Liam's Wish Trip September 13-19th at GKTW

[Corrine 1973]

Yesterday the family and I went to Great America because we haven't gone since I hurt my ankle and I had a free ticket that expires on July 5th. Me and the kids went with my Mom and had a great time with a couple of speed bumps.

First of all we got to Wiggles World and my mom took off to smoke a cigerate. Suddenly I turn around and Aidan was gone. So here I am in the middle of a crowded area tring to keep the to older ones together and find the youngest one. I couldn't get my mom to help and she forgot to bring her cell phone so I couldn't call her. I was just about to give up and ask for help when he showed up holding his tigger doll.

I gave him a big hugwhen my daughter ran to me crying. A little boy had pushed her down and she had a small cut on the ball of her cheak. I quickly placed Aidan and Mia in the stroller and found Liam. We found my mom at the smoking area and made are walk to first aid.

Ok, I know I might have over reacted but I wanted to make sure that the cut got properly cleaned and didn't get infected.

The rest of the day went well. My mom got me to sing for Great America Idol and a few people told me I have a good voice. Took a pic with Patunia Pig and Liam got one with the flash and Scooby Doo.

When we got home, the kids and I are where tierd but there was a big box on the table addressed to Liam.

It was from Walt Disney World Florist & Gift Baskets.
Inside was a Mickey Mouse Autograph/Picture book, a Mickey Mouse Phot album, Mickey Ears, a Mickey Mouse Pen, a disposable camera, a bag of pretzels, and two bags of Shortbread cookies. It was all in a Mickey Mouse shapped basket.

Attached to the basket was a note.

Liam,
Have a great time at Walt Disney World!
From,
Eric & Iris
Make a Wish

 

[MomTo4+more]

Very sweet surprise, and great pics! That's a fun package to come home to. I am trying to figure out a time we can make itto Gurnee to check out the Desney outlet. We have 8 medical and therapy appointments this week, so I don't know if it will be possible or not. Do you suppose the sales will still be going on towards the end of the week?

 

[MomTo4+more]

After looking at my schedule again, I realized our VBS is the week after this one! I guess I will have to set my hopes of making it to Gurnee aside for awhile. I am writing the curriculum for the preschool and I need to finish it and meet with the preschool director. I am also leading up the snacks for the week, so I need to shop for all of them. (Which will be time consuming since we are accomodating many food allergies!) Then the supplies for the preschool portion need to be prepared. . . No, I don't know how there will be time to breath this week, much less get to the Disney store. Will you keep me informed of future sales? Thanks!

 

[Corrine 1973]

Sounds like you have a couple of busy weeks ahead of you.

I will happily foward on any Disney Outlet info to you that I get.

 

[HeatherSue]

Just signing up so I can hear all about your Wish Trip plans! You have a beautiful family!

 

[Corrine 1973]

Today is my little girls birthday. She is now officially 4 years old.

No more birthdays for another year (mine is coming up but I don't count that one anymore)

 

[tarak]

Your the third person who has posted here who also have a Liam. And I thought that I was being original.

We had a Little Mermaid Movie Night a couple of weeks ago. The favorite of that dinner was the Flounder fruit salad. It was so easy. The main part was canned Pears (you need the halved pears). You cut out a section of the big side for the mouth and use it for the top fin. I sliced 1/4 length wise of another pear half and cut down the middle, but at an angle. The piece that angles out on both sides is the tail fin, and the other is the bottom fin. The eyes are mini marshmellows and raisins. And the strips are cream cheese with blue food coloring and was pipped on. Patt pears down with paper towels before you pipe on the cream cheese, it makes it a little easier.

I thought we were being original, too, but we've since met a few people who have sons with the same name . Our son's given name is William, we just call him Liam as a nickname (although my husband's Greek relatives call him Vassily, which I think confuses him).
You are far more creative than I could ever hope to be! My husband thinks we should serve actual flounder along with the crab cakes.
What a wonderful basket he got! I love reading the Wishes TRs, although they usually make me choke up.

 

[Corrine 1973]

What day is it?
Why it's another
Disney Movie Fun Night
Tonights movie was the ever popular
Pirates of the Caribean: Curse of the Black Pearl



We kept it simple tonight. We had barbacue chicken legs, shiver me timbers potatoe wedges (with cheese and bacon), and fruit punch in plastic goblets.

