My son and his leukemia

[JerseyJanice]

So sorry to hear that you have been through so much.

Thanks to the good works of St. Jude's hospital and other research facilities, there are near constant refinements in the treatment of ALL.

Things did not work out for my niece who was diagnosed with ALL in 1994. Complications from her chemo treatments (which I know have been greatly improved upon since then) led to her getting aplastic anemia, another form of leukemia, 1999. She survived the first round of that after being treated with AZT, but succumbed to a second bout of AA in 2004.

One thing I know that is different now is that radiation is no longer used to treat ALL. Radiation likely contributed to my niece's getting the AA later on, so your boy's outlook is definitely better. Also, my niece was 13 when she got the ALL; we were told that younger children have less complications than older ones like my niece.

Hope things go well for you all. Will keep you in my thoughts and prayers.

 

[kldmom2000]

First, ((((((((((HUGS)))))))))))) to you and your family... you'll all be in my thoughts and prayers....

Second, my friend's DD was diagnosed with ALL at 18 months of age in 2003. Unfortunately for them, the day her port was removed, they did the spinal to check her counts in February after the 2 yrs and 28 days of treatment and it was back If you're looking for someone to talk to who I know had the same fears but is being so incredibly positive, please feel free to send me your email in a private message to me and I can forward her caringbridge site to you. I just didn't want to post the link on a public forum to protect her privacy. They are going through round 2 but they know of many kids who beat it the first time around!!! ((((HUGS)))) and lots of prayers....

 

[Lorix2]

I cannot believe how much you and you're DH have had to endure. I've visited you're website before and had no idea about that Matt was going through something so awful.

I hope this will be the end of chemo forever for him - hope the fever is going away too...