Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[my2girlsrock]

Please send a little prayer that we will get some pixie dust. I just called Sea World to see if Korissa can have a private session with the dolphins after the dophin show and also to see if we can get a discounted ticket for Ashlee. Waiting for a call back. I also called Universal Studios to see about a discounted tickets. They told me to write a letter and send it to them. The letter is going out today. I had no luck at Disney World though.

Praying for some magic to happen .....

 

[fulseasmama]

Hi Everyone...it is so nice to see new families introducing themselves on here and getting a chance to see them starting their trip planning for their magical trips. Welcome to all!!!

I just posted a long first attempt at an itinerary of sorts on my PTR (link below in my signature) and would welcome any suggestions to it. Also I noticed I really have no idea what to do about eating at Seaworld, Universal Studios or Universal Islands of Adventure. If anyone has good suggestions I would love them. Thanks in advance for all the help. You all Rock!

 

[Happy Dreams1]

I heard back from MAW yesterday! They just called to let me know that they received my HIPAA forms and were sending them on to the oncology office. They also asked about Elliot's siblings and for all of our contact numbers. Not much of a call, but it sure was exciting to see "Make A Wish" on my caller ID!

I started a PT Report Elliot's Wish Trip - the Premature Pre-Trip Report!

I was so excited when we got that call! You are totally right! It is exciting seeing "Make A Wish" on your caller ID.

 

[Happy Dreams1]

Well, yesterday I had bloods done to check my CA-125 (cancer antigen 125) levels and will recieve the results on Tuesday. Depending on the results, I will either have a laparoscopy done or not in a few weeks. The bloods went well, didn't hurt that much. The nurse was pretty nice and I saw a good-looking one. Oh, well, right now Im focused on school and finals next week- well final 'cus i just take one.
No word from MAW.
Hope everyone's ok
Pixie Dust and prayers to whomever needs it!

 

[brookerene]

Hi Happy, I hope your test results are on a positive note for you. My little boy, when he gets his labs drawn, says it tickles. He insists on a butterfly needle and when he gets it he's in a good mood. I hope your final goes well. Don't get too stressed about it, but just do your best, answer what you know and what you don't make your best guess or answer that you can! If you hear from MAW shout it! We want to know. Take care.

 

[Happy Dreams1]

Hi Happy, I hope your test results are on a positive note for you. My little boy, when he gets his labs drawn, says it tickles. He insists on a butterfly needle and when he gets it he's in a good mood. I hope your final goes well. Don't get too stressed about it, but just do your best, answer what you know and what you don't make your best guess or answer that you can! If you hear from MAW shout it! We want to know. Take care.

Thank you! I've never heard of any little child saying it "tickles"...that made me giggle a bit and it's better for him to say that than to say it hurts. I also insist on a butterfly needle even though I'm 15. Even my nurse agrees with me...my veins are just too thin for adult needles. They've tried to poke me with adult-sized needles and every single time, no blood would come out because the needle went past the vein('cus it's just too big!) Then, I would get poked a second time..also have difficulties with the butterfly needle but then in the end, some blood would come out. I remember when i was in hospital a couple years ago for pneumonia and was poked 5 times with a butterfly needle because no blood would come out. The blood finally came out when I was poked in the hand, not the arm. Im usually not good with needles. I don't like them at all but I never retract my arm away from a nurse.
I 'll do my best on my final! It's English...and my teacher is this very analytical person and he said that during the final, we'll have to write a five-paragraph essay concerning a topic on Fahrenheit 451...not looking foward to that. Im just glad I'm excused from the others.
Waiting for MAW to respond is not an easy task, but it is a rewarding one.

 

[cantwaittoseemickey]

Hi everyone. We just got back from using Ty's passport to go to Kennedy Space Center and also visited Magic Kingdom, DHS and we also went back for a visit to Give Kids The World. Ty did not want to leave GKTW. Melted my heart! We got to meet Pamela and Mattie and his siblings and family. It was quick (it was cold!) but really nice. I have pictures but need to download them.

The day before we left(last Thursday) we got a call from Childrens that they wanted to move Ty's bladder surgery sooner. So for now it is scheduled for January 25th. Alot sooner then March and I have so much to do. He will also need to go inpatient for about 3 days between now and then to do some other testing. I am quite nervous about it all but know God is walking along side us.

I will do a TR as soon as I get a chance to get started. We drove over 2000 miles and I am exhausted

I am praying for all who are waiting for their Wish to be granted as well as those who need pixie dust. I do read this thread quite a bit to keep up with the Wish Kids. Hugs to all

 

[brookerene]

Hi,
I'm glad that you are home and had a good trip. How was the Space Center? We are planning to go to the beach on our trip and have thought about swinging by there....
I hope you are able to get things ready for the surgery. Take care and I look forward to hearing more about your trip!

