Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[alaskanabbott]

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[alaskanabbott]

Hi, My name is Amber...I saw you guys still have no primary DX...just wanted to hive big cyber-space ((((hugs)))), we have no DX for our son either, and honestly, I think sometimes THAT is the hardest part of his illness.

 

[jen-y]

We are having some family meet us there, but we have agreed it is best not to expect to spend 24/7 together. My son will love getting to ride some rides with his cousins, but there will be times when we will want to be alone, so I think it would work if there is some agreed upon balance.

 

[jen-y]

Ok. Why am I panicing about Nicky's wish trip. What does CTR and ADR stand for??? Do we need to make our own dinner/show reservations or does Make a Wish do that?
We have family and friends that want to meet us down there, but they can't book their trip till we have our dates for sure and it sounds like that takes a while to get approved. Panicing.

 

[Momofwishkid]

Ok. Why am I panicing about Nicky's wish trip. What does CTR and ADR stand for??? Do we need to make our own dinner/show reservations or does Make a Wish do that?
We have family and friends that want to meet us down there, but they can't book their trip till we have our dates for sure and it sounds like that takes a while to get approved. Panicing.

Hi! I think we all get to a point of panicking about trying to make it all perfect. Try not to stress it will all be perfect. CRT is Cinderella's Royal Table (or meal at the castle) ADR's are reservations. For the most part you make your own ADR's but I have heard of many chapters doing one "extra" thing if it's requested.

 

[maroo]

yay! Thank-You! We are all so excited, so fun to read about every's plans!

Once you get your pre-trip report started, let me know and I can come find it and post a link here.

I am not on as much these days...so it may take a day or so...but I will get there!

It's a little confusing, but I'm starting to figure it out! I can't wait to start our PTR! Plus, since James can only handle a half day of school, it wil give him somthing fun to do with me in the afternoon.

That will be fun for ALL of us!!

I feel like I'm going to cry. As many of you know, we are scheduled to go on our MAW trip to GKTW on 4/17, but I haven't allowed myself to truly plan because we have been so scared that my daughter (3) had relapsed in her central nervous system (she has leukemia). She had a lumbar puncture (spinal tap) today, and her CSF was NORMAL!!!!! No leukemia blasts!!!! (She had an abnormal one the day before Thanksgiving, a year to the day she was diagnosed-- NOT a good day for us!).

I am absolutely wiped from holding the stress of all this inside, but once I get some rest, it's time to really start planning!!! Yay!!!!!! (Although the chemo she got today may make sleep an elusive dream for us this week.... But nonetheless, I'm so happy I could cry!)

Ann

That is AWESOME news!!!!!!!!!!!!!!!! Now you can plan, plan, plan!

Tomorrow is the day..

We have a 6:15am flight in the am to Disney...We are staying at Port Olreans French Quaters and we just can not wait.

Packing is tough with all his medical stuff, and 97% of it will be sent down via UPS tomorrow.

Wed night from 5-9pm we will be volunteering at Give Kids The World, we will be in the Castle of Miracles....so if anyone will be there on Wed...please come by and see us...Jake is so super excitied...My husband and I were both saying, we just have to make sure we cry BEFORE we get out of the car and not when walk thru the doors....

Hope everyone has a wonderful week...and I will be sure to share our trip when we come back....

Woo Hoo!!! Have a GREAT time!

subscribing

to the Wish Trippers thread! I have not read the start of your pre-trip report yet, but will head over there shortly!

We are having some family meet us there, but we have agreed it is best not to expect to spend 24/7 together. My son will love getting to ride some rides with his cousins, but there will be times when we will want to be alone, so I think it would work if there is some agreed upon balance.

This is a great way to do it! Balance is everything when dealing with extended family.

Ok. Why am I panicing about Nicky's wish trip. What does CTR and ADR stand for??? Do we need to make our own dinner/show reservations or does Make a Wish do that?
We have family and friends that want to meet us down there, but they can't book their trip till we have our dates for sure and it sounds like that takes a while to get approved. Panicing.

Bless your heart! Please don't panic.

You have logged on to a website that is ALL about planning. And we have a BUNCH of acronyms about all kinds of things that will sound like a foreign language at first.

Remember these few things...

