Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[Mom2mitokids]

Check this out...

Disney "picked" Lauren's picture!!! This is for their Disney Memories promo!

Can you guys "LIKE" it for her? She would be so excited to have some "likes" before she got home from school!

She is going to be so excited...

I think this link will work...

http://memories.disneyparks.disney.go.com/?CMP=KNC-DPMemBrandFY11Google&s_kwcid=TC|11537|disney%20memories||S||6259475413#/detail/1162

Done.. Very cute picture of Lauren.

 

[tinytreasures]

love that picture of Lauren

 

[J'sMum]

Done.. Very cute picture of Lauren.

Agreed and also went and voted ! such a perfect picture that one is




I have had a tough time logging in , usually it will show up top that I am and tonight it's not oddness

 

[LindaBabe]

Some of you who signed up for post cards - the kids should start receiving them soon - the first ones were mailed on Sunday.

 

[maroo]

Thank you all for liking Lauren's pic!

There is no contest or anything and ALL OF YOU GUYS can get your picture on there, too!! Feel free to try it!

I have not shown Lauren yet...I don't have her until tomorrow night...but I can't wait to show her!

 

[BorgKat]

Armand, An outgoing 3 year old with lots of energy. But the month after he turned 2 in may of 09, he was diagnosed with Neuroblastoma. The same week I found out I was pregnant with his little sister. He is now in remission, and now time for our wish trip. We are coming Nov 2nd-8th, we cant wait! We havnt got our GKTW packet yet, this will be our first time flying, and the kids nor I have ever been to the ocean before, so we are also planing a trip to one of the beaches!

 

[casper_jj11]

Armand, An outgoing 3 year old with lots of energy. But the month after he turned 2 in may of 09, he was diagnosed with Neuroblastoma. The same week I found out I was pregnant with his little sister. He is now in remission, and now time for our wish trip. We are coming Nov 2nd-8th, we cant wait! We havnt got our GKTW packet yet, this will be our first time flying, and the kids nor I have ever been to the ocean before, so we are also planing a trip to one of the beaches!

Welcome! I'm so glad to hear your little guy is in remission. Your story is very similar to ours. The week after I found out I was pregnant with DS3, our daughter, then just days after her first bday, was diagnosed with neuroblastoma as well. She too is in remission. She is now 4.5 yrs old and had her wish trip to Disney in August. It was amazing! You'll have an incredible trip.

 

[mjarecki]

Our son Michael, age 7, has been granted a wish through Make A Wish. Here's a little about Michael's story:

Michael was a normal 7 year old boy until February of 2010. He spent most of February and March sick with high fevers and a bad cough. We were told over those 2 months that he had strep, flu and pneumonia. He wasn't getting better. I kept taking him into the doctor every few days and they kept sending us back home. Finally on March 30th I had had it. He was still coughing, running a fever and was having a hard time breathing. He couldn't get up a flight of stairs withouht having to sit down and take a rest to catch his breath. This was just not normal. I am hyper sensitive to health issues because my mom is a lung transplant patient. She's had 2 transplants and suffers from a form of interstitial lung disease. At the doctor on the 30th they also noticed his rapid breathing and high heart rate. They thought it might be his heart so they sent us to the hospital for an echo and another chest x-ray (4th in 2 months). We did those and went home and as soon as we got home they told us to return to the hospital to do a CT of his chest. We went back and did that and later that night they said we needed to see the pulmonologist right away. The next day we went to meet the pulmonologist. He told us that Michael has Bronchiolitis Obliterans and Bronchiectasis. Bronchiolitis Obliterans is a form of chILD. chILD is Childrens Interstitial Lung Disease. There are several forms of chILD. chILD is very rare. Basically kids with chILD have lost lung function. Their lungs are like dry sponges, they don't contract correctly, which makes oxygen exchange difficult. Kids with chILD have a hard time fighting off disease and are often sick. The diseases of chILD are very rare and therefore any treatment is still in the experimental stages.
Michael contracted his Bronchiolitis Obliterans from an adneovirus. Since diagnosis Michael is now on oxygen at night, has a port and is receiving iv treatments of IVIG and high dose steroids, has a percussion vest and does several other treatments and medicines.
It's been a tough year so far. So when our pediatrician said he was referring Michael to Make A Wish we were so excited!
Michael thought long and hard about his wish and settled on Disney World. We were just there in 2009 and he and his younger brother had a great time. Our wish granters came in early September and we are still waiting for dates of our trip. We got notice that the trip was approved, but not scheduled yet. We are hoping to go sometime this fall.
I'll add more details as we get closer!

