Make a Wish (and other organizations!) - Wish Trippers...UNITE!! Volume 2!

[maroo]

which park are lightning mcqueen and tow mater in?

Michelle

dhs

 

[WishMom09]

Wondering what time Mayor Clayton's birthday party is?? Since I have orientation at 7:45. Wonder if I will get to go with the kids...or if dad will need to take them while I am being orientated?? (I don't want to miss anything!!!!)

 

[maroo]

Wondering what time Mayor Clayton's birthday party is?? Since I have orientation at 7:45. Wonder if I will get to go with the kids...or if dad will need to take them while I am being orientated?? (I don't want to miss anything!!!!)

Hmm...I don't have a time for it on the planner, do I?

My guess is that it probably starts at 7:30 ish... Which means it may run right into your orientation.

What time do you get there? They sometimes have an orientation at around 3:00 in the afternoon if they have a couple of families that are already ready for it...?? But when we were there, they only made that schedule the night before depending on when folks arrived.

 

[WishMom09]

Hmm...I don't have a time for it on the planner, do I?

My guess is that it probably starts at 7:30 ish... Which means it may run right into your orientation.

What time do you get there? They sometimes have an orientation at around 3:00 in the afternoon if they have a couple of families that are already ready for it...?? But when we were there, they only made that schedule the night before depending on when folks arrived.

We land at 2:30....so probably won't be there by 3...
I think Tom will take pics...and I will be OK!

 

[sammie girl]

Hi I haven't been on here for a few days (more like almost a week). My dd (wish child) has been very sick. She started out a few weeks ago with uncontrable BG. They would spike and not come down or go to low and not come up. Nobody could figure out why this was happening. Even with her rigid schedule, snacks and meals, it was no help. Last Friday she spiked a fever so I took her to the emergency type med center. She had ear and sinus infections. They gave her antibiotics and her endocrinologist thought that her BG's would return to normal now. Well, last Sunday her BG reached 500, the highest we have been since being diagnosed. It wouldn't come down. We changed her tubing site etc, etc but nothing was helping. Finally after 5 hours of this we were packing to go to the hospital. (My husband was at work and couldn't get off and my mom had come up to take my son to his t-ball game and keep him overnight for us). My dd wanted to check her BG again so we did and it was down to 65 which is low. At this point we had no idea why it dropped so much after keeping so high. I called her endo. and he said to now treat her low and keep checks up. The only good news out of this is we weren't going to the hospital at this point. So we went through this for the next 2 days (but not above 280 after Sunday night). On Tuesday evening she started fevering and vomiting. Called her endo and ped. took her in and it was decided she had the flu. O.K. I was really freaked because we have had some cases of the swine flu and we also have a pork plant that processes almost 20,000 pigs a day. The plant is a mere 3 miles from our home. UGGGGG!!!!!! Was it ever going to end!?!
Good news, not the swine flu just a stomach virus. THANK YOU GOD!
We are now finally on our road to recovery. Her diabetes makes her body heal so much slower and puts her at greater risk for infections (because it is an autoimmune disease).

So now I am being over protective of her. Does anyone else feel that way about their wish child?

So now on to getting ready to plan our trip. I am once again excited for my dd. I can't wait to see her smile. We haven't had to many smiles from her this last few years and when she was told she got her wish it was the best moment for me in a long time. Her face lit up and her smile was genuine.

She did go high tonight! In the 200's. She was being so mean and hateful that I just knew she had to be high. After we took her BG and did an insulin correction she started crying and saying that she doesn't want to be mean and why does she have to get high BG's. I started crying and told her I know she loves us and just feels sick sometimes. She keeps telling me she is sorry and can't believe how mean she is. She then drew me a picture and cut out some hearts and wrote a card that said she loves me and thanks me for taking care of her. I gave her a big hug and she then asked if God forgives her for being so mean!!!! This is a 7-year-old girl worried about grown-up stuff. It makes me so sad.
When I say she gets mean she says stuff like "why do you make me hurt all day and night", I hate you for giving me shots, and stuff like that. I know she really don't mean it but I truly think the emotional part of this illness is taking a bigger toll on her than I ever imagined.

Anyway hopefully we will get back to our planning and excitement and won't have too many more bad days before our trip. I really want this to be a happy time for my dd. (and my ds).

