I'm freaking out just a little... **DOC UPDATE pg 5

[Joan S.]

Actually a little is a lot for me. My stomach is in knots.

Some of you may remember me posting about DDs dimple on her leg. It showed up recently out of nowhere. Never got any deeper, bigger, or changed in color. It bothered me - it was so odd looking, went deep into the muscle, but she never complained about it hurting. Talked to my ped's PA said she wasn't concerned and to keep an eye on it.

We finally got back to the doctor today and my pediatrician is very concerned. He said it was beyond his speciality, but said it looked a lot like scleroderma. He's going to consult with a dermotologist and give me a call in a day or two.

Well I had heard of it but couldn't place the symptoms in my head. Now I'm looking online and found a picture that looks just like DDs scar. Now I'm stressing out majorly. This is a huge disorder that's disfiguring.

Not sure if I need prayers, or hugs, or some reassurance. Thanks for letting me vent...

Prayers and for you and your DD. I also would get her in to see the dermatologist myself. Joan

 

[Crystal0608]

Big hugs to you and hope its nothing serious.

When my ds was a couple weeks old, I noticed a green bump on his lower back. I popped it and gook & blood came out and there was a hole the size of a pen tip. I freaked and brought him to the peds who in turn thought it may be spinal bifada and referred me to a specialist where it was two weeks until I could get an appt. I cried non stop for those two weeks. Well, he finally saw the specialist and got an MRI. Turns out it was a pilonidal cyst, which is much more minor and is rare in babies (sacral dimple)and I chose not to have surgery on it.
http://www.bing.com/health/article/mayo-118243/Pilonidal-cyst?q=pilonidal+cyst&FORM=K1RE

 

[happygirl]

Praying for you

 

[vettechick99]

Big hugs to you and hope its nothing serious.

When my ds was a couple weeks old, I noticed a green bump on his lower back. I popped it and gook & blood came out and there was a hole the size of a pen tip. I freaked and brought him to the peds who in turn thought it may be spinal bifada and referred me to a specialist where it was two weeks until I could get an appt. I cried non stop for those two weeks. Well, he finally saw the specialist and got an MRI. Turns out it was a pilonidal cyst, which is much more minor and is rare in babies (sacral dimple)and I chose not to have surgery on it.
http://www.bing.com/health/article/mayo-118243/Pilonidal-cyst?q=pilonidal+cyst&FORM=K1RE

Wow, I would have freaked out over that - seeing gook and blood! I'm so glad it was not spina bidada.

Thanks everyone for the prayers. I'm done looking online and will let you know when I hear from the ped.

 

[MelanieC]

((HUGS)) - Keeping her in my prayers and hoping it turns out to be nothing.

 

[ladycollector]

Prayers for you guys. I wanted to add that I had something similar happen to me a couple months after I got a steroid shot when I was sick. I thought I had a flesh eating disease but turns out its just a side effect of the shot... it was discolored and deep and really odd because there was no fat or muscle. It's been almost 2 years and it is FINALLY almost filled back in. Thought I'd mention it just in case =)

Prayers for your sweetie!

 

[golfgal]

I actually have scleroderma. There are two types with the one that affects your organs to be the much rarer of the two. If she had this type she would have many, many more symptoms. My dermatologist sent me to a rheumatologist who did some testing and confirmed it was scleroderma. He was not concerned at all and asked that I follow-up with him if it changes or I develop any other symptoms. All in all, he said it was nothing to worry about. I imagine, if your daughter does have scleroderma, she has the same type as me. Try not to worry.

My mom had scleroderma that affected her organs.

Allison--I hope the little peanut is fine and it is nothing.

 

[vettechick99]

Prayers for you guys. I wanted to add that I had something similar happen to me a couple months after I got a steroid shot when I was sick. I thought I had a flesh eating disease but turns out its just a side effect of the shot... it was discolored and deep and really odd because there was no fat or muscle. It's been almost 2 years and it is FINALLY almost filled back in. Thought I'd mention it just in case =)

Prayers for your sweetie!

That's what we intially thought it was. It's right in the spot she normally gets her shots. But the shot she had the month before was not in that exact spot. Her two-year shots were given 4 monts before this showed up. How long did it take for yours to show up?

 

[Mysteria]

Nothing to add that hasn't been said. Just want you know I'll be thinking about you guys and give you

 

[HeatherC]

Prayers and good thoughts being sent your way.

I, too, hate health concerns...especially when it concerns our children. But hang on to the thought that 99% of the time it is not what we imagine it to be and everything turns out well. The odds are in your favor!!! I'm thinking happy thoughts for you!!!

