Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[KaylaM]

Yay for no lukemia! We went through a brain tumor care (one of many medical debacles that I try not to think about!) It was definately one of the lowest points in our journey.

We had the meeting with the wish granters and heard back that she got her wish for Disney World. Waiting to hear on dates but shooting for January because she really can't handle heat. I am kind of kicking myself because my kids both really want to stay at GKTW and we didn't make it part of our wish so I am worried they will put us up somewhere different which will be a letdown for both my kids I think.

Looking forward to getting to know everyone!

When we choose Disney World, we could only stay at GKTW. I was wanting to stay closer to the parks so we wouldn't have to do the shuttle / car thing, but they said, no, every wish child stays at GKTW and you won't regret it! So, I sure hope your chapter works the same way. I would ask just to make sure to put your mind at ease.

Good luck!

 

[KaylaM]

This Thursday will be Alyssa's send-off party from Make-A-Wish and also marks 1 year in remission. No better way to celebrate! We leave on Saturday and I'm trying to get all of our last minute packing done.

That is AWESOME!!! Have a WONDERFUL trip.

 

[KaylaM]

We just received the welcome brochure from GKTW today, so I went on the website to the family area and saw the advertisement for ICE. Never heard of it til now. As soon as I saw the advertisement, I thought, "my daughter would love to see this. How awesome would that be". Reading a few lines into how when to book, it said, "dress appropriately for 9 degree temperatures in ICE". Then it gave details on how to dress, how they hand out coats, etc. I thought, even with appropriate clothing, my daughter still couldn't handle that and how uncomfortable that would be for her to sit through bundled up. Yes, I can see how fun that would be, but not for my daughter. So, now I am disappointed we can't see it.

Sorry to vent!! I just really dislike when I come across something that I know my daughter would love, but then we hit a brick wall that makes her not be able to see/do.

 

[yeti5353]

Even though my daughter loves my mom, I decided that it was best for my daughter if it was just her and I. That way I could focus completely on her and not worry about my mom and

I really want to plan everything or at least have a list so my daughter doesn't miss anything at all. I am trying to treat this as a once in a lifetime trip, but am getting no where with the planning. LOL! Not knowing everything makes it really tough to.

!!

I did not take my mom or another adult for the same sort of reasons.

I urge you to plan so you know what the menu of options is, understand them thouroughly AND then go with the flow and pick and let go of stuff as you have fun. Pick a couple must dos and then enjoy the shoulds, ought tos and let go when something else catches your attention.

 

[NEmel]

WOW so many of you are going on your trips soon! Hope everyone has a blast! Here is one of the many shirts I am making for Carter! Don't mind the stain, he left a little lunch behind!

 

[aym4Him]

Among the zillions of thoughts thru my head, I'm wondering if we should take our stroller or just use the ones provided by the parks? Does every park have stroller rentals? The only reasons I'm hesitant are: 1. after the we leave, getting him to the car (or to the park when we arrive- he is fully ambulatory but will ask to be carried, especially in unfamiliar situations) 2. we will extend our trip and, from what I understand, we are completely on our own- so we'd have to pay for a stroller the rest of the time.

With David's setback, the tension from the election and in my house and then trying to get ready for Disney....wow...I'm emotionally wiped out! Silly things like my computer freezing while I'm trying to upload photos (to clear my memory cards for the trip) and then Shutterfly not uploading what I need it to have set me into a tizzy of tears! Goodness gracious! I'm going to be a mess by the time we land in Orlando .

Oh, and some of the pix that won't upload are from E's send off party!!!! GRRRRR...It keeps saying it's an invalid file type. They are all .jpgs! Really, computer? Really??? I need a new Mac.....

 

[aym4Him]

WOW so many of you are going on your trips soon! Hope everyone has a blast! Here is one of the many shirts I am making for Carter! Don't mind the stain, he left a little lunch behind!

I love that shirt!! It's fantastic!!!

I wish our Wish shirts weren't white (for many reasons!). I just discovered that MAW sells blue shirts via their online store (amongst some other cool things like luggage tags, etc). I called to check on shipping times and it's 5 business days. Bummmmmmer. Expedited shipping is $89! Yowza! The blue shirts are pretty, though. For those of you going later...you might want to check into it!

 

[angel's momma]

NEmel - Love the shirt

With David's setback, the tension from the election and in my house and then trying to get ready for Disney....wow...I'm emotionally wiped out! Silly things like my computer freezing while I'm trying to upload photos (to clear my memory cards for the trip) and then Shutterfly not uploading what I need it to have set me into a tizzy of tears! Goodness gracious! I'm going to be a mess by the time we land in Orlando .

I wish our Wish shirts weren't white (for many reasons!). I just discovered that MAW sells blue shirts via their online store (amongst some other cool things like luggage tags, etc). I called to check on shipping times and it's 5 business days. Bummmmmmer. Expedited shipping is $89! Yowza! The blue shirts are pretty, though. For those of you going later...you might want to check into it!

I agree about the white shirts. Thanks for the info - I'll check out the site.

 

[Lilfoot93]

WOW so many of you are going on your trips soon! Hope everyone has a blast! Here is one of the many shirts I am making for Carter! Don't mind the stain, he left a little lunch behind!

LOVE it!!

Jackie

 

[NEmel]

Among the zillions of thoughts thru my head, I'm wondering if we should take our stroller or just use the ones provided by the parks? Does every park have stroller rentals? The only reasons I'm hesitant are: 1. after the we leave, getting him to the car (or to the park when we arrive- he is fully ambulatory but will ask to be carried, especially in unfamiliar situations) 2. we will extend our trip and, from what I understand, we are completely on our own- so we'd have to pay for a stroller the rest of the time.