 

[Emilyswish]

Kaleah Ruffin Pre Trip report

Hi we're the Rufffin Family; Kim (mom), Jon (dad), Corrine(daughter), Alexis(daughter), Kaleah(wish child), Kalani(son)

I did a short pre trip report.(Because I kept procrastinating) We leave for GKTW on 12/21/10!!!!!
I have been so moved by all of the wonderful families here, I often think of and pray for the families.

Hi,
I have been procrastinating beginning our report but since our MAW trip is just about two weeks away I thought I should really get to it!
Our family characters are (me) Kim, DH Jon, DD Corrine 20 (junior at OSU GO BUCKS!), DD Alexis 13, DD Kaleah 3 Wish Child, DS Kalani 2.

Kaleah was 8 months old when she joined our family as our foster daughter. Her brother, Kalani joined us a few months later. They were both shaken babies, at four weeks old Kaleah had suffered several broken bones including a serious skull fracture and ribs; she was abused again at four months old. This time she had new brain bleeds and a fractured femur. Her doctors didn't think she would survive a week, but she's a fighter! She was diagnosed with microcephaly (her head circumference is smaller than normal due to her brain not growing normally from the head trauma), CP- spastic quadriplegia, cortical visual impairment, HTN, Seizures, and Dysphasia. She’s non verbal and has a Gastric/Jejunum feeding tube.
Her first prognosis was grim, the doctors said we would be lucky if she lived to be 4 or 5 years old, she’ll be 4 in April! She had constant seizures and episodes called brainstorming. She was so tiny and cried all the time, when we held her the crying often got worse. Any noise from a cough or sneeze would send her into a frenzy. She became over stimulated by touch, noise or lights. We wondered if we would be able to do anything that would calm her. One night she was crying and as usual nothing we were doing helped. A baby commercial came on and “Silent Night” was playing, she stopped crying instantly. The commercial went off and the crying began, we reversed the show and played it again...no tears! We began playing “silent night” and other Christmas Carols and she loved it!
Slowly we got to be able to hold her without it causing her to brainstorm. But her health was getting worse because she was getting pneumonia every month because she was a silently aspirating, even though we suctioned her by mouth and nose almost constantly. In November of 2008 she had a trach placed and that did wonders. She hasn’t had pneumonia since! In 2009 she started to have kidney problems, she had VUR, she wasn’t urinating well and the urine was backing up into her kidneys causing damage. She underwent treatment and now is straight cathed every 3-4 hours. They doctors wanted to do a procedure called a vesicostomy but we are trying to prevent it from happening, so far the cathing is working very well.
We are so blessed right now because as of November 20, 2010 the children were adopted and ours forever!
More soon…

Wow! Your daughter and mine have so much in common. Emily's medical issues come from a chromosome disorder, but she has CVI, kidney reflux, epilepsy, is non verbal, has a g-tube, and loves music too. We arrive at GKTW on 12/27 so maybe we will have a chance to meet up with you before you leave?

My name is Aimee and you can check out my PTR, the link is in my signature. Have a great trip!!!!




And to Tim, thanks so much for the tips!!! 45 minutes from the parking lot to MK?? Yikes.

 

[4monkeys]

we are on our way. will post sometime while we are.there. good luck and prayers to all that need them!

 

[Redwavess]

Hi all,

I'm new! I just joined last month, after lurking for awhile. I'm not sure how to insert a link, but if you would like to check out our thread it is in the Pre-Trip thread, titled Mallory Makes a Magical Wish - PTR.

So far we have dates, but no times!! We are going February 19th-25th!!

I need to get a rough draft of what to do on each day going. I'm going to try to avoid the Magic Kingdom on the actual President's Holiday... any other suggestions would be greatly appreciated!!

Thanks for reading!!

Madeline

 

[maroo]

Please send a little prayer that we will get some pixie dust. I just called Sea World to see if Korissa can have a private session with the dolphins after the dophin show and also to see if we can get a discounted ticket for Ashlee. Waiting for a call back. I also called Universal Studios to see about a discounted tickets. They told me to write a letter and send it to them. The letter is going out today. I had no luck at Disney World though.

Hopefully they will be able to help you with this...

It may be a long shot, though. I think all of those organizations give so many free tickets to GKTW and are unable to really verify that someone is on a wish trip - so they don't really do much in the way of discounted tickets most of the time.