Thanks for listening and I will let you all know when I post more on our pre-trip report.

 

[kmparrish5]

Hi I haven't been on here for a few days (more like almost a week). My dd (wish child) has been very sick. She started out a few weeks ago with uncontrable BG. They would spike and not come down or go to low and not come up. Nobody could figure out why this was happening. Even with her rigid schedule, snacks and meals, it was no help. Last Friday she spiked a fever so I took her to the emergency type med center. She had ear and sinus infections. They gave her antibiotics and her endocrinologist thought that her BG's would return to normal now. Well, last Sunday her BG reached 500, the highest we have been since being diagnosed. It wouldn't come down. We changed her tubing site etc, etc but nothing was helping. Finally after 5 hours of this we were packing to go to the hospital. (My husband was at work and couldn't get off and my mom had come up to take my son to his t-ball game and keep him overnight for us). My dd wanted to check her BG again so we did and it was down to 65 which is low. At this point we had no idea why it dropped so much after keeping so high. I called her endo. and he said to now treat her low and keep checks up. The only good news out of this is we weren't going to the hospital at this point. So we went through this for the next 2 days (but not above 280 after Sunday night). On Tuesday evening she started fevering and vomiting. Called her endo and ped. took her in and it was decided she had the flu. O.K. I was really freaked because we have had some cases of the swine flu and we also have a pork plant that processes almost 20,000 pigs a day. The plant is a mere 3 miles from our home. UGGGGG!!!!!! Was it ever going to end!?!
Good news, not the swine flu just a stomach virus. THANK YOU GOD!
We are now finally on our road to recovery. Her diabetes makes her body heal so much slower and puts her at greater risk for infections (because it is an autoimmune disease).

So now I am being over protective of her. Does anyone else feel that way about their wish child?

So now on to getting ready to plan our trip. I am once again excited for my dd. I can't wait to see her smile. We haven't had to many smiles from her this last few years and when she was told she got her wish it was the best moment for me in a long time. Her face lit up and her smile was genuine.

She did go high tonight! In the 200's. She was being so mean and hateful that I just knew she had to be high. After we took her BG and did an insulin correction she started crying and saying that she doesn't want to be mean and why does she have to get high BG's. I started crying and told her I know she loves us and just feels sick sometimes. She keeps telling me she is sorry and can't believe how mean she is. She then drew me a picture and cut out some hearts and wrote a card that said she loves me and thanks me for taking care of her. I gave her a big hug and she then asked if God forgives her for being so mean!!!! This is a 7-year-old girl worried about grown-up stuff. It makes me so sad.
When I say she gets mean she says stuff like "why do you make me hurt all day and night", I hate you for giving me shots, and stuff like that. I know she really don't mean it but I truly think the emotional part of this illness is taking a bigger toll on her than I ever imagined.

Anyway hopefully we will get back to our planning and excitement and won't have too many more bad days before our trip. I really want this to be a happy time for my dd. (and my ds).

Thanks for listening and I will let you all know when I post more on our pre-trip report.

Sorry to hear you have had such a rough week. Hope she is feeling better soon. You asked if anyone else was overprotective about their wish kids?????? My three kids get sick so easily because of their chromosome deletion. We leave for Disney in two weeks. I won't let them out in public other than the two girls going to school. I just don't want to take a chance of them getting sick. They just changed all of Bailee's asthma medications this week in hopes to help her stay well. She will be on a maintenance antibiotic until after the trip. I think all parents who have watched their children go through so much will be a little overprotective.

 

[bellairisa]

Hi everyone,

I'm a new member to the boards and wanted to introduce myself, MAW has granted my DD Malia's wish to go to WDW and we're staying at GKTW, and we're so excited. I know I'll find lots of help planning and picking up tips along the way.

