Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[Synovial]

Preston went to see his surgeon yesterday. He has to go every 2 months to check on the growth plate in his leg. He had radiation therapy on his leg in
April. The doctors said the radiation would more than likely stop 80% of the growing in that leg, so they keep doing x-rays to check on it. The one he had yesterday showed that his growth plate is still open. The doctor seemed rather shocked. As long as it stays open his leg will continue growing. He said there is a slim chance it will stay open. We are keeping our fingers crossed. Synovial

 

[newdrama12]

Thank you so much! My mom is just panicking about the driving over there and she wanted to know this! How do we go about arranging this? Should my mom just tell MAW and they handle it?

I would guess that she would have to tell MAW and they should handle it for her.

 

[newdrama12]

My son Preston is 12 years old and he has Synovial Cell Sarcoma. He really wants to go to Disney for his Make a Wish. He would really like to stay at the Contemporary at Disney, but I don't know if that is possible. Synovial

With Make A Wish, anything is possible. Some MAW families are still able to experience everything that GKTW has to offer, even though they are staying offsite at one of the Disney hotels or the Nick Hotel. SO anything is possible, if that is his wish, i say go for it!

 

[mysevendwarfs]

Yes, they do have ice cream for those who have to avoid nut cross contamination and no you don't need to notify GKTW.

Thanks I had a feeling that this is something I didn't have to worry about

 

[Happy Dreams1]

Can I specify the month I want to go as part of my wish "statement?" Is that sort of a loophole?

 

[wishin' on a star]

My son Preston is 12 years old and he has Synovial Cell Sarcoma. He really wants to go to Disney for his Make a Wish. He would really like to stay at the Contemporary at Disney, but I don't know if that is possible. Synovial

I think he needs to wish for what he really wants, to stay at the Contemporary. MAW will work with you to do the best they can to honor his wish if it's possible. Each chapter handles things differently, but I say go for it, if Preston wants the Contemporary, then he should wish for that!

I think there were a couple of families on here in the past year who stayed on Disney property instead of GKTW...one stayed at the Wilderness Lodge and the other stayed at the Grand Floridian. I believe I remember that for both of these, they had to attend orientation at GKTW to get their park tickets, and received the "magic GKTW button" and all of the perks of GKTW, but their accomodations were on Disney property.

 

[Happy Dreams1]

My son Preston is 12 years old and he has Synovial Cell Sarcoma. He really wants to go to Disney for his Make a Wish. He would really like to stay at the Contemporary at Disney, but I don't know if that is possible. Synovial

I don't really know , but maybe he can make it as part of his wish sentence.

 

[chelleydi77]

Can I specify the month I want to go as part of my wish "statement?" Is that sort of a loophole?

yes you absolutely can! We requested August for our trip and will be going at the end of August!

 

[Happy Dreams1]

yes you absolutely can! We requested August for our trip and will be going at the end of August!

Thank you! But is it possible to go this July?

 

[chelleydi77]

Thank you! But is it possible to go this July?

I answered your PM but you would have to ask your Wish Granters! I've learned to never say never when it comes to MAW!

 

[chelleydi77]

More Mickey mail today via Beth from the Big Give!! Come check it out!

 

[Happy Dreams1]

I answered your PM but you would have to ask your Wish Granters! I've learned to never say never when it comes to MAW!

Thanks! I replied. I'll just put it as part of my wish. You're right. Everything is possible. Another Wish family told me that all they have to do is make some calls and arrange boarding tickets. Shouldn't take them more than 2-3 weeks.

 

[katieb4]

I just have to say, I'm very glad I found these boards. When dealing with illness all day, it is just FUN to come here and read excitment in posts from people who are also dealing with illness....and just get that. Its becoming a rountine here...coming and reading for awhile waiting for clock to go by so I can give last med of the day and go to bed. Thank you for sharing your stories!

 

[Synovial]

I would just like to say I hope everyone is doing well tonight and I really, really appreciate all the help from everyone. I am new to this sort of thing. I am really terrible when it comes to operating computers, but I am trying to do my best with it. Preston's wish granters are coming tomorrow and he is very, very, very excited!!!!!! Synovial

 

[evsmama30]

updated our TR today...come check it out

 

[Manymosi]

I think there were a couple of families on here in the past year who stayed on Disney property instead of GKTW...one stayed at the Wilderness Lodge and the other stayed at the Grand Floridian. I believe I remember that for both of these, they had to attend orientation at GKTW to get their park tickets, and received the "magic GKTW button" and all of the perks of GKTW, but their accomodations were on Disney property.

We are the ones that stayed at Wilderness Lodge. You are correct about having to attend orientation etc. It was worth it though.
Our chapter apparently did have to pull a few strings to get us to stay at the Lodge, it took quite a while before we had confirmation.

 

[disneymommy78]

I just have to say, I'm very glad I found these boards. When dealing with illness all day, it is just FUN to come here and read excitment in posts from people who are also dealing with illness....and just get that. Its becoming a rountine here...coming and reading for awhile waiting for clock to go by so I can give last med of the day and go to bed. Thank you for sharing your stories!

I completely agree!

It's a nice way to unwind a bit after the end of dealing with steroid withdrawal, nausea/pain, etc.

Looking forward to April...

 

[Happy Dreams1]

Meeting with the MAW wish granters in 2 days!

 

[Em'swish]

I could not wait and I started our PTR! http://www.disboards.com/showthread.php?t=2743297

I hope I did it right!

Melissa
Mom to Emily (wish kiddo) and Abby (best little sister)
http://www.caringbridge.org/visit/emilywallace

 

[xanphylus]

I would just like to say I hope everyone is doing well tonight and I really, really appreciate all the help from everyone. I am new to this sort of thing. I am really terrible when it comes to operating computers, but I am trying to do my best with it. Preston's wish granters are coming tomorrow and he is very, very, very excited!!!!!! Synovial

How did the wish granting go?!?!

I could not wait and I started our PTR! http://www.disboards.com/showthread.php?t=2743297

I hope I did it right!

Melissa
Mom to Emily (wish kiddo) and Abby (best little sister)
http://www.caringbridge.org/visit/emilywallace

Great job! Subbed and can't wait to read more as you plan!