I was unable to take pictures because my camera broke a couple of days ago, but I just got a call saying that it is fixed so I get to pick it up tomarrow.
Good thing to, cause I have been going through camera withdrawl.


I also have some great news!!!!!!!
I got a PM on Monday morning asking if my family wanted to be a part of

The Big Give.​

I wanted to wait until things were more definate to post this, but I am just so excited that I can't wait any more.​

 

[Eeyores Butterfly]

That sounds exciting! Congratulations on being chosen!

 

[Corrine 1973]

Forgot to mention that next weeks DMFN is

Sleeping Beauty

 

[GlassSlippers]

Forgot to mention that next weeks DMFN is

Sleeping Beauty

Sleeping Beauty! Oooh! You could have those little pizza rolls and call them Princess Pillows! Perhaps that Kemps cotton candy flavored ice cream for dessert because it's pink and blue. Remember how Merryweather and Flora argue over whether Aurora's dress should be pink or blue? How about carrot sticks and pretend they're Prince Phillip's sword? Wow! This is an easy one! I kind of wish my daughter was still little enough that she'd enjoy doing the movie night and special dinner. She just turned 17 last month. *sigh*

Tell the kidlets hi for me!

Lori

 

[Corrine 1973]

Sleeping Beauty! Oooh! You could have those little pizza rolls and call them Princess Pillows! Perhaps that Kemps cotton candy flavored ice cream for dessert because it's pink and blue. Remember how Merryweather and Flora argue over whether Aurora's dress should be pink or blue? How about carrot sticks and pretend they're Prince Phillip's sword? Wow! This is an easy one! I kind of wish my daughter was still little enough that she'd enjoy doing the movie night and special dinner. She just turned 17 last month. *sigh*

Tell the kidlets hi for me!

Lori

More great ideas Lori. I have had so many complements on my DMFN, but honestly you deserve alot of the credit. You are the girl behind the idea's. Thanks for all your help Lori.

 

[MomTo4+more]

We may be making it out to Gurnee tomorrow. Someone thinks they found our lost parakeet!! I hope it is her and that she comes to us. Apparently she has been visiting this woman's bird feeders everyday. Deyki had told me, "I bet she saw Key Lime Cove on TV and decided to go on vacation!" Wouldn't that be something if she really is in Gurnee?! We will be leaving our cage in her backyard and hoping for the best!

 

[Corrine 1973]

Going to Liam's final schedualed Dr appointment tomarrow before his wish trip so please keep us in your prayers. We are hoping for good lung functions and nothing bad in his sputum.

Also found out that the annual picnic for CF families that Liam's doctor holds every summer is planned for September 12. That is the day before we go on our wish trip. I can't help but think that this has all come together just the way that it was supposed to. I can't help but feel blessed.

 

[sammie girl]

Praying for a good report from the doctor tomorrow. I can't wait to see some pics of the big give. My kids had so much fun with this.

 

[GlassSlippers]

More great ideas Lori. I have had so many complements on my DMFN, but honestly you deserve alot of the credit. You are the girl behind the idea's. Thanks for all your help Lori.

Nah! Lots of people have had good ideas and so have you! This sort of thing just gets my Perpetual Child Peter Pan mind going. You're welcome though!

Say, are you starting at the Renaissance Faire this weekend? My daughter's friend got hired for rides and games. I'm not sure we're going to go this year. It'd gotten so expensive and we're going to WDW in August so we're trying to save a little. I'll probably break down and go anyway though. I love me a Ren Faire!

 

[Corrine 1973]

Nah! Lots of people have had good ideas and so have you! This sort of thing just gets my Perpetual Child Peter Pan mind going. You're welcome though!

Say, are you starting at the Renaissance Faire this weekend? My daughter's friend got hired for rides and games. I'm not sure we're going to go this year. It'd gotten so expensive and we're going to WDW in August so we're trying to save a little. I'll probably break down and go anyway though. I love me a Ren Faire!

I am sure that your daughter will get discount tickets ( don't know if she will get any comp tickets. I only got 3 and they will go to my mom and kids to go on the first sat of August.) I get discount tickets for $10 each.

 

[Sarah84]

Going to Liam's final schedualed Dr appointment tomarrow before his wish trip so please keep us in your prayers. We are hoping for good lung functions and nothing bad in his sputum.

