Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[that's nice]

Thank you for taking the time to answer !


Has anyone else had trouble with logging in and posts that you make dissappearing etc? This has been driving me crazy LOL

I would keep your wedding ring on (my friend left his wedding ring in one of those bins.. then we ran back and luckily it was still there) and I would have your DH keep his necklace on. If the detector started going off, he can ask to be taken to the side and patted down that way.


Make sure when you log in you check the little box to 'remember me'. Then when you are done click the 'Log out' button under your name on the upper right hand side of the screen.

 

[nursekimber]

Hi,
We have been granted a wish from Make a Wish, our dates are Dec 23-28,2010. We are a family of 6, Kim(me), Jon (husband) and four children Corrine (20), Alexis (14), Kaleah (3) Wish Child, Kalani (2) our only son.
Kaleah and Kalani came to us as foster children,she was 8 months and he was 4 months old. They were both shaken babies. They are now our forever children as of this September!

Kaleah has many medical conditions including cerebral palsy(spastic quadriplegia), tracheotomy, seizures, microcephalic and severe developmental delays. Kalani is blind and has developmental delays.

We chose Christmas because she loves the lights and Christmas Carols! When she was younger Christmas music was the only thing that would make her stop crying.

We would appreciate any advice.

Kim

 

[LindaBabe]

I met the most charming wish family in line at the Lion King Show yesterday. What is it about these kids? THEY came up behind us and engaged me in conversation - by the time we were let in, I felt like grandma! SO friendly and nice - three little brothers, mom and Auntie. I encouraged them to come over here and join in! They had never heard of the DIS, imagine that

 

[rcq925]

2 days till adventure begins, 3 until wishflight !!!!

Have a Magical Trip!! Can't wait to hear all about it when you return!! Take lots of pictures!!!

 

[rcq925]

Hi,
We have been granted a wish from Make a Wish, our dates are Dec 23-28,2010. We are a family of 6, Kim(me), Jon (husband) and four children Corrine (20), Alexis (14), Kaleah (3) Wish Child, Kalani (2) our only son.
Kaleah and Kalani came to us as foster children,she was 8 months and he was 4 months old. They were both shaken babies. They are now our forever children as of this September!

Kaleah has many medical conditions including cerebral palsy(spastic quadriplegia), tracheotomy, seizures, microcephalic and severe developmental delays. Kalani is blind and has developmental delays.

We chose Christmas because she loves the lights and Christmas Carols! When she was younger Christmas music was the only thing that would make her stop crying.

We would appreciate any advice.

Kim

Wow that will be so cool to actually be at Disney and GKTW on Christmas Day! I am sure it will be a Christmas that your family will never forget!

We are going November 14-20 on our wish trip and I am sure I will have some more Christmas advice for you after we return! I am so glad that your child has been granted a wish!

 

[Haybuggsmom]

Armand, An outgoing 3 year old with lots of energy. But the month after he turned 2 in may of 09, he was diagnosed with Neuroblastoma. The same week I found out I was pregnant with his little sister. He is now in remission, and now time for our wish trip. We are coming Nov 2nd-8th, we cant wait! We havnt got our GKTW packet yet, this will be our first time flying, and the kids nor I have ever been to the ocean before, so we are also planing a trip to one of the beaches!

WELCOME!!!
Remission is such a BEAUTIFUL word!! My son has been 2 year 5 months in remission (testicular Cancer)
I look forward to hearing your plans!

 

[Haybuggsmom]

Our son Michael, age 7, has been granted a wish through Make A Wish. Here's a little about Michael's story:

