoo!]

Looking forward to hearing more!
 
Oh boy, after looking at these pictures of the village, makes me want to cry again...lol

I have to have more time to sit down and peek at this thread, but so far I love it.
 
What a great start! You took some wonderful pictures- the expressions on your kids' faces are just priceless. The pictures you got at Matthew's Boundless Playground are incredible!

Where is Katie's Kitchen? I wonder if it is new- I don't remember seeing it when we were there in November. I would hate to think we might have missed an oportunity for food-lol!
 
Thank you all for your kind comments!! I hoping to get my photo pass pictures soon and then I will post Day 2!!:)
Where is Katie's Kitchen? I wonder if it is new- I don't remember seeing it when we were there in November. I would hate to think we might have missed an oportunity for food-lol!

Yes, it's new. I think it just opened in February and it's right beside the ice cream palace. We LOVED their food!! They delivered to the villa too, which was really nice!! You'll have to go back to visit and check it out.
 
GKTW looks like such a magical place! I love seeing pictures of it and of your kids playing!

As I was skimming and trying to find your first TR post, I thought "Wow, she really looks like Maroo". Then, I realized that WAS Maroo! :rotfl:

Thank you so much for sharing this trip with us. :hug:
 












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