MJ's MRI Results....

[MommytoMJM]

I don't know if any of you remember, but we had two conflicting results on previous MRI's so this was the tie breaker....

The official finding is: Right Cerebral Cortex polymicrogyria versus pachygyria

I can't find squat about it, except that it's common in kids with Epilepsy and Developmental Delay.....

I'm torn about how I feel, I mean, I *knew* it was coming, but seeing it in black and white is hard....

They also upped her Risperidal and gave us permission to give it during the day if she is stimming or having hallucinations too badly...they may change her epilepsy meds too.....She's started having Myoclonic seizures which can happen if you have a certain type of Epilepsy and are put on Trileptal...

 

[Forevryoung]

Bonny,
I'm sorry

It sounds like things have been rough over there. I hope you get meds figured out a little better soon, trial and error is the worst.
xoxo
Kate

 

[dclfun]

Bonny- it's always good to have a name for a condition but it doesn't change the love you have for MJ or what you are doing to help her improve. Is this a reflection of the disability she was born with or a progressive condition? Did your physician explain what the results mean in terms of the future? I haven't seen you post lately and was hoping your family was okay.---Kathy

 

[Nanajo1]

Thanks for the update. I hope the medications get stablized. Pixie dust coming your way.

 

[MommytoMJM]

Bonny- it's always good to have a name for a condition but it doesn't change the love you have for MJ or what you are doing to help her improve. Is this a reflection of the disability she was born with or a progressive condition? Did your physician explain what the results mean in terms of the future? I haven't seen you post lately and was hoping your family was okay.---Kathy

Hey Kathy-It is somehting she was born with, probably from the drugs, alcohol and poor healthcare on the birthmother's part. I didn't really get to ask the doctor all about what it means, I don't think it's progressive per say, but as she gets oldre it will be more marked, because her brain will just stop at some level and that will be her level for life. I did learn a bit more about the condition and found a Yahho group to join...

Polymicrogyria (PMG) is a rare brain disorder. PMG is a disorder of neuronal migration resulting in structurally abnormal cerebral hemispheres. The name Polymicrogyria broken down describes its characteristics "many small folds in the surface of the brain". It is also characterized by shallow sulci, a slightly thicker cortex, neuronal heterotopia and enlarged ventricles. When many of these small folds are packed tightly together, PMG may resemble pachygyria (a few "thick folds" - a mild form of lissencephaly) in parts of the brain.

The difference between PMG and pachygyria/lissencephaly can be difficult to see on an MRI or CT scan, even for an experienced radiologist. The diagnosis of PMG is merely descriptive and is not a disease in itself nor does it describe the underlying etiology or cause of the brain malformation

Most children with Polymicrogyria, but not all, have some degree of global developmental disabilities or delays, seizures, feeding difficulties, respiratory problems, motor dysfunction and mental retardation. It is difficult to make a predictable prognosis for children with the diagnosis of PMG because each child is very unique in their presentation of this disorder.

 

[Belle1962]

 

[SueM in MN]

I had a problem when I was trying to post before and then didn't get back to this thread.
Anyway, by now, it looks like you figured out that the MRI results are more a description of what the MRI looks like than an actual diagnosis. So, it may help you to get help that she needs because you have a better description, but it really doesn't tell you much about what her future will be.
If you need any help with 'translation' of medical language to regular-language, just ask.
Sending pixie dust your way.

 

[FutureMrsC]

Lots of hugs & pixiedust