Michael was a normal 7 year old boy until February of 2010. He spent most of February and March sick with high fevers and a bad cough. We were told over those 2 months that he had strep, flu and pneumonia. He wasn't getting better. I kept taking him into the doctor every few days and they kept sending us back home. Finally on March 30th I had had it. He was still coughing, running a fever and was having a hard time breathing. He couldn't get up a flight of stairs withouht having to sit down and take a rest to catch his breath. This was just not normal. I am hyper sensitive to health issues because my mom is a lung transplant patient. She's had 2 transplants and suffers from a form of interstitial lung disease. At the doctor on the 30th they also noticed his rapid breathing and high heart rate. They thought it might be his heart so they sent us to the hospital for an echo and another chest x-ray (4th in 2 months). We did those and went home and as soon as we got home they told us to return to the hospital to do a CT of his chest. We went back and did that and later that night they said we needed to see the pulmonologist right away. The next day we went to meet the pulmonologist. He told us that Michael has Bronchiolitis Obliterans and Bronchiectasis. Bronchiolitis Obliterans is a form of chILD. chILD is Childrens Interstitial Lung Disease. There are several forms of chILD. chILD is very rare. Basically kids with chILD have lost lung function. Their lungs are like dry sponges, they don't contract correctly, which makes oxygen exchange difficult. Kids with chILD have a hard time fighting off disease and are often sick. The diseases of chILD are very rare and therefore any treatment is still in the experimental stages.
Michael contracted his Bronchiolitis Obliterans from an adneovirus. Since diagnosis Michael is now on oxygen at night, has a port and is receiving iv treatments of IVIG and high dose steroids, has a percussion vest and does several other treatments and medicines.
It's been a tough year so far. So when our pediatrician said he was referring Michael to Make A Wish we were so excited!
Michael thought long and hard about his wish and settled on Disney World. We were just there in 2009 and he and his younger brother had a great time. Our wish granters came in early September and we are still waiting for dates of our trip. We got notice that the trip was approved, but not scheduled yet. We are hoping to go sometime this fall.
I'll add more details as we get closer!

WELCOME!!!
I'm excited to hear more!!

 

[Haybuggsmom]

Um ! Blonde Moment Warning ! THIS IS NOT A TEST, These questions are real and real blonde :}

1. Will a partial set off metal detector?
2. Will a wire in bra set off detector ?
3. Um yeah see I am now starting to wonder the oddest things. Do you have to empty purse out? like if i have a Nintendo DS, Camera, Cellphone, Um chargers for the 3 in my purse plus the million peices of paper I will most likely carry?

mmm... Ihad more Blondeness to share but for now it seemed to have left me

Jewlery ?

You are CRACKING ME UP!!!
I know you are so exctited!! You are going to have os much FUN!!!

 

[Haybuggsmom]

Hi,
We have been granted a wish from Make a Wish, our dates are Dec 23-28,2010. We are a family of 6, Kim(me), Jon (husband) and four children Corrine (20), Alexis (14), Kaleah (3) Wish Child, Kalani (2) our only son.
Kaleah and Kalani came to us as foster children,she was 8 months and he was 4 months old. They were both shaken babies. They are now our forever children as of this September!

Kaleah has many medical conditions including cerebral palsy(spastic quadriplegia), tracheotomy, seizures, microcephalic and severe developmental delays. Kalani is blind and has developmental delays.

We chose Christmas because she loves the lights and Christmas Carols! When she was younger Christmas music was the only thing that would make her stop crying.

We would appreciate any advice.

Kim

Kaleah and Kalani are so blessed ot have found you for their forever family!!
If you have any questions just ask. This board is such a great source of information!
Looking forward to your planning!!

This time I won't be going through the metal detector, so I will probably be body searched...ugh

Yea you get the massage!! Haylee giggles so hard for that!!

I met the most charming wish family in line at the Lion King Show yesterday. What is it about these kids? THEY came up behind us and engaged me in conversation - by the time we were let in, I felt like grandma! SO friendly and nice - three little brothers, mom and Auntie. I encouraged them to come over here and join in! They had never heard of the DIS, imagine that

I'm so glad you sent them ever and glad to hear you are having a great trip!!

 

[Mom2mitokids]

Hi,
We have been granted a wish from Make a Wish, our dates are Dec 23-28,2010. We are a family of 6, Kim(me), Jon (husband) and four children Corrine (20), Alexis (14), Kaleah (3) Wish Child, Kalani (2) our only son.
Kaleah and Kalani came to us as foster children,she was 8 months and he was 4 months old. They were both shaken babies. They are now our forever children as of this September!

