Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[LittleEsmom]

Wow, I can't believe we are almost to the 1 month mark for Emma's trip! it can't get here soon enough.... Emma has been wearing her brace for over a week now and is up to 12 hrs a day. I am so proud of her. She hardly ever complains now except for it being itchy. Her teacher had a talk with the class the day she was out getting it. She says everyone LOVES her brace Hope everyone has a wonderful weekend

 

[angel's momma]

Thanks so much, I took her to the doctors today, she has an ear infection & maybe a virus. They gave her antibotics, will go back for a recheck in two weeks, we will be able to take the trip if everything is clear on recheck. We have only 15 days until we leave.
Thanks for the prayers, keeping the faith!!

Continued prayers. Am I understanding right - you won't know until the day before you leave?

Wow, I can't believe we are almost to the 1 month mark for Emma's trip! it can't get here soon enough.... Emma has been wearing her brace for over a week now and is up to 12 hrs a day. I am so proud of her. She hardly ever complains now except for it being itchy. Her teacher had a talk with the class the day she was out getting it. She says everyone LOVES her brace Hope everyone has a wonderful weekend

So glad she is doing well with the brace, and how wonderful that the class is supportive.

 

[Sheri21596]

Yesterday was a long day...

Kara will be having surgery on the 20th to place a port in her chest, for a cycle of oral chemo and IV for at least a year. My husband and I have no idea what to expect Is there anyone else who has gone through this? Any advice???

Looking very forward to tomorrow though! Kara's "wish friends" are coming!

 

[JWCJ]

Yesterday was a long day...

Kara will be having surgery on the 20th to place a port in her chest, for a cycle of oral chemo and IV for at least a year. My husband and I have no idea what to expect Is there anyone else who has gone through this? Any advice???

Looking very forward to tomorrow though! Kara's "wish friends" are coming!

Ja has an IVAD. It's a small port - looks kind of like a doorbell with a rubber ball in the middle. It is completely under the skin. When Ja needs bloodwork or chemo, they poke a small needle into the rubber ball (so through her skin, but we use numbing cream). Ja didn't like it the first couple of times, but with a routine and talking through the process, she is a rock star at it.
The IVAD is great because there is no maintenance and Ja can still do things like swimming.

When they place the IVAD there will be a small scar on her chest where they place the lump, and a small scar up by her collarbone.

Hope that helps! Let me know if you have any other questions. The port really makes things easier!

 

[angel's momma]

Yesterday was a long day...

Kara will be having surgery on the 20th to place a port in her chest, for a cycle of oral chemo and IV for at least a year. My husband and I have no idea what to expect Is there anyone else who has gone through this? Any advice???

Looking very forward to tomorrow though! Kara's "wish friends" are coming!

Yay for tomorrow Sorry yesterday was a long day Praying for Kara's upcoming surgery. Jo did a wonderful job explaining the port. We had some staff use the terms port/line interchangeably, when they are not at all the same. Is Kara definitely getting a port? Angel had a line.

 

[OhanaDreams]

Only a few hrs left till we leave for the airport. Can't wait Buglet is so excited.

 

[JWCJ]

only a few hrs left till we leave for the airport. Can't wait buglet is so excited.

have fun!!!!!!!

 

[krystle]

Tomorrow I get to tell my little man. I'm so excited that I almost can't contain it lol. I made him a link that so every day he can take a link off maybe stop some of the when and it is time yet. 7 more days left.

 

[angel's momma]

Only a few hrs left till we leave for the airport. Can't wait Buglet is so excited.

Yay!! Have a wonderful trip! Can't wait to read about it.

Tomorrow I get to tell my little man. I'm so excited that I almost can't contain it lol. I made him a link that so every day he can take a link off maybe stop some of the when and it is time yet. 7 more days left.

Yay!

 

[mydisneyanytime]

I was just able to add pictures to our PTR for Tycen's MAW trip in July!! I want to add it in my signature so that everyone can find the trip. I have tried to follow the instructions for adding it but keep doing something wrong. Anyone out there that can walk me through it ...slowly....? I was proud of myself for just getting the pictures of my kids up!!!

 

[Lilfoot93]

I have been so busy the last couple days and haven't had a chance to get on here and the boards are moving so fast it is hard to keep up!!

This morning was unbelieveable!! The boys were totally surprised and a little shy at first. I figured we would only be at the radio station 30 min or so and we were there 1 1/2 hrs. It was so much fun to talk and see how things work! Carter is really excited for his MAW cruise. I will post more pics from today on his PTR!

He is a pic of all of us in the studio after granting Carter's wish.
left to right: Matt(DJ), Me, Hubby, Carter, Kylie(MAW), Austyn, Makayla(wish granter), Sara(wish granter), Missy(MAW), & Lindsey(DJ)

That is wonderful!! What a great way to find out you get your wish!

