Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[katieb4]

Thank you for the welcome. I went back to the begining of this thread, and have now decided it is to huge to read all of! Unless we get stuck back in the hospital, which I hope doesn't happen. So, if I ask a question that's been asked tons....sorry!

One thing I've started to look for is a stroller. Now that we FINALLY have spring weather, we've been able to get out of the house and go on some walks. Gabbie sure can't make it far and our fold up umbrella stroller isn't cutting it. Sooo, stroller shopping we are going! Does anyone have any recomendations for a easy to push, fold up easily trasportable, longer handled stroller? Able to hold up to say, 50lbs?

second question.....are Disability trip reports in one particular area? Or are all the reports from the entire board? Thanks!

 

[Perrinsmommy]

Thank you for the welcome. I went back to the begining of this thread, and have now decided it is to huge to read all of! Unless we get stuck back in the hospital, which I hope doesn't happen. So, if I ask a question that's been asked tons....sorry!

One thing I've started to look for is a stroller. Now that we FINALLY have spring weather, we've been able to get out of the house and go on some walks. Gabbie sure can't make it far and our fold up umbrella stroller isn't cutting it. Sooo, stroller shopping we are going! Does anyone have any recomendations for a easy to push, fold up easily trasportable, longer handled stroller? Able to hold up to say, 50lbs?

second question.....are Disability trip reports in one particular area? Or are all the reports from the entire board? Thanks!

I have a Maclaren twin triumph that I love. I know the single folds easily and holds I believe 55 lbs

 

[wishin' on a star]

Look down to post #2 on the first page of this thread and all of the wish trip PTR's and trip reports are listed there!

 

[mom2pixies]

Some new pics of the girls to share on Miss B's thread below!

 

[mom2pixies]

I just heard from Make-a-Wish! The grantors are coming this weekend!!! FINALLY!!! Soooooooooooooooo excited!!! Brooke will be over the moon when I tell her!

 

[Perrinsmommy]

I just heard from Make-a-Wish! The grantors are coming this weekend!!! FINALLY!!! Soooooooooooooooo excited!!! Brooke will be over the moon when I tell her!

Yay!! Can't wait to hear!!

 

[wbh1964]

I just heard from Make-a-Wish! The grantors are coming this weekend!!! FINALLY!!! Soooooooooooooooo excited!!! Brooke will be over the moon when I tell her!

How long did it take for you to hear that the grantors were coming from when you recv'd that news that your child had been approved? We are just so excited and ready to start planning! We recv'd the approval letter 2 weeks ago and immediately sent back the preliminary paperwork...original grant letter said that we would be hearing from the grantor but didn't say when.
best wishes to your family!!!!...

 

[Owensheart]

Thank you for the welcome. I went back to the begining of this thread, and have now decided it is to huge to read all of! Unless we get stuck back in the hospital, which I hope doesn't happen. So, if I ask a question that's been asked tons....sorry!

One thing I've started to look for is a stroller. Now that we FINALLY have spring weather, we've been able to get out of the house and go on some walks. Gabbie sure can't make it far and our fold up umbrella stroller isn't cutting it. Sooo, stroller shopping we are going! Does anyone have any recomendations for a easy to push, fold up easily trasportable, longer handled stroller? Able to hold up to say, 50lbs?

second question.....are Disability trip reports in one particular area? Or are all the reports from the entire board? Thanks!

We just bought Owen a Baby Jogger City Select and I LOVE it! Weight limit is 75lbs and he has plenty of room to grow. He is 3 and only has 1/2 a heart so he tires easy and I needed something that can grow with him. We are ordering a special needs stroller through our insurance (more of an umbrella type stroller)...mclaren makes one and there is one called swifty...both go to 75lbs. Hope that helps.

 

[evsmama30]

I just heard from Make-a-Wish! The grantors are coming this weekend!!! FINALLY!!! Soooooooooooooooo excited!!! Brooke will be over the moon when I tell her!

YAY! YAY! YAY!!! i am over the moon for ya!!!

 

[EstherS]

I have a question for those here.

We were asked by a family member if we would be interested in being nominated for a Make a Wish.

The thing is my DD was dig with Epilepsy this past November, but it is suppose to be the kind she will out grow.

Now if I understand what I am reading about Make a Wish she wouldn't even qualify, because her's doesn't follow what is stated on the site.

We determine a child’s medical eligibility with the help of the treating physician. To receive a wish, the child must be diagnosed with a life-threatening medical condition – i.e., a progressive, degenerative or malignant condition that has placed the child’s life in jeopardy.

Am I correct in my thoughts? Not that I wouldn't mind my DD getting a special wish, especially after all she has endured in the last 6 months, but there are others who have been through so much more.

Thanks!

 

[angeque143]

i just heard from make-a-wish! The grantors are coming this weekend!!! Finally!!! Soooooooooooooooo excited!!! Brooke will be over the moon when i tell her!

wooo hooo!!!!!!!!

 

[angeque143]

I have a question for those here.

We were asked by a family member if we would be interested in being nominated for a Make a Wish.

The thing is my DD was dig with Epilepsy this past November, but it is suppose to be the kind she will out grow.

Now if I understand what I am reading about Make a Wish she wouldn't even qualify, because her's doesn't follow what is stated on the site.



Am I correct in my thoughts? Not that I wouldn't mind my DD getting a special wish, especially after all she has endured in the last 6 months, but there are others who have been through so much more.

Thanks!

I am not sure but it does not hurt to try...We thought that we would not qualify but we do so you never know!!