Kaleah has many medical conditions including cerebral palsy(spastic quadriplegia), tracheotomy, seizures, microcephalic and severe developmental delays. Kalani is blind and has developmental delays.

We chose Christmas because she loves the lights and Christmas Carols! When she was younger Christmas music was the only thing that would make her stop crying.

We would appreciate any advice.

Kim

Hi and to the Disboards. So glad Kaleah and Kalani found you and you are now a forever family. How cool to be going to DW and GKTW at Christmas time. We went on my youngest daughter MAW trip in Nov.08 and it was beautiful.

 

[Mom2mitokids]

I met the most charming wish family in line at the Lion King Show yesterday. What is it about these kids? THEY came up behind us and engaged me in conversation - by the time we were let in, I felt like grandma! SO friendly and nice - three little brothers, mom and Auntie. I encouraged them to come over here and join in! They had never heard of the DIS, imagine that

So glad you got to meet a MAW family. You are grandma fairy after all. I had no clue about this board until about 3 months before my oldest got her wish. I wish I knew about it with my youngest wish.

 

[tinytreasures]

Hi,
We have been granted a wish from Make a Wish, our dates are Dec 23-28,2010. We are a family of 6, Kim(me), Jon (husband) and four children Corrine (20), Alexis (14), Kaleah (3) Wish Child, Kalani (2) our only son.
Kaleah and Kalani came to us as foster children,she was 8 months and he was 4 months old. They were both shaken babies. They are now our forever children as of this September!

Kaleah has many medical conditions including cerebral palsy(spastic quadriplegia), tracheotomy, seizures, microcephalic and severe developmental delays. Kalani is blind and has developmental delays.

We chose Christmas because she loves the lights and Christmas Carols! When she was younger Christmas music was the only thing that would make her stop crying.

We would appreciate any advice.

Kim

welcome to the board from a fellow foster mom

 

[nursekimber]

Thank you to everyone who welcomed me. I can't wait to read your reports and hope you all have a truly wonderful time.
We can't wait and really want this to be as relaxing (ok at least that's what I'm hoping for) as possible.
Kim





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[tidrow]

I’m hoping some here might be able to help me with a few questions. My family and I were slated to leave on our wish trip to GKTW early tomorrow. Unfortunately our wish kid fell ill and we’ve had to cancel. MAW has been great and said we can reschedule. Here are the dilemmas we’re facing:

-We want to go soon. Our kids are of course devastated, and they want us to reschedule as soon as we can. We also have issues that will make traveling hard after the end of October. If we don’t go by the end of October, we probably can’t go until the spring.

-GKTW doesn’t have any open spots until early November. We unfortunately can’t go then. We asked our MAW contact about getting on a wait list and jumping into any open spots that become available. That is not an option, but we can plan to go and stay at Contemporary or Floridian and then switch to GKTW if something opens up.

So, here are the questions:

-Does anyone by chance have any sense of the likelihood of villas becoming available at GKTW if we plan a trip for a stay at a Disney hotel but shifting to GKTW if something opens up?

-The next two questions are a little tacky, but they will influence our decision making. First, does anyone know what type of accommodations wish families have at the Disney hotels? We have a family of 5, one of whom depends on a lot of medical equipment, and we would need space, a fridge and microwave, etc. Second and less important, does anyone know how dining works for wish families staying at Disney? I assume we can go to GKTW for meals if we choose and otherwise would cover meals from our MAW expense money. I also would guess it varies from chapter to chapter. But, I thought I would check in case anyone has knowledge of this.

Thanks.

 

[visitingapril09]

Hi,
We have been granted a wish from Make a Wish, our dates are Dec 23-28,2010. We are a family of 6, Kim(me), Jon (husband) and four children Corrine (20), Alexis (14), Kaleah (3) Wish Child, Kalani (2) our only son.
Kaleah and Kalani came to us as foster children,she was 8 months and he was 4 months old. They were both shaken babies. They are now our forever children as of this September!

Kaleah has many medical conditions including cerebral palsy(spastic quadriplegia), tracheotomy, seizures, microcephalic and severe developmental delays. Kalani is blind and has developmental delays.

We chose Christmas because she loves the lights and Christmas Carols! When she was younger Christmas music was the only thing that would make her stop crying.