I think that I figured the pictures out!! but I am having issues trying to upload facebook photos because I take most pictures with my phone.
Here is my little Kara...I love her smile and everyone says she looks like a little me

Jackie - I am super excited about Trevors wish! My oldest son is a huge Star Wars fan and I took him to all the newer movies when he was younger. I really hope your Kara is doing well with her ear I showed my Kara some pictures of your crew and she thinks they are "sweet" (a saying she learned from scooby doo - another favorite).

Im a little nervous for tomorrow when they start Kara on chemo... not sure what to expect. I will try to pull Kara away from her obsession with coloring and for all of us to get some sleep. Thanks againfor such a great welcome!

Your Kara is adorable!! My Kara is doing well right now... We will see how well she is doing when she finds out surgery number 2 will be this summer... Hopefully she handles it as well as she did the first one!

Praying for sweet Kara.

We are so excited we leave Sunday 5 am for GKTW...however, we are expecting snow storm yommorrow-- keeping my fingers crossed

Jo terry Anna Sarh and Mike

Have a wonderful time and I can't wait to hear all about it when you get back!

Thanks so much, I took her to the doctors today, she has an ear infection & maybe a virus. They gave her antibotics, will go back for a recheck in two weeks, we will be able to take the trip if everything is clear on recheck. We have only 15 days until we leave.
Thanks for the prayers, keeping the faith!!

Praying that she will be healed and ready to go back to Disney World!

I called GKTW earlier and talked to them. It looks like there's a possibility. . I have to email them our custody papers but she said she thinks it might be able to be approved. I sure hope so. I think it'll be a while before we find out though.

Kristy

I sure hope they can work something out!

Wow, I can't believe we are almost to the 1 month mark for Emma's trip! it can't get here soon enough.... Emma has been wearing her brace for over a week now and is up to 12 hrs a day. I am so proud of her. She hardly ever complains now except for it being itchy. Her teacher had a talk with the class the day she was out getting it. She says everyone LOVES her brace Hope everyone has a wonderful weekend

I'm glad Emma is doing well with her brace. It is getting SO close!

Yesterday was a long day...

Kara will be having surgery on the 20th to place a port in her chest, for a cycle of oral chemo and IV for at least a year. My husband and I have no idea what to expect Is there anyone else who has gone through this? Any advice???

Looking very forward to tomorrow though! Kara's "wish friends" are coming!

Praying for sweet Kara for her upcoming surgery. Yay for "wish friends"!! I can't wait to hear her official wish!

Only a few hrs left till we leave for the airport. Can't wait Buglet is so excited.

Have fun!!

Tomorrow I get to tell my little man. I'm so excited that I almost can't contain it lol. I made him a link that so every day he can take a link off maybe stop some of the when and it is time yet. 7 more days left.

How exciting!! The countdown has begun!!

Jackie

 

[Somer]

Hi everyone! It’s been a long time since I’ve been on this board. I’m sure no one remembers us, lol but I just took a little trip back in time and read some TRs from around the time of our wish trip Brings back memories...

My daughter Jozlynn had her wish trip Oct 2009, and now we’re planning on going back!!! We are all so excited We had an amazing time on the wish trip so there’s no topping that, but it will be fun to go back to see GKTW and maybe we can go visit Jozlynn’s star. We will be heading back Mid June, after school lets out for the summer. I’m a little nervous about how the weather will be…maybe hot and rainy? Jozlynn is a BIG girl now! Can you believe she is EIGHT years old?!? Her little sister is now 6yrs, so she’s big enough to go on most of the rides now.
Anyways, just wanted to say Hi. If anyone has any links to TRs for return wish trips (after their original wish trip) or wish/return trips dealing with oxygen, I would love to read them!

 

[angel's momma]

I was just able to add pictures to our PTR for Tycen's MAW trip in July!! I want to add it in my signature so that everyone can find the trip. I have tried to follow the instructions for adding it but keep doing something wrong. Anyone out there that can walk me through it ...slowly....? I was proud of myself for just getting the pictures of my kids up!!!

Here's a different link to try http://www.disboards.com/showpost.php?p=39740701&postcount=471

Yay for posting the pics

Hi everyone! It’s been a long time since I’ve been on this board. I’m sure no one remembers us, lol but I just took a little trip back in time and read some TRs from around the time of our wish trip Brings back memories...

My daughter Jozlynn had her wish trip Oct 2009, and now we’re planning on going back!!! We are all so excited We had an amazing time on the wish trip so there’s no topping that, but it will be fun to go back to see GKTW and maybe we can go visit Jozlynn’s star. We will be heading back Mid June, after school lets out for the summer. I’m a little nervous about how the weather will be…maybe hot and rainy? Jozlynn is a BIG girl now! Can you believe she is EIGHT years old?!? Her little sister is now 6yrs, so she’s big enough to go on most of the rides now.
Anyways, just wanted to say Hi. If anyone has any links to TRs for return wish trips (after their original wish trip) or wish/return trips dealing with oxygen, I would love to read them!