* Not everyone plans! You can go with NO reservations, NO plans and NO IDEA what you are doing and have a GREAT time! Make a Wish and Give Kids the World are wonderful organizations and will do their very best to make sure you have a great time. In some ways, this may be a more relaxed way to do it!

* If you want to plan - you have found the right place. The DIS is a BIG website with a lot of information - more information than you can possibly read before your trip. And frankly...some posters on the DIS can be a little harsh. I think here, on this thread, you will find many very kind people that will answer ANY questions...

* If you are confused about something, feel free to just ask. We will explain everything you want to know.


CRT = Cinderella's Royal Table This is the restaurant that is inside the castle. For some families, this is a MUST DO - something they really have to do because their child really wants to do it...and it does require reservations. Your chapter can handle that or you can reserve it, either way.

ADR = Reservation (Advance Dining Reservation to be exact)...

The number to call for a reservation is 407-WDW-DINE. They can help you plan out restaurants.


If you have any more questions, don't hesitate to post them here! We will be glad to answer them! But please don't panic.

 

[maroo]

We have a new pretrip report! For those of you guys that have not found it yet...


Ashley's Pre-Trip report:

http://http://www.disboards.com/showthread.php?p=35407954&posted=1#post35407954

 

[Mtopher4]

Thank you so much Maroo I will FORSURE Post everything about our MAW Cruise when we return.. now if only they would pick one of the dates

 

[Mtopher4]

Ann.. That is the Best news EVER!!!!!!!


I am so happy for you and yur family

 

[jen-y]

We have a new pretrip report! For those of you guys that have not found it yet...


Ashley's Pre-Trip report:

http://http://www.disboards.com/showthread.php?p=35407954&posted=1#post35407954

How do you start a pre trip report?

 

[that's nice]

She had a lumbar puncture (spinal tap) today, and her CSF was NORMAL!!!!! No leukemia blasts!!!!
Ann

This is great news!!!!!!!

So happy for you!

Ok. Why am I panicing about Nicky's wish trip. What does CTR and ADR stand for??? Do we need to make our own dinner/show reservations or does Make a Wish do that?
We have family and friends that want to meet us down there, but they can't book their trip till we have our dates for sure and it sounds like that takes a while to get approved. Panicing.

How do you start a pre trip report?

OK breathe in.... breathe out! OK your ready!!!

I'm joking of course... you are in the right place! Every one here is so helpful... we will answer any questions and help you as much as possible.

First off to start a PTR on the www.disboards.com page look for the Disney Trip reports link (click), then near the top of the page you will see the pre-trip reports (click), near the top left you will see a tab for New Thread (click), and start your PTR!!!!

 

[pouty_tink]

Thank you to everyone for the warm welcome. I have started my PTR but have not yet posted it here on the boards because with a 6 month old, im workin a bit slowly. But I just wanted to say again thanks, and i look forward to getting to know all of you as well.

 

[yinyanggirls]

Thanks everyone for the good wishes! The other "good news" is that Elke is not going to be on high dose steroid pulses in April, when we go. She was taken off them in December because they were causing necrosis (bone death) in her right femur (she can't run, and needs assistance to do stairs, etc), and they have decided not to restart them until at least May. So that's one less med to take with us/have her on (she's on daily chemo until 2/2011).

I made a bunch of ADRs way back when, just to have them, and haven't looked at them since, and don't even have a list anywhere. So I will have to retrieve them somehow and see what we have to work with. I do know we are supposed to eat lunch at CRT around the same time as you, Melissa, on 4/19!

Dmbfan: have a GREAT time!!!

Ann

Well, I'm sorry that the drug is causing bone problems at all, but nice to know you have one less thing to worry about on the trip.

Yippee for a Princess lunch date! I saved the confirmation emails from Disney regarding the ADRs I've made. Did you save any of those? I'm sure if you call the number they can look it up by name/email or something. I'm planning to request a window table when we check in. I think the view will be neat (not sure if Phoebe will be able to see it but we should try!) and also it will make a nicer backdrop for photos with the royal gals. I know it's a not a portrait session but I can't stifle the photographer in me that wants the background clear of distractions.

Hi, My name is Amber...I saw you guys still have no primary DX...just wanted to hive big cyber-space ((((hugs)))), we have no DX for our son either, and honestly, I think sometimes THAT is the hardest part of his illness.