 

[maroo]

Hi I haven't been on here for a few days (more like almost a week). My dd (wish child) has been very sick. She started out a few weeks ago with uncontrable BG. They would spike and not come down or go to low and not come up. Nobody could figure out why this was happening. Even with her rigid schedule, snacks and meals, it was no help. Last Friday she spiked a fever so I took her to the emergency type med center. She had ear and sinus infections. They gave her antibiotics and her endocrinologist thought that her BG's would return to normal now. Well, last Sunday her BG reached 500, the highest we have been since being diagnosed. It wouldn't come down. We changed her tubing site etc, etc but nothing was helping. Finally after 5 hours of this we were packing to go to the hospital. (My husband was at work and couldn't get off and my mom had come up to take my son to his t-ball game and keep him overnight for us). My dd wanted to check her BG again so we did and it was down to 65 which is low. At this point we had no idea why it dropped so much after keeping so high. I called her endo. and he said to now treat her low and keep checks up. The only good news out of this is we weren't going to the hospital at this point. So we went through this for the next 2 days (but not above 280 after Sunday night). On Tuesday evening she started fevering and vomiting. Called her endo and ped. took her in and it was decided she had the flu. O.K. I was really freaked because we have had some cases of the swine flu and we also have a pork plant that processes almost 20,000 pigs a day. The plant is a mere 3 miles from our home. UGGGGG!!!!!! Was it ever going to end!?!
Good news, not the swine flu just a stomach virus. THANK YOU GOD!
We are now finally on our road to recovery. Her diabetes makes her body heal so much slower and puts her at greater risk for infections (because it is an autoimmune disease).

So now I am being over protective of her. Does anyone else feel that way about their wish child?

So now on to getting ready to plan our trip. I am once again excited for my dd. I can't wait to see her smile. We haven't had to many smiles from her this last few years and when she was told she got her wish it was the best moment for me in a long time. Her face lit up and her smile was genuine.

She did go high tonight! In the 200's. She was being so mean and hateful that I just knew she had to be high. After we took her BG and did an insulin correction she started crying and saying that she doesn't want to be mean and why does she have to get high BG's. I started crying and told her I know she loves us and just feels sick sometimes. She keeps telling me she is sorry and can't believe how mean she is. She then drew me a picture and cut out some hearts and wrote a card that said she loves me and thanks me for taking care of her. I gave her a big hug and she then asked if God forgives her for being so mean!!!! This is a 7-year-old girl worried about grown-up stuff. It makes me so sad.
When I say she gets mean she says stuff like "why do you make me hurt all day and night", I hate you for giving me shots, and stuff like that. I know she really don't mean it but I truly think the emotional part of this illness is taking a bigger toll on her than I ever imagined.

Anyway hopefully we will get back to our planning and excitement and won't have too many more bad days before our trip. I really want this to be a happy time for my dd. (and my ds).

Thanks for listening and I will let you all know when I post more on our pre-trip report.

I am so sorry she has been so sick! I know this is common for Type I diabetics...but it does not make it any easier for you guys.

Do you guys have a summer camp in your area for children with Type I diabetes? I used to work at one and they were great for children to learn to cope...they learn that they are not alone out there in all of this and are able to play and learn more about their illness, etc.

I highly recommend it, if you happen to have one in your area.

I will keep praying for you guys!!

Hi everyone,

I'm a new member to the boards and wanted to introduce myself, MAW has granted my DD Malia's wish to go to WDW and we're staying at GKTW, and we're so excited. I know I'll find lots of help planning and picking up tips along the way.

Woo Hoo!!! A new Wish family!! That is fantastic!

I will go check out your pre-trippie and put a link on the first post of this thread so folks can find ya.

 

[maroo]

Hey guys!! We have a new wish family...

Feel free to follow this thread and go over and say hello!

Malia Make a Wish Trip - June 2009

 

[sammie girl]

I am so sorry she has been so sick! I know this is common for Type I diabetics...but it does not make it any easier for you guys.

Do you guys have a summer camp in your area for children with Type I diabetes? I used to work at one and they were great for children to learn to cope...they learn that they are not alone out there in all of this and are able to play and learn more about their illness, etc.

I highly recommend it, if you happen to have one in your area.

I will keep praying for you guys!!


Yes we do have a camp a few hours from here. My dd won't go because she has never spent a night away from me. (other than my one night in the hospital delivering my ds). She is having a rough time at school with one girl who is just plain mean and constantly making fun of my dd. This girl will tell my dd "haha you go to the office all day for snacks, haha you get shots etc etc. Haha you don't get to eat our snack" She even went as far as to tell my dd that "my mom told me to bring this to school to rub it in your face".
Now with that being said you also have to understand I have done everything in my power to get this to stop, everything except pull her from her school. She goes to a catholic school and this little girl has a family that donates lots of money to the school and church. I think everyone can understand the position I am in. The school will only do so much because of fear of making this family *upset*. I know it isn't fair and wanted to pull my dd out but honestly she wants to stay and deep down I know this stuff goes on everywhere and wonder if it would really be better somewhere else. (our public school system is very behind where I live.)
I think it would be wonderful for her to attend a camp and see others like her but she won't have it.
That is another good reason for GKTW. It will show her there are others out there who are like her, with some form of disability. I hope it makes her feel like she isn't such an outcast.