When I was "negotiating" the "discount" for the PhotoPass CD, the lady I talked to said that Disney donates millions of dollars worth of tickets and goods to Give Kids the World each year.

You could get lucky, though! And it never hurts to ask!

As far as the dolphin thing...I bet they work something out on that.

Hi everyone. We just got back from using Ty's passport to go to Kennedy Space Center and also visited Magic Kingdom, DHS and we also went back for a visit to Give Kids The World. Ty did not want to leave GKTW. Melted my heart! We got to meet Pamela and Mattie and his siblings and family. It was quick (it was cold!) but really nice. I have pictures but need to download them.

The day before we left(last Thursday) we got a call from Childrens that they wanted to move Ty's bladder surgery sooner. So for now it is scheduled for January 25th. Alot sooner then March and I have so much to do. He will also need to go inpatient for about 3 days between now and then to do some other testing. I am quite nervous about it all but know God is walking along side us.

I will do a TR as soon as I get a chance to get started. We drove over 2000 miles and I am exhausted

I am praying for all who are waiting for their Wish to be granted as well as those who need pixie dust. I do read this thread quite a bit to keep up with the Wish Kids. Hugs to all

Would love to see the TR when you get started! Put a link over here so that we can follow along.

I hope the surgery goes well - I am glad they can do it sooner, but I am sure you will be busy getting everything together for it!

Don't you just love Mattie and family! They are so sweet! Christmas reminds me of their special night with the Gingerbread Men.

we are on our way. will post sometime while we are.there. good luck and prayers to all that need them!

 

[maroo]

We have two new wish trips linked on the first page!!!

jj0plin (Elliot) Wish Trip MAW/GKTW Dates TBA!!!

They are still waiting on dates, but jump right in!



Redwavess (Mallory) Wish Trip ??MAW/GKTW Feb 19-25, 2011

And Mallory! I was not sure if this was Make a Wish or another wish granting organization??

 

[my2girlsrock]

I am amazed by the amount of support & friendships that come from this board. I am still fairly new to it & trying to remember everyone's names & stories.

I just wanted to thank everyone for all the help that you already have given on my TR. We still have 3 months to go but I know once Christmas is over it is going to go sooooo fast & I will probably be posting some kind of question everyday, you will all be sick of me....

 

[tinytreasures]

I started Avy's pretrip report
I know it is early but I had a few mins this weekend to write it all out.
I will really need help picking out dates
she can't handle heat at all but we want it to be warm enough for her to be able to go swimming
We are thinking of Star Wars weekend but worried about the crowds. Will it be safe for her that weekend with so many big people around or will she knocked around at all?
She can't handle a hit to the head at all. So backpacks are a huge concern for her.

http://www.disboards.com/showthread.php?t=2613192

 

[Mom2mitokids]

We are down to 3 months!!!!

Much better than 7 months I started at.

 

[mjarecki]

I haven't forgotten about our trip report, just been so busy! We got back the week before Thanksgiving from Michael's trip and I've been so busy. Seems we all have come down with sinus infections and we've had numerous school and work functions. I'm hoping to get started on his trip report in the next couple of weeks.

 

[brookerene]

Mjerecki,
I was reading your PTR and have really enjoyed it...especially the photos of the Big Give. They are always fun to see! I see you left from Omaha.... did you go through NE MAW? We are too in April! So your schedule and times have given me ideas for ours! I'll be following along when you get your TR up here soon!
God Bless!
__________________

 

[that's nice]

And to Tim, thanks so much for the tips!!! 45 minutes from the parking lot to MK?? Yikes.

No problem!

we are on our way. will post sometime while we are.there. good luck and prayers to all that need them!

I hope you are having a great time!

When I was "negotiating" the "discount" for the PhotoPass CD, the lady I talked to said that Disney donates millions of dollars worth of tickets and goods to Give Kids the World each year.

Wow.... that is a lot of money!

I wish I was a fly on your wall during the negotiations!

I am amazed by the amount of support & friendships that come from this board. I am still fairly new to it & trying to remember everyone's names & stories.

I agree, there are so many wonderful people on these boards.. that's why I have stuck around for so long!

It takes a while to remember everyone so don't worry about that.

 

[hollie1974]

Hello all,
I just joined the board but have been reading it for awhile. Our daughter Lily was jsut recently approved for a wish from MAW and she wants Disney (yay!). I started a PTR (hope I did it right!!) if anyone is interested in reading it it's at http://www.disboards.com/showthread.php?t=2614191
Looking forward to getting to know you all and read your TR's!

Hollie