Wonderful that you're going back

 

[Lilfoot93]

Hi everyone! It’s been a long time since I’ve been on this board. I’m sure no one remembers us, lol but I just took a little trip back in time and read some TRs from around the time of our wish trip Brings back memories...

My daughter Jozlynn had her wish trip Oct 2009, and now we’re planning on going back!!! We are all so excited We had an amazing time on the wish trip so there’s no topping that, but it will be fun to go back to see GKTW and maybe we can go visit Jozlynn’s star. We will be heading back Mid June, after school lets out for the summer. I’m a little nervous about how the weather will be…maybe hot and rainy? Jozlynn is a BIG girl now! Can you believe she is EIGHT years old?!? Her little sister is now 6yrs, so she’s big enough to go on most of the rides now.
Anyways, just wanted to say Hi. If anyone has any links to TRs for return wish trips (after their original wish trip) or wish/return trips dealing with oxygen, I would love to read them!

That is great you are going back!! My son Trev is 7 and has PA/IVS also. We go on his wish trip in June a month before his 8th birthday. I'm kinda nervous about the hot weather too!

Jackie

 

[krystle]

hey yall we had james reveal party last night he is so excited. still has a smile on his face this morning ill try to link the new footage on here so yall can see. this is such an amazing oppurnity (didn't spell that right) for our kids and im so happy that all of us get to do it for our kids. just to let them be a kids for a week and not have to worry what the nest doctor visit holds. my husband was camera shy but ill try to link them.
http://nwahomepage.com/fulltext/?nxd_id=403932
http://5newsonline.com/2013/02/10/fayetteville-boy-is-granted-his-greatest-wish/

 

[Kktraylor]

hey yall we had james reveal party last night he is so excited. still has a smile on his face this morning ill try to link the new footage on here so yall can see. this is such an amazing oppurnity (didn't spell that right) for our kids and im so happy that all of us get to do it for our kids. just to let them be a kids for a week and not have to worry what the nest doctor visit holds. my husband was camera shy but ill try to link them.
http://nwahomepage.com/fulltext/?nxd_id=403932
http://5newsonline.com/2013/02/10/fayetteville-boy-is-granted-his-greatest-wish/

Awesome!

 

[JWCJ]

hey yall we had james reveal party last night he is so excited. still has a smile on his face this morning ill try to link the new footage on here so yall can see. this is such an amazing oppurnity (didn't spell that right) for our kids and im so happy that all of us get to do it for our kids. just to let them be a kids for a week and not have to worry what the nest doctor visit holds. my husband was camera shy but ill try to link them.
http://nwahomepage.com/fulltext/?nxd_id=403932
http://5newsonline.com/2013/02/10/fayetteville-boy-is-granted-his-greatest-wish/

You guys are going to have a great week Glad to hear the reveal party was so much fun!

 

[that's nice]

Yesterday was a long day...

Kara will be having surgery on the 20th to place a port in her chest, for a cycle of oral chemo and IV for at least a year. My husband and I have no idea what to expect Is there anyone else who has gone through this? Any advice???

Looking very forward to tomorrow though! Kara's "wish friends" are coming!

My daughter was 1 when her port was placed. She used to fight accessing but got better with time. We also used numbing cream. Since her port has been removed, she has had normal blood draws. She is 6 now and she sits there and lets them do it with no fighting.

I'm sure at first it will be uncomfortable but she will get 'used' to it.

 

[Somer]

hey yall we had james reveal party last night he is so excited. still has a smile on his face this morning ill try to link the new footage on here so yall can see. this is such an amazing oppurnity (didn't spell that right) for our kids and im so happy that all of us get to do it for our kids. just to let them be a kids for a week and not have to worry what the nest doctor visit holds. my husband was camera shy but ill try to link them.
http://nwahomepage.com/fulltext/?nxd_id=403932
http://5newsonline.com/2013/02/10/fayetteville-boy-is-granted-his-greatest-wish/

Congratualtions! Loved the videos!

 

[2012bella13]

@angelsmomma, Brook is doing great, her fever is gone, she ran one into friday night but has not had one since, Thank the Lord-Faith, is works wonders!
She will go for a recheck the Monday before we leave, the doctor told me that she felt sure that everything will be a go, but just wants to check her before we travel to Florida. I do not know if they will want to do blood work or not since her labs was good 3 days before she had her fever, I guess we will see.
She has allergies too,, she sneezes alot but they do not want to give her anything like Allegra because of her liver, so she takes Benedryl as needed.

Thanks for the prayers!!