Also found out that the annual picnic for CF families that Liam's doctor holds every summer is planned for September 12. That is the day before we go on our wish trip. I can't help but think that this has all come together just the way that it was supposed to. I can't help but feel blessed.

Hope everything goes well at Liams appointment and he's sputum is fne. I just got results back from mine on tuesday and it was full of infection so im trying my best to clear it and on oral antibotics hopefully it all clears up ok in plenty of time for my holiday
What does Liams lung function normally run at if you don't mine me asking?

The annual picnic for CF families sounds fun, we don't do much like that over here for a few years because our clinics have gone crazy about cross over infection.

 

[Corrine 1973]

Hope everything goes well at Liams appointment and he's sputum is fne. I just got results back from mine on tuesday and it was full of infection so im trying my best to clear it and on oral antibotics hopefully it all clears up ok in plenty of time for my holiday
What does Liams lung function normally run at if you don't mine me asking?

The annual picnic for CF families sounds fun, we don't do much like that over here for a few years because our clinics have gone crazy about cross over infection.

Liam's appointment went pretty good. He's got a little taller, gained some weight, and his lung functions are great. As for Liam's normal lung functions, this is all pretty new for it has been all over the place. When he was first diagnosed his FVC was 95 and his FEV1 was 101, really good scores. Unfortunatly he got a URI on Christmas eve and It went down to 66 and 63. It took a few months to go up, but as of april it was back to 109 and 102.

The doctor really likes these numbers, and his sputum has only come back positive for staff and MRSA so nothing to bad there, yet. (wont know todays for a couple days though). He isn't happy that Liam's coughing seems to have increased and has put him on a Antibiotic for 2 weeks. He also wants to see Liam one more time before our trip, so we are piggy backing an appointment to his sister's appointment (has asthma) in August. Thing that is kind of scaring me is that he is talking about admiting him into the hospital if we can't get the coughing more in control. What he calls a "Tune up". My son has never been hospitilized, and though I know it is bound to happen with CF, it's still scary to hear. Though a hospilization to fix something before it becomes problematic is better than an ER visit.

 

[Sarah84]

Liam's appointment went pretty good. He's got a little taller, gained some weight, and his lung functions are great. As for Liam's normal lung functions, this is all pretty new for it has been all over the place. When he was first diagnosed his FVC was 95 and his FEV1 was 101, really good scores. Unfortunatly he got a URI on Christmas eve and It went down to 66 and 63. It took a few months to go up, but as of april it was back to 109 and 102.

The doctor really likes these numbers, and his sputum has only come back positive for staff and MRSA so nothing to bad there, yet. (wont know todays for a couple days though). He isn't happy that Liam's coughing seems to have increased and has put him on a Antibiotic for 2 weeks. He also wants to see Liam one more time before our trip, so we are piggy backing an appointment to his sister's appointment (has asthma) in August. Thing that is kind of scaring me is that he is talking about admiting him into the hospital if we can't get the coughing more in control. What he calls a "Tune up". My son has never been hospitilized, and though I know it is bound to happen with CF, it's still scary to hear. Though a hospilization to fix something before it becomes problematic is better than an ER visit.

Sorry to hear Liam LF dropped by that much but thats great he manged to get it right back up
Hope the antiboitics clear he's cough up, i don't know what the weathers like over there but here in the UK atm its all over the place it was crazy hot a couple of weeks ago and this usually makes alot of people with CF get a tight chest, coughing alot more etc, personally anyway my chest always plays up when the weather is hot & humid or really cold! It has cooled down a bit now though (which is kind of rubbish cause its meant to be summer )

I hope the hospital stay doesn't happen, but if it does try not to worry as you say it's bound to happen with CF sometimes and the sooner any problems with he's health are sorted the better. I don't really know how different the doctors are when it comes to CF over in the US and their ways for treating CF, but its quite common over here for people with CF to have hospital stays at least once a year just to make sure everythings as good as it should be and sort out any niggling prolems. I had hospital stays a couple of times a year when i was younger (about Liams age and younger) just so they could really concentrate on giving me all the treatments and regular pyhsio i may have needed, thankfully though my mum did alot of the treatments and home and i didn't need as many stays as others and I have now not been in hospital for 10 years, since i was 15 and had a portacath fitted.

Best wishes for Liam and hope he's cough calms down soon