Your right though when having diabetes any illness is such a big factor because of BG's. I wake up at night to just shake my dd making sure she moves and hasn't went into a coma. The doctors have told her how night is the most scary and never go to bed without checking her BG. For a long time she would cry herself to sleep because she was scared she would die in her sleep. She sleeps with us now.

Sorry I didn't mean to go on and on about the negatives. We really are on the road to recovery and I am so grateful for that. I am so pumped up about the trip now. My dd is so excited her daddy gets to go. He has never been on vacation with us before. I want to do everything to make this trip special for her and your advice Maroo is extremely helpful......Thanks for putting so much time in on this board. You are a wonderful, caring person.

 

[5dwarves]

Which park are Lightning McQueen and Tow Mater in?

Michelle

They are in Disney Hollywood Studios. They used to have their own parade. Not sure if they still do or not. Here is a link to a character finding website...

http://home.att.net/~disneysue/characters/wdw/disneycharacters.html

 

[5dwarves]

Hi everyone,

I'm a new member to the boards and wanted to introduce myself, MAW has granted my DD Malia's wish to go to WDW and we're staying at GKTW, and we're so excited. I know I'll find lots of help planning and picking up tips along the way.

Welcome to the Dis. You will absolutely find lots of tips here. Please feel free to ask questions.


Sammie:

So sorry to hear about the latest rollercoaster ride in your life. I am hoping your dd is feeling much better now. GKTW will be good for ALL of you!

 

[maroo]

Sammie Girl -

Hopefully GKTW will help!

I hate that the public school system is bad in your area. Lauren ended up having to go to public school because they were the only ones required by the state to provide the services to deal with her disability. She requires a full time assistant at school all day and a bunch of other stuff and the state pays for all of that.

Thank you for all of your sweet comments.

I just really enjoy being on the DIS and if I can help some folks to have a more magical trip - especially on the once in a lifetime trip - then I will do whatever I can!

 

[Corrine 1973]

Hi I haven't been on here for a few days (more like almost a week). My dd (wish child) has been very sick. She started out a few weeks ago with uncontrable BG. They would spike and not come down or go to low and not come up. Nobody could figure out why this was happening. Even with her rigid schedule, snacks and meals, it was no help. Last Friday she spiked a fever so I took her to the emergency type med center. She had ear and sinus infections. They gave her antibiotics and her endocrinologist thought that her BG's would return to normal now. Well, last Sunday her BG reached 500, the highest we have been since being diagnosed. It wouldn't come down. We changed her tubing site etc, etc but nothing was helping. Finally after 5 hours of this we were packing to go to the hospital. (My husband was at work and couldn't get off and my mom had come up to take my son to his t-ball game and keep him overnight for us). My dd wanted to check her BG again so we did and it was down to 65 which is low. At this point we had no idea why it dropped so much after keeping so high. I called her endo. and he said to now treat her low and keep checks up. The only good news out of this is we weren't going to the hospital at this point. So we went through this for the next 2 days (but not above 280 after Sunday night). On Tuesday evening she started fevering and vomiting. Called her endo and ped. took her in and it was decided she had the flu. O.K. I was really freaked because we have had some cases of the swine flu and we also have a pork plant that processes almost 20,000 pigs a day. The plant is a mere 3 miles from our home. UGGGGG!!!!!! Was it ever going to end!?!
Good news, not the swine flu just a stomach virus. THANK YOU GOD!
We are now finally on our road to recovery. Her diabetes makes her body heal so much slower and puts her at greater risk for infections (because it is an autoimmune disease).

So now I am being over protective of her. Does anyone else feel that way about their wish child?

So now on to getting ready to plan our trip. I am once again excited for my dd. I can't wait to see her smile. We haven't had to many smiles from her this last few years and when she was told she got her wish it was the best moment for me in a long time. Her face lit up and her smile was genuine.

