Make a Wish (and other organizations!) - Wish Trippers...UNITE!! Volume 2!

[myasma]

Thankyou Maroo for helping me start out. Hopefully I will have one by April when my daughter is eligible to apply for MAW.

 

[LindaBabe]

Myasmama, between now and then, you might want to post a few times, because I don't believe you can post photos until you have at least 10 posts.

Maroo, SO glad they found out what ails William. Sucks, of course, but it's better to know and know there's an end to it!

 

[maroo]

Thankyou Maroo for helping me start out. Hopefully I will have one by April when my daughter is eligible to apply for MAW.

You are very welcome! April is not too far off, at all!

Can't wait to hear about her wish and meet you guys online!

Myasmama, between now and then, you might want to post a few times, because I don't believe you can post photos until you have at least 10 posts.

Maroo, SO glad they found out what ails William. Sucks, of course, but it's better to know and know there's an end to it!

Good point, Linda...that makes it easier to send PM's and such, too!



Thank you all for your well wishes for William. Please continue to pray for him. He is pretty discouraged and his Mom is, too. They are tired of him being sick.

Thanks for all of your prayers!!!

 

[maroo]

This is great news from Noah's mom!!

Just posted here to let you guys know!


Home again...

Noah was discharged yesterday, so we are finally all home!! Praying we can stay home for a while. His stoma is still quite bad, so we pulled his g-tube out and are just doing dressings with Flamazine in the hopes that we can get the skin around it to heal. There is so much mucosa that has prolapsed, that it will likely hold the hole open until we can get it repaired. He is unable to have surgery until the RSV is well behind him...not until closer to the end of April. So for now, we have put an NG tube in to drain his stomach. He is very tired today...not quite himself. Hopefully he is still just recuping.

It is so good to be home...a bit overwhelming as there is still suitcases to unpack and so much to catch up on...but at least we are home.

 

[tbelfonti]

Hi all - we're a wish family from CT. My youngest Olivia is our wish child. She is 4.5yrs old and has survived THREE heart surgeries.

We are going April 27 - May 2 and staying at GKTW. We are very excited and cannot WAIT!

 

[maroo]

Hi all - we're a wish family from CT. My youngest Olivia is our wish child. She is 4.5yrs old and has survived THREE heart surgeries.

We are going April 27 - May 2 and staying at GKTW. We are very excited and cannot WAIT!

Woo Hoo!!!

That is good news...a Wish Trip and getting through 3 heart surgeries!

You guys will have a blast. Are you planning to do a pre-trip report? I see that you already have a lot of posts, so you are probably very familiar with the site!

 

[tbelfonti]

Working on the pre-trip report right now! Hoping to have it done soon.

 

[maroo]

Working on the pre-trip report right now! Hoping to have it done soon.

Awesome!!!

Make sure to let us know over here and I can link it on the Wish Trippers thread and let all of our folks know it is out there!

 

[tbelfonti]

Maroo - here's the link to the start of our pre-trip report!

http://www.disboards.com/showthread.php?p=30923172#post30923172

 

[oklamomof4boys]

Hello everybody. I haven't been on disboards for a little while. I spent this afternoon catching up! I am very sad to hear about Jonah's passing. We met him when we were on our wish trip.

Hopefully I will find time soon to read everyone's pre-trip and trip reports.

Carol

 

[Somer]

Working on the pre-trip report right now! Hoping to have it done soon.

Can't wait to read. My daughter jozlynn was born on 9/19/04 and has had 4 heart surgeries also. It's nice to meet another heart family.

 

[maroo]

Maroo - here's the link to the start of our pre-trip report!

http://www.disboards.com/showthread.php?p=30923172#post30923172

Can't wait to read. My daughter jozlynn was born on 9/19/04 and has had 4 heart surgeries also. It's nice to meet another heart family.

Just wanted to make sure you guys all see the new Wish Trip Pre-Trippie!!! I wasn't sure if it was clear on here that she started her pre-trippie!!!!

 

[chcmama]

Hi all - we're a wish family from CT. My youngest Olivia is our wish child. She is 4.5yrs old and has survived THREE heart surgeries.

We are going April 27 - May 2 and staying at GKTW. We are very excited and cannot WAIT!

How exciting. That is a great time to go. We went last year at the same time and the morning we were in magic kingdom we went through all of Fantasyland with no lines. It was unvbelievable! I'm going to go check out your pre-trip report now.

 

[Somer]

Thanks Maroo, you're awesome

Just wanted to make sure you guys all see the new Wish Trip Pre-Trippie!!! I wasn't sure if it was clear on here that she started her pre-trippie!!!!

 

[dmbfan]

I posted two more posts in Jake's Pre trip from the Big Give...once again AMAZING....Shannon and Tracie, thank you both so much....

http://www.disboards.com/showthread.php?p=30942323&posted=1#post30942323

Our house is crazy tonight...a week from today, we will be at GKTW...

6 More days...OMG...should I start packing yet???

 

[maroo]

Uh...yes, you should probably go pack!

And you will have time since they are cutting us off...in like 15 minutes!! What will we do without the DIS for a whole 6 hours? I am going to BED! That is what I am doing! lol

 

[LeeLee2U]

Just wanted ya'll to know Tylers biopsies came back this a.m. NO CANCER!!! Severe H-pylori and Esophasomeiithing gitis.
AllTreatable!!!

 

[maroo]

Just wanted ya'll to know Tylers biopsies came back this a.m. NO CANCER!!! Severe H-pylori and Esophasomeiithing gitis.
AllTreatable!!!

Thank you so much for updating us!!!

I am so excited!! NO CANCER!!

I am sorry that his H Pylori got so bad before they treated it. And u crack me up...

esophasomething itis...

They can start treatment. He will feel so much better very soon!

 

[5dwarves]

Just wanted ya'll to know Tylers biopsies came back this a.m. NO CANCER!!! Severe H-pylori and Esophasomeiithing gitis.
AllTreatable!!!

Leah...so good to hear that Tyler is okay. Sorry our schedules didn't work out this trip to TX...see you in June or July.

Thank you so much for updating us!!!

And u crack me up...

esophasomething itis...

add itis to anything and it becomes a malady, add ectomy to anything and it becomes a procedure, add ologist to anything and it becomes a specialist. Many of us have Orlandoitis, we need a reality-ectomy so that we can go back to Orlando and become Disneyologists.

 

[LeeLee2U]

Leah...so good to hear that Tyler is okay. Sorry our schedules didn't work out this trip to TX...see you in June or July.



add itis to anything and it becomes a malady, add ectomy to anything and it becomes a procedure, add ologist to anything and it becomes a specialist. Many of us have Orlandoitis, we need a reality-ectomy so that we can go back to Orlando and become Disneyologists.

Thank ou! Will be GREAT to see you this summer!!

I love your itis,ectomy ologist philosophy. That needs to be a TAG!!!