 

[sgarrity]

We have our meeting schedule with our wish granters for May 24th!!!!

Question: DeAnna is thinking that she might like to see Disney during Christmas. Does anyone know if that is possible?

 

[mom2pixies]

Yay!! Can't wait to hear!!

Thanks! We'll definitely have an update this weekend!

How long did it take for you to hear that the grantors were coming from when you recv'd that news that your child had been approved? We are just so excited and ready to start planning! We recv'd the approval letter 2 weeks ago and immediately sent back the preliminary paperwork...original grant letter said that we would be hearing from the grantor but didn't say when.
best wishes to your family!!!!...

I'd love to say it only took a couple of weeks but from the time we submitted the paperwork till we heard back (and I was actually the one to contact them because I hadn't heard back yet) it was over 9 weeks, I think. Definitely takes time. We referred in January, got in touch immediately, then heard that she had been approved in early February, then submitted paperwork on Feb. 25th--and didn't hear back until April 29th (after I sent an e-mail). Since then, things have progressed quite quickly and we meet with the volunteers this weekend.

If after a month and a bit and you haven't heard anything, I'd give 'em a call, just to inquire. Certainly didn't hurt us!

Good luck to you!

YAY! YAY! YAY!!! i am over the moon for ya!!!

I know---my mind is all a flutter with questions to ask! Could definitely use some suggestions. If you have any, please drop me a line on our PTR below!

wooo hooo!!!!!!!!

Double wooo hooo!!! Woooo hoooo!!!!

We have our meeting schedule with our wish granters for May 24th!!!!

Question: DeAnna is thinking that she might like to see Disney during Christmas. Does anyone know if that is possible?

We finally got our wish visit meeting, too! Yeah!!!

I'd say: Totally possible! You might have to use some of your expense cheque to pay for the extra Mickey Christmas party tix if you want to attend those separate park events, but I think it's totally doable to go at Xmas time! It's so beautiful then, too--decorations, concerts, the special parades and shows....good choice, DeAnna!!

 

[billwendy]

We have our meeting schedule with our wish granters for May 24th!!!!

Question: DeAnna is thinking that she might like to see Disney during Christmas. Does anyone know if that is possible?

OOOOhhh, I LOVE Disney at Christmas time - are you thinking actual Christmas, or can you go a few weeks before? Although you'll have the magic button, its just so nice to be there when it isnt as crowded - but it is BEAUTIFUL!! Can you ask if they will include Mickey's Very Merry Christmas Party Tickets as part of her wish??? ITs a LOT of fun, and a good way to get an extra day in the parks cause you can get in at 4pm!!

 

[chelleydi77]

I just heard from Make-a-Wish! The grantors are coming this weekend!!! FINALLY!!! Soooooooooooooooo excited!!! Brooke will be over the moon when I tell her!

That's awesome news!!! I can't wait to hear all about it!!

How long did it take for you to hear that the grantors were coming from when you recv'd that news that your child had been approved? We are just so excited and ready to start planning! We recv'd the approval letter 2 weeks ago and immediately sent back the preliminary paperwork...original grant letter said that we would be hearing from the grantor but didn't say when.
best wishes to your family!!!!...

It took us just over a month to hear we were approved for a wish until our wish granters came

We have our meeting schedule with our wish granters for May 24th!!!!

Question: DeAnna is thinking that she might like to see Disney during Christmas. Does anyone know if that is possible?

So jealous, how fun would that be!

 

[SueM in MN]

I have a question for those here.

We were asked by a family member if we would be interested in being nominated for a Make a Wish.

The thing is my DD was dig with Epilepsy this past November, but it is suppose to be the kind she will out grow.

Now if I understand what I am reading about Make a Wish she wouldn't even qualify, because her's doesn't follow what is stated on the site.



Am I correct in my thoughts? Not that I wouldn't mind my DD getting a special wish, especially after all she has endured in the last 6 months, but there are others who have been through so much more.

Thanks!

You might want to ask her doctors about it, since the doctor has to discuss your child’s situation with Make a Wish and certify that the child meets the requirements.
The guidelines are pretty broad, so many children do qualify even though they may not have conditions that are immediately life threatening.

 

[maroo]

I have a question for those here.

We were asked by a family member if we would be interested in being nominated for a Make a Wish.

The thing is my DD was dig with Epilepsy this past November, but it is suppose to be the kind she will out grow.

Now if I understand what I am reading about Make a Wish she wouldn't even qualify, because her's doesn't follow what is stated on the site.



Am I correct in my thoughts? Not that I wouldn't mind my DD getting a special wish, especially after all she has endured in the last 6 months, but there are others who have been through so much more.

Thanks!

I totally agree with Sue on this...ask her doctor.

There are other organizations, too, that grant wishes to children dealing with chronic illnesses - some are listed on the first post of this thread...that may be able to help with this, too!

 

[EstherS]

Thanks Everyone!

 

[evsmama30]

OOOOhhh, I LOVE Disney at Christmas time - are you thinking actual Christmas, or can you go a few weeks before? Although you'll have the magic button, its just so nice to be there when it isnt as crowded - but it is BEAUTIFUL!! Can you ask if they will include Mickey's Very Merry Christmas Party Tickets as part of her wish??? ITs a LOT of fun, and a good way to get an extra day in the parks cause you can get in at 4pm!!

i second that, wendy! when i used to be married, we went on two seperate occasions during the week right after thankisgiving, and it was perfect! great weather, christmas spirit, and even without a "magic pass", iroade space mountain with no wait. and the christmas party is going on too. yay for getting a wish!!!!!