MS Tips

[MinnieGirl125]

Does anyone have any good tips for someone recently diagnosed with MS? Not sure what to expect, so any advice is appreciated. Thanks.

 

[kdkbrebel]

I have had MS for a little over a year now. First tip is to contact the MS society and get in touch with your local chapter. They are amazing and have the answers to any question you may have. Second tip learn to become adaptable if you aren't already and roll with the flow. Third tip when you have a great day take full advantage of it, no more putting off till tomorrow. Fourth tip the heat can really cause problems, no your limits and have all kinds of plans in place of where and how to cool off.

Having said all that it will change your life but not stop it unless you let it. The great news is meds are getting better every day and a cure can't be that far off.

 

[peemagg]

I would think about using a scooter (at least part of the time) to help save your strength. I know that even though my issues isn't MS, but it acts similar to it, that I can only go so far and then I hit a wall and I am done for days. I use the scooter and can go longer, than trying to walk it.

 

[cmesq61]

Assuming you are asking about WDW with MS and will limit my suggestions to that:
Although I need a scooter as walking is difficult for me now, you may want to consider one at least part of the time. It is a great way to conserve your energy. It also allows you to get back to your hotel (or even a shady spot) more quickly when you need a rest.

Do not understimate how much the heat and sun will aggravate MS. It saps your strength, can cause new saymptoms, and aggravate pre-existing symptoms. That being said, I do WDW regularly and LOVE it, but I have learned what concessions my MS-body needs.

LISTEN TO YOUR BODY. When you are tired STOP AND REST. Pushing yourself is not a good idea. I nap everyday at WDW.

Hydrate, consider colling devices like the neck wraps and bandanas.

Ask forhelp when you need it. MS is often an invisible disability, yes, some people will judge you not knowing you have an illness, but ignore peolpe.

Hope you have a fabulous trip.

 

[Strawberry's mom&dad]

Diagnosed in 2001. Symptom free since September 2009.
Changed my diet/lifestyle.
Oregon Science health Univ.currently doing research with diet and MS using this way of eating. www.drmcdougall.com. Or Read the newest book out called The Starch Solution.

Do your own research. To me change in diet was easier than continuing taking medications that made me feel like I had the flu or large welts where I had given me my shots.

Good luck.