Hi Amber! Not having a name or knowing what to expect in the future was a really hard part for us in the beginning. We both did some grieving around her first year because it took that long for the reality to settle in, even though we still knew nothing of what the future held. With more time under our belts I feel more comfortable not knowing the future. I know my daughter and I know that whatever comes along is going to be okay. I do wish we could compare with others and have that feeling of what to expect but we've finally adapted to being without it.

Ok. Why am I panicing about Nicky's wish trip. What does CTR and ADR stand for??? Do we need to make our own dinner/show reservations or does Make a Wish do that?
We have family and friends that want to meet us down there, but they can't book their trip till we have our dates for sure and it sounds like that takes a while to get approved. Panicing.

I just wanted to make a note here that the ADRs in general are just "priority" seating, not necessarily a traditional reservation. You may still have to wait a little while to get a table. I believe it is the pre-paid meals that are actual reservations.

 

[kellyw8863]

I feel like I'm going to cry. As many of you know, we are scheduled to go on our MAW trip to GKTW on 4/17, but I haven't allowed myself to truly plan because we have been so scared that my daughter (3) had relapsed in her central nervous system (she has leukemia). She had a lumbar puncture (spinal tap) today, and her CSF was NORMAL!!!!! No leukemia blasts!!!! (She had an abnormal one the day before Thanksgiving, a year to the day she was diagnosed-- NOT a good day for us!).

I am absolutely wiped from holding the stress of all this inside, but once I get some rest, it's time to really start planning!!! Yay!!!!!! (Although the chemo she got today may make sleep an elusive dream for us this week.... But nonetheless, I'm so happy I could cry!)

Ann

I'm so happy for you guys! Plan away!!!!!!!!

Just wanted to pop on and say to all the newcomers to the thread!

 

[jen-y]

I posted my PTR
http://www.disboards.com/showthread.php?p=35468134#post35468134
but I am not sure where it is out there?????
(lol) I am not computer literate or experienced with DisBoard.
Also, I wanted to attach some pictures to my report, but under posting rules it says may not post attachments. Help please

 

[Momofwishkid]

I posted my PTR
http://www.disboards.com/showthread.php?p=35468134#post35468134
but I am not sure where it is out there?????
(lol) I am not computer literate or experienced with DisBoard.
Also, I wanted to attach some pictures to my report, but under posting rules it says may not post attachments. Help please

Hi Jen, Im going to check out your PTR right now just wanted to say you cant post pics until you have 10 posts written. There is a link on the first page of this thread just for posting those 10 posts. Your PTR should be under the main PTR category but Maroo will put your link here so we can all find you. You can also subscribe to the PTR's you want to follow so it's easier to find them.

 

[Mtopher4]

Jen.. just posted on your PTR

 

[Thumper321]

As most of you know, Aidan's wish trip is coming up quickly! We will be in Orlando the first week of March! If you have a trip coming up and would like for me to send a postcard from Disney, let me know. PM me with your kid(s) name(s), age(s), address, and trip date. Also, if your child has a favorite character, let me know and I'll try to get a card with their favorite. No promises, but I'll try. I can only do about 8 cards, so I will send them to the first ones to PM me.

 

[alaskanabbott]

I have a question for you guys.
My father who is very close to our family and is James' caregiver when we need respite or date night, etc, wants to pay his way to come with us. I think having another adult would be super, and he is so much apart of James' day to day life it is kind of second nature for him to be there. Do you know GKTW stance on this? Would he be able to saty in the room with us? He is happy to pay for his own park tickets, flight, food whatever.

 

[maroo]

I have a question for you guys.
My father who is very close to our family and is James' caregiver when we need respite or date night, etc, wants to pay his way to come with us. I think having another adult would be super, and he is so much apart of James' day to day life it is kind of second nature for him to be there. Do you know GKTW stance on this? Would he be able to saty in the room with us? He is happy to pay for his own park tickets, flight, food whatever.

There are two ways that MAW and GKTW handle this...

The first is to approve him as an official part of your wish. This is fairly rare and usually occurs if you have several medically needy children or a lot of young children, but each state is different and your state may let him go as an official person!

GKTW allows 7 people in each Villa...since you have 7 (right??) then GKTW would not allow him to stay with you guys. If you had fewer than 7, then GKTW generally allows an extra person to stay (generally) in the villa with the family.

But the person would be responsible for tickets, etc.