With David's setback, the tension from the election and in my house and then trying to get ready for Disney....wow...I'm emotionally wiped out! Silly things like my computer freezing while I'm trying to upload photos (to clear my memory cards for the trip) and then Shutterfly not uploading what I need it to have set me into a tizzy of tears! Goodness gracious! I'm going to be a mess by the time we land in Orlando :rolleye
Oh, and some of the pix that won't upload are from E's send off party!!!! GRRRRR...It keeps saying it's an invalid file type. They are all .jpgs! Really, computer? Really??? I need a new Mac.....

Take a stroller!! We went to Disney 2 yrs ago and Carter was 5 it was hard to find a small one for him to fit in but so worth it! His legs get tired easily and I knew I didn't want to carry him. There is a lot of walking. I saw that the MAW site does have some cool things, might have to order. I cheated on his shirt, my parents own a sewing store! lol

 

[carebearkidney]

NEmel - I love the shirt too! Very cool.

As for future reference of MAW shirt colors - I vote for brown. It's the color of dirt and chocolate... two things my boys are covered in quite a bit.

 

[Emmaswishtrip]

Among the zillions of thoughts thru my head, I'm wondering if we should take our stroller or just use the ones provided by the parks? Does every park have stroller rentals? The only reasons I'm hesitant are: 1. after the we leave, getting him to the car (or to the park when we arrive- he is fully ambulatory but will ask to be carried, especially in unfamiliar situations) 2. we will extend our trip and, from what I understand, we are completely on our own- so we'd have to pay for a stroller the rest of the time.

We asked our MAW for one. I first offered to use our money they provide us and emailed the link I was going to rent from. Kingdom strollers I think was the company and it will be at gktw when we get there. All we have to do is make it through the airport without a stroller!

 

[Nevada Jen]

Having been to disney before, I would reccomend taking a cheap umbrella stroller. If nothing else, the walk leaving the parks can get really long with a tired kid! I seem to remember that we could check our wheel chair stroller when we rented at Disney. You may still be able to do that. I would get a rental from Disney when you are actually in the parks. If nothing else, its a good way to schelp around all your gear.

I sucked it up and emailed our wish granters to ask where we are staying. I really don't want to come off entitled and feel bad asking for anything from them, so I hope I worded my email correctly!

 

[NEmel]

NEmel - I love the shirt too! Very cool.

As for future reference of MAW shirt colors - I vote for brown. It's the color of dirt and chocolate... two things my boys are covered in quite a bit.

I agree!! Boys are messy!

 

[yeti5353]

Among the zillions of thoughts thru my head, I'm wondering if we should take our stroller or just use the ones provided by the parks? Does every park have stroller rentals? The only reasons I'm hesitant are: 1. after the we leave, getting him to the car (or to the park when we arrive- he is fully ambulatory but will ask to be carried, especially in unfamiliar situations) 2. we will extend our trip and, from what I understand, we are completely on our own- so we'd have to pay for a stroller the rest of the time.

take a stroller so you dont have to wait in lines to get one and have it at the resorts, parking lot etc. get it tagged as a wheel chair at the first part you visit and you can take it where strollers are not allowed.

I am so greatful I listened to folks here and had make a wish get us a wheel chair even though we do not use one at home. it made the trip so much easier and at times it would not have been possible to go on without it. dont under estimate how tiring it is to be there. the sensory overload alone is tremendous.

 

[nuts4wdw]

Tomorrow the wish granters come over to talk to us about Prescott's wish! I found out today that the doctor that signed off on Prescotts medical form used to be a wish granter. i thought that was cool. So excited!!!

 

[angel's momma]

Tomorrow the wish granters come over to talk to us about Prescott's wish! I found out today that the doctor that signed off on Prescotts medical form used to be a wish granter. i thought that was cool. So excited!!!

Yay!

 

[KaylaM]

Love the shirt...

I would take my own stroller because its what he is used to, and you know you will have it every step of the way in case you need it.

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I finally got two boxes packed and ready to ship out in the morning to GKTW. It is so nice to have that part done. Seems like there is so much to do. I think because this is also a very busy time with my daughters' medical, its just a lot. Also, my daughter just came down ill, so its a little stressful as I just want her to be 100% for her trip so she will enjoy it thoroughly. Thankfully, she got sick now and not next week, so she has some time to get better and recover.

Hope everyone else is getting ready for their trips in what ever stage they are in!

 

[NEmel]

Love the shirt...

I would take my own stroller because its what he is used to, and you know you will have it every step of the way in case you need it.

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I finally got two boxes packed and ready to ship out in the morning to GKTW. It is so nice to have that part done. Seems like there is so much to do. I think because this is also a very busy time with my daughters' medical, its just a lot. Also, my daughter just came down ill, so its a little stressful as I just want her to be 100% for her trip so she will enjoy it thoroughly. Thankfully, she got sick now and not next week, so she has some time to get better and recover.

Hope everyone else is getting ready for their trips in what ever stage they are in!

so sorry she is sick, but much better now than in Florida! Hopefully she can rest and be ready to roll.

 

[NEmel]

Tomorrow the wish granters come over to talk to us about Prescott's wish! I found out today that the doctor that signed off on Prescotts medical form used to be a wish granter. i thought that was cool. So excited!!!

So exciting! I know it was so hard to wait for them to get there!