disneydude365
In dreams you will lose your heartaches
- Joined
- Oct 30, 2014
- Messages
- 1,003
so upcoming quickly is our trip to walt disney world, and I'm ecstatic. 17th-21st of December. the second night I'm hoping to reserve pirates and palls voyage and then will have lots of meeting at the contemporary resort where were staying which is why i love the conferences its when we stay on site at disney world! hoping to sneak off to downtown disney a few times lol, then the last day from 1pm-3am thanks to extra magic hours MK!!
the conference is for the rare genetic illness i face, and we are celebrating 40 years of achieving within the last decade we've come up with a few treatments for some of the different types of MPS. i was one of the first 12 people to be a part of the original clinical trial for the drug and for four years flew every other week to NC from GA to test the treatment and thank god it worked!! wasn't supposed to live past 11, I'm now 22! i had lost ability to walk for several years now i can use a cane or a walker! also made it through numerous surgeries and procedures and still get the treatment weekly now much closer to home. if thats not something to celebrate what is!!?? I'm getting to hopefully take one of my best friends for extra icing on the cake!
I'm freaking excited the count down is real and its dropping fast so at same time I'm like its almost over! plus its DISNEY AT CHRISTMAS!!!
Hoping to see peter again and this time really interact with him and other characters! ride rides and just have the best disney trip yet!!