She did go high tonight! In the 200's. She was being so mean and hateful that I just knew she had to be high. After we took her BG and did an insulin correction she started crying and saying that she doesn't want to be mean and why does she have to get high BG's. I started crying and told her I know she loves us and just feels sick sometimes. She keeps telling me she is sorry and can't believe how mean she is. She then drew me a picture and cut out some hearts and wrote a card that said she loves me and thanks me for taking care of her. I gave her a big hug and she then asked if God forgives her for being so mean!!!! This is a 7-year-old girl worried about grown-up stuff. It makes me so sad.
When I say she gets mean she says stuff like "why do you make me hurt all day and night", I hate you for giving me shots, and stuff like that. I know she really don't mean it but I truly think the emotional part of this illness is taking a bigger toll on her than I ever imagined.

Anyway hopefully we will get back to our planning and excitement and won't have too many more bad days before our trip. I really want this to be a happy time for my dd. (and my ds).

Thanks for listening and I will let you all know when I post more on our pre-trip report.

I am so sorry that you and your dd have been through so much this last week. My thoughts and prayers are with you that things start getting more seatled down now.

I do now that I get a little overpertective with my ds (wish child). Just last night he crawled into bed with me because he had a bad dream about spiders. In the middle of the night he had several small coughing fits. Everytime I held my breath just a little bit fearing that this might be the first signal of a lung infection. Luckily he was fine in the morning but as parents we all worry about our children, especially when their sick.

 

[dmbfan]

It has been a while since I jumped on the boards, but wanted to say I have been reading some of the new wish trippers and post trips and they have brought tears to my eyes...thanks for sharing them.

Things have been pretty tough with Jake. He is back in the hospital again ( just got out a week and half ago from a 10 day stay) with another line infection. Not sure if we are going to pull this line and place a new one, as this is the second infection with only being off the antbotics for 4 days. His drs still says to me, and the nurses too, that they are so glad Jake was able to make his wish trip to disney without getting sick...guess someone was watching us, cause that has been the only week that he felt pretty good and of course smiled all the time.

He has been feeling down alot, crying alot and over all just sad for having to be in the hospital for so long. I know he is brave, but even at 8, it is still scary when you get sick so fast and you fully do not understand why.

However we pass our hospital time with watching our dvds of our trip, and out 1200 pictures on our moving photo album. Jake has all of his Mickey's and Mayor Clayton stuffed animals with him and of course his wish pillow...he is never far from that pillow. Oh and our MAW chapter called me on Wed, before Jake got sick, and they remembered how much Jake loves the Red Sox's, so when they had Green Monster seats( the best seats and very hard to get in Fenway park) for Wed night's game donated to them, they asked Jake...and we had a GREAT time..so at least he got to enjoy a awesome game before coming back in. So we now are back to watching the game from our hospital room ( which only about two blocks from Fenway Park)

Well I hope everyone is doing well and I look forward to reading more stories, please keep them coming...

 

[sammie girl]

Sammie Girl -

Hopefully GKTW will help!

I hate that the public school system is bad in your area. Lauren ended up having to go to public school because they were the only ones required by the state to provide the services to deal with her disability. She requires a full time assistant at school all day and a bunch of other stuff and the state pays for all of that.

Thank you for all of your sweet comments.

I just really enjoy being on the DIS and if I can help some folks to have a more magical trip - especially on the once in a lifetime trip - then I will do whatever I can!
__________________

I do know what you mean about getting help at the private school. We are so blessed to have a secretary that has taken a big liking for my dd. She volunteered to learn all about my dd, how to give shots, count carbs, work her pump, check her blood, ketones and anything else that crops up. She made a routine for my dd and her snacks. She is just awsome and without her we wouldn't be able to attend there. She has held off her retirement to help my daughter get through school. We are very very fortunate for this blessing. And like I said before I think we would face mean kids at any school so we just do the best we can and teach ours to still be nice. Even though I sometimes cry when my dd isn't around. (it breaks my heart to see her suffer physically but when kids are mean to her and them and their parent's go out of there way to be mean, I just don't get it.) Well I think for everything bad that goes on God has given us 10 good things in it's place. So thank you everyone for listening and it REALLY helps talking to about this with people who truly GET WHAT I AM SAYING!

