Infant heart murmur

[The Mystery Machine]

Thanks so much for the information. I'm trying not to worry too much until we see the cardiologist on Thursday. I'm so thankful that we were able to get in so quickly. Our Ped told me that it make take longer to see this Dr, but it's who she really wanted us to see because he's great at explaining what's going on. I was shocked when we were able to get in this week.

Your baby will probably get an echocardiogram, an XRAY, and maybe blood work.

My dd who is turning 20 soon is going for an appt. with a congenital adult cardiologist in May. She has a checkup every so often. I generally do it at least once in 2yrs or sooner if she has an issue or needs a checkup.

Her pediatric cardiologist moved on, so we are switching over to an adult cardiologist.

While that seems simple, it is sad to leave the Children's Hospital where you have such comfort and faith with your kids.

Good Luck!

 

[skuttle]

Thanks! Sounds like Thursday will be more painful for me than Liam! Before we left the ped, they checked his blood pressure at both big toes and both arms. He didn't care for the stickers on his toes, bur the arm cuff didn't phase him.

 

[MickeyCrazedMom]

My DS was diagnosed at 1 month with a murmur. Actually didn't worry about it at all because I had one at birth also. Walking into the cardiologist office was the first time I got stressed, seeing little ones with montiors on and who obviously had bigger concerns than a murmur. Aidan was diagnosed with an Atrial Septal Defect (ASD), which is a small hole in his heart. They told me not to worry, it would probably close by itself and to come back when he was 2 and then 3. By 3 it had not closed, and I was told that it probably never would. He can play sports and has no concerns. The only thing that he will never be allowed to do is scuba dive.

We were told to come back in 5 years, just for a check. Hard for me to believe, but that 5 years is this month!!

 

[mickeyboat]

I had one as an infant and my parents were told it would close on its own. My mom started working for a cardiologist when I was a teen and she asked him to check it out. I had an echo and he didn't find anything.

Allison it sounds like you and your doctor have everything under control. Sending positive thoughts.

Denae

 

[Queen2PrincessG]

DS had his 1 month check up today and his Dr. heard a heart murmur. She referred us to a pediatric cardiologist. The appt. is on Thursday. She said she's not overly concerned and if she was she would have sent us immediately to the cardiologist. Instead, she gave us his name and told us to make an appointment.

I've of course googled this to no end and it seems pretty common and something that should hopefully correct itself over time. When I was talking to my mom about it she said I had one when I was a baby as well.

Anyone dealt with this and/or know what we can expect on Thursday? Thanks!

I had a heart murmur until I was 21. DD has a "Musical Heart" about 2 check ups ago. They ( Cardiologist) said it's nothing to worry about and they would look at her a 2yo. Don't worry it's nothing to worry about. I rowed, sailed, played hockey softball and Field Hockey.

 

[JVL1018]

My son had an atrial septal defect, which was found at his 1 year check up, by his ped.
He didn't say I think your son has a murmur, he said I think your son may have a hole in his heart..
It was a large hole(dime sized) and he had that closed via cardiac catheterization when he was 4.
He still has a murmur even though he no longer has a hole, so just because there is a murmur doesn't mean he has any heart defect. You can have a heart murmur without having a hole in your heart.

For the record, my son is perfectly healthy(he never had any issues even before his ASD repair anyway) and has absolutely no restrictions on anything due to having the murmur(or a repaired ASD). Can play all sports and all that stuff.
The murmur is a total non-issue.
Good luck!

 

[Bilberry]

You might ask the doctor to check for vitamin D3 levels. I've seen this cardiologist write about some of his patients murmurs being helped with this supplement.

http://www.heartscanblog.org/2011/02/formula-for-aortic-valve-disease.html

From the article:

I had a striking experience this past week. Don has coronary plaque and began the Track Your Plaque program. However, discovery of a murmur led to an echocardiogram that measured his effective aortic valve area at 1.5 cm2. (Normal is between 2.5-3.0 cm2.)

Because of his aortic valve issue, I suggested that, in addition to the 10,000 units of vitamin D required to increase his 25-hydroxy vitamin D level to 70 ng/ml, he also add vitamin K2, 1000 mcg per day, along with elimination of all calcium supplements. (I asked Don to use a K2 supplement that contained both forms, short-acting MK-4 and long-acting MK-7.)

One year later, another echocardiogram: aortic valve area 2.6 cm2--an incredible increase.

This is not supposed to happen. By conventional thinking, aortic valve stenosis can only get worse, never get better. But I've now witnessed this in approximately 10% of the people with aortic valve stenosis. The majority just stop getting worse, an occasional person gets worse, while a few, like Don, get better.