 

[mjarecki]

Our son Michael, age 7, has been granted a wish through Make A Wish. Here's a little about Michael's story:

Michael was a normal 7 year old boy until February of 2010. He spent most of February and March sick with high fevers and a bad cough. We were told over those 2 months that he had strep, flu and pneumonia. He wasn't getting better. I kept taking him into the doctor every few days and they kept sending us back home. Finally on March 30th I had had it. He was still coughing, running a fever and was having a hard time breathing. He couldn't get up a flight of stairs withouht having to sit down and take a rest to catch his breath. This was just not normal. I am hyper sensitive to health issues because my mom is a lung transplant patient. She's had 2 transplants and suffers from a form of interstitial lung disease. At the doctor on the 30th they also noticed his rapid breathing and high heart rate. They thought it might be his heart so they sent us to the hospital for an echo and another chest x-ray (4th in 2 months). We did those and went home and as soon as we got home they told us to return to the hospital to do a CT of his chest. We went back and did that and later that night they said we needed to see the pulmonologist right away. The next day we went to meet the pulmonologist. He told us that Michael has Bronchiolitis Obliterans and Bronchiectasis. Bronchiolitis Obliterans is a form of chILD. chILD is Childrens Interstitial Lung Disease. There are several forms of chILD. chILD is very rare. Basically kids with chILD have lost lung function. Their lungs are like dry sponges, they don't contract correctly, which makes oxygen exchange difficult. Kids with chILD have a hard time fighting off disease and are often sick. The diseases of chILD are very rare and therefore any treatment is still in the experimental stages.
Michael contracted his Bronchiolitis Obliterans from an adneovirus. Since diagnosis Michael is now on oxygen at night, has a port and is receiving iv treatments of IVIG and high dose steroids, has a percussion vest and does several other treatments and medicines.
It's been a tough year so far. So when our pediatrician said he was referring Michael to Make A Wish we were so excited!
Michael thought long and hard about his wish and settled on Disney World. We were just there in 2009 and he and his younger brother had a great time. Our wish granters came in early September and we are still waiting for dates of our trip. We got notice that the trip was approved, but not scheduled yet. We are hoping to go sometime this fall.
I'll add more details as we get closer!

We just got the call! We are going November 15-21st. More details to come soon!

 

[Glo's wish]

Some of you who signed up for post cards - the kids should start receiving them soon - the first ones were mailed on Sunday.

Thank you so much Linda!! The kids will be estatic!!

 

[maroo]

mjarecki (Michael) Wish Trip MAW/??? Dates TBA!

We have a new wish trip pre-trip report!!

And I will add the dates! - Just saw that!

Woo Hoo!!!!

 

[Mom2mitokids]

Armand, An outgoing 3 year old with lots of energy. But the month after he turned 2 in may of 09, he was diagnosed with Neuroblastoma. The same week I found out I was pregnant with his little sister. He is now in remission, and now time for our wish trip. We are coming Nov 2nd-8th, we cant wait! We havnt got our GKTW packet yet, this will be our first time flying, and the kids nor I have ever been to the ocean before, so we are also planing a trip to one of the beaches!

Hi and to the disboard. So glad to hear that Armand is doing well and is getting his wish.

 

[visitingapril09]

mjarecki (Michael) Wish Trip MAW/??? Dates TBA!

We have a new wish trip pre-trip report!!

And I will add the dates! - Just saw that!

Woo Hoo!!!!

Welcome!! So many wish trips to follow! This is wonderful.

 

[Mom2mitokids]

Our son Michael, age 7, has been granted a wish through Make A Wish. Here's a little about Michael's story:

Michael was a normal 7 year old boy until February of 2010. He spent most of February and March sick with high fevers and a bad cough. We were told over those 2 months that he had strep, flu and pneumonia. He wasn't getting better. I kept taking him into the doctor every few days and they kept sending us back home. Finally on March 30th I had had it. He was still coughing, running a fever and was having a hard time breathing. He couldn't get up a flight of stairs withouht having to sit down and take a rest to catch his breath. This was just not normal. I am hyper sensitive to health issues because my mom is a lung transplant patient. She's had 2 transplants and suffers from a form of interstitial lung disease. At the doctor on the 30th they also noticed his rapid breathing and high heart rate. They thought it might be his heart so they sent us to the hospital for an echo and another chest x-ray (4th in 2 months). We did those and went home and as soon as we got home they told us to return to the hospital to do a CT of his chest. We went back and did that and later that night they said we needed to see the pulmonologist right away. The next day we went to meet the pulmonologist. He told us that Michael has Bronchiolitis Obliterans and Bronchiectasis. Bronchiolitis Obliterans is a form of chILD. chILD is Childrens Interstitial Lung Disease. There are several forms of chILD. chILD is very rare. Basically kids with chILD have lost lung function. Their lungs are like dry sponges, they don't contract correctly, which makes oxygen exchange difficult. Kids with chILD have a hard time fighting off disease and are often sick. The diseases of chILD are very rare and therefore any treatment is still in the experimental stages.
Michael contracted his Bronchiolitis Obliterans from an adneovirus. Since diagnosis Michael is now on oxygen at night, has a port and is receiving iv treatments of IVIG and high dose steroids, has a percussion vest and does several other treatments and medicines.
It's been a tough year so far. So when our pediatrician said he was referring Michael to Make A Wish we were so excited!
Michael thought long and hard about his wish and settled on Disney World. We were just there in 2009 and he and his younger brother had a great time. Our wish granters came in early September and we are still waiting for dates of our trip. We got notice that the trip was approved, but not scheduled yet. We are hoping to go sometime this fall.
I'll add more details as we get closer!

Hi and to the Disboards. Sorry to hear about the rough year. So glad Michael will be getting his wish. Congrats on getting dates so fast. We have been waiting since July and we are still not 100% on dates yet.

 

[J'sMum]

Armand, An outgoing 3 year old with lots of energy. But the month after he turned 2 in may of 09, he was diagnosed with Neuroblastoma. The same week I found out I was pregnant with his little sister. He is now in remission, and now time for our wish trip. We are coming Nov 2nd-8th, we cant wait! We havnt got our GKTW packet yet, this will be our first time flying, and the kids nor I have ever been to the ocean before, so we are also planing a trip to one of the beaches!

Hiya and welcome This is a great board to be on to learn some great information on everything!

Our son Michael, age 7, has been granted a wish through Make A Wish. Here's a little about Michael's story:

Michael was a normal 7 year old boy until February of 2010. He spent most of February and March sick with high fevers and a bad cough. We were told over those 2 months that he had strep, flu and pneumonia. He wasn't getting better. I kept taking him into the doctor every few days and they kept sending us back home. Finally on March 30th I had had it. He was still coughing, running a fever and was having a hard time breathing. He couldn't get up a flight of stairs withouht having to sit down and take a rest to catch his breath. This was just not normal. I am hyper sensitive to health issues because my mom is a lung transplant patient. She's had 2 transplants and suffers from a form of interstitial lung disease. At the doctor on the 30th they also noticed his rapid breathing and high heart rate. They thought it might be his heart so they sent us to the hospital for an echo and another chest x-ray (4th in 2 months). We did those and went home and as soon as we got home they told us to return to the hospital to do a CT of his chest. We went back and did that and later that night they said we needed to see the pulmonologist right away. The next day we went to meet the pulmonologist. He told us that Michael has Bronchiolitis Obliterans and Bronchiectasis. Bronchiolitis Obliterans is a form of chILD. chILD is Childrens Interstitial Lung Disease. There are several forms of chILD. chILD is very rare. Basically kids with chILD have lost lung function. Their lungs are like dry sponges, they don't contract correctly, which makes oxygen exchange difficult. Kids with chILD have a hard time fighting off disease and are often sick. The diseases of chILD are very rare and therefore any treatment is still in the experimental stages.
Michael contracted his Bronchiolitis Obliterans from an adneovirus. Since diagnosis Michael is now on oxygen at night, has a port and is receiving iv treatments of IVIG and high dose steroids, has a percussion vest and does several other treatments and medicines.
It's been a tough year so far. So when our pediatrician said he was referring Michael to Make A Wish we were so excited!
Michael thought long and hard about his wish and settled on Disney World. We were just there in 2009 and he and his younger brother had a great time. Our wish granters came in early September and we are still waiting for dates of our trip. We got notice that the trip was approved, but not scheduled yet. We are hoping to go sometime this fall.
I'll add more details as we get closer!