We would appreciate any advice.

Kim

Welcome!!!! Nice to meet you and look forward to hearing more about your trip plans.

 

[rcq925]

I’m hoping some here might be able to help me with a few questions. My family and I were slated to leave on our wish trip to GKTW early tomorrow. Unfortunately our wish kid fell ill and we’ve had to cancel. MAW has been great and said we can reschedule. Here are the dilemmas we’re facing:

-We want to go soon. Our kids are of course devastated, and they want us to reschedule as soon as we can. We also have issues that will make traveling hard after the end of October. If we don’t go by the end of October, we probably can’t go until the spring.

-GKTW doesn’t have any open spots until early November. We unfortunately can’t go then. We asked our MAW contact about getting on a wait list and jumping into any open spots that become available. That is not an option, but we can plan to go and stay at Contemporary or Floridian and then switch to GKTW if something opens up.

So, here are the questions:

-Does anyone by chance have any sense of the likelihood of villas becoming available at GKTW if we plan a trip for a stay at a Disney hotel but shifting to GKTW if something opens up?

-The next two questions are a little tacky, but they will influence our decision making. First, does anyone know what type of accommodations wish families have at the Disney hotels? We have a family of 5, one of whom depends on a lot of medical equipment, and we would need space, a fridge and microwave, etc. Second and less important, does anyone know how dining works for wish families staying at Disney? I assume we can go to GKTW for meals if we choose and otherwise would cover meals from our MAW expense money. I also would guess it varies from chapter to chapter. But, I thought I would check in case anyone has knowledge of this.

Thanks.

Wow, that really stinks The kids must be devasted! I am so sorry you have to cancel.

I really don't know the answers to your questions. I know several families on here have chosen to stay offsite at one of the Disney Hotels and really enjoyed themselves. I think the thing you run into is that the free meals are at GKTW, but I think that Disney is running a free dining promotion right now, maybe you could qualify for that? I know that MAW chapters do vary from chapter to chapter, so I think you will need to ask your chapter about paying for the meals.

Personally, I think that if you really want the experience of GKTW (Which is sounds like you do) that I would reschedule for spring so that you can experience all the magic of GKTW. I know that I would not want to stay offsite (some do and that is fine) but I think staying at GKTW and soaking in all the magic there is a big part of a Make A Wish trip and this is the ONLY time you will be able to stay there.

I know I wasn't much help But I am so sorry you have been put in this situation. This is my greatest fear that Hayley will get sick right before we leave on our trip

 

[jen-y]

We just got back from our trip last night. It could not have been any better The weather was great. It only rained 1 day out of 10. Nobody got sick or hurt, so no trips to the doctor were needed
Today will pretty much be an unpacking and laundry day for me
I will start on my trip report in the next day or two. I need to get all my pictures on the computer.

 

[jen-y]

Does anyone know how I get this ticker off my posts now???

 

[rcq925]

We just got back from our trip last night. It could not have been any better The weather was great. It only rained 1 day out of 10. Nobody got sick or hurt, so no trips to the doctor were needed
Today will pretty much be an unpacking and laundry day for me
I will start on my trip report in the next day or two. I need to get all my pictures on the computer.

So glad you guys are home safe and had a wonderful time! I cannot wait to hear all about it and see all your pictures!!

I think to get the ticker off, you just have to go into your account and edit your signature, delete the code you used to make your ticker show up. Hope that makes sense!

 

[brookerene]

Hi Tidrow, I can really understand your situation. My son's wish was schdeuled for next week! Then his kidney transplant was postponed twice due to infection and is now going to be next week! We live on a small family farm and winter is out for us to go, so we are having to choose between this Spring (we have a one week window) or next fall (a year later!). I suggest you try for spring. I know the kids are disappointed, believe me, but they will have more time to plan and get more excited! I think missing out on GKTW would be disappointing, becuase this is the only time you would be able to experience such a wonderful place. Onsite will always be there. I know it's been hard for me to wait! and I know it'll be hard for you too. I've never been to DW although I spent many of my growing up days at Disneyland. Take care and God Bless whatever you choose!