I have just been reading some of the trip reports and I am getting SO excited. I think I am going to spend all day here just reading everyone's stories. They really are amazing experiences and I am so glad I found this board.

 

[maroo]

It has been a while since I jumped on the boards, but wanted to say I have been reading some of the new wish trippers and post trips and they have brought tears to my eyes...thanks for sharing them.

Things have been pretty tough with Jake. He is back in the hospital again ( just got out a week and half ago from a 10 day stay) with another line infection. Not sure if we are going to pull this line and place a new one, as this is the second infection with only being off the antbotics for 4 days. His drs still says to me, and the nurses too, that they are so glad Jake was able to make his wish trip to disney without getting sick...guess someone was watching us, cause that has been the only week that he felt pretty good and of course smiled all the time.

He has been feeling down alot, crying alot and over all just sad for having to be in the hospital for so long. I know he is brave, but even at 8, it is still scary when you get sick so fast and you fully do not understand why.

However we pass our hospital time with watching our dvds of our trip, and out 1200 pictures on our moving photo album. Jake has all of his Mickey's and Mayor Clayton stuffed animals with him and of course his wish pillow...he is never far from that pillow. Oh and our MAW chapter called me on Wed, before Jake got sick, and they remembered how much Jake loves the Red Sox's, so when they had Green Monster seats( the best seats and very hard to get in Fenway park) for Wed night's game donated to them, they asked Jake...and we had a GREAT time..so at least he got to enjoy a awesome game before coming back in. So we now are back to watching the game from our hospital room ( which only about two blocks from Fenway Park)

Well I hope everyone is doing well and I look forward to reading more stories, please keep them coming...

Hey!

I am so sorry that Jake is back in again. And I, too, was so glad Jake was not sick on his trip!

Post Disney is a hard time for any family...worse for a wish family...and made worse by an immediate hospital stay.

I am praying for you guys. And I wish I could say something that would make you feel better about the whole thing.

Jake is a star! Tell him I finally posted about the Tower of Terror! I have a pic of the inside of the elevator for him.

Hang in there! And I am praying for you guys!!

 

[maroo]

Sammie Girl -

Hopefully GKTW will help!

I hate that the public school system is bad in your area. Lauren ended up having to go to public school because they were the only ones required by the state to provide the services to deal with her disability. She requires a full time assistant at school all day and a bunch of other stuff and the state pays for all of that.

Thank you for all of your sweet comments.

I just really enjoy being on the DIS and if I can help some folks to have a more magical trip - especially on the once in a lifetime trip - then I will do whatever I can!
__________________

I do know what you mean about getting help at the private school. We are so blessed to have a secretary that has taken a big liking for my dd. She volunteered to learn all about my dd, how to give shots, count carbs, work her pump, check her blood, ketones and anything else that crops up. She made a routine for my dd and her snacks. She is just awsome and without her we wouldn't be able to attend there. She has held off her retirement to help my daughter get through school. We are very very fortunate for this blessing. And like I said before I think we would face mean kids at any school so we just do the best we can and teach ours to still be nice. Even though I sometimes cry when my dd isn't around. (it breaks my heart to see her suffer physically but when kids are mean to her and them and their parent's go out of there way to be mean, I just don't get it.) Well I think for everything bad that goes on God has given us 10 good things in it's place. So thank you everyone for listening and it REALLY helps talking to about this with people who truly GET WHAT I AM SAYING!

I have just been reading some of the trip reports and I am getting SO excited. I think I am going to spend all day here just reading everyone's stories. They really are amazing experiences and I am so glad I found this board.

Enjoy your TR reading day! How cool is that?!?!?

 

[bellairisa]

I don't know if this has been already answered but my question is more like a clarification type of thing, the sheet of genie stickers that MAW gives us in the MAW packet, does it give you the same "magic" that the GKTW buttons that I've heard so much about? If anyone could clarify this for me that would be much appreicated

 

[maroo]

I don't know if this has been already answered but my question is more like a clarification type of thing, the sheet of genie stickers that MAW gives us in the MAW packet, does it give you the same "magic" that the GKTW buttons that I've heard so much about? If anyone could clarify this for me that would be much appreicated

You guys are staying at GKTW, right? If so, you will get the GKTW button when you check in (at orientation)...the genie stickers are just stickers...Disney probably would not recognize those as MAW related.

I hope that answers your question?