Aww Thank you for sharing that with us, So Happy Michael is getting a wish Looking forward to following along

 

[J'sMum]

2 days till adventure begins, 3 until wishflight !!!!

 

[J'sMum]

Um ! Blonde Moment Warning ! THIS IS NOT A TEST, These questions are real and real blonde :}

1. Will a partial set off metal detector?
2. Will a wire in bra set off detector ?
3. Um yeah see I am now starting to wonder the oddest things. Do you have to empty purse out? like if i have a Nintendo DS, Camera, Cellphone, Um chargers for the 3 in my purse plus the million peices of paper I will most likely carry?

mmm... Ihad more Blondeness to share but for now it seemed to have left me

Jewlery ?

 

[cajunfan]

Um ! Blonde Moment Warning ! THIS IS NOT A TEST, These questions are real and real blonde :}

1. Will a partial set off metal detector?
2. Will a wire in bra set off detector ?
3. Um yeah see I am now starting to wonder the oddest things. Do you have to empty purse out? like if i have a Nintendo DS, Camera, Cellphone, Um chargers for the 3 in my purse plus the million peices of paper I will most likely carry?

mmm... Ihad more Blondeness to share but for now it seemed to have left me

Jewlery ?

Partial will NOT normally set off the detectors

I can only imagine if underwire in the bra made it go off...I would be stripping down in the airport if it was keeping me from my Mickey FIX! In other words, no to this one too!

We usually put our electronics in one bin...cell phones ds ipod, (basically things in our pockets) etc...my chargers stay in my backpack and get scanned in there...my camera is usually in there too.

Most jewelry will set it off (and change in pockets), so just put it in one of the little bins.

We basically wear slip on shoes (with socks...yes I wear my crocs with socks to the airport)...that way we just slip them off and into a bin but our feet are not touching the nasty floor. We also clean out our pockets before we head to the screening line...just keep things I need easy access to...cell phone, ipod, ID, etc...that way faster and easier to load things into the bins and get through screening.

Just go in the family line...that way you can take your time and ask any questions there if you forget and don't ask here!

It is getting close for you folks!

Lynn

 

[J'sMum]

Partial will NOT normally set off the detectors
YAY cause, yeah I would feel a bit funky having to spit that out to get thru detectors

I can only imagine if underwire in the bra made it go off...I would be stripping down in the airport if it was keeping me from my Mickey FIX! In other words, no to this one too!

LOL again YAY cause Katelynn and I both have underwires and I know some are metal and some are plastic I was pondering the idea of havign to waste money to go pick up a sports bra for flying day LOL

We usually put our electronics in one bin...cell phones ds ipod, (basically things in our pockets) etc...my chargers stay in my backpack and get scanned in there...my camera is usually in there too.

ok so it is ok to have electronics in backpack to be scanned etc cause if thats the case I will leave it all in Backpack until we get there
Most jewelry will set it off (and change in pockets), so just put it in one of the little bins.
!!!!!!!!!!!!!!!!!!!!! will they make my DH take his necklace off???? cause only way his cross is coming off is if he breaks it. He has a fear of being without it so he changed the clasp out so that it's always connected no clasp for taking on and off.
We basically wear slip on shoes (with socks...yes I wear my crocs with socks to the airport)...that way we just slip them off and into a bin but our feet are not touching the nasty floor. We also clean out our pockets before we head to the screening line...just keep things I need easy access to...cell phone, ipod, ID, etc...that way faster and easier to load things into the bins and get through screening.

Just go in the family line...that way you can take your time and ask any questions there if you forget and don't ask here!

It is getting close for you folks!

Lynn

Thank you for taking the time to answer !


Has anyone else had trouble with logging in and posts that you make dissappearing etc? This has been driving me crazy LOL

 

[Mom2mitokids]

Um ! Blonde Moment Warning ! THIS IS NOT A TEST, These questions are real and real blonde :}

1. Will a partial set off metal detector?Nope
2. Will a wire in bra set off detector ?Nope
3. Um yeah see I am now starting to wonder the oddest things. Do you have to empty purse out? like if i have a Nintendo DS, Camera, Cellphone, Um chargers for the 3 in my purse plus the million peices of paper I will most likely carry?each kids had there own carryon and I don't remember takingthere stuff out. I had my ring on and that didn't set it off.

mmm... Ihad more Blondeness to share but for now it seemed to have left me

Jewlery ?

This time I won't be going through the metal detector, so I will probably be body searched...ugh