 

[golfgal]

Something else to mention to the dr-I know she has some pretty severe allergies--does she also have asthma? There is a possible connection with the allergies/asthma and autoimmune diseases.

 

[vettechick99]

Something else to mention to the dr-I know she has some pretty severe allergies--does she also have asthma? There is a possible connection with the allergies/asthma and autoimmune diseases.

She does have allergies. She is having an asthma/bronchitis episide right now actually. This is the first time having it, though. Anytime she gets real congested we do breathing treatments and that keeps everything at bay.

Her skin has always been a mess. She had a couple hemangiomas at birth, bruises easily (gets that from me), and that eczema was a killer to get treated. I guess we will see how this all pans out.

Thanks everyone! I'm starting to feel better. Will still need a Benadryl to sleep though.

 

[golfgal]

She does have allergies. She is having an asthma/bronchitis episide right now actually. This is the first time having it, though. Anytime she gets real congested we do breathing treatments and that keeps everything at bay.

Her skin has always been a mess. She had a couple hemangiomas at birth, bruises easily (gets that from me), and that eczema was a killer to get treated. I guess we will see how this all pans out.

Thanks everyone! I'm starting to feel better. Will still need a Benadryl to sleep though.

When you get your appointment with the specialist, ask your pediatrician to send over her records or get copies for you to take with. I don't know if this connection is something that is proven or not I just remember when my mom was in a study for her condition they asked all of us kids about our health, etc. and there were a lot of questions centered around allergies, asthma, eczema, diabetes--all thought to have a connection to autoimmune diseases.

 

[alliecats]

No advice or info here, just wanted to let you know I am praying for my precious 'niece.' Please let us know what the doctor says.

 

[disneypharm]

If it is localized Scleroderma or Morphea, I wouldn't worry too much about it.
When DD12 was almost 4 years old, she had couple of areas/lesions on her face that were hyperpigmented, and they looked similar to the picture you posted. After asking the pediatricians (who kept calling it dermatitis) several times, we finally were sent to a pediatric dermatologist. This doctor is a renowned pediatric specialist who has written several books on pediatric dermatology. After seeing DD, he immediately brought several other doctors to the room because her condition was so rare.
I was told that DD has Morphea, a disorder characterized by excessive collagen deposition causing thickening of the skin and underneath tissues. Majority of cases are on legs or back. Since it is a localized disease, it only affects the skin and tissues. No internal organs involvement. My DD's condition on her face was extremely rare. Because of the risk of facial deformity, she had to have two 30 minutes sessions of phototherapy every week at the clinic which was an hour away. She also used a prescription vitamin D cream on the area.
I tried to find out what caused the Morphea. After several months of research, I now believe that DD got the lesions from exposure to strong chemicals in her preschool pool. She got each lesion after 3 months of swimming every day in the preschool pool. Of course, we can't be sure!
She is doing good now. We still can see the hyperpigmented areas but she can easily cover them up with foundation. It really doesn't bother her.

 

[4nana]

Awww sweetie, sending big hugs, prayers and *pixie dust* for you and your little cute Avery that all will be fine . Please take good care of yourself and in times like this with so much going through your mind, try to lean on your faith.

Love your new siggie pix ~ Congratulations!!

 

[3prettyprincesses]

Oh, how frightening! Of course you're freaking out, this is your baby! I remember your post too about her little dimple. It seriously could be absolutley nothing to worry about. We had a health scare at my DD6's annual check-up when our pediatrician heard a 'weird' heart sound. I totally freaked, looked it up online and scared the living daylights out of myself. It turned out to be benign thank God! But until all her testing was done, I was convinced it was going to be something awful. Moms worry, it comes with the territory doesn't it? Please don't read about signs and symptoms online. If you look hard enough, you'd be able to diagnose yourself with something awful! Let the specialist examine her, do whatever tests they need and go from there. Like my DH says, don't put the cart before the horse. Which of course means don't start worrying about something that may not be. I'll be thinking about your little girl, she's adorable!

 

[OhMari]

Glad you are getting some answers.
Sometimes people make fun of the DIS,
for people worried about a medical condition and bringing it here.
But there are some really nice people on here, that will know something and they have always come through.

Prayers to you and your family and the new little one.

 

[krcit]

Sending prayers your way that it's nothing. I know it's easier said than done but try not to worry too much My friends dd has morphea and she is a lovely, normal little girl.

 

[mvazul]